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Digital life storytelling in action 
Andrea Capstick and Katherine 
Ludwin 
18 October 2014 Bradford Dementia Group, 1 School of Health Studies
Participants 
Ten people with 
dementia aged 
76-99 years, 
living in long-term 
social care, whose 
social participation 
or well-being gave 
cause for concern. 
2
Participatory video 
• Gives people who are socially 
marginalised or excluded an 
opportunity to tell their story 
• Choice of subject and content 
is left to participants to decide 
• Participants’ voices provide the 
soundtrack 
(Milne et al 2012; Capstick 2011) 
3
Findings 
• It was possible to adapt 
participatory video for 
people with cognitive 
difficulties 
• Significant impact on 
well-being and social 
participation 
• Benefits continue whilst 
watching films later 
• Valuable social history 
resource 
4
Here’s one we made earlier….. 
5 23 October 2014
Bob: 
• Born in Glasgow 
• Merchant Navy 
• Skiffle band 
• Worked as a licensee and 
…? 
• Singing group 
6 23 October 2014
Favourites form 
7 23 October 2014 John
Photo-elicitation 
8 23 October 2014 Harper (2002)
9 23 October 2014
Image searching 
• Online archives and local 
history sites (eg 
http://www.leodis.net/ 
• Scanned family photos 
• Photos of favourite pictures 
or objects 
• Online image libraries (eg 
Flickr) 
• Clip Art 
10 Glasgow Cross, 1950s
Copyright clearance 
• Creative commons 
• Different types of creative 
commons licenses: 
• http://creativecommons.o 
rg/licenses/ 
• Best practices for citing 
creative commons image: 
https://wiki.creativecom 
mons.org/Best_practices_ 
for_attribution 
• Fair use 
11 23 October 2014
Creating a storyboard 
12
Photostory 3 
13 
http://www.microsoft.com/en-us/ 
download/details.aspx?id=11132
File types supported by Photostory 3 
• Common audio file 
types such as 
• .wav 
• .wma 
• mp3 
14 23 October 2014 John
Adding music 
15 23 October 2014 John
Adding sound effects 
16 23 October 2014 
http://www.freesound.org/
Sound editing 
17 
http://audacity.sourceforge.net/
Bob’s film: 
18
References 
• Capstick A (2011) Travels with a Flipcam: bringing the 
community to people with dementia through visual 
technology. Visual Studies, 26 (2): 142-147. 
• Harper D (2002) Talking about pictures: A case for photo 
elicitation. Visual Studies 17 (1): 13–26. 
• Milne E-J, Mitchell C and de Lange eds (2012) A handbook 
of participatory video. New York: Alta Mira. 
NIHR-SSCR disclaimer: This presentation presents 
independent research commissioned by the NIHR SSCR. The 
views expressed are those of the author and not necessarily 
those of the NIHR-SSCR or the DH, NIHR or NHS. 
19 23 October 2014

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Digital life-storytelling in action

  • 1. Digital life storytelling in action Andrea Capstick and Katherine Ludwin 18 October 2014 Bradford Dementia Group, 1 School of Health Studies
  • 2. Participants Ten people with dementia aged 76-99 years, living in long-term social care, whose social participation or well-being gave cause for concern. 2
  • 3. Participatory video • Gives people who are socially marginalised or excluded an opportunity to tell their story • Choice of subject and content is left to participants to decide • Participants’ voices provide the soundtrack (Milne et al 2012; Capstick 2011) 3
  • 4. Findings • It was possible to adapt participatory video for people with cognitive difficulties • Significant impact on well-being and social participation • Benefits continue whilst watching films later • Valuable social history resource 4
  • 5. Here’s one we made earlier….. 5 23 October 2014
  • 6. Bob: • Born in Glasgow • Merchant Navy • Skiffle band • Worked as a licensee and …? • Singing group 6 23 October 2014
  • 7. Favourites form 7 23 October 2014 John
  • 8. Photo-elicitation 8 23 October 2014 Harper (2002)
  • 10. Image searching • Online archives and local history sites (eg http://www.leodis.net/ • Scanned family photos • Photos of favourite pictures or objects • Online image libraries (eg Flickr) • Clip Art 10 Glasgow Cross, 1950s
  • 11. Copyright clearance • Creative commons • Different types of creative commons licenses: • http://creativecommons.o rg/licenses/ • Best practices for citing creative commons image: https://wiki.creativecom mons.org/Best_practices_ for_attribution • Fair use 11 23 October 2014
  • 13. Photostory 3 13 http://www.microsoft.com/en-us/ download/details.aspx?id=11132
  • 14. File types supported by Photostory 3 • Common audio file types such as • .wav • .wma • mp3 14 23 October 2014 John
  • 15. Adding music 15 23 October 2014 John
  • 16. Adding sound effects 16 23 October 2014 http://www.freesound.org/
  • 17. Sound editing 17 http://audacity.sourceforge.net/
  • 19. References • Capstick A (2011) Travels with a Flipcam: bringing the community to people with dementia through visual technology. Visual Studies, 26 (2): 142-147. • Harper D (2002) Talking about pictures: A case for photo elicitation. Visual Studies 17 (1): 13–26. • Milne E-J, Mitchell C and de Lange eds (2012) A handbook of participatory video. New York: Alta Mira. NIHR-SSCR disclaimer: This presentation presents independent research commissioned by the NIHR SSCR. The views expressed are those of the author and not necessarily those of the NIHR-SSCR or the DH, NIHR or NHS. 19 23 October 2014

