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Supporting the young 
adult with diabetes: 
Understanding 
the unique needs of this population 
and resources available to both 
students and providers.
PRESENTERS 
• Christina Roth 
• CEO and Founder, College Diabetes Network 
• Danielle Petrunich 
• CDN Student Leader at Bentley College 
• Dr. Jake Kushner, MD. 
• Chief, Pediatric Diabetes and Endocrinology, McNair Medical Institute 
Scholar, Baylor College of Medicine, Texas Children's Hospital 
• President, Society for Pediatric Research 
• College Diabetes Network Board Member; Board Liaison to CDN Clinical 
Advisory Committee
PURPOSE & LEARNING OBJECTIVES 
Purpose: The purpose of this presentation is to provide insights into the unique 
needs of the young adult with diabetes, from both clinical and student 
perspectives, and to arm providers with resources available to better support 
this vulnerable population. 
Learning Objectives: 
1. Describe the unique needs associated with young adults living with diabetes 
on campus. 
2. Explain considerations when interacting with young adults with diabetes in a 
clinical setting. 
3. Identify resources available to both providers working with young adults with 
diabetes on campus, and to students themselves. 
4. Describe effective ways in which to interact with and support young adults 
with diabetes.
THE CDN MODEL 
Tools Network Ecosystem 
Resources and 
information on how to 
navigate diabetes in 
college 
Campus communities 
that connect you with 
other young adults 
with diabetes 
Making your 
environment and 
supporters better 
prepared to support 
you 
Clinicians 
Parents 
Campus 
Faculty 
Campus 
Health YOUN 
Friends 
G 
ADULT
A DAY IN THE LIFE
TAKEAWAYS 
• Diabetes is hard and a full-time job, and we are trying our best at it 
• We struggle every day to find the right balance between attention to our diabetes 
and living a “normal” college life 
• Individualized care 
• We don’t need scolding or lecturing from you- that’s what our parents 
are for! 
• The best thing you can do for us is give us empathy and support 
• Peer mentoring—having a friend to talk to is huge!
THE CDN MODEL 
Tools Network Ecosystem 
Resources and 
information on how to 
navigate diabetes in 
college 
Campus communities 
that connect you with 
other young adults 
with diabetes 
Making your 
environment and 
supporters better 
prepared to support 
you 
Clinicians 
Parents 
Campus 
Faculty 
Campus 
Health YOUN 
Friends 
G 
ADULT
RED FLAGS: DIABETES IN THE CLINICAL ENVIRONMENT 
SCENARIO: DIABETIC KETOACIDOSIS 
A 19 year old student is brought in by friends on a Sunday morning with a “stomach 
bug”. 
Was with his pledge class on a “road trip” and must have eaten “some bad food”. 
Diabetes since age 7. Otherwise in good health. 
Usual insulin regimen is a combination of long-acting (30 units of insulin glargine a.k.a. 
Lantus) and short acting insulin (10 units of insulin aspart a.k.a. Humalog). 
Checks blood sugars before breakfast, lunch, dinner, and at bed. In “good control”. 
Pulse is 170, with a respiratory rate of 55 breaths/minute and blood pressure of 150/60. 
He looks thin, a bit somnolent, and smells of vomit and alcohol. 
Physical exam: notable for deep, forceful breaths and a small bruised lump on his left 
abdomen. 
Blood sugar is “high” and his urine reads “large” ketones. 
Transferred via ambulance to the local emergency room. 
Initial blood chemistries: Venus blood gas: ph 7.03. Blood glucose: 851. HbA1: 12%.
