The results of the Head and Neck Cancer Support Network annual survey.

1. Annual Survey Result
2018
Head & Neck Cancer Support Network

2. 74% of people you responded to the
survey were patients.
74%
19%

3. 48% of
respondents
are aged
56-65.
They are of
working
age.

4. 65% of respondents are women. 34% are
men.

5. 94% of respondents identified as
European.

6. 25.81% of respondents were diagnosed
with HNC in the last year.

7. Most respondents were treated at...
Auckland 25.81%
Mid Central 19.35%
Canterbury 19.35%
Hutt Valley 16.13%
Nelson Marlborough 12.90%

8. Most of the respondents use email and
Internet.

9. The most common cancer type is...
Tongue 41.38%
Larynx 24.14%
Tonsils 17.24%
Salivary Glands 10.34%
Mouth 10.34%

10. Most people 79.31% were treated in the
public system.

11. Most respondents were treated with
surgery and radiotherapy.

12. The respondents had these experiences.
Given dignity and independence. 83.71%
Treated with respect. 82.14%
Provided with services of an appropriate standard. 78.57%
Communicated with effectively. 68.86%
Fully informed about your condition, treatment options, side effects and timeframes. 68.86%
Invited to bring support people with you before, during and after your treatment. 66.67%
Provided with the information you need to make an informed choice. 60.72%
Given honest and accurate answers to questions relating to services including the identity of the
people treating you, and how to obtain a second opinion. 60.72%
Informed that you would be participating in a teaching programme or research project. 32.14%
Informed that you have the right to complain in any manner which is appropriate for you. 25%
Provided with a written summary of your options. 28.57%
At any time felt subject to discrimination, coercion, harassment and exploitation. 10.71%

13. The respondents felt satisfied with...
Being treatment with respect, dignity and fairness. 80%
Patient privacy 77.78%
Quality of information 64%
Quality of communication 64%
Referral and communication prior to treatment 62.96%
The Multi-Disciplinary Meeting 62.96%
Treatment - Surgery 62.96%
Care and/or prior to treatment 59.25%
Treatment - Radiotherapy 59.26%
Treatment - Outcomes 59.26%
The process of making an informed choice 55.56%
Follow Up Care 53.84%
Surveillance of further or new cancer 52%
Treatment - Chemotherapy 33.33%
Treatment - Reconstruction and rehabilitation 33.33%
Care coordination between Head and Neck Cancer Services and the General Practitioner 40.74%
Access to rehabilitation professionals 33.33%
Complaint processes 18.52%