1. What are your
career opportunities?
PATIENT
AND FAMILY
PARTNERSHIP
COUNCIL
More Information
To learn more about KHI or the Patient
and Family Partnership Council,
contact us:
Celeste Castillo Lee
Chair
Patient and Family Partnership Council
ceclee@med.umich.edu
Melissa West
Project Director
Kidney Health Initiative
mwest@asn-online.org
Ryan Murray
Project Associate
Kidney Health Initiative
rmurray@asn-online.org
Kidney Health Initiative
1510 H Street NW
Suite 800
Washington, DC 20005
Email: khi@asn-online.org
www.kidneyhealthinitiative.org
KHI Mission
KHI seeks “to advance scientific
understanding of the kidney health and
patient safety implications of new and
existing medical products and foster
development of therapies for diseases
that affect the kidney by creating a
collaborative environment in which the
Food and Drug Administration (FDA)
and the greater nephrology community
can interact to optimize the evaluation
of drugs, devices, biologics, and food
products.”
More than 20 million Americans live
with kidney disease and more than
570,000 Americans have kidney
failure. Rates of kidney disease and
kidney failure are rising globally and
will increase in concert with the rise
in major underlying causes: diabetes,
hypertension and obesity. We must
work together to:
1. Develop novel drugs and products
to advance kidney care.
2. Ensure all products on the market
are safe for patients and their
kidneys.
3. Eliminate racial and ethnic
disparities in kidney disease.
2. 1. American Association of Kidney
Patients
2. Home Dialyzors United
3. JDRF International
4. National Kidney Foundation
5. NephCure Kidney International
6. Oxalosis and Hyperoxaluria Foundation
7. PKD Foundation
8. Renal Support Network
9. Vasculitis Foundation
1. Advancement of Patient and Family
Partnership and Funding of Kidney
Disease
2. Biomarker and Pathogenesis
Understanding
3. Closer Collaboration with FDA and
other Government Agencies
4. Clinical Trial Endpoint and Design
5. Clinical Trial Infrastructure & Developing
the Evidence Base
KHI Member Patient
Organizations and Foundations
KHI facilitates projects
focused on:
Purpose and Charge of the KHI
Patient and Family Partnership
Council
The mission of KHI is to enhance patient
safety and foster innovation in kidney disease,
making patients and their care partners at the
heart of the KHI mission.
In order to advance KHI’s efforts to improve
patient safety and promote the development
of the therapies for diseases that affect the
kidneys, KHI established its Patient and Family
Partnership Council (PFPC) in 2015.
The PFPC works closely with the KHI Board
of Directors and staff and to advise and make
recommendations on various aspects of KHI
so that the patient’s voice, experience and
involvement is meaningful and effective.
The PFPC has been charged with providing
strategic guidance to KHI about how to
activate and include patients, their families and
care partners in KHI activities, including but
not limited to:
1. Advising KHI members regarding patient
involvement in their project proposals
2. Outlining opportunities for patients to serve
once a project has been endorsed
3. Identifying patients to serve on project
workgroups
4. Collaborating on developing patient
centered project(s) to submit for KHI
endorsement
KHI Patient and Family
Partnership Council Members
Ms. Celeste Castillo Lee
Chair and Liaison to KHI Board
of Directors
Vasculitis Foundation
ceclee@med.umich.edu
Ms. Denise Eilers, BSN, RN
Home Dialyzors United
GeneDeEi@aol.com
Mr. Richard D. Fissel
NephCure Kidney International
richardfissel@gmail.com
Mr. Kevin J. Fowler
PKD Foundation
kevinjohnfowler@gmail.com
Ms. Terry F. Litchfield
American Association of Kidney Patients
and Dialysis Patient Citizens
tlitchfield@rmslifeline.com
Ms. Roberta L. Wager, MSN, RN
American Association of Kidney Patients
rwager@satx.rr.com
Ms. Caroline Wilkie
National Kidney Foundation
CarolineMWilkie@gmail.com
For more information on KHI projects,
please visit www.KidneyHealthInitiative.org
