Touching a Life Every Day


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Touching a Life Every Day

  3. 3. Parkinson’s disease affects 1.6 million people in the U.S. and, according to the National Institutes of Health, about 50,000 new cases are reported annually. This number will rise dramatically with the aging of the “Baby Boomer” generation. Symptoms of Parkinson’s disease range from tremors, slowness of movement, rigidity, difficulty walking and poor balance to difficulty in speech and swallowing, depression and memory loss. It is a chronic neurodegenerative illness with variable progression over time, usually leading to disability and death within 10-15 years of diagnosis. Each person diagnosed with Parkinson's will experience symptoms differently. We do not know what causes Parkinson’s disease and, as yet, there is no known cure. ABOUT PARKINSON’S DISEASE Parkinson's disease was first described in England in 1817 by Dr. James Parkinson. The disease most often develops after age 50. It is the second most common nervous system disorder of the elderly. Sometimes Parkinson's disease occurs in younger adults, but is rarely seen in children. It affects both men and women.
  4. 4. Disease # US Patients Leukemia & Lymphoma 900,000 Multiple Sclerosis 400,000 ALS (Lou Gehrig’s Disease) 30,000 Parkinson’s Disease 1.5 million IMPACT Parkinson’s Disease affects more people than Leukemia, MS, and ALS combined
  5. 5. NATIONAL PARKINSON ORGANIZATIONS National Organizations that Focus on Parkinson’s Research, Services and Education Michael J. Fox Foundation The Parkinson Council National Parkinson Foundation Parkinson Disease Parkinson Foundation Disease Foundation American Parkinson Disease Association NPF Chapters Parkinson Action Network Davis Phinney, etc. With several national organizations dedicated to research and quality of life issues for Parkinson’s patients, this often leads to inefficiencies. It is also difficult to determine their impact on local communities.
  7. 7. The Parkinson Council, an affiliated chapter of the National Parkinson Foundation (NPF), raises funds to provide resources and services to people with Parkinson’s disease living within the Delaware Valley region. Our Mission The mission of The Parkinson Council is to raise funds to provide financial support and grants to locally based nonprofits dedicated to improving the quality of life for Parkinson’s disease patients, caregivers and families. Our Values and Vision The Parkinson Council is the premier local organization dedicated to improving the quality of life for patients, caregivers, and their families impacted by Parkinson’s disease. We invest in research, education and services provided by world renowned institutions, and innovative service organizations in the greater Philadelphia area. We strengthen our role in the Parkinson’s community by increasing the number of lives we touch every year. WHO WE ARE About The Parkinson Council
  8. 8. Board of Directors Executive Committee Jeffrey Keefer, President Jo-Ann Zoll, Vice President Karen Jacobson, Vice President Mark Wilkin, Treasurer Ryan Haaz, Secretary Erika Aaron Geraldine Aaron Jan Albert Stephanie Lim Capello Vito Cosmo, Jr. Lisa Fiorito Dan Forman Donald Garfinkel Judi Guinan Arlene Halpern Herb Hopkins Lorraine Iacovitti Carol Leiper Barry Milberg Marie Molchen William Quinlan Suzanne Reichwein Ronald S. Robbins Kristen Young Wendy R. Lewis, Executive Director Geoffrey S. Harden, Development and Communications Director OUR PEOPLE The Council recognizes that an important aspect of our work is cultivation of community advocates and leaders. Our volunteer Board consists of experts in law, healthcare, research, nonprofit management and business development. With our volunteers and staff, The Council is able to grant financial resources to local providers of high quality services and resources to people with Parkinson’s and their families in the region.
  9. 9. SUMMER SOLSTICE/SPRING SWING: Our 3nd annual event in 2013, raised awareness and celebrated Parkinson’s Disease Awareness Month in April. GOLF: Since 1999, The Parkinson Council has presented the Golf Classic tournament at highly renowned golf courses throughout the Philadelphia region such as Saucon Valley, Philadelphia Cricket Club , and Philmont. In the event’s history, the golf outing has raised over $3.6 million to benefit local research and services associated with Parkinson’s disease. PARKINSON’S NIGHT AT CITIZEN’S BANK PARK: 2013 was our 8th year participating in the Phillies Phunraising Program, where a percentage of tickets sold supports the mission of The Council. WALK: For 12 years, walkers of all ages joined together during our annual Stamp Out Parkinson’s Walk, the biggest grassroots event in the Delaware Valley region devoted to raise awareness about Parkinson’s disease. In 2013, The Parkinson Council moved the walk from April to October . To date, our walk has raised more than $1.6 million to support Parkinson’s patients and their families. #GIVINGTUESDAY: #GivingTuesday is a call to action (globally and locally) that encourages personal philanthropy through bigger, better and smarter charitable giving during the holiday season. As a returning #GivingTuesday partner, The Parkinson Council is seeking financial support to expand movement classes (Dance, Yoga, Pilates) in our region for people with Parkinson’s and their care partners. *Contributions to The Parkinson Council: 2010 - 2012 2010 $565,000 2012 $877,202* 2011 $622,867 *Includes special events, memorials, honorariums In 2014, our goal is to increase the visibility of our work, strengthen our partnerships, and diversify our funding base. WHERE OUR DOLLARS COME FROM Our Events in 2013
  10. 10. Funding Priorities: 2014 MossRehab, Arcadia, Bryn $28,282 $15,000 Mawr, $1,000 MAPS, $23,000 Jefferson, $408,500 Penn, $755,888 Patient and Caregiver Services, (44%) Clinical and Scientific Research, (29%) Outreach and Education, (27%) GS/PP, $53,077 CNDR, $108,000 Summary of Strategic Goals and Priorities Highlight of Our Work in 2013 Invested in: Improved access to physical therapy, social supports and education for Parkinson’s patients, including traditionally underserved populations, and their families.  Mobility equipment to help Parkinson's patients with financial hardships stay mobile and engaged.  Innovative research to advance treatment therapies for Parkinson’s patients.  Integrated approach to services, including expansion of home visits to patients with transportation and mobility challenges.  Dance, yoga and Pilates classes in Philadelphia, Montgomery and Chester counties. From 2013 through 2015:  Grow its financial resources and expand our donor base;  Strengthen our board with specialized expertise that will enhance our reach in the region and our leadership depth;  Touch more lives within underserved populations;  Expand our programming to support the Parkinson’s community more directly; and  Build awareness of the disease and The Council’s brand as the principal resource to address the disease in the region. OUR WORK AND PRIORITIES IN 2014 Grants by Institution: 2010-2013
  11. 11. The Council is committed to increasing its support for People with Parkinson’s by investing in local institutions and nonprofits. JOIN US Our Priorities: 2014 Fundraising Grants & Support Messaging & Outreach Programs & Services Our Goal The Parkinson Council seeks to be the leader in investing funding resources for PD patients, caregivers, researchers and educators in the Delaware Valley Region. What Your Support Will Do Your support ensures that local Parkinson’s patients, their families and caregivers have the needed resources and tools to promote a high quality of life and exceptional care. Your support makes it possible for local research institutions to continue their efforts to find the cause of and a cure for Parkinson’s disease. Your support is critical in helping us fulfill our vision of “touching a life every day.”