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Forecasts for the future of DCTs.pptx (2).pdf
1. Forecasts for the future of DCTs and
Digital Clinical Trials
Emily (Kunka) Lewis, MS, CCRP
Digital Business Transformation, Neurology
UCB Biopharma
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UCB is a global
biopharmaceutical
company focused on
solutions for people
living with severe
diseases.
By putting people at the
heart of everything we do,
we enable people to live
their best lives, as free
as possible from the
challenges of disease.
From Solution
to Patient
We strive for a unique
patient experience,
providing solutions
with the highest
possible impact.
From Patient
to Science
We pursue a deep
understanding of patient
sub-populations to
develop an original
scientific hypothesis.
From Science to Solution
We aim to translate scientific hypotheses into
innovative solutions and engage patients in the journey.
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UCB’s patient value ambition
UCB Team Name [XXXXXXX] - UCB - Approval [XX-XX-XXX] - Approval date [XX Month XXXX] ! GO TO INSERT>HEADER FOOTER to change.
Creating value for patients now and into the future
Unique outcomes that
help specific patients
achieve their goals
Best individual
experience
Ensuring access to all
those who need these
solutions in a way which
is viable for patients,
society, and UCB
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Interoperability
● Standardization protocols enabling seamless data exchange
• Fast Healthcare Interoperability Resources (FHIR)
• Health Level Seven International (HL7)
● Reliance on reusable components like code libraries,
technical/operational specifications
● Integration with Health Information Exchange (HIEs) -
networks that allow for the secure and efficient exchange of
health information between healthcare providers
● Greater use of Application Programming Interfaces (APIs)
to allow software applications to communicate with one another
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Interaction and Patient Experience
● Enhanced patient and HCP experiences in the metaverse
○ no geographic boundaries to collaborate (sensory
integration, haptics, holograms with fully articulated direct
hand interactions)
Extended Reality (XR)
● Virtual Reality (VR) - a completely
computer generated world (e.g. simulation)
● Augmented Reality (AR) - digital world
overlays the real world
● Mixed Reality (MR) - digital world
interacts with the real world through 3d
manipulation (e.g. Hololens)
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New Data Ownership Paradigm
● Patients own their own data utilizing
tokenization
○ Non-fungible tokens (NFTs)
blockchain asset that allows holders to
prove ownership, can be bought/sold
○ Soulbound tokens (SBTs)
non-transferable digital tokens (NFTs)
that represent social identity in a
decentralized society
○ Businesses will own the insights
from the patient data
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Differentiators in the NextGen Paradigm
● Incentivization - Giving people monetary or social credit for
contributing
● Data permanence - Keeps data available forever
● Data composability - Linking of data between databases
● Data ownership - Tokenization of data allows interoperability with
DeSci protocols
● Data privacy - Encryption of sensitive data
● Identity - On chain identity to decrypt, collaborate, reward
● Interoperability - Modularity with Web3 protocols
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Potential of These Platforms
● To fill gaps where there are lack of funds, resources, and
infrastructure within clinical research
● To increase accessibility, sustainability of research and care
● To focus on better disease prevention and diagnosis
● To enable user-centered, modular design where the patient
can better utilize digital tools
● To enable verifiable data lineage in transactions from the
deep web with metadata