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Consano Survey Data Analysis
Fall 2016
Chris Ouverson
Kiarash Jalali
Executive Summary
Methodology
Net Promoter Score
Findings
Meet Your Ideal Contributor
Appendix A: Survey Insturment
Appendix B: Qualative Responses
Molly Monthly
3
4
4
6
10
11
13
18
Table of Contents
2
Consano is a crowd-funding non-profit which allows donations of any amount
to a medical research project. Since most medical research is funded by
government grants or other funding institutions, Consano allows individuals
to connect to a more personalized, and specific medical research project. The
organization offers a transparent experience, while providing individualized
updates from researchers on a quarterly basis.
Medical research may have several obstacles, such as identifying where the
funding ends up. Consano Founder and CEO, Molly Lindquist, created a
crowd-funding platform for donors to feel involved with a medical project
that matters most to each individual.
The University of Oregon School of Journalism and Communication, assigned
a small team from an upper-level strategic communication course (J410) for
our client, Consano. Our task was to create, distribute and analyze the
survey, to better understand the perception and age demographic of Consano
donors. Our team strategically distributed a survey which contained
qualitative and quantitative questions. There were 18 total questions, 13 of
which were multiple choice and five (5) were free-response.
Throughout the survey, there was positive and constructive insight from
members, donors and other individuals regarding Consano’s form of
communication. Both the qualitative and quantitative survey showed what
improvements can be made to Consano, as well as what needs to be done to
further itself as a unique crowd-funding organization.
Problem: When the UO team met with Molly Lindquist on October 12, 2016,
our team discussed how Consano can optimize media outlets to increase
donors, as well as better identify its target market. Given the existing
competition within the donation space, Consano must be unique in finding its
audience. One of the main targets for Consano, is to better understand
social media platforms that its donors use. Lastly, Consano wants to better
understand its targeted demographic; age, education and income through
survey analysis.
Executive Summary
3
Methodology
Using the University of Oregon’s licensed Qualtrics survey platform, the
survey instrument was distributed to 955 non-duplicative current or former
Consano donors. Survey recipients were primed to expect a survey
participation request the week prior with an email from Consano Founder and
CEO, Molly Lindquist. Data was collected from October 10, 2016 to October
21, 2016 with two (2) reminders to those participants who had not already
participated or who had started a survey and had not yet completed it. From
the initial 955 contacts provided, only 28 (2.8%) email addresses were invalid
(bounced), creating a potential pool of 927 valid participants, although this
does not account for any email that might have been identified as “junk” by a
recipient’s email system.
Among the 927 valid email requests sent, 483 (52.1%) were opened by
intended recipients and 151 (31.2%) survey instruments were started; among
all surveys started, 141 (93.3%) were ultimately completed. Given the
aforementioned donor population (955), the sample size of complete and valid
instruments was appropriate for a 95% confidence level with a confidence
interval of ±7.5%. Although a smaller confidence interval is more desirable,
Consano should feel comfortable in its ability to generalize the survey’s
results to its donor population.
Net Promoter Score
Net Promoter or Net Promoter Score (NPS) is a management tool that can be
used to gauge the loyalty of an organization’s relationships. It serves as an
alternative to traditional satisfaction measurements. NPS has been widely
adopted with more than two thirds of Fortune 1000 companies using NPS. The
NPS ultimately measures the willingness of individuals to recommend an
organization or service to others.
NPS is a loyalty metric developed by (and a registered trademark of) Fred
Reichheld and was introduced in 2003. NPS can be as low as −100
(everybody is a detractor) or as high as +100 (everybody is a promoter). Any
NPS that is positive (i.e., higher than zero) is felt to be good, and an NPS of
+50 is excellent.
The NPS is determined by subtracting the percentage of respondents who are
detractors from the percentage who are promoters. At one end of the
spectrum, if when surveyed, all of the respondents gave a score lower or
equal to 6, this would lead to a NPS of -100. On the other end of the
spectrum, if all of the respondents were answering the question with a 9 or
10, then the total NPS would be 100.
In crafting the NPS, respondents are asked a single question on an 11-point
scale: “On a scale of 0 to 10, how likely are you to recommend this
organization’s product or service to a friend or a colleague?”
4
Based on their rating, respondents are then classified in 3 categories:
detractors, passives and promoters.
Detractors gave a score lower or equal to 6. They are not particularly
thrilled by the organization or the service. They, with all likelihood, won’t
partner again with an organization and could potentially damage the
organization’s reputation through negative word of mouth.
Passives gave a score of 7 or 8. They are somewhat satisfied but could
easily switch to a another organization if given the opportunity. They probably
wouldn’t spread any negative word-of-mouth, but are not enthusiastic enough
about your organization or service to actually promote them.
Promoters answered 9 or 10. They love the company’s products and services.
They are the repeat donors, are the enthusiastic evangelist who recommends
the organization’s products or services to other potential donors.
According to this study, Consano enjoys a very strong NPS of 35.95% among
its donors.
Detractors
Passives
promoters
(Q8) On a scale from 0-10, how likely are you to recommend
Consano to a friend or colleague?
18%
Detractor
28%
Passive
54%
Promoter
35.95%-100 100
0
5
Findings
Family
OtherSocial Media
Professional
Colleague
Friend
Internet Search
13.01%
8.22%
4.79%
8.90%
15.75%
49.32%
(Q1) How did you first hear about Consano?
Talking Consano
The plurality (49.32%) of Consano contributors first heard about Consano
from a friend. A smaller portion (21.91%) first heard of Consano from a
digital platform ( Social Media, Internet Serach or Other).
