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Portraying Life Lived with Bipolar Disorder:
                       Evaluation of a Contact-
                          Based Theatrical
                            Performance

                        Jamie Livingston, Ph.D.
                        Erin Michalak, Ph.D.
                        Sagar Parikh, M.D., F.R.C.P.C.
                        Victoria, Maxwell, B.F.A.
                        Vytas Velyvis, M.A.
                        Sharon Hou, B.A.
Intervention
• 1-hour theatrical performance.
• Designed and delivered by Victoria Maxwell, a woman who
  lives with bipolar disorder.
• Uses dramatic narrative to portray life lived with bipolar
  disorder and stigma.
• Performed to a mixed audience in Vancouver and Toronto,
  Canada.
Design
                People with Bipolar                     Healthcare Service
                     Disorder                               Providers


T1 (Pre)            DMISS, ISMI                             DMISS, MICA-4


                   Intervention                              Intervention

                    DMISS, ISMI                             DMISS, MICA-4
T2 (Post)        Process Evaluation                       Process Evaluation


                   DMISS , ISMI                              DMIS, MICA-4

T3 (3 months)
                     Qualitative                                Qualitative
                     Interview                                  Interview


                    DMISS: Day’s Mental Illness Stigma Scale (Day et al., 2007)
                    MICA: Mental Illness: Clinicians’ Attitudes Scale – Version 4 (Kassam et al., 2010)
                    ISMI: Internalized Stigma of Mental Illness (Ritsher et al., 2003)
Sample Items
• DMISS (7-point scale, 28 items, 7 subscales and total score)
    – I don’t think it is possible to have a normal
      relationship with someone with bipolar disorder.
• MICA-4 (6-point scale, 16 items, total score only)
    – Working in the mental health field is just as
      respectable as other fields of health and social care.
• ISMI (4-point scale, 29 items, 5 subscales and total score)
    – I feel out of place in the world because I have a
      mental illness.
Participants
                            People       Service
                           with BD      Providers
                           (N = 80)      (N = 84)


Gender, % women              84%           71%

Years of age, M (SD)      42.4 (12.2)   40.2 (12.9)

Performance location

  Vancouver                  70%           64%
  Toronto                    30%           36%

Seen Victoria Maxwell
                             16%           24%
perform before, % yes
Learned something new?
Emotional impact on you?
Could this performance change public
  acceptance of bipolar disorder?
Summary: Evaluation
The intervention was perceived positively by the
large majority of audience members.
Change in Attitude among People with
           Bipolar Disorder: DMISS
                 T1                 T2
DMISS (α=0.88)   M      SD     N    M      SD        N       Repeated t-test                  d
  Treatability   2.48   1.16   80   2.33   1.19      80      t(79)=1.61, p>0.05               0.17
  Relationship   3.22   1.23   80   3.00   1.22      80      t(79)=2.42, p<0.05               0.27
  Hygiene        2.44   1.30   80   2.35   1.36      80      t(79)=0.98, p>0.05               0.11
  Anxiety        1.97   0.99   80   1.97   0.99      80      t(79)=0.03, p>0.05               0.00
  Visibility     3.57   0.80   80   3.68   0.85      80      t(79)=-1.10, p>0.05              0.14
  Recovery       3.59   1.87   80   3.58   1.95      80      t(79)=0.69, p>0.05               0.07
  Professional   3.18   1.52   80   2.99   1.53      80      t(79)=1.39, p>0.05               0.15
  efficacy
  TOTAL          2.79   0.74   80   2.70   0.80      80      t(79)=1.76, p>0.05               0.19
                                           DMISS: Day’s Mental Illness Stigma Scale (Day et al., 2007)
Change in Attitude among People with
             Bipolar Disorder: ISMI

                    T1                 T2
ISMI (α=0.94)       N      SD     N    M        SD         N       Repeated t-test                   d
   Alienation       2.35   0.70   78   2.23     0.77       78      t(77)=2.61, p<0.05                0.31
   Stereotype       1.55   0.45   77   1.56     0.45       77      t(76)=-0.48, p>0.05               0.04
   Discrimination   2.20   0.63   75   2.24     0.72       75      t(74)=-0.61, p>0.05               0.08
   Withdrawal       2.04   0.68   79   2.05     0.75       79      t(78)=-0.32, p>0.05               0.02
   Resistance       2.02   0.61   77   1.93     0.58       77      t(76)=1.14, p>0.05                0.14
   TOTAL            2.01   0.49   75   1.98     0.55       75      t(74)=1.00, p>0.05                0.13

