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Donor Ambassadors and a change in behaviour among the BAME communities towards donation in United Kingdom
- 1. Donor Ambassadors and a change in behaviour among the BAME communities towards donation in United Kingdom Shibu Chacko Specialist Nurse Organ Donation NHS Blood and Transplant, UK Email: shibu.chacko@nhsbt.nhs.uk
- 2. Disclosure of conflicts of interest The speaker has no financial or other conflicts of interests to report concerning this presentation.
- 3. Background • Deceased donation in the UK relies upon family consent • Currently over 6500 people waiting • 3 people die every day while waiting • 21 million in NHS Organ Donor Register – 32% of the population • Cultural issues and religion are one of the important influencing factors – Research findings
- 4. What is the issue? • 14% of the UK population is BAME (Black, Asian, Minority Ethnic Community) • Only 3.5% representation on NHS Organ Donor Register • Only 4% of the actual deceased donors (52 last year) • Less than 30% consent rates Vs 65% in Caucasians • Around 35% of patients on the transplant waiting list are BAME • BAME recipients wait a year longer for a transplant (Blood and tissue type match)
- 5. New initiative – Donor Ambassadors • Introduced the programme in 2015 • Initially recruited 6, then a further 14 from BAME and non BAME background. • Extensive training – complex communications • DA supported the marketing teams in various campaigns • Role involved with active engaging with communities, resource person, a community leadership role and being an advocate for donation
- 6. Skills & Behaviours Demonstrated by DA • Communicator – positively promote donation • Collaborator - with various sectors of the community • Leader - towards the NHSBT 2020 strategy • Customer focussed • Performance based feedback from others • Innovative ways of working with BAME communities
- 8. Results • DA worked among various communities and attended events all around the country. • Current active DA’s average over 6 events a year • Supported by the BAME Network of the organisation • Achieved over 500 new registrations to NHS Organ Donor Register and to the Blood donor register specifically from the BAME communities • And the work continues!
- 9. Thank you
Editor's Notes
- Good after noon. My name is Shibu Chacko and I work as a specialist Nurse in Organ Donation with NHS Blood and Transplant UK. Today I am going to present the success in the change of behaviour among the Black Asian and ethnic minority communities towards organ donation through the donor ambassador programme.
- What is the issue? 14% of UK population is BAME – But only 3.5% representation on NHS Organ Donor Register Out of the 1300 donors we had last year, only 52 were from the BAME communities. And the consent rates are only 30% compared to 65% in Caucasians. But around 35% patients on the transplant waiting list are BAME and they tend to wait a year longer for transplant.
- In order to address the issue, NHS Blood and Transplant has introduced the donor programme in 2015. Initially recruited 6 volunteers from the staff members, then a further 14 were recruited. The volunteers were given extensive training on complex communications, collaboration, leadership skills and other innovative ways of working with communities. Then the trained DA organised campaigns in their own communities and acted as an advocate and resource person for organ donation.
- The results were very impressive. The active DA organises on average 6 events a year. We have achieved over 1000 new registrations from the BME communities over the last 12 months. Which we are really proud off and the work continues!