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Providing Access to Scholarly
Information in the Poorest Parts of the
World – How Far Can We Reach?




     SATELLIFE

    June 2, 2005




      Brief Introduction to SATELLIFE
               and our Services




    SATELLIFE’s Information Services
Publications:
• HealthNet News             Discussion groups:
                                •AfroNets
• HealthNet News, AIDS
                                •Essential Medicines
• HealthNet News Community      (English, Spanish,
  Health                        Russian)
• HealthNet News Nursing        •Indices
                                •ProCaare
                                •ProNut
                                •ProCor
                                •Hnn-chat
                                •pdas4health




                                                       1
What Information Is Provided?

• Public Health
• Medical
• Management




          HealthNet News Since 1992
 Priorities –
 Tropical and Infectious Diseases   • User Base
 Maternal and Child Health            20,000*(estimated)
                                    • 130 Countries

                                    •   Libraries
                                    •   Medical Schools
                                    •   Ministries of Health
                                    •   Clinics
                                    •   NGO’s
                                    •   Individuals




         Who Reads HealthNet News?
    •   Physician                           38 %
    •   Program Administrator               16%
    •   Student                             11%
    •   Educator/Librarian/Journalist        8%
    •   Pharmacist                           6%
    •   Research/Scientist                   6%
    •   Nurse/Midwife                        5%
    •   Allied Health Practitioner           5%
    •   Information Technologist             1%
    •   Others                               2%




                                                               2
Who Reads HealthNet News?

Occupational Setting
• Clinical health
  40%
• Public health
  60%

Gender
• Male
      63%
• Female
      37%




                            Impact?

In countries where we work – the average doctor
   patient ratio is 20,000 to 1 for specialist it could
   be as high as 1million to one
Most care is provided by enrolled nurses in rural
   clinics.
We are reaching policy makers and providers who
   care for millions of patients every year in the
   most challenging environments, with the most
   challenging diseases and fewest tools to
   prevent, diagnose and treat those diseases.




           =====================================
      Number 589 HEALTHNET NEWS Nov. 5, 2004
         =====================================

    This weekly bulletin is supported by generous
    charitable contributions from individuals and
    institutions
    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
    COMMENTARY
    By Malcolm Bryant, MD, MPH
    TUBERCULOSIS
    1. Why and how tuberculosis control should be
    included in health sector reviews
    DIABETES
    2. Dysglycemia: A new cardiac risk factor?
    3. Diagnosing foot infection in diabetes
    4. Is diet-controlled diabetes really controlled?
    PRIMARY FRACTURE CARE
    5. The role of the traditional bonesetter in primary
    fracture care in Nigeria




                                                           3
Contributing Publishers
Alan Guttmacher Institute                  Kaiser Foundation
The American Academy of Pediatrics         Kluwer
The American College of Physicians         Kenya Medical Association House
The American College of Surgeons           Lippincott, Williams and Wilkins
American Public Health Association         Makerere University
Blackwell Science                          Medical Association of Tanzania
British Medical Journal Publishing Group   Maney Publishing
Baywood                                    Massachusetts Medical Society
Elsevier                                   The Medical Association of South Africa
Elsevier Science                           Oxford University Press
Engenderhealth                             Public Library of Science
Environmental Health Project               UNAIDS
Equinet                                    University of California San Francisco
Ethiopian Public Health                    The Royal Society of Medicine Press
Family Health International                Limited
François-Xavier Bagnoud Center-HSPH        University of Chicago Press
Family Health International                UN-AIDS
Indian Academy of Gastroenterology          WHO
International Centre for Eye Health        Women's Health and Action Research
International Union Against Tuberculosis   Centre
and Lung Disease




                       Publisher Relations
• Publisher issues and
  concerns
    – Copyright
    – Unauthorized re-
      distribution in the North
    – Error in translation
    – Resale of content
• How to balance
    –   Specific use agreements
    –   Subscriptions
    –   Monitoring
    –   Good faith




                Constraints and Concerns


   USERS:                                  PUBLISHERS:
   • Access                                • Copyright
   • Voice                                 • Open Access
   • Inclusion                             • Cost
   • Habit                                 • Technology
   • Money                                 • Scientific Integrity
   • Electricity                           • Quality
   • Prioritization                        • Prioritization
                                           • Philanthropic Mission




                                                                                     4
The Reality vs. The Vision
• What ’s the reality in Tanzania and other low resource
  countries, and what should our vision be?
   – For Urgent Information?
   – For Professional Development and Continued Learning?