                                            ISMI: Internalized Stigma of Mental Illness (Ritsher et al., 2003)
Summary: People with BD
The intervention produced limited overall change in
attitudes among people who live with bipolar
disorder.
Small to medium effects were observed:
   Improved beliefs about the potential of having a
    positive relationship with a person who has bipolar
    disorder.
   Decreased subjective feelings of being devalued by
    society as a result of bipolar disorder.
Change in Attitude among Healthcare
          Providers: DMISS & MICA-4
                  T1                  T2
DMISS (α=0.87)    M      SD     N     M         SD         N       Repeated t-test                   d
  Treatability    1.74   0.76   84    1.52      0.54       84      t(83)=2.94, p<0.01                0.32
  Relationship    2.38   0.99   84    2.06      0.94       84      t(83)=4.35, p<0.001 0.48
  Hygiene         1.93   0.99   84    1.67      0.87       84      t(83)=3.42, p<0.01                0.37
  Anxiety         1.72   0.89   84    1.60      0.82       84      t(83)=2.14. p<0.05                0.24
  Visibility      3.40   0.84   84    3.40      0.83       84      t(83)=0.01, p>0.05                0.00
  Recovery        2.55   1.31   84    2.20      1.38       84      t(83)=2.44, p<0.05                0.27
  Professional    2.74   1.35   85    2.53      1.32       85      t(83)=1.78, p>0.05                0.20
  efficacy
  TOTAL           2.26   0.63   84    2.07      0.61       84      t(83)=5.55, p<0.001 0.58
MICA-4 (α=0.66)   30.6   6.5    82    29.8      6.7        82      t(81)=1.56, p>0.05                0.17
                                     DMISS: Day’s Mental Illness Stigma Scale (Day et al., 2007)
                                     MICA: Mental Illness: Clinicians’ Attitudes Scale – Version 4 (Kassam et al., 2010)
Summary: Healthcare Providers


• The intervention produced medium to large effects.

• Statistically significant and pragmatically meaningful
  improvements in attitudes among those who provide
  healthcare services to people with bipolar disorder
  were achieved.
Conclusion

 The study findings support the inclusion of
  the creative arts and contact-based
  approaches in strategies that seek to foster
  positive attitudes among healthcare
  providers toward people with bipolar
  disorder.

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Portraying life lived with bipolar disorder

