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De Brun - ‘No decision about me without me’: collaborative opportunities to support shared decision-making in the NHS
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De Brun - ‘No decision about me without me’: collaborative opportunities to support shared decision-making in the NHS


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  • 1. “NO DECISION ABOUT MEWITHOUT ME”Collaborative opportunities to support shareddecision-making in the NHS
  • 2. AGENDA Health literacy vs health information literacy Research justification Evidence Based Patient Choice Summary of literature review Survey analysis 7 pillars vs EBP vs health information literacy Proposed model
  • 3. HEALTH LITERACY VS HEALTHINFORMATION LITERACY Health literacy = ability to understand medical instructions Health information literacy = ability to find and appraise information to help make an informed decision
  • 4. RESEARCH JUSTIFICATION England – 15 million people suffer from at least one chronic condition (diabetes, epilepsy, asthma) NHS Care Summary records Department of Health - Information Revolution cuments/digitalasset/dh_120598.pdf  ‘No decision about me without me’  Shared decision-making  Access to data vs information Evidence-Based Practice = best research + clinical expertise + patient values
  • 6. CURRENT STATE OF ONLINECONSUMER HEALTH INFORMATIONLITERACY Access to the Internet  UK has highest proportion of households with Internet access (82%) Searching behaviour  More likely to search if they have chronic conditions  Disparity due to poverty and lack of Internet access  Knowledge of clinical terminology Quality of online health information  Papers found that the majority of sites looked at were inaccurate or completely wrong  Incorrect information leads to poor decisions  No requirement to adhere to quality standard Shared decision-making  Involved patients are more likely to be compliant
  • 7. SURVEY ANALYSIS Formal survey to identify what people want in terms of information skills support Quick and dirty review of what public and medical libraries offer to the general public
  • 8. CURRENT HEALTH INFO PROVISION Potential sources:  Public libraries   Patient libraries   Medical libraries   Pharmacies   Patient Advisory and Liaison Services (PALS) 
  • 9. 7 PILLARS VS EBP VS HEALTH INFO LITColumn 1: Society of College National and University Libraries (SCONUL), 1999. SCONUL Seven pillars model forinformation literacy, Available at: 2: Sackett, D.L., 1997. Evidence-based medicine. Seminars in Perinatology, 21(1), p.3-5Column 3: Author’s own.
  • 10. PROPOSED MODEL Peripetetic Outreach Librarian:  Train the trainer – public librarians  Teaching public librarians about health information sources  Searching skills – public and health professionals  Teaching searching skills to public and health professionals  Current awareness  Newsletters of latest research on relevant chronic conditions  Information clinics – general public  Mediated searches with patients present  Literature searching and information provision  Located in public libraries, GP surgeries, pharmacies, and hospitals  Regular days per week  Trust employed and Trust and council funded
  • 11. BENEFITS – DOING MORE WITH LESS Sharing resources, knowledge, and expertise Professional development across sectors Improved information literacy skills for public Better informed decisions
  • 12. “Knowledge is the enemy of disease” Sir Muir GrayNHS Chief Knowledge Officer
  • 13. ANY QUESTIONS?Mrs Caroline De Brún MA DipLIS MCLIPResearch Student and Clinical Support Librarian