YOUNG ADULTS WITH DIABETES: AVERAGE 
HBA1C SIGNIFICANTLY HIGHER THAN ADA 
GUIDELINES & INCREASING (T1D EXCHANGE 
DATA, 2014) 
8.2% 
8.3% 
8.7% 
8.4% 
7.7% 
7.6% 
8.3% 
8.4% 
9.0% 
8.7% 
7.7% 
7.6% 
9.0% 
8.5% 
8.0% 
7.5% 
7.0% 
<6 6-<13 13-<18 18-<26 26-<50 ≥50 
Mean HbA1c (%) 
Age (years) 
Enrollment Current
3-month Frequency of Severe 
Hypoglycemia* 
According to Age 
5% 6% 
* Seizure or LOC: 1 or more events in 3m 
8% 8% 
11% 12% 13% 
50% 
40% 
30% 
20% 
10% 
0% 
<6 6-<13 13-<18 18-<26 26-<50 50-<65 ≥65 
Age (years) 
Copyright of Unitio
Goal: Best possible outcomes in type 1 diabetes 
patients with highest quality and safety of care 
“People with diabetes should receive medical care from a 
team that may include physicians, nurse practitioners, 
physician’s assistants, nurses, dietitians, pharmacists, and 
mental health professionals with expertise and a special 
interest in diabetes.” 
“The management plan should be formulated as a 
collaborative therapeutic alliance among the patient and 
family, the physician, and other members of the health care 
team.” 
Page 34 
xxx00.#####.ppt 8/28/2014 7:52:36 PM 
Pediatrics 
leveraging patient-centered collaboration
Goal: Peer-to-peer support of type 1 
diabetes patients
RED FLAGS: DIABETES IN THE CLINICAL ENVIRONMENT 
SCENARIO: DISORDERED EATING 
A 22 year old student is seen for an acute respiratory illness. 
She is wearing multiple layers of clothing. 
Diabetes since age 10 Otherwise in good health. 
Usual insulin regimen is short acting insulin via a pump. 
Checks blood sugars before breakfast, lunch, dinner, and at bed. In “good control”. 
Pulse is 52, with a respiratory rate of 20breaths/minute and blood pressure of 90/50. 
Physical exam: extremely thin with a BMI of 15 kg/m2. 
Blood sugar is “312” and his urine “moderate” ketones. 
At your urging she submits to lab testing. 
HbA1: 14%.
Page 37 
xxx00.#####.ppt 8/28/2014 7:52:37 PM 
Pediatrics 
Goal: Inter-disciplinary research to optimize 
psychological and health outcomes in type 1 diabetes 
Barbara Anderson, PhD 
Marisa Hilliard, PhD
RED FLAGS: DIABETES IN THE CLINICAL ENVIRONMENT 
SCENARIO: “BRITTLE DIABETES” 
“NON-COMPLIANT”“NON-ADHERENT”, “LAZY”, “BAD” 
A 18 year old student is seen for routine vaccination. 
He has had diabetes since age 2. Otherwise in good health. 
Usual insulin regimen is short acting insulin via a pump. 
Checks blood sugars 6-8 times a day. Reports his diabetes is in OK control but he has 
lots of highs and lows. 
Physical exam: unremarkable except for multiple bruises near pump insertion site on 
abdomen. 
Blood glucose and insulin administration history via the insulin pump reveals large 
swings in blood glucose values (from 50 to 500) with large carbohydrate content in 
meals (up to 150 grams per meal). 
HbA1c is 9.5%
Goal: Inter-disciplinary care and research to optimize 
health outcomes in young adults with type 1 diabetes 
Page 39 
xxx00.#####.ppt 8/28/2014 7:52:38 PM 
Pediatrics 
Kelley Cerasuolo, NP 
Sarah Lyons, MD
RED FLAGS: DIABETES IN THE CLINICAL ENVIRONMENT 
SCENARIO: “DIABETIC PREGNANCY” 
A 25 year old graduate student is seen for a pregnancy test. 
Last menstrual period was “about 2 or 3 months ago” 
She has had diabetes since age 12. Otherwise in good health. 
Usual insulin regimen is short acting insulin via a pump. 
Checks blood sugars 2-10 times a day. Reports her diabetes is in “OK” control. 
Physical exam: unremarkable. 
