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From Disparities Research to
Disparities Interventions in
Disaster Preparedness

  Lessons Learned and Thoughts
  About the Future

  David P. Eisenman, MD MSHS
  Associate Professor of Medicine
  David Geffen School of Medicine at UCLA
Mentors and Colleagues
 Steve Asch, MD, MPH
 Linda Bourque, PhD
 Jonathan Fielding, MD, MBA, MPH
 Lillian Gelberg, MD, MSHS
 Deborah Glik, ScD
 Dennis Mileti, PhD
 Martin Shapiro MD, PhD
Framework for eliminating
                   disparities

        DETECTING               UNDERSTANDING          REDUCING

        Identify which           Determine why          Identify how
          disparities            disparities occur   disparities can be
             exist                                       eliminated




Kilbourne, et al. AJPH, 2006.
Framework for eliminating
                    disparities
          DETECTING                            UNDERSTANDING                                   REDUCING

         Identify which                           Determine why                               Identify how
           disparities                            disparities occur                        disparities can be
              exist                                                                            eliminated


          Before:
          More likely to be under-prepared
          During:
          More likely to experience loss,
          injury, disease and death
          After:
          More likely to experience slower
          response and recovery


Graham, Office of Minority Health’s Agenda to Integrate Racial and Ethnic Communities into Emergency Preparedness”
presented at Public Health Preparedness Summit, 2009
Research Gaps
 Survey research or case studies focused
 mainly on disparities between broad
 majority versus minority groups.
 Factors that cause disparities less
 understood
 – Contextual factors?
 – Barriers and promoters?
 Few outcome studies, fewer using
 prospective designs or theory-based
 interventions.
Lessons Learned…

 Vulnerable populations want to get
 prepared.
 Social networks influence disaster
 behaviors, for better and for worse.
 Culturally targeted programs can
 improve preparedness…
 …but only so much. Why?
How would vulnerable
     groups prepare after
     September 11th?
Protection Action Decision Model
(Lindell & Perry); Extended
Parallel Process Model (Witte)
– Address how we process threats and
  taking protective actions
– Link self-appraisal of personal
  vulnerability to protective actions.
     Threat severity (how severe will the
     effects be?); susceptibility (how likely
     it will happen to me?)
     Response efficacy (will recommended
     actions help me?); Self-efficacy
RDD telephone survey of the non-institutionalized adult
population in Los Angeles County;
6 languages: English, Spanish, Chinese (Mandarin &
Cantonese), Korean & Vietnamese
Over sampled Asian and African Americans
59% cooperation rate
“In the past year, has anyone in your household done any
of the following in response to the possibility of terrorism:
1) purchased or maintained emergency supplies of food,
water or clothing? 2) Developed an emergency plan for you
and your family?”
Implications

  Vulnerable groups (ethnic minorities,
  disabled, immigrants) amenable to
  improving preparedness.
  Tailored and targeted programs may
  work for diverse population
  segments of Los Angeles
Literature on increased
protective behaviors among
minority groups
  Eisenman, et al., AJPH, 2009
  Uscher-Pines L, Am J Prev Med, 2009
  Page, L., et al., Biosecur Bioterror, 2008
  Rubin, GJ., et al., BMJ 2008
Reasons for non-evacuation

         Little known about low-income,
         urban, minority communities
         Transportation, shelter, historical
         experience cited in surveys
         Decision-making is multifactorial
         and socially embedded; surveys
         don’t address this.
         Qualitative research is needed
Purpose
To study the experience of Hurricane Katrina
  evacuees to understand evacuation decision-
  making in impoverished, urban, mainly minority
  communities.
Participants describe factors affecting evacuation
  that are more complex than previously
  reported, interacted with one another, and
  were socially influenced.


                              Eisenman, et al., AJPH, 2007
Quick response research
Mon            Tues        Wed              Thurs         Fri
Aug 29         30          31               Sept 1        2
Katrina        NOLA        Astrodome        Houston
landfall       evacuated   opens            shelters
                                            house 27K
Eisenman
camping trip

5              6           7                8               9
Labor Day      NSF grant   IRB              Work in         Recruitment
                           submitted; fly   shelter clinic; begins
                           to Houston       IRB approval
Major Themes:
                        Social network


       Transportation                        Trust



                                             Risk
         Shelter                          perception


                                           Message
       Money, jobs,
                                         understanding
        property

                           Health
Transportation

I mean, if you've got 20 people
trying to get in one car it's not
going to happen. So some people,
you just stay because you have to.
Shelter

Really truly, we had cars, but we
didn't know anybody to go to.

