11. …Patient advocates finally get a seat at the
table (but something’s not working…)
§ We’re often an afterthought
§ We have few resources (funding,
infrastructure)
§ We also have to make a living
(is our time valuable?)
12. …Patient advocates Finally Get a Seat
at the Table, but how effective can we be?
§ We have different, sometimes singular stories
§ No “database” of patients
§ We don’t all agree on approach
(“partnership” vs. more aggressive stance)
§ Those who are successful are SWAMPED!
13. …We Finally Get a Seat at the Table…
Patient Voices
Need a home
15. WHAT IF…?
We Built a New Community for
Patient Voices…
Welcome
Newly
Activated
Training
Development
Support
Speakers
Advisors
Consultants
16. WHAT IF it was
a resource for any entity seeking
Authentic Patient Perspective ?
Surveys
Focus Groups
Geographically
Or by Topic
Speakers
Advisors
Consultants
17. WHAT IF all who joined embraced
Reliable, Consistent Principles…
Safety
Partnership
Compassionate
Interaction
Access to
Meaningful
Information
Continuity
in Care
18. WHAT IF
everyone
in this new
community
pledged to weave
their authentic
personal story into
those Reliable,
Consistent
Principles?