2. World Rare Disease Day is a campaign to
raise awareness of rare diseases. Since
the beginning of 2008, thousands of
events are organized around the world
which include millions of people.
3. The campaign started as a European
event and over time it has become a
global phenomenon, with the
participation of more than 90
countries around the world in 2018.
For the first time in 2013, The
Republic of Macedonia got involved
in celebrating this rare day.
4. Only a small percentage of the
population suffers from rare diseases.
For every 2,000 people, one has a rare
disease. Over 300 million people
worldwide suffer from rare diseases.
There are 6000 different types of rare
diseases worldwide.
5. 5% of the existing rare diseases
do not have adequate therapy. The
rare disease is always difficult
to diagnose. The first symptoms
appear immediately after birth or
in the first few years. They are
genetic in nature and cause severe
damage.
6. The rare disease is always
difficult to diagnose. The first
symptoms appear immediately after
birth or in the first few years.
They are genetic in nature and
cause severe damage.
7. Because not every rare disease is
visible, nor is it easily recognizable,
and there is a need for adaptation, on
Rare Disease Day they call for action
so that people living with a rare
disease can have equal opportunities to
realize their potential to participate
in family, work and social life,
because rare diseases affect not only
patients but the whole family, friends,
caregivers and the whole society.
