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How developers can help
save lives managing Asthma
Digital Health & Care Alliance
Thursday 6th October 2016
Joseph Clift, Senior Policy Officer at Asthma UK
 Challenges facing asthma
 Tech enabled asthma management
 What asthma tech is emerging?
 What Asthma UK would like to see
Outline
Asthma UK: what we do
Challenges in asthma
• Asthma is a long-term condition – long term self-
management is key to stopping asthma attacks
• Asthma changes by day, by season and over the
course of a lifetime
• New experiences can change people’s beliefs
e.g new drug, new HCP, asthma attack
• Two-thirds of asthma deaths still occur that are
preventable
• Motivational barriers remain major hurdles to
self-management – including complacency
• Outcomes have plateaued
Use of medication variable
Prevalence rising globally
Asthma – well-placed for
digital solutions
• Clearly identified failings in care from
National Review of Asthma Deaths
• Strong research evidence on self-
management
• But, self-management is tough – a complex,
multistep process, where people need to be
able to recognise triggers and worsening
symptoms
• Paper-based action plans clearly need
updating to 2016
Trends in consumer health tech
Investment in mHealth
Tech-enabled
asthma management
Smart inhalers
A number of innovators competing globally:
• CareTRx
• Propeller Health
• Adherium
• Cohero Health
Great potential to improve
adherence, improve inhaler
technique, and provide a rich
pool of data
Adherium
• In 220 children,
adherence to
preventative medication
by 180% and reduced
use of reliever
medication by 45%.
Smart inhalers
Propeller
• On average, over 50% of
patients with
uncontrolled asthma
achieve controlled
status within 1 year.
• daily reliever use on
average is reduced
by 79% after 1 year.
Health apps
Health apps could:
• Act as a living asthma action plan
• Help track a person’s asthma
• Provide personalised advice and support
Health apps
Apple ResearchKit –
Asthma Health app
• Tracks symptoms
• Reviews trends
• Personalised medication
reminders
• Links data to patient
records
Plume Air Report app –
air quality monitoring
• uses data on nitrogen
dioxide, ozone and
carbon monoxide at
11,000 stations in 30
countries.
• rates the risk to health
using a colour-coded
system.
Remote monitoring
Automated Device for Asthma Monitoring and
Management (ADAMM)
• wearable sensor in the form of a patch
• designed to count coughs and measure
respiration & wheeze, using predetermined
algorithms of symptom sounds
Monitoring devices could:
• Help recognise worsening control
• Provide automated data to HCPs
• Enable preventative action to be
taken by HCPs
Innovative systems and data
• Focus on pooling data to help stratify asthma
population
• Dell Statistica working on linking health
records, air quality, pollen counts, to identify
people at risk of an asthma attack
What do people with
asthma want to see?
• Asthma UK supporting EU-funded
myAirCoach, which aims to develop a
personalised asthma monitoring system
• We facilitated a number of panels
that asked people with asthma
about what they would value from
new tech to help manage their
asthma
User needs for mHealth system
Key recommendations
1. Plenty exists that could be deployed (e.g.
digital asthma action plans, prescribing alerts)
and these should quickly implemented
2. More investment is needed to design new user-
centred tech, conducive to interoperability
3. Better systems to test and adopt innovations
are needed (esp. smart inhalers)
How developers can help
 Build on what’s already been done
 Engage patients at an early stage, and tailor
innovations accordingly
 Work with us: www.asthma.org.uk/asthmalab
How Asthma UK aims to help
Questions
• Contact Joe at
jclift@asthma.org.uk
• Engage with our Asthma
Lab at
asthmalab@asthma.org.uk

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How developers can help save lives managing Asthma

