Meeting the needs of children and families


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Meeting the needs of children and families

  1. 1. By: Mary Grace Abuan ECEP233-064 Lisa McCaieTuesday April 2, 2013
  2. 2. A child who is diagnosed with epilepsy Her mom is pregnant After Zenna’s mom was told that her daughter has epilepsy, she cried,and her doctor told her to take bed rest due to her pregnancy and is at risk of giving birth to her unborn child prematurely.
  3. 3. MOM: Resources to help Zenna’s mom about epilepsy and what she can do to help her child. Support from people around her (extended families)Zenna: Attention for her needs Not to feel unwanted or left out by people around her A close watch on her or alertness just in case of a seizure(s) were to occur.
  4. 4.  Epilepsy has been around from as far as 2000 BC It has been called as a sacred disease because of the belief that people who are suffering from epilepsy are being “seized” by gods People from back in the ancient times thought it could be treated with diets and medications or drugs. It also has been mention in the holy bible According to the ancient Ayurvedic medical system of India, they describe Epilepsy as physical disorder.
  5. 5.  According to this website, epilepsy Epilepsy is, a neurological condition, which affects the nervous system. Epilepsy is also known as a seizure disorder. It is usually diagnosed after a person has had at least two seizures that were not caused by some known medical condition like alcohol withdrawal, extremely low blood sugar, heart problems or some other medical condition.
  6. 6.  Anxiety, Weakness Staring Purposeless or Repetitive Movements Loss of Consciousness Contraction, or Jerking, of Body Muscles* Depending on the type of seizure a child, person have experience the symptoms may vary.
  7. 7.  QuqY&list=PL799C6010A767162C
  8. 8. There are three types of Epilepsy:1. Idiopathic Epilepsy: There isn’t really a cause compare to the other types. But it may have something to do in the cellular level. This type runs in family, in other words it has relation into genetics. However this seizure can be outgrown.2. Symptomatic epilepsy: between 25-45% of epilepsy are most likely symptomatic. Unlike Idiopathic, symptomatic is cause by structural abnormalities, damage in the brain and underlying diseases such as stroke or injury/trauma.3. Cryptogenic epilepsy: The cause of cryptogenic is hidden. It is not obvious to see. Thought of the cause is brain lesion.
  9. 9.  According to the About Kids Health website there are about 10 types of seizures.1. Absence Seizures: They may be unresponsive for a short amount of and it can occur many time throughout the day. There is typical or atypical. In the typical absence seizures the child her eyes will roll up. She/he will not response when someone is talking to her or him. The seizure last about 10 seconds. In Atypical absence seizure it is harder to tell, the child may just stare for a long time. It last about 5-10 seconds. The child mostly likely to become confused after a seizure has occurred.
  10. 10. 2. Tonic, Clonic, and Tonic-Clonic Seizures: This type of seizure is recognized dating back in 700 BC in the Egyptian hieroglyphic. Tonic seizure is when the muscles starts to stiffen and become thickened or shortened. Clonic seizures the muscle starts to twitch or starts to have spasm. It move involuntarily. Tonic- clonic seizures is a mixture of the tonic and clonic which are involuntarily muscle movement and the stiffening and contracting of muscles.3. Myoclonic Seizures: It is a quick, short, shock-like contraction in his/her muscle. It often occur within the first year.4. Atonic Seizures: This type of seizure occur in all ages but more often in children. this type of seizure is when the muscle loses its stability. the child may become wobbly and weak therefore making the child fall on the floor.
  11. 11. 5. Simple partial: According to the About Kids Health website, depending on which are in the brain is affected, Simple partial seizure are in many; motor seizures- change in muscle activity (such as jerking or twitching) sensory seizures, involving a change in sensation (such as tingling, numbness, or prickling in a body part, or seeing or hearing things that are not there) autonomic seizures, involving a change in the autonomic functions of the body (the child may blush, sweat, or feel nausea or a “rising” sensation in her stomach) psychic seizures, involving a change in thinking, feeling or experience (such as déjà vu)
  12. 12. 6. Complex Partial Seizures: Complex partial seizures affects a part of the brain then starts to start affect the other parts. Depending on what part of the brain is affected, the symptoms may vary. But complex partial seizures the child is will seem like he or she is aware of his or her surrounding but may not actually know what is happening.7. Status Epilepticus: Status epilepticus is when a seizure occurs for a long period of time or one seizure after the other leaving no time for one to recover from the previous seizure. In the course of time, this type of seizure can cause brain damage. It can also affect the organ functions and unfortunately death.
