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Similar to Art and Science Awareness and Hope for MS Patients (20)
Art and Science Awareness and Hope for MS Patients
- 4. Walk MS in Seattle April 3, 2011 Walk MS in Snohomish County April 2, 2011
- 5. 400,000 and 2.5 million
- 6. Virus or Bacteria? Genetics? Geography? “Is it the trees?”
- 7. The immune system: Good Guys vs. Bad Guys The Brain, spinal cord: “Nerve information Super highway”: Electrical wiring Misdirected self-defense: Demyelination
- 8. Let’s talk about symptoms Vision muscle strength Touch Pain Bladder Balance and coordination Fatigue Cognitive mood
- 9. Relapsing-remitting Secondary progressive Primary progressive Relapsing progressive Goal: Have more choices Goal: Delay the progression
- 10. Once Slow Reduce Active Positive MRI After your 1st flare-up Reduces the risk of another by 44%
- 11. Take Action for Today and Tomorrow Once a week injection After 2 years, our patients decreased progression by 37% After 5 years: 90% of our patients were still VERY active
- 12. Very few negative side effects After 10 years: 8 out of 10 patients were less than 3.0 on the EDSS scale (Expanded Disability Status Scale) The most accepted medication
- 13. Fifty percent of people with relapsing-remitting MS will develop secondary progressive MS within 10 years of their initial diagnosis
- 14. What We’ll Accomplish Together What sets Avonex apart? A Very personal approach How to administer Your questions and concerns Nutrition, exercise and ideas Understanding side effects and your “worry” list Collaboration with your doctor
- 15. Prefilled from the refrigerator Correct name and expiration date Room temperature 30 minutes heat source warm the syringe Your “Once-a-Week” Injection
- 16. Frozen Peas
- 17. Like a Pencil
- 18. Possible Side Effects Flu-ish Symptoms call me or your doctor Redness, swelling, itching www.avonex.com After 8 years, only 2% stopped because of side effects
- 19. In Summary Goal: Have more choices and to delay the progression: Choosing Avonex Once, Slow, Reduce, Active After 2 years, decreased progression by 37% After 5 years: 90% still VERY active After 10 years: less than 3.0 on the EDSS scale Very few side effects: Your personal RN (emotional, physical and financial concerns) 50% of relapsing-remitting will develop secondary progressive within 10 years
- 20. Additional Support MSnorthwest@nmsswas.or g www.avonex.com New Self-Help Groups: Lynnwood and Seattle 1-800-344-4867
- 21. Questions? Ideas? Thoughts? Art and Science Nurse Jen 425. 281. 2404
Editor's Notes
- “many scars”. spinal cord and the brain. Over 400,000 people 2.5 million people worldwide “many scars”. \ twice as many women ages of 20 and 50 years. .
- “many scars”. spinal cord and the brain. Over 400,000 people 2.5 million people worldwide “many scars”. \ twice as many women ages of 20 and 50 years. . Olympia was ablaze in orange scarves as nearly 100 MS Activists from across Washington State converged on the Hill for the National MS Society Day of Activism on February 5, 2009. Activists spent the morning in conference, preparing for the afternoon's individual visits with legislators. Mary Selecky, Washington State Secretary of Health, was our keynote speaker on the topic of 'The Role of Grassroots Activism in Times of Economic Uncertainty'.
- Researchers are currently studying if genetically predisposed individuals have a inappropriate immune response to a virus or bacteria, and this immune response leads to MS. Recently, some viruses have been linked to a potential for developing MS. However, there is no evidence that MS is contagious. Multiple sclerosis is not directly inherited, but it is clear that genetic factors play a role in who gets the disease. Children and siblings of people with MS are at higher risk of getting the disease. Non-identical twins have the same risk as that of any other sibling, but the identical twin of a patient with MS has a much higher risk of getting the disease. Even though genetics are clearly involved, the fact that the identical twin of a person with MS does not always get the disease tells us that more than genetics is involved The place where you grew up also plays a role in determining who is more likely to get multiple sclerosis. Multiple sclerosis is more common in cooler areas of the globe. In the United States, Northern states have higher rates of MS than Southern states, and Canada has a rate of MS double that of the US. However, the geographical effect only seems to apply to the first fifteen years of life. If you grew up in a Northern state and then moved to a Southern state at 25 years old, your risk of MS would be the same as for anyone who never left. Moving to a warmer climate after age 15 confers no protection.
- Crucial to the normal functioning of the immune system is the ability of immune system cells to recognize the difference between healthy cells that are part of the body and unhealthy invaders such as bacteria and viruses. In autoimmune diseases, the immune system loses this ability to distinguish between host and invader. Certain cells in the immune system start attacking healthy tissue as if it were an infection. This is what scientists believe happens in multiple sclerosis. Cells that normally fight infection start attacking the myelin around nerve fibers as if it were an invader. Though multiple sclerosis has been recognized as a disease since the mid 1800's, its cause still remains a mystery. Scientists are working with several theories about the cause of multiple sclerosis as their foundation for efforts toward a cure.
