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Health Information Literacy

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Presentation by Jean Shipman at the Health Sciences Libraries 'Health Literacy Forum' October 23, 2009

Published in: Health & Medicine, Education
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Health Information Literacy

  1. 1. The Health Information Literacy Curriculum Sponsored by the Medical Library Association Funded by the National Library of Medicine Contract Number HHSN276200663511/NO1-LM-6-3511 2008
  2. 2. Learning Objectives <ul><li>Recognize the impact low health literacy has on patient care </li></ul><ul><li>Name five strategies and resources to improve health literacy </li></ul><ul><li>Describe the health literacy services offered by the library </li></ul>
  3. 3. What is Health Literacy? <ul><li>“ The degree to which individuals have the capacity to obtain, process, and understand basic health information and services needed to make appropriate health decisions.” </li></ul><ul><li>Healthy People 2010 </li></ul>
  4. 4. What factors affect Health Literacy? <ul><li>Health literacy is dependent on individual and system factors </li></ul><ul><ul><li>Communication skills </li></ul></ul><ul><ul><li>Information and knowledge </li></ul></ul><ul><ul><li>Culture and language </li></ul></ul><ul><ul><li>Demands of the system </li></ul></ul>
  5. 5. Why is Health Literacy Important? <ul><li>Low health literacy is linked to… </li></ul><ul><ul><li>Under-utilization of services </li></ul></ul><ul><ul><li>Increased medication errors </li></ul></ul><ul><ul><li>Poor knowledge about health </li></ul></ul><ul><ul><li>Increased hospitalizations </li></ul></ul><ul><ul><li>Poor health outcomes </li></ul></ul><ul><ul><li>Increased healthcare costs </li></ul></ul>
  6. 6. Health Literacy and Cancer Screening <ul><li>Women with low health literacy are less likely to have had a mammogram or Pap test than women with higher health literacy skills </li></ul>Source: Davis, et al (1996). Caner . Lindau, et al (2002). Am J Obstet Gynecol .
  7. 7. Health Literacy and HIV / AIDS Knowledge Source: Kalichman, et al (2000). Am J Prev Med .
  8. 8. Health Literacy and Diabetes Management Percent of patients with diabetes correctly answering questions according to literacy level (low, moderate, high) Need to Know : symptoms of low blood sugar (hypoglycemia) Need to Do : correct action for hypoglycemic symptoms Low Moderate High Low Moderate High Source: Williams, et al (1998). Arch Int Med .
  9. 9. Health Literacy and Healthcare Costs $2,891 $10,688 Annual Healthcare Costs of Medicaid Enrollees Source: Weiss, et al (2004). J Am Board Fam Pract. ( < 3 rd -grade reading level) ( > 4 th -grade reading level)
  10. 10. How is Information Critical to Health Literacy? <ul><li>Health information is key to: </li></ul><ul><ul><li>Patient and provider communication </li></ul></ul><ul><ul><li>Shared health care decision making </li></ul></ul><ul><ul><li>Understanding and following directions </li></ul></ul><ul><ul><li>Recognizing when to seek care </li></ul></ul><ul><ul><li>Learning and adopting healthy behaviors </li></ul></ul>
  11. 11. What are the Challenges? <ul><li>Health literacy in the U.S. </li></ul><ul><li>Readability of health materials </li></ul><ul><li>Health information and the Internet </li></ul>
  12. 12. Health Literacy in the U.S. Intermediate Basic Below Basic Proficient 13% 12% 53% 22% 77 million adults have basic or below health literacy skills Source: The Health Literacy of American Adults. Results from the 2003 National Assessment of Adult Literacy. National Center for Education Statistics (2006). http://nces.ed.gov/naal/health.asp