      Harvard Users: Login now to use licensed          Textbooks
  resources!                                            Indexes and Databases
  Quick Links                                           Browse New Resources
  Find It @ Harvard (more info )                        SEARCH/BROWSE BY SUBJECT
  MEDLINE                                               ExploreWebResources
  PubMed with full text(more info )                     BROWSE BY TYPE OF RESOURCE
  CLINICAL REFERENCE                                    Clinical Trials
  Harrison's Online                                     Data Analysis Tools
  Stat!Ref                                              DataCollections
                                                        Funding Information
  EBM Reviews
          ACP Journal Club                              Library Catalogs
          Cochrane Database of Systematic Reviews       Statistical and Numeric Data
          Database of Abstracts of Reviews of Effects   Metadirectories
  MY DIGITAL LIBRARY                                    Newsmedia
  Select your most frequently used resources            Practice Guidelines
  SEARCH/BROWSE BY TITLE                                Tutorials and Study Guides
  All Resources                                         All Resource Types ...
  Journals




  The Problem of Information Access in
         Developing Countries
                                                                         • Access
                                                                         • Relevancy
                                                                         • Timeliness
                                                                         •    Inclusion

                                                                         •    Dissemination
                                                                         •    Languages
                                                                         • Lack of full text
                                                                         • Technology
                                                                         and Infrastructure




  Most Front –Line Health Providers
  Have No Access to Information
  Resources at the Point of Care




                                                                                               5
There is need for information that is
       helpful, locally relevant.




       Urgent Information Needs

                         email:
                         "Rukia, 4 months old
                         now, has congenital
                         biliary atresia. ...for
                         this little baby, a CT
                         scan was
                         being waited for and
                         surgery was not
                         done. Please advise!"
                         Tanzania




           An Email Link to Help


  Email:
  "A week old child cannot breastfeed as
  her mother cannot produce milk...one
  month old now and feeding on dry
  coconut water. How do we deal with
  such a case?"
  Solomon Islands




                                                   6
Ongoing Provider Education and
 Professional Development Needs




                          Lucian Leape




Medicine is Among the Most Unsafe
Practices/Professions




                                         7
Healthworkers don’t make mistakes
deliberately.




There are system errors
Including lack of access to information.




                Countway vs. My way
Media is present at some medical school libraries but
usually doesn’t meet demand of timeliness and relevancy


                                    •   3,500 Journals at
                                        Countway Library
                                    •   Journals in
                                        Tanzania - < 50




• How relevant is the
  information we are getting
  in Africa?
   – Africa is developing fast
     and sees need for timely
     relevant information
• How much access to we
  have?
   – Inability to choose type of
     information due to costs
     and copyrights.
   – Need for full text articles
     which are relevant and
     timely.




                                                            8
Organizational Responses
                            Health InterNetwork Access to Research
•     SATELLIFE             Initiative
•     HINARI
•     NLM                   As the first phase of making vital health content
                            available, the Health InterNetwork provides here a vast
•     WHO                   library of the latest and best information on public
•     INASP (HIF-Net)       health: more than 2,000 scientific publications, one of
•     Health &              the world's largest collections of biomedical literature.

