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De Brun - ‘No decision about me without me’: collaborative opportunities to support shared decision-making in the NHS
1. “NO DECISION ABOUT ME
WITHOUT ME”
Collaborative opportunities to support shared
decision-making in the NHS
2. AGENDA
Health literacy vs health information literacy
Research justification
Evidence Based Patient Choice
Summary of literature review
Survey analysis
7 pillars vs EBP vs health information literacy
Proposed model
3. HEALTH LITERACY VS HEALTH
INFORMATION LITERACY
Health literacy = ability to understand medical
instructions
Health information literacy = ability to find and
appraise information to help make an informed
decision
4. RESEARCH JUSTIFICATION
England – 15 million people suffer from at least one
chronic condition (diabetes, epilepsy, asthma)
NHS Care Summary records
Department of Health - Information Revolution
http://www.dh.gov.uk/prod_consum_dh/groups/dh_digitalassets/@dh/@en/do
cuments/digitalasset/dh_120598.pdf
‘No decision about me without me’
Shared decision-making
Access to data vs information
Evidence-Based Practice
= best research
+ clinical expertise
+ patient values
6. CURRENT STATE OF ONLINE
CONSUMER HEALTH INFORMATION
LITERACY
Access to the Internet
UK has highest proportion of households with Internet access
(82%)
Searching behaviour
More likely to search if they have chronic conditions
Disparity due to poverty and lack of Internet access
Knowledge of clinical terminology
Quality of online health information
Papers found that the majority of sites looked at were
inaccurate or completely wrong
Incorrect information leads to poor decisions
No requirement to adhere to quality standard
Shared decision-making
Involved patients are more likely to be compliant
7. SURVEY ANALYSIS
Formal survey to identify what people want in terms
of information skills support
Quick and dirty review of what public and medical
libraries offer to the general public
8. CURRENT HEALTH INFO PROVISION
Potential sources:
Public libraries
Patient libraries
Medical libraries
Pharmacies
Patient Advisory and Liaison Services (PALS)
9. 7 PILLARS VS EBP VS HEALTH INFO LIT
Column 1: Society of College National and University Libraries (SCONUL), 1999. SCONUL Seven pillars model for
information literacy, Available at: http://www.sconul.ac.uk/groups/information_literacy/sp/.
Column 2: Sackett, D.L., 1997. Evidence-based medicine. Seminars in Perinatology, 21(1), p.3-5
Column 3: Author’s own.
10. PROPOSED MODEL
Peripetetic Outreach Librarian:
Train the trainer – public librarians
Teaching public librarians about health information sources
Searching skills – public and health professionals
Teaching searching skills to public and health professionals
Current awareness
Newsletters of latest research on relevant chronic conditions
Information clinics – general public
Mediated searches with patients present
Literature searching and information provision
Located in public libraries, GP surgeries, pharmacies, and
hospitals
Regular days per week
Trust employed and Trust and council funded
11. BENEFITS – DOING MORE WITH LESS
Sharing resources, knowledge, and expertise
Professional development across sectors
Improved information literacy skills for public
Better informed decisions
12. “Knowledge
is the enemy
of disease”
Sir Muir Gray
NHS Chief Knowledge Officer
13. ANY QUESTIONS?
Mrs Caroline De Brún MA DipLIS MCLIP
Research Student and Clinical Support Librarian
debrunc@uni.coventry.ac.uk