- Multiple sclerosis symptoms can cause a wide range of problems. Some problems occur often, and some are seldom seen. Each person’s MS is unique and each person’s MS can progress differently. Basically, MS can progress in two ways. The first is through a flare-up, which is sometimes called a relapse, attack or exacerbation. The second is silent progression. This means that MS is advancing even when there are no symptoms. Either progression means that damage is done to the central nervous system over time. This is why it is so important to begin multiple sclerosis treatment as soon as possible. Some multiple sclerosis symptoms are seen more often early in the course of disease, while others show up later as the disease progresses. Below is a list of the most common symptoms of MS. Keep in mind that no two people have the same experience with MS. Your symptoms may be very different from the symptoms of another person. Make sure you speak to your healthcare provider if one or more of your symptoms act up. You could be having a flare-up. Being aware Multiple sclerosis symptoms are unpredictable Many people with multiple sclerosis wonder why their symptoms may suddenly appear, last a few weeks, and then clear up completely. The reason for this is that damaged myelin can often heal itself. However, with multiple sclerosis, though the myelin may heal enough to alleviate symptoms, scars and lesions are often left behind indicating where the damage was done. These scars can build up and themselves interfere with the electrical impulses traveling across the central nervous system. In addition, in places where the myelin does not heal, the axon itself can become damaged. Multiple sclerosis symptoms can cause a wide range of problems. Some problems occur often, and some are seldom seen. Each person’s MS is unique and each person’s MS can progress differently. Basically, MS can progress in two ways. The first is through a flare-up, which is sometimes called a relapse, attack or exacerbation. The second is silent progression. This means that MS is advancing even when there are no symptoms. Either progression means that damage is done to the central nervous system over time. This is why it is so important to begin multiple sclerosis treatment as soon as possible. Some multiple sclerosis symptoms are seen more often early in the course of disease, while others show up later as the disease progresses. Below is a list of the most common symptoms of MS. Keep in mind that no two people have the same experience with MS. Your symptoms may be very different from the symptoms of another person. Common multiple sclerosis symptoms are discussed below: Changes in vision Loss of muscle strength in arms and legs Change in sense of touch Pain Bladder/bowel problems Sexual dysfunction Balance/coordination problems Fatigue Changes in cognitive function Mood changes
- course of illness can vary from person to person, there are four forms of relapsing-remitting MS, secondary progressive MS, primary progressive MS, and relapsing progressive Relapsing-remitting MS: This type shows clearly defined flare-ups or relapses with some amount of recovery in between. It affects about 85% of all people with MS. Secondary progressive MS: While technically a form of progressive MS, this type acts more like a relapsing form of MS in its early-to-mid stage, with relapses and remissions being quite common. But then a more continuous loss of physical and cognitive functions starts to take over, and flare-ups or relapses become less common. Fifty percent of people with relapsing-remitting MS will develop secondary progressive MS within 10 years of their initial diagnosis. Relapsing progressive MS: PRMS affects about 5% of people with MS. It is characterized by steady worsening of symptoms and occasional relapses. Primary progressive MS: In this type of multiple sclerosis, there are no flare-ups or relapses, but over a period of years, there is gradual loss of physical and cognitive functions. This form of MS affects about 10% of all people with MS.
- Benefits of AVONEX Chosen by more patients than any other treatment Take Action Against relapsing MS with once-a-week AVONEX Multiple Sclerosis Treatment Not all MS treatments are the same. AVONEX is the only once-a-week multiple sclerosis treatment choice that is proven to slow physical disability, reduce MS flare-ups and work after the first attack. One of the most important questions you and your doctor face after a diagnosis of relapsing MS is which treatment is right for you. Consider once-a-week AVONEX. Since its approval, more patients have chosen AVONEX than in any other MS therapy in the world. AVONEX is the only once-a-week multiple sclerosis treatment that helps slow down physical disability progression, reduces the number of flare-ups, and works after the first attack. In this section, you can learn about your multiple sclerosis treatment options and why it's important to get an early start. Understanding this information will help you and your doctor make the best treatment decision
- AVONEX Can Help You Take Action for Today and Tomorrow By choosing AVONEX you’re taking an important step towards the treatment of relapsing multiple sclerosis. Taking AVONEX can help, and can have a positive impact on your future. Here’s how AVONEX can make a difference: AVONEX slowed down physical disability progression In a 2 year pivotal study, AVONEX slowed down physical disability progression by 37%. In a 5 year follow up to a separate study 90% of people taking AVONEX were still active.
- Expanded Disability Status Scale (EDSS) Fifty percent of people with relapsing-remitting MS will develop secondary progressive MS within 10 years of their initial diagnosis AVONEX helps you stay active and able longer Proven to work after the first attack* Reduces MS flare-ups Slows down physical disability progression Reduces brain lesions and the rate of brain shrinkage AVONEX is easy to start and stay on Convenient once-a-week dosing Low discontinuation rates due to side effects Personalized patient support Explore the pages in this section to learn more about the potential benefits of MS treatment with AVONEX, and remember—you can always contact an AVONEX MS Support Specialist with any questions or concerns.
- Expanded Disability Status Scale (EDSS)
- If your doctor has told you to use less than the full dose, slowly push the syringe plunger in until the amount of medication left in the syringe is the amount your doctor told you to use. FROZEN PEAS, alcohol wipes, gauze pad, small adhesive bandage, and puncture-resistant container Wash your hands Choose a spot to inject / alcohol wipe (circular) Remove the cap The syringe should be filled to the 0.5-mL mark. This is a full dose.
- Use your thumb and forefinger to pinch up a pad of skin Hold the syringe like a pencil with your other hand. Hold the syringe at a 90-degree angle (straight up and down), stopping just underneath the skin. When the needle is in, let go and slowly push down on the syringe Hold a gauze apply pressure to the spot for a few seconds. You may cover the spot with a band-aid. Throw away Apply ice pack to the injection spot. After 2 hours, check the injection spot for redness, swelling, or tenderness.
- over time. Talk to your doctor if these symptoms last longer than the first few months of therapy, or if they are difficult to manage or become severe Flu-like symptoms: headache, fever, chills, sweating, muscle aches, back pain, and tiredness that last for a day Tylenol, Advil Improve or go away.