Wendy Smith is the director and trustee of an independent, not-for-profit organization registered since 2011 that is seeking charity status. The organization recognizes Henoch Schonlein Purpura as a rare autoimmune blood disease affecting the skin, blood, kidneys, joints, and sometimes eyes that causes fatigue, initially affecting mostly children but also affecting adults. The organization started globally, has members from different countries, has played a major part in change while working with other related organizations, and has its own website.

1. Wendy Smith
Director/Trustee
Registered 07860963

2. WHO WE ARE
Independant
registered
Not for profit
Organization

3. Seeking Charity
Status
Global
Formal since 2011
Previous small

4. What is Henoch
Schonlein
Purpura?

5. •Rare Blood Disease
•Classified as Auto Immune
rare disease
•Related to Vasculitis Family
•One of a group affecting skin,
blood, kidneys, joints,
sometimes complications May
affect eyes, causes fatigue

6. Who does it
affect?
Initially starts Children
mostly
Adults suffer

7. HOW WE
STARTED

8. Recognised Globally
Have members from different countries
Played a major part in change
Working other related organisations
Have our own Website