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Health IT and the Evolution of Health
Services Research

 2nd Annual Workshop on HIT and Economics

                                 Michael E. Gluck, PhD, MPP
                                            October 21, 2011
Overview

 What is AcademyHealth? What is health
  services research (HSR)?
 The current policy backdrop for HSR

 HIT’s role in HSR




2
AcademyHealth’s Mission
As the professional society for health services researchers
and health policy analysts, AcademyHealth:

   Supports the development of
    health services research

   Facilitates the use of the best
    available research and
    information by decision-makers

   Assists health policy and
    practice leaders in addressing
    major health challenges

  3
In Other Words…
We help build the knowledge base
               and
  move knowledge into action
through programs and services for
producers and users of research.


 4
What is Health Services Research?

   A multidisciplinary field of scientific investigation that
    – examines how social factors, financing systems,
      organizational structures and processes, health
      technologies, and personal behaviors
    – affect access to health care, the quality and cost of
      health care, and ultimately our health and well-
      being
    – by studying individuals, families, organizations,
      institutions, communities, and populations.

                                     --AcademyHealth, June 2000
Health Services Research
 What works?
 For whom?

 At what cost?

 Under what circumstances?
The Current Policy Backdrop for HSR
   HITECH
   Comparative effectiveness research (CER)
    – Health care services and its delivery
    – ARRA funding: $1.1 billion
    – Patient Centered Outcomes Research Institute (PCORI): $500
      million/year by 2015 from trust fund
   The Patient Protection and Affordable Care Act (ACA)
    – Coverage expansion
    – Delivery system transformation with significant reliance on HIT
   Focus on the Triple Aim:
    – Improved care experience
    – Improved population health
    – Cost containment



7
HSR Generates Knowledge
           About HIT

 the diffusion and uptake of HIT
 the optimal use and implementation of HIT

 impact on care delivery




 8
HIT Changes How HSR
      Generates Knowledge
 New sources and types of data
 Data that is more timely & proximate to

  care
 New research infrastructures

 New professional opportunities for

  researchers
 New challenges


9
HIT Provides New Sources and
             Types of Data for HSR

    Traditional data for HSR – surveys and claims
    Emerging data for HSR
      – Electronic health records & registries --
        clinically rich & statistically more powerful
      – Patient/population contributed data –
        biomonitored, crowd-sourced, & self-
        reported



10
HIT Provides Data for HSR That Is More
      Timely and Proximate to Care

    More seamless integration of data for
     research, operations, and patient care.
    More seamless integration of the research,
     operational, patient care workforces and
     processes.
    Opportunity for iterative, learning health care
     system



11
HIT Generates New Infrastructure and
Professional Opportunities for Researchers
    New research and data networks
     – HMO Research Network (HMORN)
     – Clinical & Translational Science Awards (CTSA)
       consortium
     – AcademyHealth’s EDM Forum
     – FDA’s distributed Sentinel network
    Research collaborations between academics
     and health care delivery organizations.
    Delivery system employment of health
     services researchers

12
HIT Presents New Challenges
                for HSR: Some Examples
    Analytic Methods
      – Analyzing patient/population contributed & other new data
      – Managing research teams across dispersed data networks
    Informatics
      – Data exchange
      – Variations in use of EHR fields across sources
      – Implications of cloud computing
    Data governance
      – HIPAA and other privacy concerns
      – IRBs and human subjects concerns
      – Is it research? Operations? QI?
    Research workforce
      – Conflicts with academic incentives and norms
      – Training needs

13
AcademyHealth Is Helping Prepare
         the Field for HIT-Enriched HSR
   Programs and projects
    –   Electronic Data Methods (EDM) Forum
    –   HIT for Actionable Knowledge project
    –   Beacon Evidence and Innovation Network
    –   Multi-Payer Claims Database
    –   REACH Challenge
    –   Professional development offerings


   More information?
    – www.academyhealth.org
    – michael.gluck@academyhealth.org

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Health IT and the Evolution of Health Services Research

  • 1. Health IT and the Evolution of Health Services Research 2nd Annual Workshop on HIT and Economics Michael E. Gluck, PhD, MPP October 21, 2011
  • 2. Overview  What is AcademyHealth? What is health services research (HSR)?  The current policy backdrop for HSR  HIT’s role in HSR 2
  • 3. AcademyHealth’s Mission As the professional society for health services researchers and health policy analysts, AcademyHealth:  Supports the development of health services research  Facilitates the use of the best available research and information by decision-makers  Assists health policy and practice leaders in addressing major health challenges 3
  • 4. In Other Words… We help build the knowledge base and move knowledge into action through programs and services for producers and users of research. 4
  • 5. What is Health Services Research?  A multidisciplinary field of scientific investigation that – examines how social factors, financing systems, organizational structures and processes, health technologies, and personal behaviors – affect access to health care, the quality and cost of health care, and ultimately our health and well- being – by studying individuals, families, organizations, institutions, communities, and populations. --AcademyHealth, June 2000
  • 6. Health Services Research  What works?  For whom?  At what cost?  Under what circumstances?
  • 7. The Current Policy Backdrop for HSR  HITECH  Comparative effectiveness research (CER) – Health care services and its delivery – ARRA funding: $1.1 billion – Patient Centered Outcomes Research Institute (PCORI): $500 million/year by 2015 from trust fund  The Patient Protection and Affordable Care Act (ACA) – Coverage expansion – Delivery system transformation with significant reliance on HIT  Focus on the Triple Aim: – Improved care experience – Improved population health – Cost containment 7
  • 8. HSR Generates Knowledge About HIT  the diffusion and uptake of HIT  the optimal use and implementation of HIT  impact on care delivery 8
  • 9. HIT Changes How HSR Generates Knowledge  New sources and types of data  Data that is more timely & proximate to care  New research infrastructures  New professional opportunities for researchers  New challenges 9
  • 10. HIT Provides New Sources and Types of Data for HSR  Traditional data for HSR – surveys and claims  Emerging data for HSR – Electronic health records & registries -- clinically rich & statistically more powerful – Patient/population contributed data – biomonitored, crowd-sourced, & self- reported 10
  • 11. HIT Provides Data for HSR That Is More Timely and Proximate to Care  More seamless integration of data for research, operations, and patient care.  More seamless integration of the research, operational, patient care workforces and processes.  Opportunity for iterative, learning health care system 11
  • 12. HIT Generates New Infrastructure and Professional Opportunities for Researchers  New research and data networks – HMO Research Network (HMORN) – Clinical & Translational Science Awards (CTSA) consortium – AcademyHealth’s EDM Forum – FDA’s distributed Sentinel network  Research collaborations between academics and health care delivery organizations.  Delivery system employment of health services researchers 12
  • 13. HIT Presents New Challenges for HSR: Some Examples  Analytic Methods – Analyzing patient/population contributed & other new data – Managing research teams across dispersed data networks  Informatics – Data exchange – Variations in use of EHR fields across sources – Implications of cloud computing  Data governance – HIPAA and other privacy concerns – IRBs and human subjects concerns – Is it research? Operations? QI?  Research workforce – Conflicts with academic incentives and norms – Training needs 13
  • 14. AcademyHealth Is Helping Prepare the Field for HIT-Enriched HSR  Programs and projects – Electronic Data Methods (EDM) Forum – HIT for Actionable Knowledge project – Beacon Evidence and Innovation Network – Multi-Payer Claims Database – REACH Challenge – Professional development offerings  More information? – www.academyhealth.org – michael.gluck@academyhealth.org