How the progression of dementia in elderly patients affect the family relationships of informal carers in the UK Abstract The purpose of this research is to analyze the effects of dementia on informal carers' relationships with their loved ones. Understanding the demands placed on both the person with dementia and the person providing informal care is essential for meeting the needs of both parties. Many studies and institutions focus only on the needs of patients, rather than the needs of the informal carers. This study highlights the need and requirement of providing supplementary assistance to informal carers. The research analyzed and compared data from several sources in a systematic literature review to provide an answer to the question. The findings indicated that in order to prevent strained relationships with their loved ones, carers need additional knowledge on how to manage the sickness and the stress brought on by the weight of the illness. We hypothesize that Assistive Technology might be useful for lowering healthcare costs by improving access to specialists in areas such as diagnosis, medication, and mental health treatment, as well as easing the burden on primary care physicians. Case managers may also keep track of patients and help family members all along the care pathway: they do this by collecting and sharing information with the different health professionals involved, in this specific instance the informal caregivers. In order to meet the needs of families dealing with dementia, further study is needed to determine whether certain teaching strategies for informal care providers could be optimal.  Get your nursing assignment help today. Table of Contents Chapter 1: Introduction 4 References 5 Chapter 1: Introduction Background Dementia, as described by Duong et al. (2017), is a clinical illness characterized by gradual deterioration in cognitive abilities that eventually compromises an individual's capacity to carry out daily tasks without assistance. Dementia makes people more reliant on others, both emotionally and physically, as pointed out by Cunningham et al. (2015). According to Gale et al. (2018), primary neurologic, medical, and neuropsychiatric disorders all contribute to the development of dementia. Neurodegenerative dementias like Alzheimer disease and Lewy body dementia are very frequent among the elderly. According to the latest data, there were around 850,000 persons living with dementia in the UK in 2019. It was 1 in every 14 adults over the age of 65 (Alzheimer society, 2020). Introduction Alzheimer's disease and dementia are similar in that they both cause a slow but steady decline in mental capacity. Dementia patients' reliance on others for care grows as the disease progresses. As the frequency and intensity of symptoms rise, it becomes more difficult to go about everyday life and take part in social activities. Because of this, there may be instances when a person needs constant att ...

1. How the progression of dementia in elderly patients affect the
family relationships of informal carers in the UK
Abstract
The purpose of this research is to analyze the effects of
dementia on informal carers' relationships with their loved ones.
Understanding the demands placed on both the person with
dementia and the person providing informal care is essential for
meeting the needs of both parties. Many studies and institutions
focus only on the needs of patients, rather than the needs of the
informal carers. This study highlights the need and requirement
of providing supplementary assistance to informal carers. The
research analyzed and compared data from several sources in a
systematic literature review to provide an answer to the
question.
The findings indicated that in order to prevent strained
relationships with their loved ones, carers need additional
knowledge on how to manage the sickness and the stress
brought on by the weight of the illness. We hypothesize that
Assistive Technology might be useful for lowering healthcare
costs by improving access to specialists in areas such as
diagnosis, medication, and mental health treatment, as well as
easing the burden on primary care physicians. Case managers
may also keep track of patients and help family members all
along the care pathway: they do this by collecting and sharing
information with the different health professionals involved, in
this specific instance the informal caregivers. In order to meet
the needs of families dealing with dementia , further study is
needed to determine whether certain teaching strategies for
informal care providers could be optimal. Get your
nursing assignment
help today.

2. Table of Contents
Chapter 1: Introduction 4
References 5
Chapter 1: Introduction
Background
Dementia, as described by Duong et al. (2017), is a clinical
illness characterized by gradual deterioration in cognitive
abilities that eventually compromises an individual's capacity to
carry out daily tasks without assistance. Dementia makes people
more reliant on others, both emotionally and physically, as
pointed out by Cunningham et al. (2015). According to Gale et
al. (2018), primary neurologic, medical, and neuropsychiatric
disorders all contribute to the development of dementia.
Neurodegenerative dementias like Alzheimer disease and Lewy
body dementia are very frequent among the elderly. According
to the latest data, there were around 850,000 persons living with
dementia in the UK in 2019. It was 1 in every 14 adults over the
age of 65 (Alzheimer society, 2020).
Introduction
Alzheimer's disease and dementia are similar in that they both
cause a slow but steady decline in mental capacity. Dementia
patients' reliance on others for care grows as the disease
progresses. As the frequency and intensity of symptoms rise, it
becomes more difficult to go about everyday life and take part
in social activities. Because of this, there may be instances
when a person needs constant attention. Care may be required
for a long time since the sickness itself might last for years (on