  13. 13. 8. Neonatal Seizures: This type of seizure is a seizure that occurs in babies about 28 days old or less. Babies who have this type of seizure may not exactly have Epilepsy when they grown however they have a greater chance of developing epilepsy.9. Provoked Seizures: This type of seizure may likely be experience because of a head injury, infections, high fever, lost of oxygen in the brain. It most likely will not happen again.10. Febrile Seizures: Common in child of age range from 3 month to 5 years of age. Just like provoke seizures, this type of seizure occurs when a child has a high fever. It then disappear by itself.
  14. 14. EEG TEST When diagnosing a seizure or Epilepsy, because seizure are less like to occur when doctor are present, the information given to the doctor must be accurate in order to define they type of Epilepsy and or seizure so that appropriate medication and treatment can CT scan be given to child or person. The doctor may ask for any medical history of the child, or person, then he will have to some blood tests, EEG tests, and brain imaging tests such as CT and MRI scans. This may be repeated for better diagnosis.
  15. 15. Who to go to?•When someone has anepisode, they should go to thefamily doctor for testing. Aseries of different testing willbe taken to see if there areany abnormalities in the brainand then the doctor may referthe family to a specialist forexample a neurologist. Aneurologist specializes indisorder of the brain, in whichepilepsy is included.
  16. 16.  There are many ways of treatment for Epilepsy, one is by medication. In most cases, this would be the first choice for most people but if the medication or drug isn’t as effective for the patient then the doctor will provide more medication for the child or whom ever has. Medication usually help the patient. However, if medication helping the child or patient then they may need to do other treatment such as, surgery or ketogenic diet or bagus nerve stimulation. Discuss with the child, the doctor to help decide which treatment would be best.
  17. 17.  Finding out that your child is diagnosed with epilepsy can devastating, many will feel sad, angry, worry and leaving you with questions as to why? why my child? what did I do wrong? Should I tell my child, is she/he old enough to know? When disclosing to a child, the information you wish to share will depend on the age of your child, is she/he old enough to understand, and personality.
  18. 18.  In daycare setting, a child with epilepsy will need to be watch very carefully because he or she might have an episode or series of episode while they are in the daycare. Having the child with epilepsy climb or to go on the slide may not be a good idea because they may have a seizure while climbing and therefore will fall. Some parents may worry about their child being in danger. For example playing with other children, catching ball, but a child shouldn’t not forbidden to play and be active just because they have epilepsy but they will need very good supervision, alertness.
  19. 19.  A child with epilepsy may have difficulty in school setting she or he may have learning disabilities because of seizures that she had or it could be an affect of his or her medication. They may have difficulty in academic performance like math or reading. He or she may have language delay. He or she may not progress as fast as other children.
  20. 20. Play I would use the simplifying strategy from the ConnectABILITY- Adaptive Play Materials Workshop. It would help the child so that he or she may not be overwhelmed with the materials that is being use for example using 4 piece puzzle rather than 9 pieces. And when the child is progressed on that level then I could try a higher level
  21. 21. Reading Strategy I could use is labeling. I would label object around the classroom and say them out loud. I could also invite other children to join and say it. It would help if I its done repeatedly.
  22. 22. Learning new skills Strategy I would use is prompting and fading. It would allow the child to slowly learn a new skill. it will also allow me to learn about where the child level is at.