  • 1. How developers can help save lives managing Asthma Digital Health & Care Alliance Thursday 6th October 2016 Joseph Clift, Senior Policy Officer at Asthma UK
  • 2.  Challenges facing asthma  Tech enabled asthma management  What asthma tech is emerging?  What Asthma UK would like to see Outline
  • 4. Challenges in asthma • Asthma is a long-term condition – long term self- management is key to stopping asthma attacks • Asthma changes by day, by season and over the course of a lifetime • New experiences can change people’s beliefs e.g new drug, new HCP, asthma attack • Two-thirds of asthma deaths still occur that are preventable • Motivational barriers remain major hurdles to self-management – including complacency • Outcomes have plateaued
  • 5. Use of medication variable
  • 6.
  • 8. Asthma – well-placed for digital solutions • Clearly identified failings in care from National Review of Asthma Deaths • Strong research evidence on self- management • But, self-management is tough – a complex, multistep process, where people need to be able to recognise triggers and worsening symptoms • Paper-based action plans clearly need updating to 2016
  • 9. Trends in consumer health tech
  • 12. Smart inhalers A number of innovators competing globally: • CareTRx • Propeller Health • Adherium • Cohero Health Great potential to improve adherence, improve inhaler technique, and provide a rich pool of data
  • 13. Adherium • In 220 children, adherence to preventative medication by 180% and reduced use of reliever medication by 45%. Smart inhalers Propeller • On average, over 50% of patients with uncontrolled asthma achieve controlled status within 1 year. • daily reliever use on average is reduced by 79% after 1 year.
  • 14. Health apps Health apps could: • Act as a living asthma action plan • Help track a person’s asthma • Provide personalised advice and support
  • 15. Health apps Apple ResearchKit – Asthma Health app • Tracks symptoms • Reviews trends • Personalised medication reminders • Links data to patient records Plume Air Report app – air quality monitoring • uses data on nitrogen dioxide, ozone and carbon monoxide at 11,000 stations in 30 countries. • rates the risk to health using a colour-coded system.
  • 16. Remote monitoring Automated Device for Asthma Monitoring and Management (ADAMM) • wearable sensor in the form of a patch • designed to count coughs and measure respiration & wheeze, using predetermined algorithms of symptom sounds Monitoring devices could: • Help recognise worsening control • Provide automated data to HCPs • Enable preventative action to be taken by HCPs
  • 17. Innovative systems and data • Focus on pooling data to help stratify asthma population • Dell Statistica working on linking health records, air quality, pollen counts, to identify people at risk of an asthma attack
  • 18. What do people with asthma want to see? • Asthma UK supporting EU-funded myAirCoach, which aims to develop a personalised asthma monitoring system • We facilitated a number of panels that asked people with asthma about what they would value from new tech to help manage their asthma
  • 19. User needs for mHealth system
  • 20. Key recommendations 1. Plenty exists that could be deployed (e.g. digital asthma action plans, prescribing alerts) and these should quickly implemented 2. More investment is needed to design new user- centred tech, conducive to interoperability 3. Better systems to test and adopt innovations are needed (esp. smart inhalers)
  • 21. How developers can help  Build on what’s already been done  Engage patients at an early stage, and tailor innovations accordingly  Work with us: www.asthma.org.uk/asthmalab
  • 22. How Asthma UK aims to help
  • 23. Questions • Contact Joe at jclift@asthma.org.uk • Engage with our Asthma Lab at asthmalab@asthma.org.uk

Editor's Notes

  1. Large, complex, growing health challenge Episodic – severity and risk of attack can vary day by day, season by season and across someone’s lifetime Asthma medication needs to be delivered variably to manage an individual’s asthma ‘pattern’ and respond to specific triggers Sheer variety of inhalers, with their own dosage and technique, mean that just getting right treatment delivered at the right time is difficult 60 years since introduced of the pressurised metered dose inhaler
  2. PRISMS – practical systematic review of self-management support for long-term conditions http://www.journalslibrary.nihr.ac.uk/hsdr/volume-2/issue-53
  3. Smart inhaler market is anticipated to reach a value of USD 3.56 billion by 2024 (Grand View Research 2016)
  4. A randomised controlled trial of 220 children has shown that use of Adherium’s Smartinhaler™ audio-visual platform improved adherence to preventative medication by 180% and reduced use of reliever medication by 45%. Propeller has been studied in 12 clinical studies totalling over 1,200 patients, and has been deployed in over 35 commercial programs across the US to date. On average, over 50% of patients with uncontrolled asthma achieve controlled status within one year of starting on Propeller and daily reliever use on average is reduced by 79% after 1 year.
  5. The app enables a user to track their asthma symptoms, review trends, giving them feedback on their progress, and provides personalised reminders to take their prescribed medications. All of the information collected on the app can be shared with healthcare professionals, and the app’s developers are planning to link the data with Electronic Health Records and genetic data provide through 23andMe. The study was extended to include users in the UK in 2016, and the data collected could help to provide new insights into asthma research
  6. The European Commission through its Horizon 2020 programme is funding myAirCoach, a pioneering research project worth €4.6m. The project aims to develop a holistic, personalised asthma monitoring system, which will help patients to self-manage and increase their awareness of their clinical and environmental state. It will also create a new and more comprehensive dataset of the biological state of people’s asthma on a day-to-day basis. This can then be examined by researchers who are aiming to discover whether asthma exacerbations can be predicted (and treated) at an earlier stage. The project began in January 2015 and will run through to December 2017. Asthma UK is supporting this project by making sure the views and needs of people with asthma are driving the development of the system.
  7. Full data on user-requirements/use cases in deliverable 1.2 at http://www.myaircoach.eu/myaircoach/public-deliverables
  8. Asthma Innovation Lab Manager role closes October 9th