Notable
60.38% of Consano contributors who make 150k or more, First heard about
Consano from a friend vs. only 25% of those who make 25k-50k.
Recommendation
Consano should increase its number of events that promote face to face
contact with contributors and potential contributors. there is a wealth of
people who are willing to speak great things about Consano. Help them get
the conversation started.
6
(Q2) What is your preferred social media
for following Consano?
Facebook Instagram Twitter
YouTube Other
69.01%
21.13%
1.41%
5.63%
2.82%
The Importance of Facebook
The majority (69.01%) of Consano contributors prefer Facebook when
following Consano. Of Consano contributors who chose “Other”, the most
popular answer was E-mail (53.84%).
Notable
The vast majority (87.50%) of Consano contributors who make 25k-50k per
year, prefer facebook when following Consano vs. only 69.81% of Consano
contributors who make 150K or more per year.
Recommendation
Continue to create engaging content on social media, preferably facebook to
properly reach less social Consano contributors.
7
8.70%
26.81%
2.90%
1.45%
60.14%
(Q3) What types of social media content
would you prefer to see more of?
Stories about
patients and
families
Researcher
Biographies
Inspirational
Quotes
results
From Research
Projects
Other
What is happening?
The majority (60.14%) of Consano contributors prefer to see “results from
research projects”. the next most popular response was “Stories About
Patients and Families (26.81%).
Notable
Of Consano contributors who prefer to see “results From Research
Projects”, 61.65% of them are between 30 and 49 years old, while only
36.99% of them were 50 or older.
Recommendation
As per Consano contributors, more results from research projects and
stories about patients and families will boost user engagement and keep
Consano up to date and transparent.
8
2.19%
9.49%13.14%
24.09%
2.92%
48.18%
(Q4) How frequently would you prefer to receive
Consano newsletters via email?
Weekly Every Other Week Monthly
Biannually AnnuallyI Prefer Not To
Receive them
Month to Month
The Plurality (48.18%) of Consano contributors prefer to receive Consano
newsletters via Email once a month. Interestingly, 40.15 % of Consano
contributors prefer to receive Consano newsletters via email twice per year
or less.
Notable
Almost half (45.45%) of all male Consano contributors prefer to receive
Consano newsletters via email twice per year or less, while 67.88% of female
Consano contributors prefer to receive Consano Newsletters via email twelve
or more times per year.
Recommendation
Continue to engage Consano Contributors on a monthly basis.
9
Highly Educated
52.49%
of Consano contributors have a
master’s or doctoral degree.
63.71%
of Consano contributors are
between 30-49 years of age.
69.35%
Female Driven
of Consano contributors
are female.
Get
Involved Early
Get
Involved Often
54.84%
of Consano contributors
donate to four or more
nonprofits every year.
New to the
Party
49.60%
of Consano contributors
have been involved for two
years or less.
67.74%
of Consano contributors
earn 75k or more annually.
Earn A
High Income
Notable
Meet Your Ideal
Consano Contributor
The ideal Consano contributor is a 30-49 year old female who has a masters
degree or higher. She earns $75,000 or more annually and donates to four
or more nonprofits every year. She is new to Consano and has been involved
for two years or less.
10
4+
2016 Consano Perception Survey
Q1 How did you first hear about Consano?
	Friend
	Family
	 Professional Colleague
	 Social Media
	 Internet Search
	 Other ____________________
Q2 What is your preferred social media for followiw Consano (select one)?
	Facebook
	Instagram
	Twitter
	YouTube
	 Other ____________________
Q3 What types of social media content would you prefer to see more of?
	 Results from research projects
	 Researcher biographies
	 Inspirational quotes
	 Stories about patients and families
	 Other ____________________
Q4 How frequently would you prefer to receive Consano newsletters via email?
	Weekly
	 Fortnightly (every other week)
	Monthly
	 Biannually (2x per year)
	Annually
	 I would prefer not to receive Consano newsletters
Q5 What do you like best about the way(s) Consano interacts with you?
Q6 What do you like least about the way(s) Consano interacts with you?
Q7 If you could make one change or suggestion about the way Consano communicates with you, what would
it be?
Q8 On a scale from 0-10, how likely are you to recommend Consano to a friend or colleague?
	 0	1	2	3	4	5	6	7	8	9	10
Q9 In regard to your overall satisfaction with Consano, please share any feedback (positive or negative) that
you believe would be important or beneficial for Consano’s leadership to consider moving forward.
Q10 I believe Consano should be more visible in state and local media.
	 Strongly Agree
	Agree
	Disagree
	 Strongly Disagree
Appendix A: Survey Insturment
11
Q11 How long have you been associated (giving, volunteering, advocating, etc.) with Consano
	 Less than 1 year
	 1 to 2 years
	 2 to 3 years
	 3 to 4 years
	 5 or more years
Q12 Are you interested in becoming more involved with Consano (leadership role, board position, advocate,
etc.)?
	Yes
	No
Q13 Thank you for your willingness to become more involved with Consano! Please enter your email address
and we will reach out to you in the near future to discuss involvement opportunities.
Q14 How do you best identify yourself?
	Female
	Male
	Transgender
	Other
	 I prefer not to answer
Q15 In which of the following age groups do you belong?
	 18-29 years old
	 30-39 years old
	 40-49 years old
	 50-59 years old
	 60 or more years old
	 I prefer not to answer
Q16 Which of the following options best describes your education level?
