NCompass Live - March 27, 2019
http://nlc.nebraska.gov/ncompasslive/
The National Network of Libraries of Medicine's mission is to advance the progress of medicine and improve public health through access to health information. NNLM Outreach and Technology Coordinator, Alicia Lillich, will present resources on general health, drug information, and environmental health to increase awareness and support outreach in your library.
Presenter: Alicia Lillich, Kansas Outreach and Technology Coordinator, National Network of Libraries of Medicine (NNLM), MidContinental Region (MCR), A.R. Dykes Library, University of Kansas Medical Center.
This presentation was delivered as part of a seminar to the Child Health Evaluative Sciences (CHES) Research Group, based at The Hospital for Sick Children (SickKids) in Toronto, ON, Canada. The presentation focused on the importance and some of the practicalities of involving young people in research.
Tell me and I forget, teach me and I remember, involve me and I learnSimon R. Stones
This presentation was delivered at the Glasgow Caledonian University School of Health and Life Sciences Research Seminar, to help inform the group who are currently developing their strategy for patient and public involvement and engagement.
Paving the way for a brighter future: Opportunities to involve young people ...Simon R. Stones
A presentation delivered at The University of Manchester's Child Health Research Network's workshop on devolution in Greater Manchester. The aim of the overall workshop was to explore the implications and opportunities for child health and wellbeing research in Greater Manchester. Here, I discussed the importance of involving young people and their families in co-designing services and research.
In the driving seat: Health care and research led for, and by young peopleSimon R. Stones
This seminar was delivered as part of the University of Central Lancashire (UCLAN) Centre for Children and Young People’s Participation Seminar Series.
I hope you find this issue to be informative and helpful in your work. Please send me any information you’d like posted in upcoming issues.
The embedded links may not work in SlideShare, so please feel free to email me for a copy at DrChrisStout@gmail.com to be added to our email list.
You can join our Facebook Group and interact with over 1200 likeminded individuals at:
https://www.facebook.com/groups/CenterForGlobalInitiatives/
Any recommendations to improve this communique would be most appreciated!
And if you’d like to support the Center’s work with a tax deductible donation, that would be fantastic(!) and do a great deal: http://centerforglobalinitiatives.org/donateNow.cfm
Cheers, and thank you for your work,
Chris
I hope you have found this issue to be informative and helpful in your work. Please send me any information you'd like posted in upcoming issues.
Any recommendations to improve this communique would be most appreciated!
And if you’d like to support the Center’s work with a tax deductible donation, that would be fantastic and do a great deal: http://centerforglobalinitiatives.org/donateNow.cfm
Cheers, and thank you for your work,
Chris
NCompass Live - March 27, 2019
http://nlc.nebraska.gov/ncompasslive/
The National Network of Libraries of Medicine's mission is to advance the progress of medicine and improve public health through access to health information. NNLM Outreach and Technology Coordinator, Alicia Lillich, will present resources on general health, drug information, and environmental health to increase awareness and support outreach in your library.
Presenter: Alicia Lillich, Kansas Outreach and Technology Coordinator, National Network of Libraries of Medicine (NNLM), MidContinental Region (MCR), A.R. Dykes Library, University of Kansas Medical Center.
This presentation was delivered as part of a seminar to the Child Health Evaluative Sciences (CHES) Research Group, based at The Hospital for Sick Children (SickKids) in Toronto, ON, Canada. The presentation focused on the importance and some of the practicalities of involving young people in research.
Tell me and I forget, teach me and I remember, involve me and I learnSimon R. Stones
This presentation was delivered at the Glasgow Caledonian University School of Health and Life Sciences Research Seminar, to help inform the group who are currently developing their strategy for patient and public involvement and engagement.
Paving the way for a brighter future: Opportunities to involve young people ...Simon R. Stones
A presentation delivered at The University of Manchester's Child Health Research Network's workshop on devolution in Greater Manchester. The aim of the overall workshop was to explore the implications and opportunities for child health and wellbeing research in Greater Manchester. Here, I discussed the importance of involving young people and their families in co-designing services and research.
In the driving seat: Health care and research led for, and by young peopleSimon R. Stones
This seminar was delivered as part of the University of Central Lancashire (UCLAN) Centre for Children and Young People’s Participation Seminar Series.
