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Unanswered questions in telehealth. The
lessons to be learnt from the WSD trial
Evaluating the impact of telehealth: where next for research beyond
the Whole System Demonstrator trial?

2 October 2012

Nuffield Trust, London




James Barlow


www.haciric.org
Outline


• Lesson 1. Taking stock. What progress has been made
  in deploying remote care in the UK?

• Lesson 2. How big is the potential UK market for remote
  care?

• Lesson 3. Crossing the brick wall – mainstreaming
  remote care

• Lesson 4. Evaluation, evidence, policy and scaling up

• The questions we now need to address
Lesson 1
Taking stock. What progress
has been made in deploying
remote care in the UK?
The idea has been around a long time


Practice by Telephone
The Yankees are rapidly finding out the benefits of the telephone. A newly
made grandmamma, we are told, was recently awakened by the bell at midnight,
and told by her inexperienced daughter, "Baby has the croup. What shall I do
with it?" Grandmamma replied she would call the family doctor, and would be
there in a minute. Grandmamma woke the doctor, and told him the terrible
news. He in turn asked to be put in telephonic communication with the anxious
mamma. "Lift the child to the telephone, and let me hear it cough," he
commands. The child is lifted, and it coughs. "That's not the croup," he declares,
and declines to leave his house on such small matters. He advises grandmamma
also to stay in bed: and, all anxiety quieted, the trio settle down happy for the
night

The Lancet 29 Nov 1879, Page 819
There is political support
Successive UK governments have bought
into the remote care story

• Since 1998 at least twenty
  government reports have
  called for remote care

• Public finance (£200m+ since
  2006)

• ‘3 Million Lives’ initiative
  (2012 – 2017)
There are many
industry case studies
and other reports
There have been many trials ...
Diffusion of telecare in Surrey 1998-2005


             COPD Project

                  Brockhurst Dementia unit
     LAA: Safe                            Thames Ward, Molesey Hospital
      At Home
                              Columba   MEWS Hospital Discharge project

                                            NEECH videophone pilot
                                                       Leatherhead Hospital
                                   Mid Surrey Falls Project Dormers SMART House
    Guildford Falls Project

   Dray Court Telecare flat       Mid Surrey Wristcare pilot
                                                               Tandridge Telecare Flat


                  COPD at Home Project
                                                   Community Alarm Teams,
                                                Elmbridge, Guildford, Mole Valley
                                                                7
                                                         & Runnymede
Even before WSD there was a
 large evidence base
• Very large number of
  studies around the world
  (now 10,000+ published
  reports?)

• Clinical / QoL benefits
  have been shown in trials
  in a variety of
  circumstances

• Robust economic              Bulk of studies are
  evidence is limited          targeted at diabetes and
                               heart disease
                               Source: Barlow et al (2007)
Which? (Feb. 2009)




Remote care is
entering the
public awareness
And yet …
The remote care adoption pattern in the UK

           Adoption        Spread        Mainstreaming




Level of
uptake




                               Time
So how much remote care is
there in the UK?
Growth in remote care users in England
(with many assumptions)                Source: Based on CQC returns, JIT
                                       (Scotland) data, and authors’ research for
                                       WAG.

                                       Includes LA and other agency services.
                                       Assumes 30% drop-out rate each year


 350000

                                                       With Scotland &
 300000                                                Wales

 250000


 200000


 150000


 100000
                               Assumes 15,000 remote care
  50000                        users (2005) and 5000 users
                               (2000)
      0
Lesson 2
How big is the potential UK
market for remote care?
Half a million, one million … or three million?


