We believe that India is at a unique tipping point where only a fraction of its users have gone online, and a majority are yet to do so. Therefore, it is critical that we build the right set of protections and empowerments for these users as they enter the digital world.
It is equally important not to limit our thinking to simply “protection” of data. We must also question how we can “empower” individuals, who will be data rich before they are economically rich, with better access to their own healthcare data such that they can become more engaged participants and managers of their health care.
We welcome the proposed DISHA Act that seeks to Protect and Empower Individuals in regards to their electronic health data - we have provided our feedback on the DISHA Act and have also proposed technological approaches in this response