3. 1 2 3
Project Question
Understanding the context
What happens
Meeting the carers
How it works
Who helps
How they help
Considering the issues
Re-defining the solution
How it works
How it improves
Hypothesis
Filling gaps
Generating ideas
Design Development
Prototyping systems
Feedback
4. Can design improve the understanding of
epilepsy in children, and encourage stronger
support amongst the appropriate circle of care for
the child?
Project Question
5. 1 500in
every
people suffer from
Epilepsy in the uk
Can start at any age, but
most commonly begins
during childhood
www.epilepsy.org
www.epilepsyscotland.org.uk
54,000
people live with the
condition in Scotland
There are over 40 different
types of epilepsy
Epilepsy is a common serious neurological
condition causing the brain to behave
abnormally and result in physical seizures.
Context
6. Mother Family Teacher School Nurse
Neurologist Pediatrician Local DoctorCommunity Nurse
Stakeholders
7. Royal Hospital for Sick Children
Neurologist
Patients general
information, carers
contact details and
relationship
Types of seizures
the patient may
suffer from, and
detail on how
he/she is suggested
to react
What to do in the event
of a seizure. Amount of
medication, and length
of time before calling an
ambulance
Aftermath and
recovery procedures
to followAdditional
important
information
Seizure Management Plan
Observation
Take Aways
Gatekeeper for any change in medical
advice.
Little frequent contact with the child.
8. Pediatrician Community
Nurse
UNFAMILIAR
PANIC
SUPPORTIVE
Local Community Hospital
“
”
Key contacts and a
supportive network is
the best help you can
get.
“Everybody in the
classroom is
important, even a
fellow pupil. Not only
for when a seizure
occurs, but for when
the child returns back
to school .
”
“When you aren’t familiar to
giving the child their emergency
medication you panic, you’re
more likely to make mistakes
then.
”
Keywords
Interview
9. Teacher
FRIGHTENING
REMINDER
PROMPT
“
”
The situation can be very
frightening for staff,
especially when you
experience it for the first
time.
“Small reminders and prompts would be
useful. We follow the SMP, but this isn’t easy
to understand at quick glance.
”
Primary School
Keywords
Interview
10. Family and Friends
LESSON
PLAN
“
”
Circumstances and reactions change when a
seizure happens in front of you, it would be
good to have a clear simple plan prepared to
follow.
“Id feel more comfortable having a
lesson or something.
”
Keywords
MotherSAFETY
TRUST
“
”
I put a lot of trust into his teacher. A
close relationship with them is very
important I’d say.
“My child’s safety is constantly
on my mind when I am not
with him.
”
Keywords
Interview
13. 1 2 3
Project Question
Understanding the context
What happens
Meeting the carers
How it works
Who helps
How they help
Considering the issues
Re-defining the solution
How it works
How it improves
Hypothesis
Filling gaps
Generating ideas
Design Development
Prototyping systems
Feedback
15. S
“Key contacts and a supportive
network is the best help you can get.”
Awareness days and seminars for
sharing stories and learning about
the condition. Attended by family
and friends, NHS staff, carers etc.
Supportive Concepts
Epilepsy Support Seminars
SUPPORT
16. P
“Small reminders and prompts
would be useful. We follow the
SMP, but this isn’t easy to
understand at quick glance.”
“My child’s safety is
constantly on my mind
when I am not with him.”
A less formal, more visual version of the
seizure management plan, to be given
to teachers, family and friends. This
document would contain the same
information provided by the NHS, only
written and displayed in a manor in
which would be easier to digest in
moments of panic.
Childs necessary information
would be stored and a copy of
SMP could be carried on the
child at all times.
Parents, School teachers and Local Nurse
get together periodically to discuss changes
and createupdate a visual road map of the
child’s epilepsy route and possible scenarios
and how to react in the event of a seizure.
This can then be handed out to the school,
family and friends of the child so all have
the same protocol to follow.
Seizure Route Map Epilepsy ID Tag
Seizure Management Plan
Preparation Concepts
PREPARATION
17. A “Everybody in the classroom is important,
even a fellow pupil. Not only for when a
seizure occurs, but for when the child
returns back to school .”
Awareness activities that can be played
in classroom situations to expand
knowledge around the condition,
avoiding a reaction of panic from fellow
pupils should a seizure happen.
