An introduction to my PhD project which was presented to the Turner Syndrome Support Society annual conference in October 2017. Data collection was completed some weeks after the presentation was delivered.

1. Reproductive decision making in women
with Turner Syndrome:
An exploratory study
Kriss Fearon, PhD researcher,
De Montfort University

2. This session
• Research aims
• Who is taking part
• What it involves
• Feedback from the audience

3. Why look at this topic?
• Gaps in the research
• Increasing range of options – complex choices

4. Project aims
• How women with TS make decisions about
how to have a family
• Whether/how mums of girls with TS influence
their daughter’s future reproductive choices

5. Who’s involved?
• Why women with TS, not couples?
• Why mums?

6. What taking part involves
• 90 minute conversation
• Includes three photos
• A comfortable, undisturbed setting

7. TS and fertility
Women
with TS
Women
with
fertility
issues Difficulty
telling
partner
Grief
Shame
Less of a
woman
Low
self
esteem
Sense
of loss
?

8. Making a decision
• Social pressure
• Individuals may have different options
• Risks
• Not having children?

9. Attitudes to technology
• How do women feel about
– Sister to sister donation
– Maternal egg donation
– Ovarian tissue/ovary/egg freezing

10. Thank you
Thank you so much for the help with finding participants.

11. • Contact for TSSS research:
– Website: http://turner-study.wixsite.com/ts-decisions
– Facebook: https://www.facebook.com/tsdecisions/
• Centre for Reproduction Research:
www.dmu.ac.uk/CRR
• Follow @CRRDMU for updates