41. One more set back
and one that made me
once again value what
is important...
42. My winning moments...I Didn’t think
I’d be able to achieve what I have
done so far........Rode two days of the
Tour de cure Riding 350km
over two days.
As a result of this Tour I was
able to Raise Money for Cancer
Research.
44. My Journey is not
over…..
- Blood tests every four weeks.
- Scans every six weeks.
- Medication every day.
- Stress of the unknown and that final
siren.......
Father, Husband, brother, uncle, friend, fitness fanatic, teacher at carey baptist grammar school
Imagine, if you will -- a gift. I'd like for you to picture it in your mind. So envision what it looks like all wrapped up. But before I show you what's inside, I will tell you, it's going to do incredible things for you. It will bring all of your family together. You will feel loved and appreciated like never before and reconnect with friends and acquaintances you haven't heard from in years. Adoration and admiration will overwhelm you. It will recalibrate what's most important in your life.
This gift came to me more than 12 months ago. Not quite the pretty gift You all imagined I bet and then this.
It was Melanoma-Cancer -- the gift that keeps on giving. This was photo was in April 2012 when i was first diagnosed, I was feeling as fit as ever and ready to take on the world. However, my world crashed down. I was admitted into hospital for surgery and this was were I thought it would all end. NO PRIMARY SPOT.....WAS FOUND I FOUND A LUMP......AFTER A RIDE NO SIGNS OF ILLNESS I FELT FINE....... THE RESULT WAS THAT I Had Lymph nodes removed and 1 in 17 effected....... Thought I was out of jail......
Had to wear a drain bag for two weeks after leaving hospital and this was like a tight tag in footy. Just couldn’t shake it.
SUMMARY OF WHAT HAD HAPPENED.
These beautiful girls and my wife are my motivation and fight to keep living and fighting they keep me going everyday. AFter this ‘gift’ was given to me I recalibrated my life and worked out what was important to me and my family. I am reading a book at the moment that says I can be pissed off with what is happening, but reality is that I have been dealt these cards and i need to now see how i can PLAY with this nasty ‘gift’. A few times over your lives, I am sure you would’ve been dealt with times of despair and anguish. its in these times you need to work with the four ‘c’s’ take control, Commit, cHallenge and Connect and look in the mirror and say i am going to accept this negative time and take this as a challenge. which I am doing everyday.
Take control of the situation you are in. It was my aim to take control. I have been given this terrible disease...move on and regain what worked before. Get my life back.
Have ‘commitment’ to the situation I am in, to be with those I love and set myself the ‘commitment’ of beating this disease. You are all ‘committed’ to your life and loved ones make the commitment to make the most of everything, chase and focus on your dreams and what is important to you. For me get healthy again, commit to being a better father, husband, teacher, person and to be working full time.
See any negative moment or situation as a challenge. This is how I see Cancer as a ‘challenge’. My ‘challenge’ is to work towards beating this terminal illness, sharing my journey to influence those in nasty situations to move forward and not become ‘complacent’ in life. I do see cancer as a ‘gift’, it has given me an opportunity to hopefully inspire and make those around me see that the small things/issues can be tough, but lets tackle it and focus on making small changes to result in winning behaviours.
It is import when things are down in your life to ‘connect’ with those around you teammates, family, friends and anyone involved in your life. I took the news of being diagnosed with cancer terribly, but made sure I ‘connected’ with those who wanted me to heal and win. Kept positive.
SUMMARY
Not long after leaving hospital in April LAST YEAR, my plans were to aim high and take ‘control’ of my life and get it back to normal. I was determined to see myself not a cancer patient but as a person who was given this terrible ‘gift’ to adjust and work on what matters in life. I started all the things I used to do, ride, run, get fit. Set goals such as entering triathlon races and running in the Melbourne Marathon 10km race in October 2012 and aim to go under 38min for this event.
This month that will forever be in my mind as it is the month that change to our life. My aim was to reach 6 months since being diagnosed with stage 3A melanoma. I was feeling amazing. Training hard and all the previous scans had come back clear. So I was confident of 6 months of no new tumors and being cancer free, Basically the end of this ‘gift’ that has been given to me.