                                                                Assumptions:
                                                                • UK population aged 75+ is
                                                                  c4.9m (2010)
                                                                • c85% of older people wish
      Actual remote                     Potential remote care     to remain at home as long
                                                                  as possible
     care market 2010                       market 2010         • 1/3 needs remote care at
          350,000                            1,400,000            any given time




                                                                   Source: based on CQC
                                                                   returns, JIT (Scotland) data,
                                               Potential           and authors’ research for
                                              telehealth           WAG. Telehealth figures
             Actual telehealth market
                                             market 2010           from Minutes of the Strategic
                       2010                                        Intelligence Monitor on
                                               450,000
                      22,500                                       Personal Health Systems
                                                                   [SIMPHS] meeting,
                                                                   Brussels, 17-18 November
                                                                   2009.
We don’t know:

How many people could
benefit at a given
snapshot in time or over a
year (what is the rate of
                             “The Department of Health
‘churn’?)                    believes that at least three million
                             people with long term conditions
                             and/or social care needs could
Which population groups      benefit from the use of telehealth
can benefit most? (top of    and telecare services.”
                             http://3millionlives.co.uk/about-
the ‘pyramid’, next tier,    3ml#background

which conditions?)
Lesson 3
Crossing the brick wall –
mainstreaming remote care
All those pilot projects               COPD Project


have told us               LAA: Safe
                            At Home
                                                Brockhurst Dementia unit
                                                                                 Thames Ward, Molesey Hospital


                                                        Columba       MEWS Hospital Discharge project

something about the                                                            NEECH videophone pilot
                                                                                             Leatherhead Hospital


organisational and          Guildford Falls Project


                           Dray Court Telecare flat
                                                                  Mid Surrey Falls Project



                                                              Mid Surrey Wristcare pilot
                                                                                                    Dormers SMART House




                                                                                                  Tandridge Telecare Flat


economic factors                               COPD at Home Project

                                                                                    Community Alarm Teams, Elmbridge,


which influence                                                                     Guildford, Mole Valley & Runnymede




implementation of
remote care
The challenge is not the
technology!
Financial support has helped stimulate
  activity at a local level
           Adoption                 Spread      Mainstreaming




Level of
uptake



            Enthusiasts
                          Pump priming
                Grants




                                         Time
We understand much about the organisational
  factors that influence implementation
           Adoption                 Spread                    Mainstreaming




Level of                                         Leadership
uptake
                                         Project management

                                     Champions
            Enthusiasts
                          Pump priming
                Grants




                                         Time
WSD has highlighted questions about the need for
  evidence and a business case
           Adoption             Spread                       Mainstreaming
                                                                    Business case


                                                                 Evidence
                                          Evaluation


Level of                                        Leadership
uptake
                                        Project management

                                 Champions
           Enthusiasts
                         Pump priming
               Grants




                                        Time
Lesson 4
Evaluation, evidence, policy
and scaling up
It is often hard to pin down healthcare
‘innovation’ … remote care is no different


 An innovation with seemingly
 straightforward objectives and
 using relatively simple technology
 can be:
 •   highly operationally complex

 •   with a large number of stakeholders and

 •   perverse economics

 •   often evolve through process of adoption
So evaluating the impact of telehealth
(and especially telecare) is very hard
and leads to ambiguous, context-
specific findings
Yet there is a perceived need for
very ‘robust’ evidence


• ‘Pilot-itis’ – lessons learnt from
  projects are not disseminated
  or accepted locally
• ‘The largest RCT of remote
  care’ to date
• Background discourse on
  ‘evidence-based policy’
Is an obsession with
evidence beginning to stifle
experimentation and
innovation, and slow scaling-
up?
The future landscape is
apparently promising

  • Government and
    industry ambitions are
    high – 3 Million Lives
  • DH is encouraging –
    adjust tariff, look at
    incentives
  • We know what the
    organisational barriers
    are and what to do
    about them
But what about
the business
models for
remote care?
Suppliers have been
searching for business
models for years:
•   market segment, i.e. users to whom
    the offering is useful and for what
    purpose
•   value chain required to create and
    distribute the offering
•   cost structure and profit potential
•   position of supplier within the value
    network
•   competitive strategy to gain and
    hold advantage over rivals
Finally, the questions we
now need to address
(apart from continuing to work on
the WSD data)
Do they have the capacity /
• How to engage with the      expertise / inclination to plan and
                              coordinate the implementation of
  part of the health system   remote care?
  that has the bulk of the
  budget – CCGs

• What is the role of the     Many would like to move from a
                              ‘box provider’ to ‘service
  supply side?                provider’ role … but how to do
                              this?