I hope you find this issue to be informative and helpful in your work. Please send me any information you’d like posted in upcoming issues.
The embedded links may not work in SlideShare, so please feel free to email me for a copy at DrChrisStout@gmail.com to be added to our email list.
You can join our Facebook Group and interact with over 1200 likeminded individuals at:
https://www.facebook.com/groups/CenterForGlobalInitiatives/
Any recommendations to improve this communique would be most appreciated!
And if you’d like to support the Center’s work with a tax deductible donation, that would be fantastic(!) and do a great deal: http://centerforglobalinitiatives.org/donateNow.cfm
Cheers, and thank you for your work,
Chris
I hope you have found this issue to be informative and helpful in your work. Please send me any information you'd like posted in upcoming issues.
Any recommendations to improve this communique would be most appreciated!
And if you’d like to support the Center’s work with a tax deductible donation, that would be fantastic and do a great deal: http://centerforglobalinitiatives.org/donateNow.cfm
Cheers, and thank you for your work,
Chris
Major global survey asks people about their attitudes toward science
A new Wellcome Trust survey asked more than 140,000 people across 140 countries about their attitudes towards science and health, and found that nearly 75% of people say they trust a doctor or a nurse more than friends, family, or other sources of health advice. Here’s more:
•Vaccines: Some 80% of people worldwide agree that vaccines are safe. One in three people in France — the highest percentage anywhere in the world — disagree that vaccines are safe.
•Understanding of science: Men are more likely to claim an understanding than women, as are those aged 29 and younger. Almost two-thirds of people around the world expressed an interest in learning more science.
•Science and society: About a third of people in Africa and Central and South America don’t feel like they benefit from science.
This talk was given during the TIMPUYOG TALK SERIES: Integrating Social Media to Medical Practice #SocialMDs organized the UP College of Medicine Regionalization Students' Organization together with the Regionalization Program Committee held at the Buenafe Hall, College of Medicine, University of the Philippines Manila on November 15, 2019, Friday, 5:00 PM.
This presentation gave an overview on how social media can be used by medical trainees for professional development and networking.
Anne Powell and Ruth Bottomley from INASP discuss INASP’s role in access to, production and use of research information.
Access: Why access is important, what INASP does, what publishers do/can do
Production: Research writing and local publishing support for Southern journals
Use: Taking research to policy and practice
Tom Mowlam from Ubiquity Press outlines Ubiquity’s work with Southern journals.
Finally, Neil Pakenham-Walsh, the Coordinator of HIFA (Healthcare Information For All) discusses access to and production of healthcare information specifically and the use of health research and journals by frontline workers.
Ensuring research really does involve the young personSimon R. Stones
This presentation was delivered during a session discussing the ethics of conducting research with children and young people. The presentation emphasises the importance of involving children, young people and their families in the design and conduct of research, in order to make it more relevant.
Engaging Youth Experiencing
Homelessness
Core Practices and Services
National Health Care for the Homeless Council
January 2016
DISCLAIMER
This project was supported by the Health Resources and Services Administration (HRSA) of the
U.S. Department of Health and Human Services (HHS) under grant number U30CS09746,
a National Training and Technical Assistance Cooperative Agreement for $1,625,741, with 0%
match from nongovernmental sources. This information or content and conclusions are those of
the author and should not be construed as the official position or policy of, nor should any
endorsements be inferred by HRSA, HHS or the U.S. Government.
All material in this document is in the public domain and may be used and reprinted without
special permission. Citation as to source, however, is appreciated.
Suggested citation: National Health Care for the Homeless Council (January 2016). Engaging
Youth Experiencing Homelessness: Core Practices & Services [Author: Juli Hishida, Project Manager.]
Nashville, TN: Available at: www.nhchc.org.
ACKNOWLEDGEMENTS
Special thanks are owed to the National Health Care for the Homeless Clinicians’ Network (CN)
Steering Committee, the CN Engaging Homeless Youth advisory work group, and the individual
clinicians, administrators, and consumers interviewed for this project. Without their willingness to
share valuable information about their organization and their experiences this publication would
not be possible. Additional thanks to Council staff members who reviewed and contributed to the
research process and this publication.
