This document discusses the journey of discovering and embracing one's identity while living with lupus. It describes attending a lupus support group where the advice was to plan for death, but realizing that was not necessary. Once flares were managed, a passion for advocacy emerged. This led to raising lupus awareness through social media, events with politicians, and embracing one's style regardless of health status. The message is about finding balance and understanding within one's body and sharing one's experience to help others.

1. w

2. From Flare to Flair:
a journey to discovering
@LAlupusLady
and
#LupusStyle

3. I am not always a “caped crusader”
sometimes, I wear a fuzzy robe.

4. I wasn’t always a “caped crusader”
for Lupus Awareness!

5. My life with Lupus…
1st Support Group said to plan your funeral.
Once I realized that I am not going to die, I had
to do something.
Once I learned to control and manage my flares,
I found my flair!

6. From Patient to Advocate

7. “Lupus Awareness is Fun!” with
Senator Boxer

8. “LA Lupus Lady” in DC!

9. In NYC “LA Lupus Lady”

10. Lupus Style w/ @TiffanyAndLupus

11. “LA Lupus Lady” the caped crusader!
On stage
at the LA
“Alliance
for Lupus
Research”
Walk!

12. I am a “Caped Crusader”
LA Lupus Lady
hits the street
with my side-
cat REX…

13. Fun #LupusStyle

14. What is “Lupus Style”?
Lupus Style is finding the balance and being
comfortable in your body.
Lupus Style is about accentuating the positive.
Lupus Style is being understanding with yourself
when your body is not cooperative.

15. Lupus Flare to Flair!
Sharing that passion is contagious but lupus is
not.
LUPUS ~ Let Us Promote Understanding &
Support.
Lupus Style is whether you are in PJs and a robe
or Karen Kane in Kansas City, embracing your
flair wherever you are.

16. Flying “like a Jet” with my cape on the
50 yard line!

17. Amanda Greene
@LAlupusLady on Twitter
LALupusLady.com
lalupuslady@gmail.com
“The future of
Lupus
Awareness is
so bright… I
have to wear
shades.”