Celia Marín, Europso Executive Board Member of The European Federation for Psoriasis and Psoriatic Arthritis Associations

1. The role of prevention and
innovation in sustainable
healthcare systems
A point of view of the european psoriasis and
psoriatic arthritis patients
www.europso.eu
@europso
@CMRancel
#EPRD15

2. Texto
Europso: 26 years working for psoriasis
patients
www.europso.eu
@europso
#EPRD15

3. Psoriasis is an auto-immune related, chronic,
inflammatory skin condition which currently has no
cure
#EPRD15
Lebwohl M, Bachelez H, Barker J, et al. Patient perspectives in the management of psoriasis: Results from the population-based Multinational Assessment of Psoriasis and Psoriatic Arthritis Survey. Journal of the
American Academy of Dermatology. 2014, http://www.jaad.org/article/S0190-9622(14)00977-3/abstract MED/PSD/APR/2014-09/08

4. Psoriasis: more than skin
#EPRD15
Lebwohl M, Bachelez H, Barker J, et al. Patient perspectives in the management of psoriasis: Results from the population-based Multinational Assessment of Psoriasis and Psoriatic Arthritis Survey. Journal of the American
Academy of Dermatology. 2014, http://www.jaad.org/article/S0190-9622(14)00977-3/abstract MED/PSD/APR/2014-09/08

5. Psoriasis WHO Resolution
Recognizing also that psoriasis is a chronic, noncommunicable, painful, disfiguring, and
disabling disease for which there is no cure
Recognizing further that in addition to the pain, itching and bleeding caused by psoriasis, many
affected individuals around the world experience social and work-related stigma and
discrimination
Underscoring that those with psoriasis are at an elevated risk for a number of co-morbid conditions, namely,
cardiovascular diseases, diabetes, obesity, Crohn disease, heart
attack, ulcerative colitis, metabolic syndrome, stroke and liver disease
Underscoring also that up to 42% of those with psoriasis alsodevelop psoriatic arthritis, which causes pain, stiffness
and swelling at the joints and can lead to permanent disfigurement and disability
Underscoring that too many people in the world suffer needlessly from psoriasis due to incorrect or delayed
diagnosis, inadequate treatment options and insufficient access to care
#EPRD15
WHA67.9 Agenda item 13.5 24 May 2014

6. – Juan López
“Escribir una cita aquí”
Psoriasis Data Care
#EPRD15

7. – Juan López
“Escribir una cita aquí”
Psoriasis Data Treatment
#EPRD15

8. Psoriasis/Psoriatic arthritis costs
Psoriasis costs US up to $135 billion a
year
direct costs, medical expenses as doctor’s appointments and treatments
- indirect costs, which measure how psoriasis affects work productivity
- intangible costs, analyzing the impact of psoriasis on quality of life
- medical expenses related to psoriasis comorbidities
#EPRD15
7 ene. 2015 - JAMA Dermatology. Dr. April Armstrong, University of Colorado Denver,
Member of the National Psoriasis Foundation Medical Board, co-authored the study

9. Psoriasis innovation
New treatments
Unmet needs
Clinical trials
Better access
#EPRD15
Faculty of Life Sciences & Medicine Kings College London

10. Psoriasis: to treat or to
manage?
Prevention: holistic
approach of
disease control
Information
Networking
#EPRD15
Ulrich Mrowietz, Kirsten Steinz and Sascha Gerdes Psoriasis-Center, Department of Dermatology, University Medical
Center Schleswig-Holstein, Campus Kiel, Germany
Correspondence: Ulrich Mrowietz, MD, Psoriasis-Center, Department of Dermatology, University Medical Center

11. Patients organizations role
ADVOCACY
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12. Patients organizations role
LEARNING
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Acción Psoriasis, Europso Member

13. Patients organizations role
LOBBY
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France Psoriasis, Europso Member

14. Patients organizations role
INVESTMENT IN FUTURE:
II Psoriasis Youth Round Table
Europso, Spain 2015
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15. ACCESS. HEALTH. LIFE
19 MILLION psoriasis
patients in Europe
European Patient’s Rights
PATIENT= RESOURCH
#EPRD15

16. The role of prevention and
innovation in sustainable
healthcare systems
Thank you for listening psoriasis patient’s
voice