Powerpoint from ASA 2014 presentation: Walls as Working Memory
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Executive Function disabilities are common in autism spectrum disorder (ASD). Working around them requires specific strategies that build on strengths, differing from how "most people" do tasks, to be successful. Visual supports and relatively low cost, low tech, environmental modifications can contribute to successful independent functioning through the lifespan. Executive Function disabilities are common in ASD. Working around them requires specific strategies that build on strengths, differing from how "most people" do tasks, to be successful. The two presenters of this session are adults on the spectrum, and both have limited incomes. One of us is a young adult, living on her own, working and attending University. The other is the parent-financial, medical, educational and social coordinator for a family of three, all on spectrum, who previously was the household coordinator of a family of six. The four older kids, all of whom have significant Autistic characteristics, are now out and on their own. A variety of visual supports can contribute to successful independent functioning through the lifespan. It is unfortunate that so many providers and parents believe visual schedules and charts to be applicable to only young children, as they are useful for anyone. This is why consultants earn huge sums developing timelines and other visuals for corporate and governmental America. For many people on the spectrum, visuals are crucial, for out of sight truly is out of mind. Because of our own experiences and situations, we emphasize relatively low cost, low tech, environmental modifications. We also define success in a manner that does not hold people to unattainable guidelines, as that is counterproductive to functioning in the real world.
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Powerpoint from ASA 2014 presentation: Walls as Working Memory
- 1. Habitat Autistification Or, how walls and shelves can be the best external executive functions ever.
- 2. Things to Think About What am I struggling with? How does my brain work? How much space do I have? What other resources do I have? Does anyone else share the space? Do other people help with functions here? What am I capable of actually implementing?
- 3. Example Time! I can't actually remember to do things, or what lives in my fridge, or what I need... If I cannot see it, it does not exist. At least not when I need it to exist. If I don't have a way of marking a thing done, it doesn't register as such. Handwritten posters, notecards, lists are about what I've got. And I do like velcro... Apps are not something that I can generally use in a helpful way Money is limited.
- 4. Example 2: The Second Presenter Three Autistics live in our home. All have different needs and one gets help from a PCA. We have both dietary issues and outsiders in the kitchen. One person here has vision issues so contrast and clarity are important. One person is a young student. One person is self employed and one has to keep to an irregular, employer-set schedule. Money is limited. Financial situation is complex and there is a lot of paperwork with deadlines.
- 5. Example 3: for a kid I know Struggles with remembering morning routine If she gets on the computer, nothing else is happening. Likes smiley faces and checkboxing things. Oh look, I have left over posterboard and velcro...
- 6. Executive Function: Critical Areas 1. Time 2. Paper 3. Stuff 4. Food 5. Medical 6. Work and School
- 7. Time Calendar (by door) Schedules (On door) Ordering of processes /flow charts Rhythm of Life Routines can be helpful – developing them varies
- 8. Paper Function of Stuff and Time Issues: Keeping track Being Timely Being legible Solutions Large Ziplocs Folders Labeled Fileboxes Multifunction printer, software
- 9. Stuff Example: Clothing Problem: Can't find it - buy more Solution : Keep it in plain sight Backup: diagram Put right away Divided drawers
- 10. Stuff Example: Toys, Books, Other Problem: Where are they? Solution : Keep it in plain sight Label boxes, or Clear boxes or Clear lids Problem: Breakage Loss Solution: Sturdy Containers Consistent places Routine for putting away Not this..... or This. Try this, this, or this
- 11. Stuff Example: Kitchen/bath Problems: Multiple users Everyday use Multiple sets of materials Solutions Color Coding In Plain Sight See through containers Open Cupboards Glass Doors Like with Like
- 12. Food Problems Waste What is there? Helpers in the Kitchen Diet issues Solutions In plain sight See-through containers Labeling! Color coding Lists Like with like