They said go to Texas but I didn't
know anybody in Texas.
Health
          I could have made it on
         my own, but it was just
         my aunt and my uncle.
         Every few steps he
         made…she forgot his
         walker…every few steps
         he made he was falling
         down.
Social networks
My plans were to leave. Unfortunately we
received a call and we had to come back
home. My mother-in-law had called for us to
come back…. You know when they get a
certain age they get confused.

My mother-in-law wouldn't leave the house.
My husband wouldn't leave her and I'm not
going to leave him.
Social networks
Like my Mom said, she's been through
Betsy, Camille, all the hurricanes, the
major hurricanes and she just wasn't
evacuating. So I wasn't going to leave my
Mom to stay there by herself.

I had a 90 year old mother that I was
taking care of and she would not leave
that house for hell or high water.
The influence of social networks:
conclusions and recommendations
   Demonstrates interactions between factors
   influencing evacuation
   – Counterpart to Drabek’s finding “ families move as
     units and remain together, even at the cost of
     overriding dissenting opinions.”
   Broad networks hindered and facilitated
   evacuation
    – Stretched limited resources
    – Obligations to extended family, especially elderly
      who resisted evacuation or were frail, inhibited
      individuals and nuclear families
   Disaster research and policy must address social units
   not just individuals.
•Programa para Responder a Emergencias con Preparación.
•A culturally-targeted, community-based program to
promote disaster preparedness among low income Latinos
•UCLA, Coalition for Community Health (CCH), Los
Angeles County Department of Public Health
Preparedness in Los Angeles is
low...
Family Emergency Plan
                              39.3%


    3 Days Food/Water                                             82.0%


Battery-Powered Radio                                                           93.6%


          First Aid Kit                             70.8%


            Flashlight                                        76.2%


       Spare Batteries                                        77.4%


                      30%   40%       50%   60%   70%       80%           90%       100%




      * While most residents have each item, only 45% have
      all 5 items; <40% have plan.
Latinos less likely to have supplies (OR=0.73) and
Spanish speakers less likely to have emergency
plan (OR=0.61)*
60%
        56.4%




                  47.4%                               47.5%
                                          42.5%
45%
            41.8%         40.8%               38.8%                       White
                                                                          Latino
                                                                          Africa American
                                                              32.2%
                                                                          APIs - Chinese
30%
                                                                          APIs - Korean
                                  22.5%


                                                                  16.8%
15%
            Disaster Supplies                 Emergency Plan


 * Controlled for age, gender, income, education, community, country of
 origin, health.
Promotora
Local lay community residents trained in basic
health promotion skills working with fellow
community members who are under-served by the
health care system.
Use their cultural knowledge, social networks, and
leadership role in the community to model
behavior, overcome barriers, and create change.
Provide connections between community and
health care system including informal counseling,
service assistance, education.
Improved health care access, prenatal care, health
behaviors.
Not previously used in U.S. disaster preparedness
PREP logic model


PREP     CAB     Focus    CAB      Interven New
                 Groups            tion     behavior

                            CBPR
 CBPR     CBPR    CBPR
                                     CBPR
                   HBM
                  PADM               HBM
                                     PADM
                                      SI
“Disaster Kit”

 Only half heard of term “disaster kit”
 or “emergency kit”
 – What's the difference between a disaster
   kit and a first aid kit?
 – Storage, like when we buy something we
   say this is for storage
 – Emergency things

               Eisenman, et al., JHCPU, 2009
Communication Plan

 For most very fuzzy
 having the means to get communications
 from others during a disaster
  – A portable radio.
  – If there is no electricity you can’t ever charge
    your cell phone.
  – a little book with all the emergency phone
    numbers
  – walkie talkies
 Kind of like an emergency exit.
PREP Experiment:
Overview
    Randomized, longitudinal two-group cohort
    design of a culturally-tailored, disaster
    preparedness program
    – ‘high-intensity’ vs ‘low-intensity’ groups
    Latino immigrant adults living in Los Angeles
    County, recruited using Respondent Driven
    Sampling
    – Eligibility: Latino, adult, domiciled in Los Angeles, 1
      adult per household
    Baseline and 3-months post-intervention
    telephone assessments.
Theoretical Model