Editor's Notes

  1. Introduce selves and Bob. Why we’re not doing this with someone with dementia, but modelling the same process. Explain what we’re going to do: background to our study (AC) example of a participant film (Irene/Janet) basics of how to do it from scratch including image search, creating a slideshow in Photostory, and adding sound handouts available so no need to write it all down (give out copies of ppt) with notes spaces
  2. AC - 18-month study funded by NIHR-SSCR. Woman on right as an a example of social disengagement. Level of cognitive difficulty among participants. Capacity and consent.
  3. AC - Potential advantages of PV for people with dementia not previously explored other than in day centre pilot.
  4. Wider view of social participation; we learn from participants etc
  5. KL – a bit about working with Irene. AC - Make sure Irene’s film saved in same folder as ppt on USB.
  6. AC - Usually you will already have some information about the person, and there are a variety of ways you can expand on this, eg general conversation AC demonstrate adding to information through general conversation with Bob, eg year joined MN? Name of band? KL – find a couple of images while AC and BD talking and show? Eg specific area of Glasgow? Musical role models? Later occupations? Music and other hobbies?
  7. Structured prompts… AC ask Bob about a few categories where we don’t have existing information: eg sport; holiday destination; food. KL find image of holiday destination.
  8. AC Using pictures to prompt memories – once you have a few images you will find that things the person says in response to them help you to build up a bigger image bank. Gay told us that her father, who you can just see in the first photo was blind. In spite of this he was a printer and worked at C & P. Always try to use images that the person chooses, prefers or responds to. Often bright, attractive, colourful images are preferred, but not always. Old photos are b&w, but the past wasn’t, so bear in mind that b&w photos might not look the way the person remembers. In reality this is a red brick building that looks much less forbidding in real life.
  9. Does anyone recognise it? Past continues in the present.
  10. AC - Give example of Leodis – photographic archive of Leeds; Sheila’s racing jersey and trophies. Show a couple of images of right area of Glasgow; Bob’s own photos and get his responses to them.
  11. KL to go through main points and resources Could we tell them how to find out if they can use this particular image? https://c1.staticflickr.com/9/8184/8423593033_86bacfd448_z.jpg
  12. Once you have a series of images you can start to put them into a slideshow. We used Photostory 3, which is a free download, like everything else we’ll be telling you about.
  13. KL to go through basics. AC give handout. Have laptop with Photostory downloaded and an Images file with half a dozen images that they can have a go at importing and arranging. Show timing of slides, panning within images and adding titles. See the handout provided for more things you can do in Photostory.
  14. KL – basic points
  15. There are a variety of ways you can add sound to your slideshow, from basic to advanced. The easiest is to use the music menu within Photostory. Groups to choose one kind of music and add to an image on laptop. You can also add upload music from iTunes or Wikimedia.
  16. Add a sound effect; eg we have used typewriter keys, waves, birdsong etc. Add wave sound to image of MN ship in slide show. Play some of these from USB rather than adding to slideshow?
  17. Add one VR clip of Bob talking about one of the images in Photostory. Explain re file conversion if not using a dictaphone, eg recording on mobile or direct to PC? (KL)
  18. KL/AC Play slideshow and discuss how it could be developed further. Q & A.