HbA1c is 10%
Peri-conception HbA1c strongly influences risk of 
congenital anomalies in infants of diabetic mothers 
Page 41 
xxx00.#####.ppt 8/28/2014 7:52:38 PM 
Pediatrics 
Bell et al, Diabetologia 2012
Goal: Prevent unplanned pregnancies in mothers with 
Page 42 
xxx00.#####.ppt 8/28/2014 7:52:38 PM 
Pediatrics 
type 1 diabetes
Goal: Prevent unplanned pregnancies in mothers with 
Page 43 
xxx00.#####.ppt 8/28/2014 7:52:39 PM 
Pediatrics 
type 1 diabetes 
Jaden Schupp
RESOURCES FOR PROVIDERS OF YOUNG 
ADULT PATIENTS 
1. Online resources 
1.CDN Website 
1. New section for Campus Providers and Administrators 
2. Hub of resources and information for college students with diabetes 
(upcoming local events, scholarships, new expert FAQs, etc) 
2.The Endocrine Society Directory of Endocrinologists 
2. College Diabetes Network’s Interest Database 
I. Semester Clinical Update (Being launched in August 2014!) 
II. Visit CDN’s Booth (#503) in the Exhibit Hall to sign up, or email 
Christina (croth@collegediabetesnetwork.org)
CHAPTERS 
Support networks on campus created 
and run by students 
Chapters provide: 
 A safety net of people to call 
 A way to meet other students juggling school and diabetes 
 A place to share tips and get acquainted with local resources 
 A chance to take a leadership role 
 An opportunity for community outreach 
 Access to the latest diabetes technology 
 Invitations to events on campus
CHAPTER RESOURCES 
We provide chapters with: 
 Chapter Webpage 
 Chapter Email Address 
 Personal support from CDN’s 
Program Director 
 Student Advisory Committee 
(SAC) 
 Materials 
o Chapter Toolkit – instructions 
on how to create and run a 
sustainable chapter 
o Includes templates, 
instructions, documents, 
brochures, flyers, forms
Stay in Touch! 
Christina Roth 
croth@collegediabetesnetwork.org 
Dr. Jake Kushner 
kushner@bcm.edu 
Dani Petrunich 
dpetrunich@gmail.com 
W W W. C O L L E G E D I A B E T E S N E T W O R K . O R G

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Supporting the Young Adult with Diabetes

  • 1. Supporting the young adult with diabetes: Understanding the unique needs of this population and resources available to both students and providers.
  • 2. PRESENTERS • Christina Roth • CEO and Founder, College Diabetes Network • Danielle Petrunich • CDN Student Leader at Bentley College • Dr. Jake Kushner, MD. • Chief, Pediatric Diabetes and Endocrinology, McNair Medical Institute Scholar, Baylor College of Medicine, Texas Children's Hospital • President, Society for Pediatric Research • College Diabetes Network Board Member; Board Liaison to CDN Clinical Advisory Committee
  • 3. PURPOSE & LEARNING OBJECTIVES Purpose: The purpose of this presentation is to provide insights into the unique needs of the young adult with diabetes, from both clinical and student perspectives, and to arm providers with resources available to better support this vulnerable population. Learning Objectives: 1. Describe the unique needs associated with young adults living with diabetes on campus. 2. Explain considerations when interacting with young adults with diabetes in a clinical setting. 3. Identify resources available to both providers working with young adults with diabetes on campus, and to students themselves. 4. Describe effective ways in which to interact with and support young adults with diabetes.
  • 4. THE CDN MODEL Tools Network Ecosystem Resources and information on how to navigate diabetes in college Campus communities that connect you with other young adults with diabetes Making your environment and supporters better prepared to support you Clinicians Parents Campus Faculty Campus Health YOUN Friends G ADULT
  • 5. A DAY IN THE LIFE
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  • 29. TAKEAWAYS • Diabetes is hard and a full-time job, and we are trying our best at it • We struggle every day to find the right balance between attention to our diabetes and living a “normal” college life • Individualized care • We don’t need scolding or lecturing from you- that’s what our parents are for! • The best thing you can do for us is give us empathy and support • Peer mentoring—having a friend to talk to is huge!