Demographic           Milling/norms   H1: Disaster
                                      supplies
Culture/Beliefs:      Perceived
                      benefits        H2: Communication
(fatalism, locus of
                                      plan
responsibility,       Perceived
literacy)             barriers
                      Self-efficacy
Media
        Culturally tailored
        brochure
        Laminated shopping card
        Pre-printed/perforated
        communication cards
Platica
          Small group
          discussion, 1 hour
          Led by a trained
          promotora
          Held at community
          site.
          + Media materials
          N=25
Respondent Driven Sampling
   A type of chain referral sampling method
   that uses social network theory to gather
   a sample representative of the target
   “hidden” population.
   7 seeds
    – Recruitment instructions, 4 coupons with
      unique codes, 5$ per eligible recruit
    – All persons who called the study number and
      presented a valid coupon were assessed for
      eligibility.
RDS results
Eisenman, et al., Am J Prev Med, 2009
Summary
Culturally tailored materials did very well,
often doubling proportions of
preparedness.
Significantly greater proportion of
participants in the platica arm reported
increases in important outcomes.
Improving Communication
Plans
   Nationally, fewer people have plans than
   supplies, even after media campaigns.
   Platicas led more participants to develop a
   written plan than media
   Is this due to social interaction resolving
   participants’ ambiguities?
   – Emergency communication plan requires
     discussion and agreement
   – Promotoras suited for clarifying uncertainties
     and misunderstandings
Perceived benefit of a plan
Responses to            Pre-         Post-
“Having a plan for
….is helpful.”
Strongly              32 (17%)     79 (42.3%)
disagree
Mildly agree          3 (1.6%)      6 (3.2%)

Neither agree         4 (2.1%)      1 (0.5%)
or disagree
Mildly agree         20 (10.7%)     9 (4.8%)

Strongly agree       128 (68.5%)   92 (49%)
Emergency Plan
  perceived benefit of a plan
Confusion and fuzzy understanding
– Do we need different plans for different
 emergencies? For different times of the day
 and week? Doesn’t it matter what the
 authorities say during the emergency? Is text
 better than telephone?
Emergency Plan

 Family emergency planning cannot
 totally be done in the family vacuum
 “Species-level” changes in
 communication
 Are we dubious about the benefit of a
 plan?
Emergency Medication
Supply
 Did not improve in PREP
 People in poor physical or mental
 health are less likely to be prepared.
 – Eisenman, DMPHP, 2009.
 Inflexible drug-dispensing policies
 prevent the public from building
 reserves
 – Carameli and Eisenman DMPHP, 2010.
“The fact that every family’s plan involves other
parts of the community is why I strongly believe
that there needs to be one day in the year
dedicated to the emergency planning process. If
we as a nation feel it is really important for the
public to develop emergency plans, it would be
far more effective if everyone was doing that at
the same time — rather than asking individuals
to do it on their own so the planning can be
integrated.”