	 High School Diploma or GED
	 Associates or Trade Degree
	 Bachelor’s Degree
	 Master’s Degree
	 Doctoral Degree (PhD, MD or JD)
	 I prefer not to answer
Q17 Which of the following options best describes your total annual household income (before taxes)?
	 Less than $24,999
	 $25,000 to $49,999
	 $50,000 to $74,999
	 $75,000 to $149,999
	 More than $150,000
	 I prefer not to answer
Q18 How many non-profit organizations do you support each year?
	 1	 2	 3	 4	 5 or more 	 I prefer not to answer
Q19 Consano would appreciate any additional feedback or comments that you would like to leave.
12
I have been very pleased with consano’s communication in general. I like the use a lot
of social media to communicate. I would like to hear more about research, results,
even if it seems incremental. I would also be happy to hear what is in the pipeline as
far as medicine, research and possible future projects.
Consano’s founder and CEO provides a digestible social format through which to
receive information. It varies between witty tid bits and heavier news.
It is not very frequently
Personal connection with Molly
Does not fill up my email inbox daily.
Value driven, optimistic , vibrant...
Perfect combination of science and
warmth and humor
Inspirational stories!!
They are non invasive but present
Emails are not frequent.
Do not have enough experience to comment
email
Being inspired by individuals and seeing
opportunities to support
Very upbeat, making progressw
connected to patient stories and
reserachers
The emails are timely
They keep emails to the point
Receiving research updates -
both substantive and fundraising-related
honesty and transparency
Engagement on twitter or an
email from Molly
Respectful writing and information about
how they work
not too intrusive
email
succinct, intermittent, yet pertinent
not too frequent, relevent
The transparency The transparency
not in my face... i follow it on
Facebook so enjoy perusing it Annual
gala event
(Q5) What do you like best about the way(s)
Consano interacts with you?
Feels personal - there are actual humans
behind the messages.
First, you can feel the passion behind everything that is communicated. Second,
I appreciate the updates and feeling like I am constantly up to date
Positive messages
Very positive and professional
It’s personal. It’s Molly.
Feels personal, always nice
to hear from Molly!
Receiving researcher info/results through Consano (it’s nice to see how donations
are being used). Learning how Consano’s message is getting
into the media (print and video)
Appendix B: Qualatative Reponses
13
Honestly haven’t experienced too much interaction
- only following via email, not Social Media
I don’t interact with them -- sorry! I am
an old lady
Straight forward person to person ap-
proach
Not too many emails
positive messages, a break from #scary
donald trump
NOT sure this person’s to my connection
with Consano
Friendly
I’ve actually stopped following due to
too much information.
Funny, smart commentary
The tone is warm, welcoming, inclusive.
Infrequent contact
Updates on funded research
timely response to requests
i don’t know why i am on the mailing list
Not too frequently and no gimmicks or
“junk mail”.
Always positive.
Not sure
non-intrusive
scientist-patient interactio
Timing is good. Not too often, not so
sparse.
Not too pushy
research project info
non-intrusive
It keeps me updated on what’s new
Email
Accessability
not too pushy
Emails are not too frequent so when they do come I take the time to look at them
It fees very personal and sincere,
yet very professional.
Positive tone, personal stories
personal touch
Personal insights!
Notable
Consano contributors like how personal the engagement pieces from Consano
are. Real people, real stories and real emotions.
Recommendation
See page 18.
14
(Q6) What do you like least about the way(s)
Consano interacts with you?
From the social media I’m reading, it’s not actually really clear what research work
is being done. I tend to give money when I hear about a project that sounds good.
There are so many orgs raising money and sending info and solicitations. Hard to
differentiate.
Web page is not user friendly. You should be able to find the correct donor page
before hitting the donate button
I don’t interact so don’t know. Email is fine i guess
I like everything about Consano.
I would love to see more videos!
Too much information. Too many posts.
I would prefer social media over email
Don’t have time to pay attention to it.
small scale projects (go big, or go home!)
again, i don’t know why i am on the mailing list
unfortunately, no answer to this -- all good
I don’t hear enough about some of the outcomes
Not enough experience
don’t need to be contacted
Pretty frequent news for me
generic emails
too many updates
Facebook
perhaps too much still
too wordy
repeat content
redundant
nothing yet. Maybe just more specific information about what is changing as a result
of the funding of research projects
I don’t receive much interaction, except from Facebook posts from Molly
I would like to know more about how the money is being translated into actionable progress.
I don’t hear enough about the process of research projects
Not enough updates about research projects
15
Notable
Consano Contributors seek more updates on research projects and want to
know how their dollars are working towards medical advancements.
Recommendation
See page 18.
(Q7) If you could make one change or suggestion about the
way Consano Communicates with you, what would it be?
I do not have changes to recommend. I like the use of Facebook, Twitter, and
newsletters. Again, I would like to hear more about research results. Also, even if
not totally related to what Consano is doing, possible exciting new things in medicine
that are being worked on that non-medical people may not know about
Get researchers to explain more of their studies no matter how small the results
Maybe more social sharing about the projects currently being donated against, to
inspire folks to help out
Specific information about projects that match my interest
More call to action for donation. I really only donate when I'm at the fundraiser. I
don't shop online much and don't like entering credit card info.
Maybe by sending info that I couldn't get anywhere else and that doesn't suggest
fundraising.
I haven't sought out information recently, so I feel limited in providing feedback. I'm
unclear as to the options available at Consano these days.
Make the communications specific to the campaign to which I donated.