Engaging Homeless Youth Advisory Work Group Members:
Amy Grassette
Consumer Advisory Board Chair
Community Healthlink
Bella Christodoulou, LCSW
Social Worker
Tulane Drop-In Health Services
Brian Bickford, LMHC
Director of Primary Care and Homeless Svcs
Community Healthlink
Cicely Campbell, BS
Volunteer Coordinator
Tulane Drop-In Health Services
Debbian Fletcher-Blake, APRN, FNP
Assistant Executive Director, Clinic
Administrator
Care for the Homeless
Deborah McMillan, LSW
Assistant Vice President of Social Services
Public Health Management Corporation
Eowyn Rieke, MD, MPH
Physician
Outside In
Heather McIntosh, MS
Research Project Coordinator
University of Oklahoma School of
Community Medicine
Heidi Holland, M.Ed
Program Manager
The National LGBT Health Education
Center
Mark Fox, MD
Medical Director/ Associate Dean for
Community Health and Research
Development
Street Outreach Clinic/ University of
Oklahoma School of Community Medicine
Mollie Sullivan, LMHC
Licensed Mental Health Counselor
Health Care for the Homeless/ Mercy
Medical Center
Rachael Kenney, MA
Associate
Center for Social Innovation
Ric Munoz, JD
Assistant Clinical Professor of Social Work
University of Oklahoma School of Social
Work
Robin Scott, MD
Pediatrician
Community Health Center of South Bronx ...
Engaging Youth Experiencing
Homelessness
Core Practices and Services
National Health Care for the Homeless Council
January 2016
DISCLAIMER
This project was supported by the Health Resources and Services Administration (HRSA) of the
U.S. Department of Health and Human Services (HHS) under grant number U30CS09746,
a National Training and Technical Assistance Cooperative Agreement for $1,625,741, with 0%
match from nongovernmental sources. This information or content and conclusions are those of
the author and should not be construed as the official position or policy of, nor should any
endorsements be inferred by HRSA, HHS or the U.S. Government.
All material in this document is in the public domain and may be used and reprinted without
special permission. Citation as to source, however, is appreciated.
Suggested citation: National Health Care for the Homeless Council (January 2016). Engaging
Youth Experiencing Homelessness: Core Practices & Services [Author: Juli Hishida, Project Manager.]
Nashville, TN: Available at: www.nhchc.org.
ACKNOWLEDGEMENTS
Special thanks are owed to the National Health Care for the Homeless Clinicians’ Network (CN)
Steering Committee, the CN Engaging Homeless Youth advisory work group, and the individual
clinicians, administrators, and consumers interviewed for this project. Without their willingness to
share valuable information about their organization and their experiences this publication would
not be possible. Additional thanks to Council staff members who reviewed and contributed to the
research process and this publication.
Engaging Homeless Youth Advisory Work Group Members:
Amy Grassette
Consumer Advisory Board Chair
Community Healthlink
Bella Christodoulou, LCSW
Social Worker
Tulane Drop-In Health Services
Brian Bickford, LMHC
Director of Primary Care and Homeless Svcs
Community Healthlink
Cicely Campbell, BS
Volunteer Coordinator
Tulane Drop-In Health Services
Debbian Fletcher-Blake, APRN, FNP
Assistant Executive Director, Clinic
Administrator
Care for the Homeless
Deborah McMillan, LSW
Assistant Vice President of Social Services
Public Health Management Corporation
Eowyn Rieke, MD, MPH
Physician
Outside In
Heather McIntosh, MS
Research Project Coordinator
University of Oklahoma School of
Community Medicine
Heidi Holland, M.Ed
Program Manager
The National LGBT Health Education
Center
Mark Fox, MD
Medical Director/ Associate Dean for
Community Health and Research
Development
Street Outreach Clinic/ University of
Oklahoma School of Community Medicine
Mollie Sullivan, LMHC
Licensed Mental Health Counselor
Health Care for the Homeless/ Mercy
Medical Center
Rachael Kenney, MA
Associate
Center for Social Innovation
Ric Munoz, JD
Assistant Clinical Professor of Social Work
University of Oklahoma School of Social
Work
Robin Scott, MD
Pediatrician
Community Health Center of South Bronx .