                 John Solomon, incaseofemergencyblog.com, 9/13/10
Thank you

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Ncdp2011 Lecturev3

  • 1. From Disparities Research to Disparities Interventions in Disaster Preparedness Lessons Learned and Thoughts About the Future David P. Eisenman, MD MSHS Associate Professor of Medicine David Geffen School of Medicine at UCLA
  • 2.
  • 3. Mentors and Colleagues Steve Asch, MD, MPH Linda Bourque, PhD Jonathan Fielding, MD, MBA, MPH Lillian Gelberg, MD, MSHS Deborah Glik, ScD Dennis Mileti, PhD Martin Shapiro MD, PhD
  • 4. Framework for eliminating disparities DETECTING UNDERSTANDING REDUCING Identify which Determine why Identify how disparities disparities occur disparities can be exist eliminated Kilbourne, et al. AJPH, 2006.
  • 5. Framework for eliminating disparities DETECTING UNDERSTANDING REDUCING Identify which Determine why Identify how disparities disparities occur disparities can be exist eliminated Before: More likely to be under-prepared During: More likely to experience loss, injury, disease and death After: More likely to experience slower response and recovery Graham, Office of Minority Health’s Agenda to Integrate Racial and Ethnic Communities into Emergency Preparedness” presented at Public Health Preparedness Summit, 2009
  • 6. Research Gaps Survey research or case studies focused mainly on disparities between broad majority versus minority groups. Factors that cause disparities less understood – Contextual factors? – Barriers and promoters? Few outcome studies, fewer using prospective designs or theory-based interventions.
  • 7. Lessons Learned… Vulnerable populations want to get prepared. Social networks influence disaster behaviors, for better and for worse. Culturally targeted programs can improve preparedness… …but only so much. Why?
  • 8. How would vulnerable groups prepare after September 11th? Protection Action Decision Model (Lindell & Perry); Extended Parallel Process Model (Witte) – Address how we process threats and taking protective actions – Link self-appraisal of personal vulnerability to protective actions. Threat severity (how severe will the effects be?); susceptibility (how likely it will happen to me?) Response efficacy (will recommended actions help me?); Self-efficacy
  • 9. RDD telephone survey of the non-institutionalized adult population in Los Angeles County; 6 languages: English, Spanish, Chinese (Mandarin & Cantonese), Korean & Vietnamese Over sampled Asian and African Americans 59% cooperation rate “In the past year, has anyone in your household done any of the following in response to the possibility of terrorism: 1) purchased or maintained emergency supplies of food, water or clothing? 2) Developed an emergency plan for you and your family?”
  • 10.
  • 11. Implications Vulnerable groups (ethnic minorities, disabled, immigrants) amenable to improving preparedness. Tailored and targeted programs may work for diverse population segments of Los Angeles
  • 12. Literature on increased protective behaviors among minority groups Eisenman, et al., AJPH, 2009 Uscher-Pines L, Am J Prev Med, 2009 Page, L., et al., Biosecur Bioterror, 2008 Rubin, GJ., et al., BMJ 2008
  • 13.
  • 14. Reasons for non-evacuation Little known about low-income, urban, minority communities Transportation, shelter, historical experience cited in surveys Decision-making is multifactorial and socially embedded; surveys don’t address this. Qualitative research is needed
  • 15. Purpose To study the experience of Hurricane Katrina evacuees to understand evacuation decision- making in impoverished, urban, mainly minority communities. Participants describe factors affecting evacuation that are more complex than previously reported, interacted with one another, and were socially influenced. Eisenman, et al., AJPH, 2007
  • 16. Quick response research Mon Tues Wed Thurs Fri Aug 29 30 31 Sept 1 2 Katrina NOLA Astrodome Houston landfall evacuated opens shelters house 27K Eisenman camping trip 5 6 7 8 9 Labor Day NSF grant IRB Work in Recruitment submitted; fly shelter clinic; begins to Houston IRB approval
  • 17.
  • 18. Major Themes: Social network Transportation Trust Risk Shelter perception Message Money, jobs, understanding property Health
  • 19. Transportation I mean, if you've got 20 people trying to get in one car it's not going to happen. So some people, you just stay because you have to.
  • 20. Shelter Really truly, we had cars, but we didn't know anybody to go to. They said go to Texas but I didn't know anybody in Texas.
  • 21. Health I could have made it on my own, but it was just my aunt and my uncle. Every few steps he made…she forgot his walker…every few steps he made he was falling down.
  • 22. Social networks My plans were to leave. Unfortunately we received a call and we had to come back home. My mother-in-law had called for us to come back…. You know when they get a certain age they get confused. My mother-in-law wouldn't leave the house. My husband wouldn't leave her and I'm not going to leave him.
  • 23. Social networks Like my Mom said, she's been through Betsy, Camille, all the hurricanes, the major hurricanes and she just wasn't evacuating. So I wasn't going to leave my Mom to stay there by herself. I had a 90 year old mother that I was taking care of and she would not leave that house for hell or high water.
  • 24. The influence of social networks: conclusions and recommendations Demonstrates interactions between factors influencing evacuation – Counterpart to Drabek’s finding “ families move as units and remain together, even at the cost of overriding dissenting opinions.” Broad networks hindered and facilitated evacuation – Stretched limited resources – Obligations to extended family, especially elderly who resisted evacuation or were frail, inhibited individuals and nuclear families Disaster research and policy must address social units not just individuals.