I like seeing Consano posts on FB
more often
include more specifics
more project into
More videos
It’s perfect the way it is.
Facebook
i like to see the research project
breakthroughs
More info about the studies
relevant research to my biography
a monthly newsletter
fewer, richer spurts of communication
Maybe updates on funding projects
updates about where the $ went and the
results
More signs of progress, fundraising goals achieved, etc.
More updates on research or when new research projects are available
an occasional highlighted, more in depth story ie: particular investigator, human
interest story
More about the research! I love the focus on Molly, such a great and emotional
founder story, so I don’t want to tell you do to do away with it. Why don’t you bring
it together - maybe videos where Molly interviews the researchers about their
projects? (captioned videos in FB are the stickiest thing going right now!) Or science
lessons with the Finkelsteins - get Clara to translate Scott’s medical jargon, or
something cute like that.
16
More substantive monthly
update on projects
Ask each donor their preferred method of communication.
I would like a monthly newsletter via email. I hardly check facebook.
I don't think I've seen via email the results of previous research.
Goes to my junk mail - user error on my behalf, but would be nice if it was set up so
that it wasn't marked as spam.
Email an update on the project that someone has donated to, letting them know
what's happening with it
Please request a donation annually so I don't forget!
focus of communication and events can tend to come across as elitist; make more
accessible to all people, and make smaller contributions feel valuable
Focus on sending more interesting information about results.
17
Notables
Consano contributors suggest that Consano offers more updates on signs of
progress in the research efforts and how their monetary support is helping.
Recommendation
See page 18.
Molly Monthly
18
Molly Monthly is a short (5-7 Min), self created video clip that the founder of
Consano (Molly Lindquist) can use to send strong, personal messages of
importance to Consano contributors and potential contributors
A self created video shows contributors a look behind the Consano curtain.
a personal video update on projects and success stories from the founder and
CEO, makes Consano seem more personal and grounded. With so much to read on
Consano’s website and social media properties, a video will create an easy way to
follow Consano’s updates without having to read.
- (Q5) As laid out in question five (5), Consano contributors responded very
positively to personal, real and passionate engagement pieces. Frequent videos
of Molly will look to enhance the personal connection between Consano and its
contributors. Something to remember is, ‘motion creates emotion’.
- (Q6) As highlighted in question six (6), the thing Consano contributors least
like was the lack of updates on specific research efforts. With Molly Monthly
videos, Consano would shed light directly onto the most positive advancements
that have occurred over the past month due to the immense support of its
supporters.
- (Q7) When asked, Consano contributors suggest it should have further
updates, regarding how research projects are progressing, as well as how their
donations are making a real difference. Molly Monthly would be able to show
true progress reports on the most popular research projects. It would also
allow Consano to showcase success stories of people who were positively
effected by Consano’s efforts. this will evoke certain raw emotions that would
be lost in written form.
- A round up of every project that met its fundraising goal during the past
month. (shows progress)
- Show stories of people who benefited from the great work Consano and its
contributors do. (evokes positive emotion)
- Showcase new projects that are or are coming available for contributors to
donate to. (keeps contributors informed)
- Share about Molly’s experience throughout her time with Consano as well as
personal life. (Provides a personal connection)
Molly Monthly videos can address certain issues Consano contributors find in
the way they are contacted by Consano. It can also be a great platform to
showcase all the great things Consano is doing. We feel that a more personal
connection with Consano contributors via video will create a sense of community
and togetherness among those involved.
What is a Molly Monthly?
why a video?
What we hope to address
possible Molly Monthly content
In Closing
(Q9) In regard to your overall satisfaction with
Consano, please share any feedback (positive or nega-
tive) that you believe would be important or beneficial
for Consano’s leadership to consider moving forward.
Web page is not user friendly
An organization that needs a more effective voice.
Consano sounds a lot like Monsanto. Is that good? I don’t know.
I donate to a lot of non-profits. I have only donated to one Consano project. I like
the idea, but I lack a personal connection to a lot of the projects.
I love to see how Consano has emerged in social media in the last couple years, and
believe in the impact that can be made for the cause
well run program.. love the research programs you support and love your
involvement of the community.. next year I plan to attend the gala!!!
Think it’s great. Honor pages is brilliant -- and has the best bet to move our society
away from starting too many foundations/non-profits... and instead focusing on
research and the impact.
Great work!!! so inspiring. Love the name Ripples of Hope award. Best name for an
award I have heard.
Continue doing what you are doing! I really enjoy watching Consano grow (through
facebook).
Consano fills a much appreciated niche, providing a way for anyone to direct donate
to a specific project. It is gratifying to know that 100 per cent of my donation will
be used for research, not administrative costs. Love this platform!
Very happy to see what they are doing - a bit disappointed more people are supporting
indie movie projects than medical research.
Positive Responses
Suggestive Responses
Negative Responses
Are there opportunities (both research and fundraising) in the rare
disease communities?
I would be happy to hear about other interesting areas of medicine, research etc even
if not directly related to a Consano project. It could be a small section in the
newsletter.. Even a few bullet points.. Such as: hearing the team at the Xx Center in
St Louis making great progress on... Whatever it may be.
You guys are doing great work! Keep it up!
I’m satisfied
Keep up the great work!!
Excellent
Keep up the great work.
Good to know that research is being funded.