We've produced an annual report for the West of England Academic Health Science Network to showcase how the organisation is helping to enhance healthcare delivery.
Presentation 'Use of social networks for innovation in health' done by Vicente Traver (SABIEN-ITACA previously TSB-ITACA) during the IBEC 2014 conference held in Gwangju from 20 to 22th November, 2014. Presentation is focused about how social media can be used as driver for innovation in health
Major global survey asks people about their attitudes toward science
A new Wellcome Trust survey asked more than 140,000 people across 140 countries about their attitudes towards science and health, and found that nearly 75% of people say they trust a doctor or a nurse more than friends, family, or other sources of health advice. Here’s more:
•Vaccines: Some 80% of people worldwide agree that vaccines are safe. One in three people in France — the highest percentage anywhere in the world — disagree that vaccines are safe.
•Understanding of science: Men are more likely to claim an understanding than women, as are those aged 29 and younger. Almost two-thirds of people around the world expressed an interest in learning more science.
•Science and society: About a third of people in Africa and Central and South America don’t feel like they benefit from science.
This talk was given during the TIMPUYOG TALK SERIES: Integrating Social Media to Medical Practice #SocialMDs organized the UP College of Medicine Regionalization Students' Organization together with the Regionalization Program Committee held at the Buenafe Hall, College of Medicine, University of the Philippines Manila on November 15, 2019, Friday, 5:00 PM.
This presentation gave an overview on how social media can be used by medical trainees for professional development and networking.
Anne Powell and Ruth Bottomley from INASP discuss INASP’s role in access to, production and use of research information.
Access: Why access is important, what INASP does, what publishers do/can do
Production: Research writing and local publishing support for Southern journals
Use: Taking research to policy and practice
Tom Mowlam from Ubiquity Press outlines Ubiquity’s work with Southern journals.
Finally, Neil Pakenham-Walsh, the Coordinator of HIFA (Healthcare Information For All) discusses access to and production of healthcare information specifically and the use of health research and journals by frontline workers.
Ensuring research really does involve the young personSimon R. Stones
This presentation was delivered during a session discussing the ethics of conducting research with children and young people. The presentation emphasises the importance of involving children, young people and their families in the design and conduct of research, in order to make it more relevant.
Engaging Youth Experiencing
Homelessness
Core Practices and Services
National Health Care for the Homeless Council
January 2016
DISCLAIMER
This project was supported by the Health Resources and Services Administration (HRSA) of the
U.S. Department of Health and Human Services (HHS) under grant number U30CS09746,
a National Training and Technical Assistance Cooperative Agreement for $1,625,741, with 0%
match from nongovernmental sources. This information or content and conclusions are those of
the author and should not be construed as the official position or policy of, nor should any
endorsements be inferred by HRSA, HHS or the U.S. Government.
All material in this document is in the public domain and may be used and reprinted without
special permission. Citation as to source, however, is appreciated.
Suggested citation: National Health Care for the Homeless Council (January 2016). Engaging
Youth Experiencing Homelessness: Core Practices & Services [Author: Juli Hishida, Project Manager.]
Nashville, TN: Available at: www.nhchc.org.
ACKNOWLEDGEMENTS
Special thanks are owed to the National Health Care for the Homeless Clinicians’ Network (CN)
Steering Committee, the CN Engaging Homeless Youth advisory work group, and the individual
clinicians, administrators, and consumers interviewed for this project. Without their willingness to
share valuable information about their organization and their experiences this publication would
not be possible. Additional thanks to Council staff members who reviewed and contributed to the
research process and this publication.
