SuperMinds Talks: Yves Moreau (SuperMinds 2013)
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The document discusses mining 1 million genomes and the tension between privacy and medical care/research. It notes that general consent, simple privacy regulation, peer review, medical and research transparency, IT solutions to ensure privacy, data transparency, and deontological rules to govern usage could help address privacy concerns while enabling the benefits of large-scale genome mining.
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SuperMinds Talks: Yves Moreau (SuperMinds 2013)
- 1. Mining 1,000,000 genomes Privacy or care? March 5, 2013 Yves Moreau
- 5. 137
- 8. CA - b. 1946
- 9. Social contract § General consent § Medical and research § Simple privacy transparency regula=on § IT solu=ons § Peer review § Data transparency § Deontological rules