  • 30. THE CDN MODEL Tools Network Ecosystem Resources and information on how to navigate diabetes in college Campus communities that connect you with other young adults with diabetes Making your environment and supporters better prepared to support you Clinicians Parents Campus Faculty Campus Health YOUN Friends G ADULT
  • 31. RED FLAGS: DIABETES IN THE CLINICAL ENVIRONMENT SCENARIO: DIABETIC KETOACIDOSIS A 19 year old student is brought in by friends on a Sunday morning with a “stomach bug”. Was with his pledge class on a “road trip” and must have eaten “some bad food”. Diabetes since age 7. Otherwise in good health. Usual insulin regimen is a combination of long-acting (30 units of insulin glargine a.k.a. Lantus) and short acting insulin (10 units of insulin aspart a.k.a. Humalog). Checks blood sugars before breakfast, lunch, dinner, and at bed. In “good control”. Pulse is 170, with a respiratory rate of 55 breaths/minute and blood pressure of 150/60. He looks thin, a bit somnolent, and smells of vomit and alcohol. Physical exam: notable for deep, forceful breaths and a small bruised lump on his left abdomen. Blood sugar is “high” and his urine reads “large” ketones. Transferred via ambulance to the local emergency room. Initial blood chemistries: Venus blood gas: ph 7.03. Blood glucose: 851. HbA1: 12%.
  • 32. YOUNG ADULTS WITH DIABETES: AVERAGE HBA1C SIGNIFICANTLY HIGHER THAN ADA GUIDELINES & INCREASING (T1D EXCHANGE DATA, 2014) 8.2% 8.3% 8.7% 8.4% 7.7% 7.6% 8.3% 8.4% 9.0% 8.7% 7.7% 7.6% 9.0% 8.5% 8.0% 7.5% 7.0% <6 6-<13 13-<18 18-<26 26-<50 ≥50 Mean HbA1c (%) Age (years) Enrollment Current
  • 33. 3-month Frequency of Severe Hypoglycemia* According to Age 5% 6% * Seizure or LOC: 1 or more events in 3m 8% 8% 11% 12% 13% 50% 40% 30% 20% 10% 0% <6 6-<13 13-<18 18-<26 26-<50 50-<65 ≥65 Age (years) Copyright of Unitio
  • 34. Goal: Best possible outcomes in type 1 diabetes patients with highest quality and safety of care “People with diabetes should receive medical care from a team that may include physicians, nurse practitioners, physician’s assistants, nurses, dietitians, pharmacists, and mental health professionals with expertise and a special interest in diabetes.” “The management plan should be formulated as a collaborative therapeutic alliance among the patient and family, the physician, and other members of the health care team.” Page 34 xxx00.#####.ppt 8/28/2014 7:52:36 PM Pediatrics leveraging patient-centered collaboration
  • 35. Goal: Peer-to-peer support of type 1 diabetes patients
  • 36. RED FLAGS: DIABETES IN THE CLINICAL ENVIRONMENT SCENARIO: DISORDERED EATING A 22 year old student is seen for an acute respiratory illness. She is wearing multiple layers of clothing. Diabetes since age 10 Otherwise in good health. Usual insulin regimen is short acting insulin via a pump. Checks blood sugars before breakfast, lunch, dinner, and at bed. In “good control”. Pulse is 52, with a respiratory rate of 20breaths/minute and blood pressure of 90/50. Physical exam: extremely thin with a BMI of 15 kg/m2. Blood sugar is “312” and his urine “moderate” ketones. At your urging she submits to lab testing. HbA1: 14%.
  • 37. Page 37 xxx00.#####.ppt 8/28/2014 7:52:37 PM Pediatrics Goal: Inter-disciplinary research to optimize psychological and health outcomes in type 1 diabetes Barbara Anderson, PhD Marisa Hilliard, PhD
  • 38. RED FLAGS: DIABETES IN THE CLINICAL ENVIRONMENT SCENARIO: “BRITTLE DIABETES” “NON-COMPLIANT”“NON-ADHERENT”, “LAZY”, “BAD” A 18 year old student is seen for routine vaccination. He has had diabetes since age 2. Otherwise in good health. Usual insulin regimen is short acting insulin via a pump. Checks blood sugars 6-8 times a day. Reports his diabetes is in OK control but he has lots of highs and lows. Physical exam: unremarkable except for multiple bruises near pump insertion site on abdomen. Blood glucose and insulin administration history via the insulin pump reveals large swings in blood glucose values (from 50 to 500) with large carbohydrate content in meals (up to 150 grams per meal). HbA1c is 9.5%