• What financial and
  contractual models for
                              What PPP arrangements work
  remote care are the most    and what do they embrace?
                              • infrastructure only
  effective?                  • infrastructure + monitoring
                              • infrastructure + monitoring +
                                 clinical care
WSD research team: James Barlow, Jane Hendy and
Theti Chrysanthaki
Based on several projects funded by EPSRC and Dept of Health
James Barlow - unanswered questions in telehealth 121002

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James Barlow - unanswered questions in telehealth 121002

  • 1. Unanswered questions in telehealth. The lessons to be learnt from the WSD trial Evaluating the impact of telehealth: where next for research beyond the Whole System Demonstrator trial? 2 October 2012 Nuffield Trust, London James Barlow www.haciric.org
  • 2. Outline • Lesson 1. Taking stock. What progress has been made in deploying remote care in the UK? • Lesson 2. How big is the potential UK market for remote care? • Lesson 3. Crossing the brick wall – mainstreaming remote care • Lesson 4. Evaluation, evidence, policy and scaling up • The questions we now need to address
  • 3. Lesson 1 Taking stock. What progress has been made in deploying remote care in the UK?
  • 4. The idea has been around a long time Practice by Telephone The Yankees are rapidly finding out the benefits of the telephone. A newly made grandmamma, we are told, was recently awakened by the bell at midnight, and told by her inexperienced daughter, "Baby has the croup. What shall I do with it?" Grandmamma replied she would call the family doctor, and would be there in a minute. Grandmamma woke the doctor, and told him the terrible news. He in turn asked to be put in telephonic communication with the anxious mamma. "Lift the child to the telephone, and let me hear it cough," he commands. The child is lifted, and it coughs. "That's not the croup," he declares, and declines to leave his house on such small matters. He advises grandmamma also to stay in bed: and, all anxiety quieted, the trio settle down happy for the night The Lancet 29 Nov 1879, Page 819
  • 5. There is political support Successive UK governments have bought into the remote care story • Since 1998 at least twenty government reports have called for remote care • Public finance (£200m+ since 2006) • ‘3 Million Lives’ initiative (2012 – 2017)
  • 6. There are many industry case studies and other reports
  • 7. There have been many trials ... Diffusion of telecare in Surrey 1998-2005 COPD Project Brockhurst Dementia unit LAA: Safe Thames Ward, Molesey Hospital At Home Columba MEWS Hospital Discharge project NEECH videophone pilot Leatherhead Hospital Mid Surrey Falls Project Dormers SMART House Guildford Falls Project Dray Court Telecare flat Mid Surrey Wristcare pilot Tandridge Telecare Flat COPD at Home Project Community Alarm Teams, Elmbridge, Guildford, Mole Valley 7 & Runnymede
  • 8. Even before WSD there was a large evidence base • Very large number of studies around the world (now 10,000+ published reports?) • Clinical / QoL benefits have been shown in trials in a variety of circumstances • Robust economic Bulk of studies are evidence is limited targeted at diabetes and heart disease Source: Barlow et al (2007)
  • 9. Which? (Feb. 2009) Remote care is entering the public awareness
  • 11. The remote care adoption pattern in the UK Adoption Spread Mainstreaming Level of uptake Time
  • 12. So how much remote care is there in the UK?
  • 13. Growth in remote care users in England (with many assumptions) Source: Based on CQC returns, JIT (Scotland) data, and authors’ research for WAG. Includes LA and other agency services. Assumes 30% drop-out rate each year 350000 With Scotland & 300000 Wales 250000 200000 150000 100000 Assumes 15,000 remote care 50000 users (2005) and 5000 users (2000) 0
  • 14. Lesson 2 How big is the potential UK market for remote care?
  • 15. Half a million, one million … or three million? Assumptions: • UK population aged 75+ is c4.9m (2010) • c85% of older people wish Actual remote Potential remote care to remain at home as long as possible care market 2010 market 2010 • 1/3 needs remote care at 350,000 1,400,000 any given time Source: based on CQC returns, JIT (Scotland) data, Potential and authors’ research for telehealth WAG. Telehealth figures Actual telehealth market market 2010 from Minutes of the Strategic 2010 Intelligence Monitor on 450,000 22,500 Personal Health Systems [SIMPHS] meeting, Brussels, 17-18 November 2009.
