Social, Economic & Emotional effects Some children maybe ashamed to show their face Afraid of being stared at and being teased Constantly going to doctor visits Insurance unable accommodate adequate expenses Isolation With public
Effects on family Spouses become distant Denial Anger Bond weakens Some families come together and grow stronger Bond and find solutions for their problems More dynamic
Treatment Surgery Physical therapy Speech therapy Dental work
Surgery Performed within two-three months after birth Prior to the surgery, a special retainer is molded in the mouth
Physical Therapy INTESIVE CARE
Speech Therapy (“Parents’ Guide” (Charkins 192)
Dental Work As a result of having had a cleft lip/palate Prone to missing teeth
Prevention Women have to take the right prenatal supplements to reduce babies’ chance of any facial deformity Nutrition Fruits Vegetables
Cleft Statistics Cleft lip and/or palate occurs in approximately 1 per 500-700 births 3rd most common birth defect Ratio defers across geographic areas or ethnic groupings Developing countries 75% cleft cases go untreated
Outlook Though the treatments may extend over the years, most children achieve normal appearance Live normal lives Slightly noticeable
Operation Smile Non-profit organization that was founded in 1982 Based in Norfolk, VA Provides repair surgery to children with cleft lip and palate Operates in 51 countries
Quote “It was guilt. We were invited to join a group going on a medical mission to the Philippines. We saw hundreds of children and saw many more turned away.”
A World of Compassion
Global standards Every patient treated by OS has to receive the same benefits Equipment Care
Cost of surgery $240, 3½ times as much as one’s average cell phone bill
Normal vs. Cleft formation
Story of cleft palate Stephanie Mohrbacher Diagnosed with cleft palate after birth First surgery performed at the age of 19 months Problems that came along Hearing problems Found herself in the operating room frequently
Story of CL/P Nicole Giron Was born with unilateral cleft lip and together with a palate Had to undergo 2 different surgeries after birth Unilateral cleft lip Cleft palate Insecure
Ongoing Cleft Research Physicians continue to study an individuals gene Defining protein networks A specific gene encodes a small protein that then develops the cleft
Ongoing research cont’d Scientists working on a treatment for babies born with cleft palates New potential treatment Performing surgery on infants to toddlers may cause future complications as they develop into adults
Tests Scientists performed tests on mice Found that the gene that controls the proteins pathway deals with the mouth formation Suppressed the gene in mice that codes for protein
Support Every dollar counts Operation smile has a worldwide team of volunteers
Application Contacted OS Sent me a package with canisters, pamphlets and a shirt Put canisters at local stores Bake Sale
Conclusion I really enjoyed putting my time into this project because I was able to change two children’s lives in need of a smile. I hope to continue contributing and raising an awareness to give many other children new smiles.
Class Activity Worksheet
Research "Breakthrough in treatment of cleft palate." Science and Technology. Research Councils UK, 18 Mar. 2010. Web. 4 Mar. 2010. <http://www.scitech.ac.uk/ PMC/PRel/STFC/Cleftpalatbreakthrough.aspx>. Charkins, Hope M.S.W. Children With Facial Difference: A Parents' Guide. Long Island, New York: Woodbine H, 1996. Print. "Childrens Health." WebMed. TRUSTe, 1 Mar. 2010. Web. 2 Mar. 2010. <http://www.webmd.com>. "Cleft Lip and Cleft Palate." Consumer Guide to Dentistry. HONcode, 1 Mar. 2010. Web. 2 Mar. 2010. <http://www.yourdentistryguide.com/cleft/>.
Research cont’d "Cleft Lip and Palate." KidsHealth. The Nemours Foundation, Spring 2010. Web. 15 Mar. 2010. <http://kidshealth.org/parent/medical/ears/ cleft_lip_palate.html>. "Cleft Lip and Palate News." Medical News Today. mediLexicon International Ltd, Winter 2010. Web. 9 Apr. 2010. <http://www.medicalnewstoday.com/ newssearch>. "Cleft Palate and Cleft Lip." MedicineNet. HONcode, Spring 2010. Web. 9 Apr. 2010. <http://www.medicinenet.com/cleft_palate_and_cleft_lip/ page2.htm#tocd>. "Global Standards." Operation Smile. Convio, Fall 2009. Web. 6 Feb. 2010. <http://www.operationsmile.org/our_work/global-standards-of-care/>.
Research cont’d Gruman-Trinker, Carrie T. Your Cleft Affected Child. Alameda, CA : Hunter House, Incorporated, October 2001. Print. "Mission Sechdule." Operation Smile. Convio, Fall 2009. Web. 9 Feb. 2010. <http://www.operationsmile.org/our_work/medical-missions/ mission-schedule.html>. Siegfried, Elaine. "Medical Specialities ." Cardinal Glennon. SSM Health Care, Oct. 2009. Web. 3 Mar. 2010. <http://www.cardinalglennon.com>. "Story of the Month." Cleft Palate Foundation. Samedis Design, 5 Mar. 2010. Web. 9 Mar. 2010. <http://www.cleftline.org/features/story_of_the_month>.
Work Cited Pics http://flickrcc.bluemountains.net/index.php?terms=statistics&page=4&edit=yes&com=no http://www.google.com/imgres?imgurl http://flickrcc.bluemountains.net/index.php?terms=research&page=3&edit=yes&com=no http://flickrcc.bluemountains.net/index.php?terms=DNA&page=2&edit=yes&com=no http://community.babycenter.com/post/a22395369/cleft_lip_found_on_ultrasound