  13. 13. Readability of Health Information <ul><li>Over 300 studies show health-related materials far exceed the reading ability of U.S. adults </li></ul><ul><li>Increasing number of studies show similar results when looking at the readability of online health information </li></ul>Source: NLM Bibliography—Understanding Health Literacy and Its Barriers (2004). www.nlm.nih.gov/pubs/cbm/healthliteracybarriers.html
  14. 14. Health Information and the Internet <ul><li>80% of Internet users search for health information </li></ul><ul><li>75% rarely or never check the source and date </li></ul><ul><li>72% express trust in most or all information found online </li></ul>Source: Fox, S. Vital Decisions (2003). Online Health Search (2006). Washington, DC: Pew Internet & American Life Project. www.pewinternet.org/PPF/c/5/topics.asp
  15. 15. Health Literacy From the Patient’s Perspective Source: Help Your Patients Understand . AMA Foundation Health Literacy. www.ama-assn.org/ama/pub / category/9913.html Mrs. Cordell Mr. Bell
  16. 16. Strategies to Improve Health Literacy <ul><li>Use “living room” language </li></ul><ul><li>Limit information (3-5 key points) </li></ul><ul><li>Use easy-to-read print materials </li></ul><ul><li>Practice teach-back </li></ul><ul><li>Use Information Rx </li></ul><ul><li>Address culture and language needs </li></ul>
  17. 17. “ Living Room” Language <ul><li>Name common terms for… </li></ul><ul><ul><ul><li>Hypertension </li></ul></ul></ul><ul><ul><ul><li>Insomnia </li></ul></ul></ul><ul><ul><ul><li>Benign </li></ul></ul></ul><ul><ul><ul><li>Hazardous </li></ul></ul></ul><ul><ul><ul><li>Disorder </li></ul></ul></ul><ul><ul><ul><li>Option </li></ul></ul></ul><ul><ul><ul><li>Poultry </li></ul></ul></ul><ul><ul><ul><li>Routinely </li></ul></ul></ul>
  18. 18. Ask Me 3 – National Patient Safety Foundation www.npsf.org/askme3
  19. 19. Teach-Back Method Source: Help Your Patients Understand . AMA Foundation Health Literacy. www.ama-assn.org/ama/pub/category/9913.html
  20. 20. Easy-to-Read Materials <ul><li>Deciphering Medspeak Brochures </li></ul><ul><ul><li>HIV </li></ul></ul><ul><ul><li>Cancer </li></ul></ul><ul><ul><li>Diabetes </li></ul></ul><ul><ul><li>Other </li></ul></ul>www.mlanet.org/resources/medspeak/index.html
  21. 21. Information Rx
  22. 22. www.MedlinePlus.gov
  23. 23. Interactive Health Tutorials
  24. 24. www.NIHSeniorHealth.gov
  25. 25. www.library.tufts.edu/hsl/spiral/
  26. 26. “ Top 10” Most Useful Consumer Health Websites <ul><li>Cancer.gov * </li></ul><ul><li>CDC.gov * </li></ul><ul><li>Familydoctor.org * </li></ul><ul><li>Healthfinder.gov * </li></ul><ul><li>HIVInsite.ucsf.edu * </li></ul>* Available in Spanish <ul><li>KidsHealth.org * </li></ul><ul><li>Mayoclinic.com </li></ul><ul><li>Medem.com </li></ul><ul><li>MedlinePlus.gov * </li></ul><ul><li>Noah-health.org * </li></ul>Source: Medical Library Association. www.mlanet.org
  27. 27. How Can Librarians Help? <ul><li>Free access to the Internet </li></ul><ul><li>Information Rx Program </li></ul><ul><li>Patient information packets </li></ul><ul><li>Consumer health collection </li></ul><ul><li>Native language resources </li></ul><ul><li>Teaching and training </li></ul><ul><li>Virtual chat / email assistance </li></ul><ul><li>Health literacy workgroup </li></ul>
