This presentation was given by Colette Christen during the 2nd Rett Clinic Family Symposium at the Children's Hospital Colorado. It talks about Anxiety and Depression with focus on Rett syndrome. The Rett Clinic is funded by the Rocky Mountain Rett Association.

1. Identifying
Community
Resources
Colette Christen – Family Navigator – Neurology
(720) 777-5486

2. School Concerns
Resources at the school that can provide assistance:
 School Nurse
 Special Education Teacher
 IEP/504
 Community Resources
 Peak - www.peakparentcenter.org
 THRIVE – www.thrivectr.org
 ARC – www.thearcofco.org
 WrightsLaw – www.wrightslaw.com
 Family Voices – http://famillyvoices.org

3. Social Security/Medicaid
SSI – supplemental security income – dual eligibility – financial need
and level of disability. At 18, child can qualify on own, even if in parent
household.
www.ssa.gov
(800) 772-1213
Health Care Policy and Financing – HCPF
www.Colorado.gov/hcpf
Medicaid/ Medicaid Waivers/ Medicaid Buy In

4. Early Childhood Intervention
Early Intervention
www.eicoloardo.org
Child Find
www.cde.state.co.us/early/childfind/directory

5. Community Center Boards (CCB’s)
Colorado has 20 CCB’s serving Children and adults (birth to
death) with developmental disabilities
 EI
 Medical Waivers
 DD Services
 Family Support

6. Medicaid Waivers
Eligibility:
 SSI level of disability
 Over income for SSI
 Over income for Medicaid Buy In
11 different waivers available on HCPF website
www.Colorado.gov/hcpf

7. Healthy Communities
Every child that has Medicaid, birth to 20, has benefits of case
management including:
 Transportation
 DME
 County Specific
Family Health Coordinators Veyo (855) 264-6368
www.Colorado.gov Medicaid Non Emergency
Medical Transport

8. RESPITE
Easter Seals – (303) 233-1666 ext 237
Specialized Sitters – (303) 910-4158
Megan’s Place - (303) 881-4988
www.megansplacellc.org
CO Respite Coalition
www.coloradorespitecoalition.org
Care.com

9. Disability Specific Organizations
Epilepsy Foundation of Colorado
http://www.epilepsycolorado.org/
Autism Society of Colorado
http://www.autismcolorado.org/
Prescription Assistance/Charity
United Healthcare Children’s Foundation Specific Drug Manufacturer Assistance Programs
www.uhccf.org
Friends of Man
www.friendsofman.org
Caring Voice Coalition (888) 267-1440 Kids Wheels
www.caringvoice.org
AV Hunter Trust
http://avhuntertrust.org/
Health Wealth Foundation
www.healthwealthfoundation.org
Patient Services Inc.
www.patientservicesinc.org

10. GOOGLE