    Development Networks    This collection is available through the efforts of WHO
                            together with the 6 biggest biomedical publishers:
                            Blackwell, Elsevier Science, the Harcourt Worldwide
                            STM Group, Wolters Kluwer International Health &
                            Science, Springer Verlag and John Wiley. It has been
                            described by WHO Director-General Dr Gro Harlem
                            Brundtland as "perhaps the biggest step ever taken
                            towards reducing the health information gap between
                            rich and poor countries.“




             Reaching into Rural Settings

Uganda Health Information
  Network




                           The Vision

       • A world where health care providers and
         scientists have access to important
         information that will enable them to care
         for their patients and save lives.
       • A world where the South participates in a
         meaningful way in intellectual and
         scientific development and discovery.




                                                                                        9
What Can You Contribute?

• Join as a content
  contributing partner
• Provide financial support
  to keep our publications
  growing
• Share our story with
  others
• Support Fair Use and
  Open Access for those in
  the poorest parts of the
  world




            Our Collective Challenge

How far can we reach?




                                       10

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107 satellife

  • 1. Providing Access to Scholarly Information in the Poorest Parts of the World – How Far Can We Reach? SATELLIFE June 2, 2005 Brief Introduction to SATELLIFE and our Services SATELLIFE’s Information Services Publications: • HealthNet News Discussion groups: •AfroNets • HealthNet News, AIDS •Essential Medicines • HealthNet News Community (English, Spanish, Health Russian) • HealthNet News Nursing •Indices •ProCaare •ProNut •ProCor •Hnn-chat •pdas4health 1
  • 2. What Information Is Provided? • Public Health • Medical • Management HealthNet News Since 1992 Priorities – Tropical and Infectious Diseases • User Base Maternal and Child Health 20,000*(estimated) • 130 Countries • Libraries • Medical Schools • Ministries of Health • Clinics • NGO’s • Individuals Who Reads HealthNet News? • Physician 38 % • Program Administrator 16% • Student 11% • Educator/Librarian/Journalist 8% • Pharmacist 6% • Research/Scientist 6% • Nurse/Midwife 5% • Allied Health Practitioner 5% • Information Technologist 1% • Others 2% 2
  • 3. Who Reads HealthNet News? Occupational Setting • Clinical health 40% • Public health 60% Gender • Male 63% • Female 37% Impact? In countries where we work – the average doctor patient ratio is 20,000 to 1 for specialist it could be as high as 1million to one Most care is provided by enrolled nurses in rural clinics. We are reaching policy makers and providers who care for millions of patients every year in the most challenging environments, with the most challenging diseases and fewest tools to prevent, diagnose and treat those diseases. ===================================== Number 589 HEALTHNET NEWS Nov. 5, 2004 ===================================== This weekly bulletin is supported by generous charitable contributions from individuals and institutions ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ COMMENTARY By Malcolm Bryant, MD, MPH TUBERCULOSIS 1. Why and how tuberculosis control should be included in health sector reviews DIABETES 2. Dysglycemia: A new cardiac risk factor? 3. Diagnosing foot infection in diabetes 4. Is diet-controlled diabetes really controlled? PRIMARY FRACTURE CARE 5. The role of the traditional bonesetter in primary fracture care in Nigeria 3
  • 4. Contributing Publishers Alan Guttmacher Institute Kaiser Foundation The American Academy of Pediatrics Kluwer The American College of Physicians Kenya Medical Association House The American College of Surgeons Lippincott, Williams and Wilkins American Public Health Association Makerere University Blackwell Science Medical Association of Tanzania British Medical Journal Publishing Group Maney Publishing Baywood Massachusetts Medical Society Elsevier The Medical Association of South Africa Elsevier Science Oxford University Press Engenderhealth Public Library of Science Environmental Health Project UNAIDS Equinet University of California San Francisco Ethiopian Public Health The Royal Society of Medicine Press Family Health International Limited François-Xavier Bagnoud Center-HSPH