Keep on collecting money for research!
getting more grant funding
Keep expanding as you are able
love your work
19
Other Crowd-funding platforms are emerging, and this capability is
integrating into existing social media, so continuing to differentiate
and add uniquevalue will be important.
continue making connections with researchers, co-sponsor events related to pre-
ventative health plans, education and research,
Concept for consano is totally different from other health non profits but brought
communication of late, it seems like “same old, same old.” Tough environment and
it’s not just about $$$. Entirely too many orgs, in my opinion, and would love to
seem more collaboration and consolidation.
I do not know all that much about Consano - used Consano to support a cause
affiliated with my daughter’s friend. It is not a name I see often, so I would
recommend getting their name into the media to increase awareness.
Ability to browse past projects (no longer active)
Transparency and communication are the keys. (A+) Easy website navigation (A+)
20

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ConsanoDoc

  • 1. Consano Survey Data Analysis Fall 2016 Chris Ouverson Kiarash Jalali
  • 2. Executive Summary Methodology Net Promoter Score Findings Meet Your Ideal Contributor Appendix A: Survey Insturment Appendix B: Qualative Responses Molly Monthly 3 4 4 6 10 11 13 18 Table of Contents 2
  • 3. Consano is a crowd-funding non-profit which allows donations of any amount to a medical research project. Since most medical research is funded by government grants or other funding institutions, Consano allows individuals to connect to a more personalized, and specific medical research project. The organization offers a transparent experience, while providing individualized updates from researchers on a quarterly basis. Medical research may have several obstacles, such as identifying where the funding ends up. Consano Founder and CEO, Molly Lindquist, created a crowd-funding platform for donors to feel involved with a medical project that matters most to each individual. The University of Oregon School of Journalism and Communication, assigned a small team from an upper-level strategic communication course (J410) for our client, Consano. Our task was to create, distribute and analyze the survey, to better understand the perception and age demographic of Consano donors. Our team strategically distributed a survey which contained qualitative and quantitative questions. There were 18 total questions, 13 of which were multiple choice and five (5) were free-response. Throughout the survey, there was positive and constructive insight from members, donors and other individuals regarding Consano’s form of communication. Both the qualitative and quantitative survey showed what improvements can be made to Consano, as well as what needs to be done to further itself as a unique crowd-funding organization. Problem: When the UO team met with Molly Lindquist on October 12, 2016, our team discussed how Consano can optimize media outlets to increase donors, as well as better identify its target market. Given the existing competition within the donation space, Consano must be unique in finding its audience. One of the main targets for Consano, is to better understand social media platforms that its donors use. Lastly, Consano wants to better understand its targeted demographic; age, education and income through survey analysis. Executive Summary 3
  • 4. Methodology Using the University of Oregon’s licensed Qualtrics survey platform, the survey instrument was distributed to 955 non-duplicative current or former Consano donors. Survey recipients were primed to expect a survey participation request the week prior with an email from Consano Founder and CEO, Molly Lindquist. Data was collected from October 10, 2016 to October 21, 2016 with two (2) reminders to those participants who had not already participated or who had started a survey and had not yet completed it. From the initial 955 contacts provided, only 28 (2.8%) email addresses were invalid (bounced), creating a potential pool of 927 valid participants, although this does not account for any email that might have been identified as “junk” by a recipient’s email system. Among the 927 valid email requests sent, 483 (52.1%) were opened by intended recipients and 151 (31.2%) survey instruments were started; among all surveys started, 141 (93.3%) were ultimately completed. Given the aforementioned donor population (955), the sample size of complete and valid instruments was appropriate for a 95% confidence level with a confidence interval of ±7.5%. Although a smaller confidence interval is more desirable, Consano should feel comfortable in its ability to generalize the survey’s results to its donor population. Net Promoter Score Net Promoter or Net Promoter Score (NPS) is a management tool that can be used to gauge the loyalty of an organization’s relationships. It serves as an alternative to traditional satisfaction measurements. NPS has been widely adopted with more than two thirds of Fortune 1000 companies using NPS. The NPS ultimately measures the willingness of individuals to recommend an organization or service to others. NPS is a loyalty metric developed by (and a registered trademark of) Fred Reichheld and was introduced in 2003. NPS can be as low as −100 (everybody is a detractor) or as high as +100 (everybody is a promoter). Any NPS that is positive (i.e., higher than zero) is felt to be good, and an NPS of +50 is excellent. The NPS is determined by subtracting the percentage of respondents who are detractors from the percentage who are promoters. At one end of the spectrum, if when surveyed, all of the respondents gave a score lower or equal to 6, this would lead to a NPS of -100. On the other end of the spectrum, if all of the respondents were answering the question with a 9 or 10, then the total NPS would be 100. In crafting the NPS, respondents are asked a single question on an 11-point scale: “On a scale of 0 to 10, how likely are you to recommend this organization’s product or service to a friend or a colleague?” 4
  • 5. Based on their rating, respondents are then classified in 3 categories: detractors, passives and promoters. Detractors gave a score lower or equal to 6. They are not particularly thrilled by the organization or the service. They, with all likelihood, won’t partner again with an organization and could potentially damage the organization’s reputation through negative word of mouth. Passives gave a score of 7 or 8. They are somewhat satisfied but could easily switch to a another organization if given the opportunity. They probably wouldn’t spread any negative word-of-mouth, but are not enthusiastic enough about your organization or service to actually promote them. Promoters answered 9 or 10. They love the company’s products and services. They are the repeat donors, are the enthusiastic evangelist who recommends the organization’s products or services to other potential donors. According to this study, Consano enjoys a very strong NPS of 35.95% among its donors. Detractors Passives promoters (Q8) On a scale from 0-10, how likely are you to recommend Consano to a friend or colleague? 18% Detractor 28% Passive 54% Promoter 35.95%-100 100 0 5