  • 25.
  • 26. •Programa para Responder a Emergencias con Preparación. •A culturally-targeted, community-based program to promote disaster preparedness among low income Latinos •UCLA, Coalition for Community Health (CCH), Los Angeles County Department of Public Health
  • 27. Preparedness in Los Angeles is low... Family Emergency Plan 39.3% 3 Days Food/Water 82.0% Battery-Powered Radio 93.6% First Aid Kit 70.8% Flashlight 76.2% Spare Batteries 77.4% 30% 40% 50% 60% 70% 80% 90% 100% * While most residents have each item, only 45% have all 5 items; <40% have plan.
  • 28. Latinos less likely to have supplies (OR=0.73) and Spanish speakers less likely to have emergency plan (OR=0.61)* 60% 56.4% 47.4% 47.5% 42.5% 45% 41.8% 40.8% 38.8% White Latino Africa American 32.2% APIs - Chinese 30% APIs - Korean 22.5% 16.8% 15% Disaster Supplies Emergency Plan * Controlled for age, gender, income, education, community, country of origin, health.
  • 29. Promotora Local lay community residents trained in basic health promotion skills working with fellow community members who are under-served by the health care system. Use their cultural knowledge, social networks, and leadership role in the community to model behavior, overcome barriers, and create change. Provide connections between community and health care system including informal counseling, service assistance, education. Improved health care access, prenatal care, health behaviors. Not previously used in U.S. disaster preparedness
  • 30. PREP logic model PREP CAB Focus CAB Interven New Groups tion behavior CBPR CBPR CBPR CBPR CBPR HBM PADM HBM PADM SI
  • 31. “Disaster Kit” Only half heard of term “disaster kit” or “emergency kit” – What's the difference between a disaster kit and a first aid kit? – Storage, like when we buy something we say this is for storage – Emergency things Eisenman, et al., JHCPU, 2009
  • 32.
  • 33. Communication Plan For most very fuzzy having the means to get communications from others during a disaster – A portable radio. – If there is no electricity you can’t ever charge your cell phone. – a little book with all the emergency phone numbers – walkie talkies Kind of like an emergency exit.
  • 34.
  • 35. PREP Experiment: Overview Randomized, longitudinal two-group cohort design of a culturally-tailored, disaster preparedness program – ‘high-intensity’ vs ‘low-intensity’ groups Latino immigrant adults living in Los Angeles County, recruited using Respondent Driven Sampling – Eligibility: Latino, adult, domiciled in Los Angeles, 1 adult per household Baseline and 3-months post-intervention telephone assessments.
  • 36. Theoretical Model Demographic Milling/norms H1: Disaster supplies Culture/Beliefs: Perceived benefits H2: Communication (fatalism, locus of plan responsibility, Perceived literacy) barriers Self-efficacy
  • 37. Media Culturally tailored brochure Laminated shopping card Pre-printed/perforated communication cards
  • 38. Platica Small group discussion, 1 hour Led by a trained promotora Held at community site. + Media materials N=25
  • 39. Respondent Driven Sampling A type of chain referral sampling method that uses social network theory to gather a sample representative of the target “hidden” population. 7 seeds – Recruitment instructions, 4 coupons with unique codes, 5$ per eligible recruit – All persons who called the study number and presented a valid coupon were assessed for eligibility.
  • 40.
  • 42. Eisenman, et al., Am J Prev Med, 2009
  • 43. Summary Culturally tailored materials did very well, often doubling proportions of preparedness. Significantly greater proportion of participants in the platica arm reported increases in important outcomes.
  • 44. Improving Communication Plans Nationally, fewer people have plans than supplies, even after media campaigns. Platicas led more participants to develop a written plan than media Is this due to social interaction resolving participants’ ambiguities? – Emergency communication plan requires discussion and agreement – Promotoras suited for clarifying uncertainties and misunderstandings
  • 45. Perceived benefit of a plan Responses to Pre- Post- “Having a plan for ….is helpful.” Strongly 32 (17%) 79 (42.3%) disagree Mildly agree 3 (1.6%) 6 (3.2%) Neither agree 4 (2.1%) 1 (0.5%) or disagree Mildly agree 20 (10.7%) 9 (4.8%) Strongly agree 128 (68.5%) 92 (49%)
  • 46. Emergency Plan perceived benefit of a plan Confusion and fuzzy understanding – Do we need different plans for different emergencies? For different times of the day and week? Doesn’t it matter what the authorities say during the emergency? Is text better than telephone?
  • 47. Emergency Plan Family emergency planning cannot totally be done in the family vacuum “Species-level” changes in communication Are we dubious about the benefit of a plan?
  • 48.
  • 49.
  • 50.
  • 51.
  • 52.
  • 53.
  • 54.
  • 55. Emergency Medication Supply Did not improve in PREP People in poor physical or mental health are less likely to be prepared. – Eisenman, DMPHP, 2009. Inflexible drug-dispensing policies prevent the public from building reserves – Carameli and Eisenman DMPHP, 2010.
  • 56. “The fact that every family’s plan involves other parts of the community is why I strongly believe that there needs to be one day in the year dedicated to the emergency planning process. If we as a nation feel it is really important for the public to develop emergency plans, it would be far more effective if everyone was doing that at the same time — rather than asking individuals to do it on their own so the planning can be integrated.” John Solomon, incaseofemergencyblog.com, 9/13/10