- 13. Medical Time/Paper/Self-care Problems: Medications Appointments Solutions: In Plain Sight Lists Schedules Routines Folders, magnets, clips, and containers Meds in container, routine includes a cup – Scheduled appts from fridge magnet to front door
- 14. Medical - Self-care And in the nice theory, but it does not meet specs department, we have...... Doesn't accommodate “as needed” meds Not portable Some meds can't be stored together Doesn't accommodate time agnosia Time consuming Doesn't accommodate med
- 15. School/Work Where stuff, time, and paper intersect Problems: Deadlines Time Management Legibiity Solutions: In Plain Sight Lists Schedules Routines Color Coding Like with like Labels are helpful Schedules, timelines, software can help
- 16. Coming and Going Leaving the nest: different for everyone, lots of stuff to remember
- 17. Visuals That I Made:
- 19. More Fine Tuning
- 20. Tying it all together (I'm like that)
- 22. Useful tools Computer programs and a multi- function printer can be useful Worksheet Wizard lets you type and draw on any Acrobat file Word (or similar) lets you make tables like the clothing diagram to the right Simplemind flowcharts – for decision trees and packing lists
- 23. And About the Sainted “Apps”.... Trello Issues Time consuming Out of sight, out of mind Cumbersome setup process Inflexible
- 24. Apps AnyList Issues Took a long time to set up Concept was great, execution difficult Requires an account to save Inflexible in how it categorizes foods Difficult to change categories, eg canned vs fresh
- 25. Apps Informant issues Cumbersome to set up Requires upgrade ($14.99 ;$14.99/yr to synch) in order to colorcode, have notes or to-do list, location support, set up task folders beyond a week. Out of sight, out of mind
- 26. Apps MyHomework Issues Requires account to set reminders, add info, sync, full accessibility via color changing Privacy issues w/account Out of sight, out of mind Teacher communication requires coordination and account.
- 27. Apps The Homework App Issues Distracting full screen moving and talking ads. Because of ad noise, could not use in class, on site Need to remember to mute, No notification nag function Paid upgrade required for subtasks, instructor contact, sharing options. Out of sight, out of mind
- 28. Sourcing useful resources Simplemind (multiple platforms) http://www.simpleapps.eu/simplemind/ Open Office (free, open source) https://www.openoffice.org/ Worksheet Wizard (windows) www.readingmadeez.com/products/ WorksheetWizard.html
- 29. Sharing Time! Let's help each other now. Ideas? Need suggestions? Time to put our brains together.
Editor's Notes
- Left image is a white posterboard with a number of orange strips in 2 columns. Each orange strip has a chore written on it. The left column says “done this week” and the right column says “not yet done this week”. Right image is a blue piece of poster board titled “Don't Forget”. Listed in 2 columns are a number of common items needed when leaving the house.
- Left Image is a poster board entitled Grocery List with 3 columns, each containing some green strips with foods written on them. The far left column is Food I Have. The middle column is Food I Need. The far right column is “OTHER” Right image is a strip of velcro with individual cleaning supplies on a number of orange strips. The column is labeled “Cleaning supplies”.
- Left image is a series of white notecards with different colors of ink listing assignments. Right image is a series of colored notecards, listing assignments. They are organized in chronological order.
- Image is a black posterboard. In the upper left corner is a blue piece of paper with a weekly schedule on it. To the right of that are 2 columns, one with green strips of paper with tasks on them, one with orange. Each column has 2 strips of velcro. The green column is titled “things to do daily” and the orange one is “things to do weekly”. The right strip in each column is “not done” and the left is “done”. Beneath the schedule is a series of postit notes, each with an appointment on it. To the right of that is a difficult to see reminder “Don't forget to eat!”
- Image is a board with three rows with three columns each. Each column has 3 squares: a greed, a yellow, and a red. The column on the left says “Any format”, the one in the middle says “text only”, and the one on the right says “verbal only” The middle green square has an orange square with a K on it. The right green square has a green square with an A on it.
- Image is a board with three rows with three columns each. Each column has 3 squares: a greed, a yellow, and a red. The column on the left says “Any format”, the one in the middle says “text only”, and the one on the right says “verbal only” The middle green square has an orange square with a K on it. The right green square has a green square with an A on it.