  • 6. Findings Family OtherSocial Media Professional Colleague Friend Internet Search 13.01% 8.22% 4.79% 8.90% 15.75% 49.32% (Q1) How did you first hear about Consano? Talking Consano The plurality (49.32%) of Consano contributors first heard about Consano from a friend. A smaller portion (21.91%) first heard of Consano from a digital platform ( Social Media, Internet Serach or Other). Notable 60.38% of Consano contributors who make 150k or more, First heard about Consano from a friend vs. only 25% of those who make 25k-50k. Recommendation Consano should increase its number of events that promote face to face contact with contributors and potential contributors. there is a wealth of people who are willing to speak great things about Consano. Help them get the conversation started. 6
  • 7. (Q2) What is your preferred social media for following Consano? Facebook Instagram Twitter YouTube Other 69.01% 21.13% 1.41% 5.63% 2.82% The Importance of Facebook The majority (69.01%) of Consano contributors prefer Facebook when following Consano. Of Consano contributors who chose “Other”, the most popular answer was E-mail (53.84%). Notable The vast majority (87.50%) of Consano contributors who make 25k-50k per year, prefer facebook when following Consano vs. only 69.81% of Consano contributors who make 150K or more per year. Recommendation Continue to create engaging content on social media, preferably facebook to properly reach less social Consano contributors. 7
  • 8. 8.70% 26.81% 2.90% 1.45% 60.14% (Q3) What types of social media content would you prefer to see more of? Stories about patients and families Researcher Biographies Inspirational Quotes results From Research Projects Other What is happening? The majority (60.14%) of Consano contributors prefer to see “results from research projects”. the next most popular response was “Stories About Patients and Families (26.81%). Notable Of Consano contributors who prefer to see “results From Research Projects”, 61.65% of them are between 30 and 49 years old, while only 36.99% of them were 50 or older. Recommendation As per Consano contributors, more results from research projects and stories about patients and families will boost user engagement and keep Consano up to date and transparent. 8
  • 9. 2.19% 9.49%13.14% 24.09% 2.92% 48.18% (Q4) How frequently would you prefer to receive Consano newsletters via email? Weekly Every Other Week Monthly Biannually AnnuallyI Prefer Not To Receive them Month to Month The Plurality (48.18%) of Consano contributors prefer to receive Consano newsletters via Email once a month. Interestingly, 40.15 % of Consano contributors prefer to receive Consano newsletters via email twice per year or less. Notable Almost half (45.45%) of all male Consano contributors prefer to receive Consano newsletters via email twice per year or less, while 67.88% of female Consano contributors prefer to receive Consano Newsletters via email twelve or more times per year. Recommendation Continue to engage Consano Contributors on a monthly basis. 9
  • 10. Highly Educated 52.49% of Consano contributors have a master’s or doctoral degree. 63.71% of Consano contributors are between 30-49 years of age. 69.35% Female Driven of Consano contributors are female. Get Involved Early Get Involved Often 54.84% of Consano contributors donate to four or more nonprofits every year. New to the Party 49.60% of Consano contributors have been involved for two years or less. 67.74% of Consano contributors earn 75k or more annually. Earn A High Income Notable Meet Your Ideal Consano Contributor The ideal Consano contributor is a 30-49 year old female who has a masters degree or higher. She earns $75,000 or more annually and donates to four or more nonprofits every year. She is new to Consano and has been involved for two years or less. 10 4+
  • 11. 2016 Consano Perception Survey Q1 How did you first hear about Consano?  Friend  Family  Professional Colleague  Social Media  Internet Search  Other ____________________ Q2 What is your preferred social media for followiw Consano (select one)?  Facebook  Instagram  Twitter  YouTube  Other ____________________ Q3 What types of social media content would you prefer to see more of?  Results from research projects  Researcher biographies  Inspirational quotes  Stories about patients and families  Other ____________________ Q4 How frequently would you prefer to receive Consano newsletters via email?  Weekly  Fortnightly (every other week)  Monthly  Biannually (2x per year)  Annually  I would prefer not to receive Consano newsletters Q5 What do you like best about the way(s) Consano interacts with you? Q6 What do you like least about the way(s) Consano interacts with you? Q7 If you could make one change or suggestion about the way Consano communicates with you, what would it be? Q8 On a scale from 0-10, how likely are you to recommend Consano to a friend or colleague? 0 1 2 3 4 5 6 7 8 9 10 Q9 In regard to your overall satisfaction with Consano, please share any feedback (positive or negative) that you believe would be important or beneficial for Consano’s leadership to consider moving forward. Q10 I believe Consano should be more visible in state and local media.  Strongly Agree  Agree  Disagree  Strongly Disagree Appendix A: Survey Insturment 11
  • 12. Q11 How long have you been associated (giving, volunteering, advocating, etc.) with Consano  Less than 1 year  1 to 2 years  2 to 3 years  3 to 4 years  5 or more years Q12 Are you interested in becoming more involved with Consano (leadership role, board position, advocate, etc.)?  Yes  No Q13 Thank you for your willingness to become more involved with Consano! Please enter your email address and we will reach out to you in the near future to discuss involvement opportunities. Q14 How do you best identify yourself?  Female  Male  Transgender  Other  I prefer not to answer Q15 In which of the following age groups do you belong?  18-29 years old  30-39 years old  40-49 years old  50-59 years old  60 or more years old  I prefer not to answer Q16 Which of the following options best describes your education level?  High School Diploma or GED  Associates or Trade Degree  Bachelor’s Degree  Master’s Degree  Doctoral Degree (PhD, MD or JD)  I prefer not to answer Q17 Which of the following options best describes your total annual household income (before taxes)?  Less than $24,999  $25,000 to $49,999  $50,000 to $74,999  $75,000 to $149,999  More than $150,000  I prefer not to answer Q18 How many non-profit organizations do you support each year? 1 2 3 4 5 or more I prefer not to answer Q19 Consano would appreciate any additional feedback or comments that you would like to leave. 12