University of Chicago Press Family Health International UN-AIDS Indian Academy of Gastroenterology WHO International Centre for Eye Health Women's Health and Action Research International Union Against Tuberculosis Centre and Lung Disease Publisher Relations • Publisher issues and concerns – Copyright – Unauthorized re- distribution in the North – Error in translation – Resale of content • How to balance – Specific use agreements – Subscriptions – Monitoring – Good faith Constraints and Concerns USERS: PUBLISHERS: • Access • Copyright • Voice • Open Access • Inclusion • Cost • Habit • Technology • Money • Scientific Integrity • Electricity • Quality • Prioritization • Prioritization • Philanthropic Mission 4
  • 5. The Reality vs. The Vision • What ’s the reality in Tanzania and other low resource countries, and what should our vision be? – For Urgent Information? – For Professional Development and Continued Learning? Harvard Users: Login now to use licensed Textbooks resources! Indexes and Databases Quick Links Browse New Resources Find It @ Harvard (more info ) SEARCH/BROWSE BY SUBJECT MEDLINE ExploreWebResources PubMed with full text(more info ) BROWSE BY TYPE OF RESOURCE CLINICAL REFERENCE Clinical Trials Harrison's Online Data Analysis Tools Stat!Ref DataCollections Funding Information EBM Reviews ACP Journal Club Library Catalogs Cochrane Database of Systematic Reviews Statistical and Numeric Data Database of Abstracts of Reviews of Effects Metadirectories MY DIGITAL LIBRARY Newsmedia Select your most frequently used resources Practice Guidelines SEARCH/BROWSE BY TITLE Tutorials and Study Guides All Resources All Resource Types ... Journals The Problem of Information Access in Developing Countries • Access • Relevancy • Timeliness • Inclusion • Dissemination • Languages • Lack of full text • Technology and Infrastructure Most Front –Line Health Providers Have No Access to Information Resources at the Point of Care 5
  • 6. There is need for information that is helpful, locally relevant. Urgent Information Needs email: "Rukia, 4 months old now, has congenital biliary atresia. ...for this little baby, a CT scan was being waited for and surgery was not done. Please advise!" Tanzania An Email Link to Help Email: "A week old child cannot breastfeed as her mother cannot produce milk...one month old now and feeding on dry coconut water. How do we deal with such a case?" Solomon Islands 6
  • 7. Ongoing Provider Education and Professional Development Needs Lucian Leape Medicine is Among the Most Unsafe Practices/Professions 7
  • 8. Healthworkers don’t make mistakes deliberately. There are system errors Including lack of access to information. Countway vs. My way Media is present at some medical school libraries but usually doesn’t meet demand of timeliness and relevancy • 3,500 Journals at Countway Library • Journals in Tanzania - < 50 • How relevant is the information we are getting in Africa? – Africa is developing fast and sees need for timely relevant information • How much access to we have? – Inability to choose type of information due to costs and copyrights. – Need for full text articles which are relevant and timely. 8
  • 9. Organizational Responses Health InterNetwork Access to Research • SATELLIFE Initiative • HINARI • NLM As the first phase of making vital health content available, the Health InterNetwork provides here a vast • WHO library of the latest and best information on public • INASP (HIF-Net) health: more than 2,000 scientific publications, one of • Health & the world's largest collections of biomedical literature. Development Networks This collection is available through the efforts of WHO together with the 6 biggest biomedical publishers: Blackwell, Elsevier Science, the Harcourt Worldwide STM Group, Wolters Kluwer International Health & Science, Springer Verlag and John Wiley. It has been described by WHO Director-General Dr Gro Harlem Brundtland as "perhaps the biggest step ever taken towards reducing the health information gap between rich and poor countries.“ Reaching into Rural Settings Uganda Health Information Network The Vision • A world where health care providers and scientists have access to important information that will enable them to care for their patients and save lives. • A world where the South participates in a meaningful way in intellectual and scientific development and discovery. 9
  • 10. What Can You Contribute? • Join as a content contributing partner • Provide financial support to keep our publications growing • Share our story with others • Support Fair Use and Open Access for those in the poorest parts of the world Our Collective Challenge How far can we reach? 10