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Current and future scientific agenda
       of the EuroQol Group
                  Professor Nancy J Devlin
                Office of Health Economics
        Chair, EuroQol Group Executive Committee
          2012 EuroQol Group Scientific Plenary
                   13-14 September 2012
• New products – and challenges for valuation
   • EQ-5D-5L…e.g complexity/differentiating between dimensions
   • EQ-5D-Y…e.g what perspective?
   • EQ-5D + bolt ons…e.g interactions with core dimensions
• Expanded the set of valuation methods (DCE + duration; revised
  forms of TTO; etc)
   • What is the ‘best’ method (or combination)?
   • What criteria do we use to judge that?
   • How best to model the data?
• Much of our focus has been on meeting the demands of economic
  evaluation
   • Need to develop methods relating to other applications e.g PROMs
   • Potential to use EQ-5D outside health and health care?
So…

• A vast, exciting research agenda to pursue
• A substantial budget at our disposal

…but research proposals received by the
Executive are falling…!
Working Groups
Value Sets
                       P Krabbe (chair); F de Charro; N Devlin

                       B van Hout & L Lamers (co-chairs); J Brazier; L
Valuation
                       Longworth (bolt ons); W Greiner (EQ-5D-Y);
Methodology
                       Krabbe/deCharro (value sets)

EuroQol Data Archive   S Pickard (chair); E Lubetkin; C Wilke

EQ-5D in Children      W Greiner (chair); M Herdman; U Ravens-Seiberer

EQ-5D in PROMs and     J Johnson; P Kind; N Devlin; J Cabases
Pops
EQ-5D beyond health    L Lamers (chair); A Tsuchiya; E Stolk
care
The Working Groups will
 - Establish and drive our research agenda in each area
 - And actively reach out to all EuroQol Group members, to
       (a) seek input and additional expert advice
       (b) promote opportunities for undertaking research
Working group   Objectives                         Expected
                                                   time span
1. Value sets   1.To stimulate interest in         2 years
                producing EQ-5D (3L and 5L)        (with annual
                value sets across the world        review
                                                   against
                b. To advise and liaise with local
                                                   objectives)
                researchers and data collection
                agencies in undertaking value
                set research using our
                valuation protocol/EQ-VT

                c. To certify value sets that
                follow our protocol and meet
                data quality/scientific
                standards.
Working group   Objectives                   Expected time span

2.Valuation     a. To promote               3 years (with annual
methodology     methodological research to review against
                develop and test innovative objectives)
                valuation methods for
                future protocols.

                b. To develop a conceptual
                foundation and methods for
                valuing bolt ons
                c. To develop a conceptual
                foundation and methods
                for valuing EQ-5D-Y
Working group             Objectives                     Expected time span
3. EuroQol Data Archive   a. Develop a policy for        6 months
(EQ-DA)                   accessing and using the        (then review to re-set
                          data archive.                  objectives)



                          b. Identify options for
                          developing and actively
                          promoting the data archive
                          as a unique scientific asset
                          for the EuroQol Group.
Working group   Objectives                                          Expected time
                                                                    span
4. EQ-5D in     a. Building on the work of the Youth Taskforce,     1 year (then
children        to develop EQ-5D instruments suitable for use       review progress
                in children of various age ranges                   and re-set
                                                                    objectives)
                b. To develop and test a 5L version of the EQ-
                5D-Y
                c. To promote research to explore the validity of
                the EQ-5D-Y as a measure of health status in
                children
                d. To work closely with Working Group on
                Valuation Methodology in developing a work
                programme for the valuation of EQ-5D-Y states.
Working group       Objectives                              Expected time
                                                            span
5. EQ-5D in PROMs   a. To stimulate interest in routine use 1 year (then
and pops            of EQ-5D in health care systems and review and re-set
                    patient registries                      objectives)
                    b. To undertake methodological
                    research relating to the use of EQ-5D
                    in measuring provider/health system
                    performance on outcomes and
                    technical efficiency.

                    c. To identify and lead on research
                    issues arising from use of EQ-5D in
                    PROMs or population health surveys
Working group Objectives                                      Expected time
                                                              span
6. EQ-5D      a. To explore the use of EQ-5D as a measure     1 year (then
beyond health of outcomes in interventions outside the        review and re-set
care          health care sector eg. social care; housing;    objectives)
              residential care; impacts on carers

                b. To ensure the EuroQol Group develops the
                knowledge and evidence required to
                respond to challenges arising from other
                measurement approaches e.g. capabilities;
                subjective wellbeing
• The WGs give priority to some areas of work –
  but do not limit what can be done –
  innovative research proposals always
  welcomed.