  • 13. I have been very pleased with consano’s communication in general. I like the use a lot of social media to communicate. I would like to hear more about research, results, even if it seems incremental. I would also be happy to hear what is in the pipeline as far as medicine, research and possible future projects. Consano’s founder and CEO provides a digestible social format through which to receive information. It varies between witty tid bits and heavier news. It is not very frequently Personal connection with Molly Does not fill up my email inbox daily. Value driven, optimistic , vibrant... Perfect combination of science and warmth and humor Inspirational stories!! They are non invasive but present Emails are not frequent. Do not have enough experience to comment email Being inspired by individuals and seeing opportunities to support Very upbeat, making progressw connected to patient stories and reserachers The emails are timely They keep emails to the point Receiving research updates - both substantive and fundraising-related honesty and transparency Engagement on twitter or an email from Molly Respectful writing and information about how they work not too intrusive email succinct, intermittent, yet pertinent not too frequent, relevent The transparency The transparency not in my face... i follow it on Facebook so enjoy perusing it Annual gala event (Q5) What do you like best about the way(s) Consano interacts with you? Feels personal - there are actual humans behind the messages. First, you can feel the passion behind everything that is communicated. Second, I appreciate the updates and feeling like I am constantly up to date Positive messages Very positive and professional It’s personal. It’s Molly. Feels personal, always nice to hear from Molly! Receiving researcher info/results through Consano (it’s nice to see how donations are being used). Learning how Consano’s message is getting into the media (print and video) Appendix B: Qualatative Reponses 13
  • 14. Honestly haven’t experienced too much interaction - only following via email, not Social Media I don’t interact with them -- sorry! I am an old lady Straight forward person to person ap- proach Not too many emails positive messages, a break from #scary donald trump NOT sure this person’s to my connection with Consano Friendly I’ve actually stopped following due to too much information. Funny, smart commentary The tone is warm, welcoming, inclusive. Infrequent contact Updates on funded research timely response to requests i don’t know why i am on the mailing list Not too frequently and no gimmicks or “junk mail”. Always positive. Not sure non-intrusive scientist-patient interactio Timing is good. Not too often, not so sparse. Not too pushy research project info non-intrusive It keeps me updated on what’s new Email Accessability not too pushy Emails are not too frequent so when they do come I take the time to look at them It fees very personal and sincere, yet very professional. Positive tone, personal stories personal touch Personal insights! Notable Consano contributors like how personal the engagement pieces from Consano are. Real people, real stories and real emotions. Recommendation See page 18. 14
  • 15. (Q6) What do you like least about the way(s) Consano interacts with you? From the social media I’m reading, it’s not actually really clear what research work is being done. I tend to give money when I hear about a project that sounds good. There are so many orgs raising money and sending info and solicitations. Hard to differentiate. Web page is not user friendly. You should be able to find the correct donor page before hitting the donate button I don’t interact so don’t know. Email is fine i guess I like everything about Consano. I would love to see more videos! Too much information. Too many posts. I would prefer social media over email Don’t have time to pay attention to it. small scale projects (go big, or go home!) again, i don’t know why i am on the mailing list unfortunately, no answer to this -- all good I don’t hear enough about some of the outcomes Not enough experience don’t need to be contacted Pretty frequent news for me generic emails too many updates Facebook perhaps too much still too wordy repeat content redundant nothing yet. Maybe just more specific information about what is changing as a result of the funding of research projects I don’t receive much interaction, except from Facebook posts from Molly I would like to know more about how the money is being translated into actionable progress. I don’t hear enough about the process of research projects Not enough updates about research projects 15 Notable Consano Contributors seek more updates on research projects and want to know how their dollars are working towards medical advancements. Recommendation See page 18.
  • 16. (Q7) If you could make one change or suggestion about the way Consano Communicates with you, what would it be? I do not have changes to recommend. I like the use of Facebook, Twitter, and newsletters. Again, I would like to hear more about research results. Also, even if not totally related to what Consano is doing, possible exciting new things in medicine that are being worked on that non-medical people may not know about Get researchers to explain more of their studies no matter how small the results Maybe more social sharing about the projects currently being donated against, to inspire folks to help out Specific information about projects that match my interest More call to action for donation. I really only donate when I'm at the fundraiser. I don't shop online much and don't like entering credit card info. Maybe by sending info that I couldn't get anywhere else and that doesn't suggest fundraising. I haven't sought out information recently, so I feel limited in providing feedback. I'm unclear as to the options available at Consano these days. Make the communications specific to the campaign to which I donated. I like seeing Consano posts on FB more often include more specifics more project into More videos It’s perfect the way it is. Facebook i like to see the research project breakthroughs More info about the studies relevant research to my biography a monthly newsletter fewer, richer spurts of communication Maybe updates on funding projects updates about where the $ went and the results More signs of progress, fundraising goals achieved, etc. More updates on research or when new research projects are available an occasional highlighted, more in depth story ie: particular investigator, human interest story More about the research! I love the focus on Molly, such a great and emotional founder story, so I don’t want to tell you do to do away with it. Why don’t you bring it together - maybe videos where Molly interviews the researchers about their projects? (captioned videos in FB are the stickiest thing going right now!) Or science lessons with the Finkelsteins - get Clara to translate Scott’s medical jargon, or something cute like that. 16 More substantive monthly update on projects
  • 17. Ask each donor their preferred method of communication. I would like a monthly newsletter via email. I hardly check facebook. I don't think I've seen via email the results of previous research. Goes to my junk mail - user error on my behalf, but would be nice if it was set up so that it wasn't marked as spam. Email an update on the project that someone has donated to, letting them know what's happening with it Please request a donation annually so I don't forget! focus of communication and events can tend to come across as elitist; make more accessible to all people, and make smaller contributions feel valuable Focus on sending more interesting information about results. 17 Notables Consano contributors suggest that Consano offers more updates on signs of progress in the research efforts and how their monetary support is helping. Recommendation See page 18.
