Erin Michalak | QoL Tool
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QoL Tool project update
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Erin Michalak | QoL Tool
- 1. Quality of Life Tool Erin Michalak Associate Professor, Department of Psychiatry, University of British Columbia, Canada Leader, CREST.BD
- 2. QoL in BD publications Publications referencing QoL as a proportion of publications referencing BD (Scopus database, terms in abstract, title or keywords), past 20 years Exponential growth (F (1,18) = 136.76, p < .001, Adj R2 = .88) But... Sheer numbers still small N for QoL publications = 140 Vs. N for symptom measure publications = 1576 Source: Murray G, Michalak EE. Bipolar Disord. 2012;14(8):793-6.
- 3. Gaps in BD QoL science - No condition-specific QoL measure
- 5. QoL.BD Scale PHYSICAL SLEEP MOOD COGNITION LEISURE SOCIAL WORK STUDY 12 Basic Scales 2 Optional Scales (Included in Full QoL.BD version only) SPIRITUALITY FINANCES HOUSEHOLD SELF-ESTEEM INDEPENDENCE IDENTITY
- 6. 56-item 14 Domain QoL.BD Scale Full QoL.BD Version
- 8. Gaps in BD QoL science - Need a web-based version of the QoL.BD
- 10. CIHR e-Health Catalyst Collaborators Principal Developer Investigators Principal Decision- Makers Co-Investigators Dan Bilsker Victoria Maxwell Erin Michalak Greg Murray Mark Lau Andrew Sixsmith Steven Barnes
- 11. Development process Group Consultation: Advisory Group & Peer Support Leaders (n=30) May & July 2013 Oct 2012 Group Consultation: Clinician workshop (n=25) Consultation feedback provided to 7th Floor Media August 2013 July – August 2013 Individual Interviews: Healthcare providers (n=10) - QoL Summit Consultation - 3rd prototype development October 2013 September 2013 - 1st prototype developed - Team review & feedback - 2nd prototype developed - Video Production - Pilot testing Feb-March 2014 Nov 2013 – Jan 2014 - Software development
- 13. People with BD and healthcare provider participants, QoL Summit October 2013
- 14. Group discussion at QoL Summit 2013
- 19. Slider feature allows user to view QoL over time
- 20. In terms of research, what are the most important findings from this project?
- 21. In terms of KE, what are the most important learnings to share with CREST.BD network members?
Editor's Notes
- CONTENT AND FORMAT ARE SOMEWHAT HYBRID. Content: Hybrid of general qol scales (leisure, independence, physical), and scales more often seen in health scales (physical, mood), and in mental health scales (cognition, self-esteem [includes a stigma item]) scales that are more clearly linked to BD (sleep, spirituality, identity). (based on factor loadings and communalities) Format is a hybrid – domain-level and optional scales as typical in qol instruments, standardised response format and user-friendly format more common in mood and personality questionnaires.
- Clinical tool for collaborative goal-setting Needed to be applicable across the phases of the disorder Sufficiently brief for routine use, while retaining strong psychometric properties Also literature review in study 1
- What does the star refer to on these slides?
- An example of how we blend consultation with research. As with all of our community consultation events of this type, we embedded a formal qualitative research component. Allows to build capacity for community engagement, improves the quality of the tool AND provides multiple peer-reviewed publications
- Erin stewart elliott – graphic recorder & facilitator captured focus group and large group discussions, visually, throughout the duration of event. Presents it back to participants at the end of the day. Provides an avenue for participants to process information in different ways – and provides a visual for disseminating results. Harnessees and reflects the creativity of the community involved. FGs currently being transcribed. Feedback from group discussion and FG report-back sessions have been organized into the followingcategories: Strengths, Limitations, Key Features, Building Community Reviewed in depth by collaborators at a meeting the following day, moving forward with 1st round of development.