Engaging Homeless Youth Advisory Work Group Members:
Amy Grassette
Consumer Advisory Board Chair
Community Healthlink
Bella Christodoulou, LCSW
Social Worker
Tulane Drop-In Health Services
Brian Bickford, LMHC
Director of Primary Care and Homeless Svcs
Community Healthlink
Cicely Campbell, BS
Volunteer Coordinator
Tulane Drop-In Health Services
Debbian Fletcher-Blake, APRN, FNP
Assistant Executive Director, Clinic
Administrator
Care for the Homeless
Deborah McMillan, LSW
Assistant Vice President of Social Services
Public Health Management Corporation
Eowyn Rieke, MD, MPH
Physician
Outside In
Heather McIntosh, MS
Research Project Coordinator
University of Oklahoma School of
Community Medicine
Heidi Holland, M.Ed
Program Manager
The National LGBT Health Education
Center
Mark Fox, MD
Medical Director/ Associate Dean for
Community Health and Research
Development
Street Outreach Clinic/ University of
Oklahoma School of Community Medicine
Mollie Sullivan, LMHC
Licensed Mental Health Counselor
Health Care for the Homeless/ Mercy
Medical Center
Rachael Kenney, MA
Associate
Center for Social Innovation
Ric Munoz, JD
Assistant Clinical Professor of Social Work
University of Oklahoma School of Social
Work
Robin Scott, MD
Pediatrician
Community Health Center of South Bronx ...
Engaging Youth Experiencing
Homelessness
Core Practices and Services
National Health Care for the Homeless Council
January 2016
DISCLAIMER
This project was supported by the Health Resources and Services Administration (HRSA) of the
U.S. Department of Health and Human Services (HHS) under grant number U30CS09746,
a National Training and Technical Assistance Cooperative Agreement for $1,625,741, with 0%
match from nongovernmental sources. This information or content and conclusions are those of
the author and should not be construed as the official position or policy of, nor should any
endorsements be inferred by HRSA, HHS or the U.S. Government.
All material in this document is in the public domain and may be used and reprinted without
special permission. Citation as to source, however, is appreciated.
Suggested citation: National Health Care for the Homeless Council (January 2016). Engaging
Youth Experiencing Homelessness: Core Practices & Services [Author: Juli Hishida, Project Manager.]
Nashville, TN: Available at: www.nhchc.org.
ACKNOWLEDGEMENTS
Special thanks are owed to the National Health Care for the Homeless Clinicians’ Network (CN)
Steering Committee, the CN Engaging Homeless Youth advisory work group, and the individual
clinicians, administrators, and consumers interviewed for this project. Without their willingness to
share valuable information about their organization and their experiences this publication would
not be possible. Additional thanks to Council staff members who reviewed and contributed to the
research process and this publication.
Engaging Homeless Youth Advisory Work Group Members:
Amy Grassette
Consumer Advisory Board Chair
Community Healthlink
Bella Christodoulou, LCSW
Social Worker
Tulane Drop-In Health Services
Brian Bickford, LMHC
Director of Primary Care and Homeless Svcs
Community Healthlink
Cicely Campbell, BS
Volunteer Coordinator
Tulane Drop-In Health Services
Debbian Fletcher-Blake, APRN, FNP
Assistant Executive Director, Clinic
Administrator
Care for the Homeless
Deborah McMillan, LSW
Assistant Vice President of Social Services
Public Health Management Corporation
Eowyn Rieke, MD, MPH
Physician
Outside In
Heather McIntosh, MS
Research Project Coordinator
University of Oklahoma School of
Community Medicine
Heidi Holland, M.Ed
Program Manager
The National LGBT Health Education
Center
Mark Fox, MD
Medical Director/ Associate Dean for
Community Health and Research
Development
Street Outreach Clinic/ University of
Oklahoma School of Community Medicine
Mollie Sullivan, LMHC
Licensed Mental Health Counselor
Health Care for the Homeless/ Mercy
Medical Center
Rachael Kenney, MA
Associate
Center for Social Innovation
Ric Munoz, JD
Assistant Clinical Professor of Social Work
University of Oklahoma School of Social
Work
Robin Scott, MD
Pediatrician
Community Health Center of South Bronx .
We've produced an annual report for the West of England Academic Health Science Network to showcase how the organisation is helping to enhance healthcare delivery.
Presentation 'Use of social networks for innovation in health' done by Vicente Traver (SABIEN-ITACA previously TSB-ITACA) during the IBEC 2014 conference held in Gwangju from 20 to 22th November, 2014. Presentation is focused about how social media can be used as driver for innovation in health
2. August 2014 | www.rcslt.org Bulletin 19
FEATURE
DYSPHAGIA
Swallowing Matters:
a new resource
to support self-
management
George London, Irene Ilott and Sabrina Eltringham
describe the development of Swallowing Matters,
an online community for dysphagia peer support
D
ysphagia is a relatively
common problem,
associated with long-
term and life-limiting
conditions. Swallowing
difficulties can have
a profound impact on
the physical and mental health of sufferers.