Scan time and the worst news ever. I NOW CALL IT SCANXIETY
Four brain tumours....the phone call that changed our lives. ‘I need you to come and see me today and not Wednesday. Not something you want to hear. My wife and I arrived at the oncologists rooms and he looked at my wife and I, and said its not good news. You have either four or five brain tumours. I can’t tell how many tellhere are as there is too much swelling. Therefore I need to admit you to hospital. All I wanted to was go home hug my kids and pretend this wasn’t happening and it was all a terrible nightmare.
Devastation! All that I’d done to get life back to normality, was turned upside down. Was my aim now to give up? or fight on. The prognosis was the toughest thing I have ever faced.....You are terminal and unfortunately there is no cure for Melanoma....words that still ring in my ears. I am sure you have all faced tough things in your life and now it was up to me to dissect this news however...what I had to do was think positive. Motivate myself. To move forward.
My home for the next month , one of the hardest part of all of this was missing my family. I was challenged, inspired, and motivated to heal.
We all have battle scares physical or emotional. All of mine came with the ‘gift’ that arrived in April 2012 then the physical scars came in October. I was thinking the worst and not sure if I could push on. One of my Brain tumours bled and this resulted in the loss of movement on my left side, I lost 10kg’s. These set backs made me think about how was I going to get on with things and be able to function again and see my kids...hug them. My determination and attitude was to build resilience and move forward take control. Unable to walk I was forced to use a walking frame. I was 37YO and walking with a frame... this was devastating. Small goals were to wash, dress and feed myself again and then walk the ward without the frame. My weak frail body was not what I was used to.
I finally got home to my family after a month in hospital and was home for a week and then another set back....... Resilience tested again....the ‘gift’ that keeps giving had reared its ugly head....unable to eat or pass food during this week, I felt very ordinary. Scans again to determine the issue......three bowel tumours one was 5cm in size. This sent me back to hospital for more surgery.....how do you explain this to your kids?
Everyone sets goals and for those of you here who play sport each week you are playing a game and some weeks might be ordinary performances or even losses. I am sure you have set individual and team goals. For me the game i am playing is life. I am playing this full time and pushing on with things and doing my best in gaining time with family and friends....not waiting for the final siren just aiming for improved health and healing. Unfortunately I am in a terminal situation and my opponent, Melanoma, has no cure. My attitude is to push on and fight hard for what I want to achieve. Likewise you all do this too in some way.
To see christmas after all I had been through was the aim. Emotional time.
My next goal was to see my eldest child and middle child start school and kinder. Something I was not going to miss.
THose achievements are the important things in my life. ‘When faced with death the ergo and everything else takes a back seat.’ A quote taken from the great Jim Stynes in his darkest times.
As I mentioned earlier the ‘Gift’ I was given has given my life a new hope and even though I felt like things had pushed me to the lowest point, I knew I had team mates and support. Yet when I thought it was all doom and gloom the support of friends and family get me through. I am sure you all have support in many forms. Like me you need to acknowledge and connect with this support.
My teams mates and people that have been a huge support in this troubling time. Auction and selling the house......
The ‘gift’ that keeps giving, came back one more time.......I have been kicked plenty of times...... I Had a seizure in April this year and this was at work. As a result I am now on more medication for seizures and was told to stop cycling and driving. I am now back behind the wheel in.....the riding never stopped. But when this happened all I could think about was that I had new tumors.....lucky for me.....no.....it was scar tissue that caused this set back. I took this as a challenge and my time to bounce back.
ACHIEVEMENTS AND WHAT HAS PROFOUNDLY MADE ME FIRE FORWARD AND KEEP GOING. ENTERED THE MELBOURNE 10KM RACE......I FEEL BAD THAT I’M DOING THE 10KM AND MY WIFE IS DOING THE 21.
I wouldn't wish this gift I have spoken about tonight for any of you. I'm not sure you'd want it. But I wouldn't change my experience. It has profoundly altered my life in ways I didn't expect in all the ways I just shared with you. So the next time you're faced with something that's unexpected, unwanted and uncertain, consider that it just may be a gift and make changes for the better.