3. average, seven) (Molsa et al., 1986).
Dementia rates are set to rise following the ageing of the world
population (Zwaanswijk et al., 2013). However, the supply of
medical experts is not likely to increase to cater for the needs of
an ageing population. Dementia patients will, therefore, rely
more and more on their informal carers which include relatives
and friends. While a person with dementia is admitted to a long-
term care facility, they will continue to get the same kind of
care they had when they were living at home (Turcotte, 2013).
When care is given regularly or for an extended length of time,
the emotional and physical health of the carer may suffer
(Turcotte, 2013). In particular, the length of time spent
providing care before to a loved one's admittance into a nursing
home was the most significant predictor of how much less of a
burden a loved one would feel thereafter. Caregiver sadness and
patient behavioral change ratings were the most important
factors in determining when and whether a person with
dementia will be institutionalized (Yeh et al., 2002). Caregiving
may seem more burdensome since it takes longer and there are
more people who need it.
The stress of caring for someone with dementia is compounded
by the fact that informal caregivers must adjust to the person's
condition and behavioral changes. Dementia is a degenerative
disease with an uncertain course, which presents significant
difficulties for informal carers. Caregivers reported a variety of
losses at various levels of the family and utilized a wide range
of strategies to deal with grief and keep the family unit
functioning (Coelho et al., 2007). The majority of carers report
receiving little to no informal assistance, are unfamiliar with
official services, and struggle to anticipate their loved one's
care requirements. Caregiver reports of inadequate preparation
to offer care. Therefore, it is crucial to provide assistance to
informal carers so as to improve their quality of life and
forestall severe caregiver stress. 'Alzheimer meeting locations

4. for patients and families' are only one example of the many
professional support services offered in the Netherlands and
elsewhere in Western Europe for those affected by Alzheimer's
disease (Bos, 2008). Despite this, many informal carers' support
requirements go unfulfilled because they either cannot access
the resources they need or believe that the professional care
they get is not adequately tailored to their specific situation
(Parveen, Peltier & Oyebode, 2017).
Role of informal carers in the care of older people:
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Negative outcomes are often linked to informal caring.
Caregiving has no harmful consequences at first [Metzelthin et
al., 2017]. However, the burden on caregivers grows as a result
of a number of factors [Metzelthin et al., 2017]. These include
the care recipient's increased morbidities and disability levels,
the length of time the caregiver spends providing care, the
number of tasks the caregiver must perform, the type of care
provided (in-home versus institutional), and the caregiver's
gender and age. Organizational factors (e.g., received
assistance), caregiver autonomy, and caregiving needs all have
a role in the quality of life of informal carers [Farina et al.,
2017]. In British, the average period spent caring for an older
relative is considered to be somewhere between two and eight
years [Emrich et al., 2012]. It might be a very lengthy period
with plenty of unexpected difficulties. It is possible that
organizational and structural factors, rather than emotional
motivations like a feeling of obligation, play a role in the
choice to offer informal care. For this reason, it is important for
decision-makers to have insight into the preferences, wants, and
desires of informal carers in order to design care structures that
are conducive to the lifestyles of all parties and that seamlessly
integrate care into the homes of (possible) caregivers.

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individuals may be more likely to care for a care-dependent
person informally if there are organizational and structural
changes that make day-to-day caregiving easier and if there are
incentives. Outpatient care structures could be improved by
making care arrangements fit the wants and needs of unpaid
caregivers about how care for the elderly is set up. Due to
population shifts, there are now more people in need of nursing
care due to their advanced age and weak condition. This
deterioration in health is followed by an all-encompassing
process of adjusting to new circumstances on the part of the
elderly and their loved ones. A preventative strategy to care
planning is required to satisfy the demand for the altered
service use and the load limit or breaking point for carers
[Klinidtworth et al., 2017]. However, understanding the
motivations of informal carers is crucial for taking their load
limit and prospective capabilities into consideration. As a
result, we conducted a literature review to learn more about the
wants and needs of informal caregivers. This study explores in
depth how the British people feels about caring for the elderly
and their expected willingness to do so. [De Jong et al., 2020].
Being a caretaker in an informal setting may be quite taxing.
Many people become caregivers without adequately preparing
for the responsibilities involved, and they may not have many
other options. This might be due to a moral or legal need to give
care, a lack of formal alternatives, or a lack of knowledge about
available options. Caregivers also incur substantial additional
expenses due to the intangible nature of informal caregiving.
These include the health effects of the physical and
psychological load endured and the potential costs of missed
wages, jobs, and pension benefits. Caregivers who do not get
sufficient assistance may experience financial hardship, health

