“NO DECISION ABOUT MEWITHOUT ME”Collaborative opportunities to support shareddecision-making in the NHS
AGENDA Health literacy vs health information literacy Research justification Evidence Based Patient Choice Summary of ...
HEALTH LITERACY VS HEALTHINFORMATION LITERACY Health literacy = ability to understand medical  instructions Health infor...
RESEARCH JUSTIFICATION England – 15 million people suffer from at least one  chronic condition (diabetes, epilepsy, asthm...
EVIDENCE BASED PATIENT CHOICE
CURRENT STATE OF ONLINECONSUMER HEALTH INFORMATIONLITERACY   Access to the Internet       UK has highest proportion of h...
SURVEY ANALYSIS Formal survey to identify what people want in terms  of information skills support Quick and dirty revie...
CURRENT HEALTH INFO PROVISION   Potential sources:       Public libraries        Patient libraries        Medical li...
7 PILLARS VS EBP VS HEALTH INFO LITColumn 1: Society of College National and University Libraries (SCONUL), 1999. SCONUL S...
PROPOSED MODEL   Peripetetic Outreach Librarian:       Train the trainer – public librarians           Teaching public ...
BENEFITS – DOING MORE WITH LESS Sharing resources, knowledge, and expertise Professional development across sectors Imp...
“Knowledge  is the enemy   of disease”      Sir Muir GrayNHS Chief Knowledge Officer
ANY QUESTIONS?Mrs Caroline De Brún MA DipLIS MCLIPResearch Student and Clinical Support Librarian     debrunc@uni.coventry...
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De Brun - ‘No decision about me without me’: collaborative opportunities to support shared decision-making in the NHS

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De Brun - ‘No decision about me without me’: collaborative opportunities to support shared decision-making in the NHS

  1. 1. “NO DECISION ABOUT MEWITHOUT ME”Collaborative opportunities to support shareddecision-making in the NHS
  2. 2. AGENDA Health literacy vs health information literacy Research justification Evidence Based Patient Choice Summary of literature review Survey analysis 7 pillars vs EBP vs health information literacy Proposed model
  3. 3. HEALTH LITERACY VS HEALTHINFORMATION LITERACY Health literacy = ability to understand medical instructions Health information literacy = ability to find and appraise information to help make an informed decision
  4. 4. RESEARCH JUSTIFICATION England – 15 million people suffer from at least one chronic condition (diabetes, epilepsy, asthma) NHS Care Summary records Department of Health - Information Revolution http://www.dh.gov.uk/prod_consum_dh/groups/dh_digitalassets/@dh/@en/do cuments/digitalasset/dh_120598.pdf  ‘No decision about me without me’  Shared decision-making  Access to data vs information Evidence-Based Practice = best research + clinical expertise + patient values
  5. 5. EVIDENCE BASED PATIENT CHOICE
  6. 6. CURRENT STATE OF ONLINECONSUMER HEALTH INFORMATIONLITERACY Access to the Internet  UK has highest proportion of households with Internet access (82%) Searching behaviour  More likely to search if they have chronic conditions  Disparity due to poverty and lack of Internet access  Knowledge of clinical terminology Quality of online health information  Papers found that the majority of sites looked at were inaccurate or completely wrong  Incorrect information leads to poor decisions  No requirement to adhere to quality standard Shared decision-making  Involved patients are more likely to be compliant
  7. 7. SURVEY ANALYSIS Formal survey to identify what people want in terms of information skills support Quick and dirty review of what public and medical libraries offer to the general public
  8. 8. CURRENT HEALTH INFO PROVISION Potential sources:  Public libraries   Patient libraries   Medical libraries   Pharmacies   Patient Advisory and Liaison Services (PALS) 
  9. 9. 7 PILLARS VS EBP VS HEALTH INFO LITColumn 1: Society of College National and University Libraries (SCONUL), 1999. SCONUL Seven pillars model forinformation literacy, Available at: http://www.sconul.ac.uk/groups/information_literacy/sp/.Column 2: Sackett, D.L., 1997. Evidence-based medicine. Seminars in Perinatology, 21(1), p.3-5Column 3: Author’s own.
  10. 10. PROPOSED MODEL Peripetetic Outreach Librarian:  Train the trainer – public librarians  Teaching public librarians about health information sources  Searching skills – public and health professionals  Teaching searching skills to public and health professionals  Current awareness  Newsletters of latest research on relevant chronic conditions  Information clinics – general public  Mediated searches with patients present  Literature searching and information provision  Located in public libraries, GP surgeries, pharmacies, and hospitals  Regular days per week  Trust employed and Trust and council funded
  11. 11. BENEFITS – DOING MORE WITH LESS Sharing resources, knowledge, and expertise Professional development across sectors Improved information literacy skills for public Better informed decisions
  12. 12. “Knowledge is the enemy of disease” Sir Muir GrayNHS Chief Knowledge Officer
  13. 13. ANY QUESTIONS?Mrs Caroline De Brún MA DipLIS MCLIPResearch Student and Clinical Support Librarian debrunc@uni.coventry.ac.uk

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