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HTA
1. Patient Involvement in HTA:Patient Involvement in HTA:
the Spanish Experiencethe Spanish Experience
Maria Jose Vicente-Edo
Aragon Health Sciences Institute (IACS)
mjvicente.iacs@aragon.es
11th -15th june 2018
2. Declaration of interest
I do not have any financial or other
interest with any pharmaceutical
industry or other private companies.
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11. 8 out of 10 people are women and more than 50% are in the
patients’ associations governing body.
90% of patients' associations were founded in the 90s
They have an average of 250 people associated per association
Financing:
Private
Public
Own
12. Services provided
Social Sensitization
Information about the health problem
Psychological interventions
Training to affected people and families
Plataforma de Organizaciones de Pacientes. Análisis de situación, impacto social y retos de las organizaciones de pacientes en
España. Marzo 2018.
(http://www.plataformadepacientes.org/wp-content/uploads/2018/03/An%C3%A1lisis-de-situaci%C3%B3n-impacto-social-y-retos-de-las-
organizaciones-de-pacientes-en-Espa%C3%B1a-POP-Informe-%C3%ADntegro.pdf)
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15. Good practices exist and can be replicated, tools are
available to rethink and standardise principles of patient
involvement across Europe.
Can other European models of patient’s participation be
applied to spanish context?”
Do we need to create our own patient participation model?
16. Spain has a decentralized healthcare system and the Regions are
responsible for it.
Context
17. The Spanish Network of Agencies for Health
Technology Assessment of the Spanish National
Health Service (Redets) is a set of agencies, units
and services of the National and Regional
Governments that work coordinately, with a common
methodical framework, under the principles of mutual
recognition and cooperation
Objective: Facilitate decision making on the inclusion,
terms of financing, disinvestment, and/or appropriate
use of health technologies.
18. The Spanish Health Technology Agencies Network
(RedETS)
25
Ministry of Health
22. Patient Involvement Strategy: short, medium
and long -term actions to increase patients
participation in all HTA reportsreports (i.e. tools,
adaptation of methodologies etc).
Job Done
29. From RedETS
Ensure representativeness and diversity in patient involvement
Training programs not restricted solely to patients but also to
professionals, HTA developers…etc
“ …teamwork and communication skills… to work side by side…”
Patient Involvement Strategy in all HTA process (other than
reports)
Evaluate impact of patient participation in HTA
Incorporate patients participation in the structure and decision
making processes of the RedETS
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31. Lack of public awareness about the existence of HTA agencies
Endless and rhetorical debate
"Who is the “public"? Representative of whom? What does
"participation" mean? “expert” or “just” patients?....
Public participation is related to certain leaders
"... the discipline of HTA is relatively new and theoretically
immature. The absence of solid theoretical basis in HTA
generates uncertainty about the purposes and methods of
participation in HTA ... "(Gauvin et al 2011)
32. Develops policies to promote and generate a cultural and political
climate in favour of public participation.
33. Find balance between Health System and Patient’s needs
34. “…Find balance with the services resources, research, health system…”
I as a patient, I need the system to help me and take care of my needs...
How can I help the system to help me? "
Basic principle of participation:
“I need to know patients' preferences....not my own and unique
preference”
35. Ethical conflicts with the pharmaceutical industry
"Professionalization" of patient’s associations
36. “In the middle of difficulty lies
opportunity”
Albert Einstein
(1879-1955)
Azul- sensibilizacion social
Naranja- illnes
Grey- training to affected people and families
Purple- psicological intervention
“Can other European models of patient’s participation be applied to spanish context?”
“Can other European models of patient’s participation be applied to spanish context?”
“Can other European models of patient’s participation be applied to spanish context?”
The Spanish Network of Agencies for Health Technology Assessment of the Spanish National Health Service (Redets) is a set of agencies, units and services of the National and Regional Governments that work coordinately, with a common methodical framework, under the principles of mutual recognition and cooperation . Objective to promote the quality, eficenci and sustainability of health technology in the NHS.
Mission is generate, dissemination and facilitating information regarding decission making in the NHS.
Ministery of Health finance the network.
Declaration of interest document adapted for patient participation in reports
por legítimas que sean estas preguntas, algunos informantes creen que se utilizan para evitar la participación del público (Gauvin et al 2011)