Motion detecting pager, picks up
movements of a seizure and
displays prompts for what to do
and when to give emergency
medication. Would be attached
onto the child and visible to
passers by.
Epilepsy Learning Activities
Seizure Alert Pager
Awareness Concepts
AWARENESS
18. Mother Community NurseTeacherFamily and Friends
Design Workshop
Concept design Workshop.
Seizure Management Plan
Blank Template
Simple icons
19. 1 2 3
Project Question
Understanding the context
What happens
Meeting the carers
How it works
Who helps
How they help
Considering the issues
Re-defining the solution
How it works
How it improves
Hypothesis
Filling gaps
Generating ideas
Design Development
Prototyping systems
Feedback
22. Epilepsy ID Tag
For the child to have on their
person.
School Bag
Jacket Zip
Gym Bag
BEAK
My Name is :
I have Epilepsy, if I’m having an
Epileptic Seizure please call:
on
How it works
23. Epilepsy Learning Activities
Provided to the parent to use at their
discretion.
In school, an extra to the curriculum, for
teaching fellow students
At home, for teaching siblings.
How it works
24. Seizure Route Map
BEAK
Seizure
Route Map
for
In the event of a seizure,
where possible, please
follow this plan.
Name:
Address:
DOB:
CHI:
Emergency
Contact:
This Seizure Route Map has been designed in association with BEAK.
We follow NHS guidelines in seizure management, however can only
offer this route map as a prompt. All cases of Epilepsy differ and if you
are unsure at any moment, we strongly advise that you call the childs
emergency contact.
Type 1 Seizure
Type 2 Seizure
Type 3 Seizure
Medication:
This Seizure Route Map has been created
following the official Seizure Management
Plan provided by the prescribing doctor, and
should act as a prompt for the carer, of when
has an Epileptic Seizure.
main seizure types
are listed below , and inside demonstrates
the route and typical protocol to follow in
the event of a seizure.
Enter childs details below
Enter childs medication and dosage below
According to Seizure Management Plan, Enter each type of seizure
and description here
1
2
3
Type:
Type:
Type:
Colin is making
noises with his throat
and any limb may
twitch or jerk.
Monitor amount and
length of seizures.
Place him in the
recovery position
when seizures have
stopped and it is
possible to do so.
Call Colin’s Mother to
notify of seizures.
If he has had 5 or
more of these
seizures in 30
minutes give 0.5ml
of Epistatus dripped
slowly into side of his
cheek.
Colin should be sent
home for the
remainder of the day.
He should be given
time to rest and
recover from his
dose of Epistatus.
Colin is making
noises with his throat
and all 4 limbs jerk.
He may cry and
sound in pain. His
eyes could be
flickering.
Monitor this seizure
for 5 minutes.
Notify Colin’s Mother
of his seizure. She
should make her way
to Colin.
If his seizure has not
stopped give 5 ml of
Epistatus dripped
slowly into the side
of his cheek.
If possible, place
Colin in the recovery
position.
Monitor seizure for a
further 5 minutes.
If seizure is
continuing after the
5 minuets, give 12ml
paraldehyde per
rectum.
If still fitting, call 999
for an ambulance.
Call Colin’s mother if
she isn’t already
present.
Colin may appear
blank and distant for
a few seconds.
Monitor amount and
length of absence
seizures.
Notify Colin’s mother
of his seizure activity.
Colin may remain at
school if he returns
to normal.
He should avoid
strenuous activity
and try to rest.
Monitor seizure for a
further 5 minutes.
Provided to the parent to use
at their discretion.
Give to family members
Provide copies for school
After school care/clubs
Keep in the childs bag
How it works
25. Receive the completed
items and put them to
use.
After request, receive
seizure route map
template to fill in.
Read Instructions and
use stickers to illustrate
the seizure journey
Annotate icons.
Complete contact
details, and seizure
types according to
Seizure Management
Plan.
Post completed map to
BEAK.
How it works
26. How it Improves
“Its eye catching and
quirky, really easy to
remember.”
Effective straight away
Understandable for all ages
Simple and low tech
Customizable
“I’m glad I can personalise it,
and can be called at any time I
wish, for my own piece of
mind.”
“The colour coordination really
helps with seizure type, that’s
where I get lost sometimes.”