  23. 23. Day to Day activities A strategy I could do for the child with epilepsy in my classroom is asking parents and communicating with parents what works and what doesn’t work when they are at home. Because parents are the ones who know their child really well, their capabilities, strength , weakness. I could tell them strategies I use in the classroom and try it in their homes
  24. 24. Routines providing extra time, accommodation to activities that is developmentally appropriate base on the ages and stages, follow through. Creating buddy system, encourage other children to include one another
  25. 25. Here are some resources or agencies where families can go to: Epilepsy Canada Epilepsy Toronto Sick Kids Epilepsy Classroom
  26. 26.  They are a non profit 2255B Queen St E, Suite 336 Tel: organization. They help people 1-877-734-0873 who are affected by epilepsy to Toronto, ON, M4E 1G3 Fax: 905- mission is to embellish the 513-9461 quality of by Charity Registration Number : promoting, supporting 13117 6042 RR0001 research, raising awareness to email: help better understand and accept epilepsy. They depend on the help of the people and corporate support to continue research and education programs.
  27. 27.  They are a non-profit agency. They help those people who are living with epilepsy through support programs and services. They are free of charge. They also do events giving people information about epilepsy. They provide services such as counselling, employment support, advocacy and education to help people with epilepsy live well.
  28. 28.  They help adults, and children. they have individual and couple/family counselling. they have a number of support group. The following are some of the support groups;Parents of Young Adults and Teens Support Group: Generally held the last Wednesday of every month. 7:00 to 9:00 p.m. Epilepsy Toronto - 468 Queen St. East (just west of Sumach St.), Suite 210.Support Group for Parents with Epilepsy: Once a month on Thursday evenings. 7:00- 8:30 p.m. Epilepsy Toronto - 468 Queen St. East (just west of Sumach St.), Suite 210Epilepsy Surgery Support Network: 468 Queen St. East Suite 210 Toronto
  29. 29. Epilepsy Toronto 468 Queen St. East Suite 210 Toronto, ON M5A 1T7 Phone: (416) 964-9095 Fax: (416) 964-2492 E-mail: Website: www.epilepsytoronto.org
  30. 30.  Sick Kids Epilepsy Classroom helps with the learning, nee of children with severe or difficult epilepsy. This means that a child who suffers seizure often even with medication. There are 23 section classroom. They work with the555 University Avenue TDSB for programming.Toronto, Ontario Referral form must be filledCanada out by parent, teacher,M5G 1X8 caregiver or expert(doctor) for the child to be enrolled. The child must be from grade 1-8 ilepsy-Classroom/Classroom-details/index.html
  31. 31.  "Epilepsy." Sickkids - hospital. N.p., n.d. Web. 25 Mar. 2013. < l> "Home - Epilepsy Canada." Home - Epilepsy Canada. N.p., n.d. Web. 25 Mar. 2013. < CA/Home.html>. "All About Epilepsy & Seizures |" Epilepsy and seizure information for patients and health professionals | N.p., n.d. Web. 26 Mar. 2013. Category. "Symptoms of Epilepsy - What are Symptoms of Epilepsy." Epilepsy - Seizures - What Is Epilepsy - Seizure Disorders. N.p., n.d. Web. 26 Mar. 2013. toms.htm "Epilepsy Toronto | Epilepsy Ontario."Epilepsy Ontario | Serving Ontario Since 1956. N.p., n.d. Web. 26 Mar. 2013.
  32. 32.  "Seizures in Children: Diagnosis, Causes, Signs, Treatments." WebMD - Better information. Better health.. N.p., n.d. Web. 29 Mar. 2013. children McAllister, Mark. "EPILEPSY TORONTO » Home Page." EPILEPSY TORONTO » Home Page. N.p., n.d. Web. 29 Mar. 2013. < Appleton, Richard, and Anthony G. Marson. Epilepsy. 3rd ed. Oxford: Oxford University Press, 2008. Print. Bjorklund, Ruth. Epilepsy. New York: Marshall Cavendish Benchmark, 2007. Print. Class note, connectABILITY-prompting and fading Class note, connectABILITY– adaptive play materials Workshop Class Notes, Adaptive Learning Environments.
  33. 33.  (image) (image) / (image) activities.html (image) conversation-a-hybrid-events-hit-at-ts%C2%B2-tradeshow/ (image) (image) (image) / (image) (image) m/ (image) assignment package (image)