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Information management
standards for national health
and social care data
collections
Barbara Foley
bfoley@hiqa.ie
Health Information Function
of HIQA
 Sets standards for all aspects of health
information
 Provide leadership in defining the health
information landscape in Ireland
 Enhance the foundations required to
enable eHealth in Ireland
 Drive improvements in quality of health
information
 Implement Business Intelligence
- National Patient Experience Survey
Health is information intensive
Current health
information landscape in
Ireland is complex
Catalogue of national
health and social care
data collections
Publications by HIQA in
this area include...
There is a need for standards to drive the quality
of health information to ultimately improve the safety
and quality of patient care
National health and social care
data collections enable:
Development of standards
Expert Advisory
Group
Public
consultation
Additional
engagement
with key
stakeholders
10
Information
management
standards
Person-
centred Governance,
leadership
and
management
Statement of
purpose
Legislation
and codes of
practice
Health
information
standards
Data quality
Use of
information
Information
governance
Workforce
Use of
resources
Scope and Purpose of the
standards
 ‘Managing organisation’ of national
health and social care data
collections
 e.g. NOCA – Irish Hip Fracture
database
 Provide a framework of best
practice to enable national data
collections collect quality data
 Work towards advancing
improvements in national health
information
1. Statement of purpose
2. Statement of
Information Practices
3. Data quality
framework
4. Data quality
statement
5. Data dictionary
Five Quality Improvement
Tools
Key theme – Data quality
Data Quality Statement
 Assurance of data quality
 To accompany published outputs from the national
collection
 Informed judgements about fitness for use
 Information on how each area of data quality is
addressed
Data Quality Framework
 Data quality policies and procedures
 Data quality KPIs and metrics
 Data quality audits
 Data quality improvement initiatives
“Quality is never an accident; it is always the result
of intelligent effort”
- John Ruskin
Data Dictionary
 Standardise definitions for
data items
 Ensure consistency in the
collection of data
 Ensure validity and reliability
 Clear summary of all data
items
 Remove confusion or
ambiguity
Review programme for
national data collections
2017
 Phased programme
 Prioritisation criteria for inclusion
 Guide to review programme
 Self assessment tool – questionnaire to
assess how managing organisation meets
the standards
 Summary aggregate report published
 Review of two national data collections
Step 1:
Self-Assessment Tool
Answer questions
Submit documentation
Improvement plan
Step 2:
Information request
Documentation requested by
HIQA
Information requested
by HIQA
Step 3:
On-site review
Documentation review
Interviews with staff
Observation
Review programme for
national data collections
2017
“Better data, better decisions....
.....resulting in safer better care”
Thank You

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HIQA Barbara Foley

  • 1. Information management standards for national health and social care data collections Barbara Foley bfoley@hiqa.ie
  • 2.
  • 3. Health Information Function of HIQA  Sets standards for all aspects of health information  Provide leadership in defining the health information landscape in Ireland  Enhance the foundations required to enable eHealth in Ireland  Drive improvements in quality of health information  Implement Business Intelligence - National Patient Experience Survey
  • 5. Current health information landscape in Ireland is complex
  • 6. Catalogue of national health and social care data collections
  • 7. Publications by HIQA in this area include...
  • 8. There is a need for standards to drive the quality of health information to ultimately improve the safety and quality of patient care National health and social care data collections enable:
  • 9. Development of standards Expert Advisory Group Public consultation Additional engagement with key stakeholders
  • 10. 10 Information management standards Person- centred Governance, leadership and management Statement of purpose Legislation and codes of practice Health information standards Data quality Use of information Information governance Workforce Use of resources
  • 11. Scope and Purpose of the standards  ‘Managing organisation’ of national health and social care data collections  e.g. NOCA – Irish Hip Fracture database  Provide a framework of best practice to enable national data collections collect quality data  Work towards advancing improvements in national health information
  • 12. 1. Statement of purpose 2. Statement of Information Practices 3. Data quality framework 4. Data quality statement 5. Data dictionary Five Quality Improvement Tools
  • 13. Key theme – Data quality
  • 14.
  • 15. Data Quality Statement  Assurance of data quality  To accompany published outputs from the national collection  Informed judgements about fitness for use  Information on how each area of data quality is addressed
  • 16. Data Quality Framework  Data quality policies and procedures  Data quality KPIs and metrics  Data quality audits  Data quality improvement initiatives “Quality is never an accident; it is always the result of intelligent effort” - John Ruskin
  • 17. Data Dictionary  Standardise definitions for data items  Ensure consistency in the collection of data  Ensure validity and reliability  Clear summary of all data items  Remove confusion or ambiguity
  • 18. Review programme for national data collections 2017  Phased programme  Prioritisation criteria for inclusion  Guide to review programme  Self assessment tool – questionnaire to assess how managing organisation meets the standards  Summary aggregate report published  Review of two national data collections
  • 19. Step 1: Self-Assessment Tool Answer questions Submit documentation Improvement plan Step 2: Information request Documentation requested by HIQA Information requested by HIQA Step 3: On-site review Documentation review Interviews with staff Observation Review programme for national data collections 2017
  • 20. “Better data, better decisions.... .....resulting in safer better care”