  • 16. We don’t know: How many people could benefit at a given snapshot in time or over a year (what is the rate of “The Department of Health ‘churn’?) believes that at least three million people with long term conditions and/or social care needs could Which population groups benefit from the use of telehealth can benefit most? (top of and telecare services.” http://3millionlives.co.uk/about- the ‘pyramid’, next tier, 3ml#background which conditions?)
  • 17. Lesson 3 Crossing the brick wall – mainstreaming remote care
  • 18. All those pilot projects COPD Project have told us LAA: Safe At Home Brockhurst Dementia unit Thames Ward, Molesey Hospital Columba MEWS Hospital Discharge project something about the NEECH videophone pilot Leatherhead Hospital organisational and Guildford Falls Project Dray Court Telecare flat Mid Surrey Falls Project Mid Surrey Wristcare pilot Dormers SMART House Tandridge Telecare Flat economic factors COPD at Home Project Community Alarm Teams, Elmbridge, which influence Guildford, Mole Valley & Runnymede implementation of remote care
  • 19. The challenge is not the technology!
  • 20. Financial support has helped stimulate activity at a local level Adoption Spread Mainstreaming Level of uptake Enthusiasts Pump priming Grants Time
  • 21. We understand much about the organisational factors that influence implementation Adoption Spread Mainstreaming Level of Leadership uptake Project management Champions Enthusiasts Pump priming Grants Time
  • 22. WSD has highlighted questions about the need for evidence and a business case Adoption Spread Mainstreaming Business case Evidence Evaluation Level of Leadership uptake Project management Champions Enthusiasts Pump priming Grants Time
  • 23. Lesson 4 Evaluation, evidence, policy and scaling up
  • 24. It is often hard to pin down healthcare ‘innovation’ … remote care is no different An innovation with seemingly straightforward objectives and using relatively simple technology can be: • highly operationally complex • with a large number of stakeholders and • perverse economics • often evolve through process of adoption
  • 25. So evaluating the impact of telehealth (and especially telecare) is very hard and leads to ambiguous, context- specific findings
  • 26. Yet there is a perceived need for very ‘robust’ evidence • ‘Pilot-itis’ – lessons learnt from projects are not disseminated or accepted locally • ‘The largest RCT of remote care’ to date • Background discourse on ‘evidence-based policy’
  • 27. Is an obsession with evidence beginning to stifle experimentation and innovation, and slow scaling- up?
  • 28. The future landscape is apparently promising • Government and industry ambitions are high – 3 Million Lives • DH is encouraging – adjust tariff, look at incentives • We know what the organisational barriers are and what to do about them
  • 29. But what about the business models for remote care?
  • 30. Suppliers have been searching for business models for years: • market segment, i.e. users to whom the offering is useful and for what purpose • value chain required to create and distribute the offering • cost structure and profit potential • position of supplier within the value network • competitive strategy to gain and hold advantage over rivals
  • 31. Finally, the questions we now need to address (apart from continuing to work on the WSD data)
  • 32. Do they have the capacity / • How to engage with the expertise / inclination to plan and coordinate the implementation of part of the health system remote care? that has the bulk of the budget – CCGs • What is the role of the Many would like to move from a ‘box provider’ to ‘service supply side? provider’ role … but how to do this? • What financial and contractual models for What PPP arrangements work remote care are the most and what do they embrace? • infrastructure only effective? • infrastructure + monitoring • infrastructure + monitoring + clinical care
  • 33. WSD research team: James Barlow, Jane Hendy and Theti Chrysanthaki Based on several projects funded by EPSRC and Dept of Health