  • 39. Goal: Inter-disciplinary care and research to optimize health outcomes in young adults with type 1 diabetes Page 39 xxx00.#####.ppt 8/28/2014 7:52:38 PM Pediatrics Kelley Cerasuolo, NP Sarah Lyons, MD
  • 40. RED FLAGS: DIABETES IN THE CLINICAL ENVIRONMENT SCENARIO: “DIABETIC PREGNANCY” A 25 year old graduate student is seen for a pregnancy test. Last menstrual period was “about 2 or 3 months ago” She has had diabetes since age 12. Otherwise in good health. Usual insulin regimen is short acting insulin via a pump. Checks blood sugars 2-10 times a day. Reports her diabetes is in “OK” control. Physical exam: unremarkable. HbA1c is 10%
  • 41. Peri-conception HbA1c strongly influences risk of congenital anomalies in infants of diabetic mothers Page 41 xxx00.#####.ppt 8/28/2014 7:52:38 PM Pediatrics Bell et al, Diabetologia 2012
  • 42. Goal: Prevent unplanned pregnancies in mothers with Page 42 xxx00.#####.ppt 8/28/2014 7:52:38 PM Pediatrics type 1 diabetes
  • 43. Goal: Prevent unplanned pregnancies in mothers with Page 43 xxx00.#####.ppt 8/28/2014 7:52:39 PM Pediatrics type 1 diabetes Jaden Schupp
  • 44. RESOURCES FOR PROVIDERS OF YOUNG ADULT PATIENTS 1. Online resources 1.CDN Website 1. New section for Campus Providers and Administrators 2. Hub of resources and information for college students with diabetes (upcoming local events, scholarships, new expert FAQs, etc) 2.The Endocrine Society Directory of Endocrinologists 2. College Diabetes Network’s Interest Database I. Semester Clinical Update (Being launched in August 2014!) II. Visit CDN’s Booth (#503) in the Exhibit Hall to sign up, or email Christina (croth@collegediabetesnetwork.org)
  • 45. CHAPTERS Support networks on campus created and run by students Chapters provide:  A safety net of people to call  A way to meet other students juggling school and diabetes  A place to share tips and get acquainted with local resources  A chance to take a leadership role  An opportunity for community outreach  Access to the latest diabetes technology  Invitations to events on campus
  • 46. CHAPTER RESOURCES We provide chapters with:  Chapter Webpage  Chapter Email Address  Personal support from CDN’s Program Director  Student Advisory Committee (SAC)  Materials o Chapter Toolkit – instructions on how to create and run a sustainable chapter o Includes templates, instructions, documents, brochures, flyers, forms
  • 47. Stay in Touch! Christina Roth croth@collegediabetesnetwork.org Dr. Jake Kushner kushner@bcm.edu Dani Petrunich dpetrunich@gmail.com W W W. C O L L E G E D I A B E T E S N E T W O R K . O R G

Editor's Notes

  1. Christina
  2. Each to give brief introduction
  3. Christina
  4. Pump v other tools
  5. # of times per day checking Some people check different amounts (burnout, etc)
  6. “Perfect Blood Sugar”
  7. More realistic
  8. Pumps too conspicuous for some people
  9. Supplies- different ways
  10. Pump as a cell phone Highs/Lows- Exams Mention Disabilties Services
  11. Supplies- stocked Receiveing supplies Insulin shipping Running ot of supplies- reach out to a friend on campus until theirs arrives (averting disaster)
  12. guestimate
  13. Check before- get to safe range Off of lunch- insulin on board
  14. Effect of exercise- adrenaline go high, some people drop Difficult to juggle diabetes and exercise (BG changes quickly, effects last long time)
  15. CGM- pros and cons Not for everyone
  16. PIC OF BRACELET ON WRITST, LAPTOP
  17. A1C- take a lot of time and effort each day and still have an A1C of 8.3. ADA- 7 or under, current average according to T1D Exchange is 8.7 I’m proud of how I handle my health and my life- long way to go but life would be hard if I were down on myself about diabetes all the time Dr Jerk story
  18. Where to put pump in party clothes Purse Hard to do safely but people do it—don’t judge, give them tools to stay safe Alcohol and diabetes- important considerations that need talking about! CDN has info from experts, student-reviewed
  19. Jake. Scenarios
  20. Jake. Scenarios
  21. Jake. Scenarios
  22. Jake. Scenarios
  23. Dani
  24. Dani/Christina