  • 1. Portraying Life Lived with Bipolar Disorder: Evaluation of a Contact- Based Theatrical Performance Jamie Livingston, Ph.D. Erin Michalak, Ph.D. Sagar Parikh, M.D., F.R.C.P.C. Victoria, Maxwell, B.F.A. Vytas Velyvis, M.A. Sharon Hou, B.A.
  • 2. Intervention • 1-hour theatrical performance. • Designed and delivered by Victoria Maxwell, a woman who lives with bipolar disorder. • Uses dramatic narrative to portray life lived with bipolar disorder and stigma. • Performed to a mixed audience in Vancouver and Toronto, Canada.
  • 3. Design People with Bipolar Healthcare Service Disorder Providers T1 (Pre) DMISS, ISMI DMISS, MICA-4 Intervention Intervention DMISS, ISMI DMISS, MICA-4 T2 (Post) Process Evaluation Process Evaluation DMISS , ISMI DMIS, MICA-4 T3 (3 months) Qualitative Qualitative Interview Interview DMISS: Day’s Mental Illness Stigma Scale (Day et al., 2007) MICA: Mental Illness: Clinicians’ Attitudes Scale – Version 4 (Kassam et al., 2010) ISMI: Internalized Stigma of Mental Illness (Ritsher et al., 2003)
  • 4. Sample Items • DMISS (7-point scale, 28 items, 7 subscales and total score) – I don’t think it is possible to have a normal relationship with someone with bipolar disorder. • MICA-4 (6-point scale, 16 items, total score only) – Working in the mental health field is just as respectable as other fields of health and social care. • ISMI (4-point scale, 29 items, 5 subscales and total score) – I feel out of place in the world because I have a mental illness.
  • 5. Participants People Service with BD Providers (N = 80) (N = 84) Gender, % women 84% 71% Years of age, M (SD) 42.4 (12.2) 40.2 (12.9) Performance location Vancouver 70% 64% Toronto 30% 36% Seen Victoria Maxwell 16% 24% perform before, % yes
  • 6.
  • 9. Could this performance change public acceptance of bipolar disorder?
  • 10. Summary: Evaluation The intervention was perceived positively by the large majority of audience members.
  • 11.
  • 12. Change in Attitude among People with Bipolar Disorder: DMISS T1 T2 DMISS (α=0.88) M SD N M SD N Repeated t-test d Treatability 2.48 1.16 80 2.33 1.19 80 t(79)=1.61, p>0.05 0.17 Relationship 3.22 1.23 80 3.00 1.22 80 t(79)=2.42, p<0.05 0.27 Hygiene 2.44 1.30 80 2.35 1.36 80 t(79)=0.98, p>0.05 0.11 Anxiety 1.97 0.99 80 1.97 0.99 80 t(79)=0.03, p>0.05 0.00 Visibility 3.57 0.80 80 3.68 0.85 80 t(79)=-1.10, p>0.05 0.14 Recovery 3.59 1.87 80 3.58 1.95 80 t(79)=0.69, p>0.05 0.07 Professional 3.18 1.52 80 2.99 1.53 80 t(79)=1.39, p>0.05 0.15 efficacy TOTAL 2.79 0.74 80 2.70 0.80 80 t(79)=1.76, p>0.05 0.19 DMISS: Day’s Mental Illness Stigma Scale (Day et al., 2007)
  • 13. Change in Attitude among People with Bipolar Disorder: ISMI T1 T2 ISMI (α=0.94) N SD N M SD N Repeated t-test d Alienation 2.35 0.70 78 2.23 0.77 78 t(77)=2.61, p<0.05 0.31 Stereotype 1.55 0.45 77 1.56 0.45 77 t(76)=-0.48, p>0.05 0.04 Discrimination 2.20 0.63 75 2.24 0.72 75 t(74)=-0.61, p>0.05 0.08 Withdrawal 2.04 0.68 79 2.05 0.75 79 t(78)=-0.32, p>0.05 0.02 Resistance 2.02 0.61 77 1.93 0.58 77 t(76)=1.14, p>0.05 0.14 TOTAL 2.01 0.49 75 1.98 0.55 75 t(74)=1.00, p>0.05 0.13 ISMI: Internalized Stigma of Mental Illness (Ritsher et al., 2003)
  • 14. Summary: People with BD The intervention produced limited overall change in attitudes among people who live with bipolar disorder. Small to medium effects were observed:  Improved beliefs about the potential of having a positive relationship with a person who has bipolar disorder.  Decreased subjective feelings of being devalued by society as a result of bipolar disorder.
  • 15.
  • 16. Change in Attitude among Healthcare Providers: DMISS & MICA-4 T1 T2 DMISS (α=0.87) M SD N M SD N Repeated t-test d Treatability 1.74 0.76 84 1.52 0.54 84 t(83)=2.94, p<0.01 0.32 Relationship 2.38 0.99 84 2.06 0.94 84 t(83)=4.35, p<0.001 0.48 Hygiene 1.93 0.99 84 1.67 0.87 84 t(83)=3.42, p<0.01 0.37 Anxiety 1.72 0.89 84 1.60 0.82 84 t(83)=2.14. p<0.05 0.24 Visibility 3.40 0.84 84 3.40 0.83 84 t(83)=0.01, p>0.05 0.00 Recovery 2.55 1.31 84 2.20 1.38 84 t(83)=2.44, p<0.05 0.27 Professional 2.74 1.35 85 2.53 1.32 85 t(83)=1.78, p>0.05 0.20 efficacy TOTAL 2.26 0.63 84 2.07 0.61 84 t(83)=5.55, p<0.001 0.58 MICA-4 (α=0.66) 30.6 6.5 82 29.8 6.7 82 t(81)=1.56, p>0.05 0.17 DMISS: Day’s Mental Illness Stigma Scale (Day et al., 2007) MICA: Mental Illness: Clinicians’ Attitudes Scale – Version 4 (Kassam et al., 2010)
  • 17. Summary: Healthcare Providers • The intervention produced medium to large effects. • Statistically significant and pragmatically meaningful improvements in attitudes among those who provide healthcare services to people with bipolar disorder were achieved.
  • 18. Conclusion  The study findings support the inclusion of the creative arts and contact-based approaches in strategies that seek to foster positive attitudes among healthcare providers toward people with bipolar disorder.

Editor's Notes

  1. Background:An effective, multi-faceted strategy to prevent and reduce stigma would include creative arts and contact-based approaches. The power of the creative arts lays its potential to reach and speak to an audience that may not be responsive to conventional methods for addressing stigma.Research Objective:To examine the impact of a brief, contact-based, theatrical intervention on attitudes toward people with bipolar disorder among healthcare providers and people who live with bipolar disorder.Hypothesis: Attitudes toward bipolar disorder will be significantly more positive following the intervention. This study was embedded within a larger CIHR-funded project, led by Drs. Michalak and Parikh, to advance knowledge translation in bipolar disorder.