In August 2013 we launched Swallowing
Matters (www.swallowingmatters.co.uk),
one of the first peer support fora for
people affected by, or with an interest in,
dysphagia.
The name communicates our aims: we
wanted to show that swallowing really does
matter and to provide a forum where people
with common interests gather virtually, to
share experiences, ask questions or provide
emotional support and self-help.
Development process
Swallowing Matters is a social marketing-
based health intervention designed to
support self-management. Social marketing
targets a specific group, attempting
to influence behaviour to improve a
particular aspect of health (Evans, 2006).
A review by Eysenbach and colleagues
(2014) anticipated the value of online
support groups. This potential has been
realised by large communities such as
TalkHealth (www.talkhealthpartnership.
com) and Cancer Chat (http://cancerchat.
cancerresearchuk.org).
George created the website and Twitter
account as a practice-based project
for his MSc Science Communication
dissertation. He did this work as part of a
programme about dysphagia, undertaken
by the Translating Knowledge into Action
theme of the National Institute for Health
(NIHR) Collaboration for Leadership in
Applied Health Research and Care for
South Yorkshire (CLAHRC SY). For further
information, see http://tinyurl.com/
paute8u. The development process lasted
from April to August 2013 and comprised
several aspects, including:
■ A literature review about dysphagia, self-
management and peer-led online support
groups.
■ Consultation with key informants,
including health professionals, people
responsible for online forums run by
charities and potential patients and
carers.
■ Use of Google’s ‘trends’ tool to investigate
whether people are currently using the
internet to search for information about
dysphagia.
■ Website design to make the site accessible
■ Promoting the forum to patients, their
families/carers, multidisciplinary
colleagues and students.
■ Contacting us if your organisation is
interested in becoming a friend. ■
George London, Social Media Executive at
NHS Choices (part of the Health and Social
Care Information Centre); Dr Irene Ilott,
formerly Knowledge Translation Project
Lead CLAHRC SY; Sabrina Eltringham, SLT
Sheffield Teaching Hospitals NHS Foundation
Trust.
References & resources
Evans WD. How social marketing works in health care.
British Medical Journal 2006; 332, 7551, 1207.
Eysenbach G, et al., Health related virtual communities
and electronic support groups: systematic review of the
effects of online peer to peer interactions. British
Medical Journal 2004; 328; 7449, 1166.
Acknowledgements
This report presents independent research supported
by the NIHR CLAHRC for Yorkshire and Humber (NIHR
CLAHRC YH). The views and opinions expressed are
those of the authors, and not necessarily those of the
NHS, the NIHR or the Department of Health. CLAHRC
YH would also like to acknowledge the participation and
resources of our partner organisations. Further details
can be found at: http://tinyurl.com/nuvdcw5. The
dysphagia studies were funded by the NIHR CLAHRC
YH and Sheffield Hospitals Charity (Registered Charity
No.1059043) via NIHR CLAHRC YH.
and appealing to the target audiences,
such as individuals with aphasia and
older people. Considerable thought was
given to the risks of misinformation.
There is a clear disclaimer about the
importance of seeking specialist advice
and conversations are monitored so
that potentially inappropriate content is
removed quickly.
■ Obtaining feedback on a pilot website
from two focus groups with 11 younger
people (average age 22) and eight older
people (average age 63).
As part of the launch strategy, George
established the Twitter account (https://
twitter.com/DysphagiaSY) to alert people to
the forthcoming website and its subsequent
development. Statistics collected using
Google Analytics in the first fortnight show
that Swallowing Matters was viewed by 531
individual visitors, who spent an average three
minutes on the website. People have raised
their concerns and shared their experiences.
The Twitter account now has more than 500
followers from all over the world.
Play your part
We want Swallowing Matters to become a
significant patient community resource and
archive with first-hand knowledge about
dysphagia. This will obviously take time.
You can help by:
■ Joining the community at:
www.swallowingmatters.co.uk
019_Feature_Llott.indd 19019_Feature_Llott.indd 19 18/07/2014 08:2218/07/2014 08:22