  • 18. Molly Monthly 18 Molly Monthly is a short (5-7 Min), self created video clip that the founder of Consano (Molly Lindquist) can use to send strong, personal messages of importance to Consano contributors and potential contributors A self created video shows contributors a look behind the Consano curtain. a personal video update on projects and success stories from the founder and CEO, makes Consano seem more personal and grounded. With so much to read on Consano’s website and social media properties, a video will create an easy way to follow Consano’s updates without having to read. - (Q5) As laid out in question five (5), Consano contributors responded very positively to personal, real and passionate engagement pieces. Frequent videos of Molly will look to enhance the personal connection between Consano and its contributors. Something to remember is, ‘motion creates emotion’. - (Q6) As highlighted in question six (6), the thing Consano contributors least like was the lack of updates on specific research efforts. With Molly Monthly videos, Consano would shed light directly onto the most positive advancements that have occurred over the past month due to the immense support of its supporters. - (Q7) When asked, Consano contributors suggest it should have further updates, regarding how research projects are progressing, as well as how their donations are making a real difference. Molly Monthly would be able to show true progress reports on the most popular research projects. It would also allow Consano to showcase success stories of people who were positively effected by Consano’s efforts. this will evoke certain raw emotions that would be lost in written form. - A round up of every project that met its fundraising goal during the past month. (shows progress) - Show stories of people who benefited from the great work Consano and its contributors do. (evokes positive emotion) - Showcase new projects that are or are coming available for contributors to donate to. (keeps contributors informed) - Share about Molly’s experience throughout her time with Consano as well as personal life. (Provides a personal connection) Molly Monthly videos can address certain issues Consano contributors find in the way they are contacted by Consano. It can also be a great platform to showcase all the great things Consano is doing. We feel that a more personal connection with Consano contributors via video will create a sense of community and togetherness among those involved. What is a Molly Monthly? why a video? What we hope to address possible Molly Monthly content In Closing
  • 19. (Q9) In regard to your overall satisfaction with Consano, please share any feedback (positive or nega- tive) that you believe would be important or beneficial for Consano’s leadership to consider moving forward. Web page is not user friendly An organization that needs a more effective voice. Consano sounds a lot like Monsanto. Is that good? I don’t know. I donate to a lot of non-profits. I have only donated to one Consano project. I like the idea, but I lack a personal connection to a lot of the projects. I love to see how Consano has emerged in social media in the last couple years, and believe in the impact that can be made for the cause well run program.. love the research programs you support and love your involvement of the community.. next year I plan to attend the gala!!! Think it’s great. Honor pages is brilliant -- and has the best bet to move our society away from starting too many foundations/non-profits... and instead focusing on research and the impact. Great work!!! so inspiring. Love the name Ripples of Hope award. Best name for an award I have heard. Continue doing what you are doing! I really enjoy watching Consano grow (through facebook). Consano fills a much appreciated niche, providing a way for anyone to direct donate to a specific project. It is gratifying to know that 100 per cent of my donation will be used for research, not administrative costs. Love this platform! Very happy to see what they are doing - a bit disappointed more people are supporting indie movie projects than medical research. Positive Responses Suggestive Responses Negative Responses Are there opportunities (both research and fundraising) in the rare disease communities? I would be happy to hear about other interesting areas of medicine, research etc even if not directly related to a Consano project. It could be a small section in the newsletter.. Even a few bullet points.. Such as: hearing the team at the Xx Center in St Louis making great progress on... Whatever it may be. You guys are doing great work! Keep it up! I’m satisfied Keep up the great work!! Excellent Keep up the great work. Good to know that research is being funded. Keep on collecting money for research! getting more grant funding Keep expanding as you are able love your work 19
  • 20. Other Crowd-funding platforms are emerging, and this capability is integrating into existing social media, so continuing to differentiate and add uniquevalue will be important. continue making connections with researchers, co-sponsor events related to pre- ventative health plans, education and research, Concept for consano is totally different from other health non profits but brought communication of late, it seems like “same old, same old.” Tough environment and it’s not just about $$$. Entirely too many orgs, in my opinion, and would love to seem more collaboration and consolidation. I do not know all that much about Consano - used Consano to support a cause affiliated with my daughter’s friend. It is not a name I see often, so I would recommend getting their name into the media to increase awareness. Ability to browse past projects (no longer active) Transparency and communication are the keys. (A+) Easy website navigation (A+) 20