As part of the Bradford Science Festival on 18th October, Bradford Dementia Group hosted a digital lifestory-telling workshop at the Faculty of Health Studies.
Andrea Capstick, Katherine Ludwin and Bob Dunnett led the session, based on an approach to film-making that was used with people with dementia in long-term residential care as part of a research study funded by the National institute for Health Research which ended in April 2014.
The workshop, which was attended by health and social care practitioners, students and researchers, provided information to help participants get started with their own digital storytelling project. The process was modelled with Bob Dunnett, an active member of Bradford Dementia Group’s Experts by Experience panel, who has been involved with setting up a number of community groups to support people with dementia and their families.
Participants learned how to conduct an image search, identify images relevant to the person’s life history, add music to a slideshow and edit in sound. Overall emphasis was placed on the participatory nature of the process, in which participants have control over what they want to tell other people about themselves, their lives and their interests. In Bob’s case, it was his Glasgow childhood, career in the merchant Navy, and his love of music and deep sea fishing which helped to bring the workshop to life for everyone who took part.
1. Digital life storytelling in action
Andrea Capstick and Katherine
Ludwin
18 October 2014 Bradford Dementia Group, 1 School of Health Studies
2. Participants
Ten people with
dementia aged
76-99 years,
living in long-term
social care, whose
social participation
or well-being gave
cause for concern.
2
3. Participatory video
• Gives people who are socially
marginalised or excluded an
opportunity to tell their story
• Choice of subject and content
is left to participants to decide
• Participants’ voices provide the
soundtrack
(Milne et al 2012; Capstick 2011)
3
4. Findings
• It was possible to adapt
participatory video for
people with cognitive
difficulties
• Significant impact on
well-being and social
participation
• Benefits continue whilst
watching films later
• Valuable social history
resource
4
19. References
• Capstick A (2011) Travels with a Flipcam: bringing the
community to people with dementia through visual
technology. Visual Studies, 26 (2): 142-147.
• Harper D (2002) Talking about pictures: A case for photo
elicitation. Visual Studies 17 (1): 13–26.
• Milne E-J, Mitchell C and de Lange eds (2012) A handbook
of participatory video. New York: Alta Mira.
NIHR-SSCR disclaimer: This presentation presents
independent research commissioned by the NIHR SSCR. The
views expressed are those of the author and not necessarily
those of the NIHR-SSCR or the DH, NIHR or NHS.
19 23 October 2014
Editor's Notes
Introduce selves and Bob. Why we’re not doing this with someone with dementia, but modelling the same process.
Explain what we’re going to do: background to our study (AC)
example of a participant film (Irene/Janet)
basics of how to do it from scratch including image search, creating a slideshow in Photostory, and adding sound
handouts available so no need to write it all down (give out copies of ppt) with notes spaces
AC - 18-month study funded by NIHR-SSCR. Woman on right as an a example of social disengagement. Level of cognitive difficulty among participants. Capacity and consent.
AC - Potential advantages of PV for people with dementia not previously explored other than in day centre pilot.
Wider view of social participation; we learn from participants etc
KL – a bit about working with Irene.
AC - Make sure Irene’s film saved in same folder as ppt on USB.
AC - Usually you will already have some information about the person, and there are a variety of ways you can expand on this, eg general conversation
AC demonstrate adding to information through general conversation with Bob, eg year joined MN? Name of band?
KL – find a couple of images while AC and BD talking and show? Eg specific area of Glasgow? Musical role models? Later occupations? Music and other hobbies?
Structured prompts…
AC ask Bob about a few categories where we don’t have existing information: eg sport; holiday destination; food.
KL find image of holiday destination.
AC Using pictures to prompt memories – once you have a few images you will find that things the person says in response to them help you to build up a bigger image bank.
Gay told us that her father, who you can just see in the first photo was blind. In spite of this he was a printer and worked at C & P.
Always try to use images that the person chooses, prefers or responds to. Often bright, attractive, colourful images are preferred, but not always.
Old photos are b&w, but the past wasn’t, so bear in mind that b&w photos might not look the way the person remembers. In reality this is a red brick building that looks much less forbidding in real life.
Does anyone recognise it? Past continues in the present.
AC - Give example of Leodis – photographic archive of Leeds; Sheila’s racing jersey and trophies.
Show a couple of images of right area of Glasgow; Bob’s own photos and get his responses to them.
KL to go through main points and resources
Could we tell them how to find out if they can use this particular image?
https://c1.staticflickr.com/9/8184/8423593033_86bacfd448_z.jpg
Once you have a series of images you can start to put them into a slideshow. We used Photostory 3, which is a free download, like everything else we’ll be telling you about.
KL to go through basics.
AC give handout.
Have laptop with Photostory downloaded and an Images file with half a dozen images that they can have a go at importing and arranging. Show timing of slides, panning within images and adding titles.
See the handout provided for more things you can do in Photostory.
KL – basic points
There are a variety of ways you can add sound to your slideshow, from basic to advanced. The easiest is to use the music menu within Photostory. Groups to choose one kind of music and add to an image on laptop.
You can also add upload music from iTunes or Wikimedia.
Add a sound effect; eg we have used typewriter keys, waves, birdsong etc.
Add wave sound to image of MN ship in slide show.
Play some of these from USB rather than adding to slideshow?
Add one VR clip of Bob talking about one of the images in Photostory. Explain re file conversion if not using a dictaphone, eg recording on mobile or direct to PC? (KL)
KL/AC Play slideshow and discuss how it could be developed further. Q & A.