  28. 28. Why Now? Why Hospitals? <ul><li>“ The safety of patients cannot be assured without mitigating the negative effects of low health literacy and ineffective communication on patient care.” </li></ul><ul><li>The Joint Commission </li></ul>Source: “What did the Doctor Say?:” Improving Health Literacy To Protect Patient Safety. The Joint Commission (2007). www.jointcommission.org/PublicPolicy/health_literacy.htm
  29. 29. Take Home Points <ul><li>Accurate and reliable health information is critical to health literacy </li></ul><ul><li>Use Information Rx to refer patients to reliable health information and to the library for help </li></ul><ul><li>Librarians are available to address the health literacy needs of patients and providers </li></ul>
  30. 30. Thank You! <ul><li>Questions? Comments? </li></ul>
  31. 31. References <ul><li>AHRQ Report— Literacy and Health Outcomes (2004) www.ahrq.gov/clinic/epcsums/litsum.htm </li></ul><ul><li>AMA Foundation Health Literacy www.ama-assn.org/ama/pub/about-ama/our-people/affiliated-groups/ama-foundation/our-programs/public-health/health-literacy-program.shtml </li></ul><ul><li>Fox, S. & Fallows, D. (2003) Internet Health Resources. Washington, DC: Pew Internet & American Life Project www.pewinternet.org/Reports/2003/Internet-Health-Resources.aspx </li></ul><ul><li>Healthy People 2010, Health Communication, Objective 11-2 www.healthypeople.gov/Document/HTML/Volume1/11HealthCom.htm </li></ul><ul><li>IOM Report— Health Literacy: A Prescription To End Confusion (2004) www.iom.edu/CMS/3775/3827/19723.aspx </li></ul>
  32. 32. References <ul><li>NLM Bibliography—Understanding Health Literacy and Its Barriers (2004) www.nlm.nih.gov/pubs/cbm/healthliteracybarriers.html </li></ul><ul><li>The Health Literacy of America’s Adults: Results from the 2003 National Assessment of Adult Literacy (2007) http://nces.ed.gov/pubsearch/pubsinfo.asp?pubid=2006483 </li></ul><ul><li>The Joint Commission Report: “What did the Doctor Say?:” Improving Health Literacy To Protect Patient Safety (2007) www.jointcommission.org/PublicPolicy/health_literacy.htm </li></ul><ul><li>Medical Library Association “Top 10” Most Useful Consumer Health Websites www.mlanet.org/resources/medspeak/topten.html </li></ul>
  33. 33. <ul><li>Pilot Site Librarians </li></ul><ul><ul><li>Martha Prescott , Berkshire Medical Center Health Sciences Library </li></ul></ul><ul><ul><li>Tori Koch and Kim Hart , Billings Clinic Medical Library </li></ul></ul><ul><ul><li>Andrea Harrow , Good Samaritan Hospital Health Sciences Library </li></ul></ul><ul><ul><li>Holly Kimborowicz , Lake Hospital System Medical Library </li></ul></ul><ul><ul><li>Jeff Mason and Mary Chipanshi , Regina General Hospital Health Sciences Library </li></ul></ul><ul><ul><li>Julie Smith , St. Joseph Hospital Burlew Library </li></ul></ul><ul><ul><li>Denise Rumschlag and Carolyn Martin , St. Vincent Hospital Library </li></ul></ul><ul><ul><li>Lenora Kinzie , Stormont-Vail Healthcare Stauffer Health Sciences Library, and Scarlett Fisher-Herreman, Topeka & Shawnee County Public Library </li></ul></ul><ul><ul><li>Geneva Bush Staggs and Beverly Rossini , University of South Alabama Biomedical Library </li></ul></ul>Acknowledgements
  34. 34. <ul><li>Project Advisors </li></ul><ul><ul><li>Elliot Siegel, Robert Logan, Angela Ruffin, Lisa Boyd, Susan Barns, Cindy Olney, Kathy Schilling, Marge Kars, Terry Jankowski, Barbara Bibel, and Cathy Boss </li></ul></ul>Acknowledgements <ul><li>Health Information Literacy Research Project </li></ul><ul><ul><li>Sabrina Kurtz-Rossi, Project Coordinator </li></ul></ul><ul><ul><li>Jean P. Shipman, Co-Principal Investigator </li></ul></ul><ul><ul><li>Carla J. Funk, Co-Principal Investigator </li></ul></ul>

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