6. problems, and feelings of loneliness as a result of providing
unpaid care. More than a thousand family caregivers from
around Europe were surveyed by COFACE Families Europe in
2017. The degree to which informal caregivers are impacted by
these difficulties varies according to factors such as the kind of
care regime in which they participate, the caregiver's life stage
when they take on this role, and the caregiver's access to
resources and decision-making power.
Research question as shown at
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Aims
objectives,
Caregiver perspectives on the benefits and drawbacks of their
work, as well as the factors that contribute to a favourable or
bad experience in their interactions with patients' families, will
be included in a comprehensive study.
Role conflict theory in care giving
Stephens and Franks's (1999) conflicting demands hypothesis
and Goode's (1960) scarcity model of role theory is both based
on the idea that individuals have scarce time and energy to do
all of their duties. Role conflict occurs when distinct positions
have conflicting demands, while role strain occurs when people
feel burdened, exhausted, or tense as a consequence of juggling
all of their responsibilities. Role conflict arises, according to
scarcity theory, when the responsibilities of one role (such as
job) interfere with those of another (such as caring for an
elderly loved one). A woman who is both a full-time employee
and a caregiver for an elderly family member has a lot on her
plate. As a result, she may experience role conflict, in which
she must choose between her numerous duties, and role

7. overload, in which she is unable to fulfill all of her tasks. The
focus of this work is on the relationship between CIW and WIC
and role strain, in this instance, caregiving burden and job
stress, even though both role overload and role conflict
contribute to role strain (Cooper et al., 2001).. Role tension, or
role strain, was identified by MacEwen and Barling (1991) as a
result of juggling paid employment outside the house with the
responsibility of caring for young children. Because of the
unpredictable nature of having to care for an elderly loved one,
the fact that these responsibilities often arise out of the blue and
without warning, that they often grow in complexity and scope
over time, and that they are often triggered by unexpected
events like a health crisis, working with and caring for the
elderly can be a very demanding experience. Consistent with the
hypothesis that role conflict causes role strain This research
adds significantly to the existing body of knowledge in three
key ways as suggested at
nursing expert writers
.
The findings of the study by Gordon et al. (2012) indicate
evidence for two separate variables, WIC and CIW, each with
its own set of antecedents and outcomes, lending credence to a
bidirectional perspective of work–caregiving conflict. Overall,
the findings indicate that older working women face stress due
to the dual obligations of caring and employment. The demands
of the workplace are a significant factor in determining whether
or not caring interferes with work (CIW) or the caregiving
burden (WIC) or the work load (WB). However, the effects of
caring obligations are confined to the domestic sphere (Gordon
et al., 2012). Together, these pressures cause older working
women a great deal of stress and tension between their careers
and their caring responsibilities. These findings contribute to
the research on the challenges that older women face in
caregiving and the workforce.

8. Workplace pressures have far-reaching impacts (Glasgow &
Zoucha, 2011) that affect not just job role strain but also
caregiving role strain. When caring obligations expand, older
women may see their work as more fundamental to their
identity, which may have a negative effect on other areas of
their lives and lead to difficult mental and behavioral shi fts.
Findings from a 2012 study by Gordon et al. demonstrate the
value of social support in alleviating stress for older women
who are also caregivers in and out of the workplace. Given the
negative correlations between instrumental support for
caregivers and load, and between emotional support at work and
stress, it is clear that social support is essential for mitigating
these undesirable results. There may be some overlap between
the degree of help employees receive at work and how much
work they really have to complete, as shown by Gordon et al.
(2012)'s concept of work-interfering-with-caregiving (WIC).
For caregivers, it is tremendously beneficial to have aid in both
the professional and family realms. See
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Caregiver stress is strongly correlated with the length of caring
and the degree of patient dependence. Care load is also based on
the patient's reliance degree, which is influenced by their
cognitive and behavioral impairme nts. The trajectory of a
particular disease's treatment and the social support
requirements of both the patient and the caregiver ought to be
taken into account when designing interventions to alleviate
burden. Changing gender norms so that males take on more
responsibility around the home might ease the heavy load
women carry.