• What issues have come up in the plenary that
  – WGs should address?
  – would be interesting to pursue, even if not part of
    the WG’s remit?

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EuroQol Scientific Agenda Sept2012 Devlin

  • 1. Current and future scientific agenda of the EuroQol Group Professor Nancy J Devlin Office of Health Economics Chair, EuroQol Group Executive Committee 2012 EuroQol Group Scientific Plenary 13-14 September 2012
  • 2. • New products – and challenges for valuation • EQ-5D-5L…e.g complexity/differentiating between dimensions • EQ-5D-Y…e.g what perspective? • EQ-5D + bolt ons…e.g interactions with core dimensions • Expanded the set of valuation methods (DCE + duration; revised forms of TTO; etc) • What is the ‘best’ method (or combination)? • What criteria do we use to judge that? • How best to model the data? • Much of our focus has been on meeting the demands of economic evaluation • Need to develop methods relating to other applications e.g PROMs • Potential to use EQ-5D outside health and health care?
  • 3. So… • A vast, exciting research agenda to pursue • A substantial budget at our disposal …but research proposals received by the Executive are falling…!
  • 4. Working Groups Value Sets P Krabbe (chair); F de Charro; N Devlin B van Hout & L Lamers (co-chairs); J Brazier; L Valuation Longworth (bolt ons); W Greiner (EQ-5D-Y); Methodology Krabbe/deCharro (value sets) EuroQol Data Archive S Pickard (chair); E Lubetkin; C Wilke EQ-5D in Children W Greiner (chair); M Herdman; U Ravens-Seiberer EQ-5D in PROMs and J Johnson; P Kind; N Devlin; J Cabases Pops EQ-5D beyond health L Lamers (chair); A Tsuchiya; E Stolk care
  • 5. The Working Groups will - Establish and drive our research agenda in each area - And actively reach out to all EuroQol Group members, to (a) seek input and additional expert advice (b) promote opportunities for undertaking research
  • 6. Working group Objectives Expected time span 1. Value sets 1.To stimulate interest in 2 years producing EQ-5D (3L and 5L) (with annual value sets across the world review against b. To advise and liaise with local objectives) researchers and data collection agencies in undertaking value set research using our valuation protocol/EQ-VT c. To certify value sets that follow our protocol and meet data quality/scientific standards.
  • 7. Working group Objectives Expected time span 2.Valuation a. To promote 3 years (with annual methodology methodological research to review against develop and test innovative objectives) valuation methods for future protocols. b. To develop a conceptual foundation and methods for valuing bolt ons c. To develop a conceptual foundation and methods for valuing EQ-5D-Y
  • 8. Working group Objectives Expected time span 3. EuroQol Data Archive a. Develop a policy for 6 months (EQ-DA) accessing and using the (then review to re-set data archive. objectives) b. Identify options for developing and actively promoting the data archive as a unique scientific asset for the EuroQol Group.
  • 9. Working group Objectives Expected time span 4. EQ-5D in a. Building on the work of the Youth Taskforce, 1 year (then children to develop EQ-5D instruments suitable for use review progress in children of various age ranges and re-set objectives) b. To develop and test a 5L version of the EQ- 5D-Y c. To promote research to explore the validity of the EQ-5D-Y as a measure of health status in children d. To work closely with Working Group on Valuation Methodology in developing a work programme for the valuation of EQ-5D-Y states.
  • 10. Working group Objectives Expected time span 5. EQ-5D in PROMs a. To stimulate interest in routine use 1 year (then and pops of EQ-5D in health care systems and review and re-set patient registries objectives) b. To undertake methodological research relating to the use of EQ-5D in measuring provider/health system performance on outcomes and technical efficiency. c. To identify and lead on research issues arising from use of EQ-5D in PROMs or population health surveys
  • 11. Working group Objectives Expected time span 6. EQ-5D a. To explore the use of EQ-5D as a measure 1 year (then beyond health of outcomes in interventions outside the review and re-set care health care sector eg. social care; housing; objectives) residential care; impacts on carers b. To ensure the EuroQol Group develops the knowledge and evidence required to respond to challenges arising from other measurement approaches e.g. capabilities; subjective wellbeing
  • 12. • The WGs give priority to some areas of work – but do not limit what can be done – innovative research proposals always welcomed. • What issues have come up in the plenary that – WGs should address? – would be interesting to pursue, even if not part of the WG’s remit?