Debatte an der ICF Anwenderkonferenz - Moderation: Dr. Thomas Ewert, DGRW; Prof. Olaf Kraus de Camargo, McMaster Universität, Canada; Dr. Sabine Grotkamp, DGSMP
F-Words y Comunicación desde el nacimiento y los 1ros años del bebé - Estrat...Olaf Kraus de Camargo
Ponencia presentada durante el curso de diplomatura para la intervención temprana en la Fundación Kinesiológica del Funcionamiento Humano. Ofrece una introducción al marco de las palabras F y la CIF y da ejemplos de cómo pueden utilizarse estos marcos en la intervención temprana para capacitar a los padres y desarrollar intervenciones terapéuticas significativas.
The presentation titled "NDIS after 10 years" focuses on evaluating the National Disability Insurance Scheme (NDIS) a decade after its implementation. It outlines the principles behind NDIS, emphasizing increased funding for disability through tax increases, and the process for individuals with disabilities to apply for support. The presentation reviews the system's needs assessment, highlighting that only a fraction of people with disabilities qualify for NDIS support. It addresses market failures, due to thin markets, leading to a failure of the NDIS in the current market economy. This has led to inequities, cost explosions and loss of workforce emphasizing the need for further investment and funding. The final sections suggest a change of focus from "choice" to "voice" in decision-making, strengthening public service infrastructure, and enhancing workforce development.
Presentation at the 60th Anniversary of the Hong Kong Physiotherapy Association conference "Glocalisation of WHO's ICF in Clinical Practice:
Worldwide Experience Sharing" https://www.icf-conf2023hk.com
The document discusses the impact of the International Classification of Functioning (ICF) on collaboration and communication. It provides an overview of the ICF framework which considers body functions, structures, activities, participation and environmental/personal factors in understanding health and disability. The ICF is seen as having positive impacts by providing a dynamic, interconnected model that focuses on what people can do and is applicable to health for everyone. The ICF also influences policy, decision making, and the role of patients in healthcare. Considerations for applying the ICF include taking a child rights-based and personalized approach while ensuring functioning assessments are collaborative and change over time and context.
How participatory action research informed practice and policy at a Canadian ...Olaf Kraus de Camargo
CanChild is a childhood disability research organization at McMaster University that has developed a culture of participatory action research (PAR) by involving families as partners. Over time, CanChild created infrastructure like an advisory board and Facebook group to facilitate engagement. Examples of PAR projects include revising a family-centered care measure with heavy parent involvement and a COVID time capsule project partnering with youth. CanChild also established training programs to build capacity for PAR. This participatory approach has informed policies by providing evidence in accessible language to various stakeholders.
How Participatory Action Research (PAR) informed practice and policy at a Can...Olaf Kraus de Camargo
Presentation at the 77th Annual Meeting of the American Academy of Cerebral Palsy and Developmental Medicine on Sep 13th 2023 in Chicago. Olaf Kraus De Camargo, Alice Soper and Elizabeth Chambers provide an overview of the approach to engage families and patients in research with several projects as examples.
F-Words y Comunicación desde el nacimiento y los 1ros años del bebé - Estrat...Olaf Kraus de Camargo
Ponencia presentada durante el curso de diplomatura para la intervención temprana en la Fundación Kinesiológica del Funcionamiento Humano. Ofrece una introducción al marco de las palabras F y la CIF y da ejemplos de cómo pueden utilizarse estos marcos en la intervención temprana para capacitar a los padres y desarrollar intervenciones terapéuticas significativas.
The presentation titled "NDIS after 10 years" focuses on evaluating the National Disability Insurance Scheme (NDIS) a decade after its implementation. It outlines the principles behind NDIS, emphasizing increased funding for disability through tax increases, and the process for individuals with disabilities to apply for support. The presentation reviews the system's needs assessment, highlighting that only a fraction of people with disabilities qualify for NDIS support. It addresses market failures, due to thin markets, leading to a failure of the NDIS in the current market economy. This has led to inequities, cost explosions and loss of workforce emphasizing the need for further investment and funding. The final sections suggest a change of focus from "choice" to "voice" in decision-making, strengthening public service infrastructure, and enhancing workforce development.
Presentation at the 60th Anniversary of the Hong Kong Physiotherapy Association conference "Glocalisation of WHO's ICF in Clinical Practice:
Worldwide Experience Sharing" https://www.icf-conf2023hk.com
The document discusses the impact of the International Classification of Functioning (ICF) on collaboration and communication. It provides an overview of the ICF framework which considers body functions, structures, activities, participation and environmental/personal factors in understanding health and disability. The ICF is seen as having positive impacts by providing a dynamic, interconnected model that focuses on what people can do and is applicable to health for everyone. The ICF also influences policy, decision making, and the role of patients in healthcare. Considerations for applying the ICF include taking a child rights-based and personalized approach while ensuring functioning assessments are collaborative and change over time and context.
How participatory action research informed practice and policy at a Canadian ...Olaf Kraus de Camargo
CanChild is a childhood disability research organization at McMaster University that has developed a culture of participatory action research (PAR) by involving families as partners. Over time, CanChild created infrastructure like an advisory board and Facebook group to facilitate engagement. Examples of PAR projects include revising a family-centered care measure with heavy parent involvement and a COVID time capsule project partnering with youth. CanChild also established training programs to build capacity for PAR. This participatory approach has informed policies by providing evidence in accessible language to various stakeholders.
How Participatory Action Research (PAR) informed practice and policy at a Can...Olaf Kraus de Camargo
Presentation at the 77th Annual Meeting of the American Academy of Cerebral Palsy and Developmental Medicine on Sep 13th 2023 in Chicago. Olaf Kraus De Camargo, Alice Soper and Elizabeth Chambers provide an overview of the approach to engage families and patients in research with several projects as examples.
Participação de Pacientes e Familiares em Pesquisa - Reflexões do Centro CanC...Olaf Kraus de Camargo
Palestra dada no Encontro de Reumatologia Pediátrica descrevendo a história de um centro de pesquisa canadense no engajamento de pacientes e familiares para eles se tornarem parceiros ativos nas pesquisas desenvolvidas.
Using the ICF framework for children, families and carers to formulate health...Olaf Kraus de Camargo
Presentation at the International Conference of Autism Acceptance and Neurodiversity at Ambedkar State Institute of Medical Sciences, India
April 1 & 2 2023
Invited talk at the Joint Symposium of WFNR and ICF Education | Functioning science – The future of the biopsychosocial model and its impact on rehabilitation
A description of the pathway towards a patient-driven ICF platform enabling users to share their lived experience.
Presentation at the 8th ICF Education International Symposium and 5th Neuro Socio Psycho Rehab Conference - 2022 in India
An overview of current best practice and guidelines in treatment approaches for developmental disabilities and tools to implement a patient centred approach.
How participatory research can inform practice and policy? The CanChild exper...Olaf Kraus de Camargo
Conférences scientifiques du Département de pédiatrie
CHU St. Justine, Montréal, Québec – 23 November 2022
Invited Rounds describing CanChild approach to participatory research.
International Classification of Functioning, Disability and Health - From Pat...Olaf Kraus de Camargo
Presentation at the First Conference of the National Developmental and Behavioral Disorders Program in Riyadh, Saudi Arabia, on November 15th 2022. It provides an overview of the ICF, its uses in clinical care, patient engagement and health systems design.
CanChild is a research center focused on childhood disability and development located at McMaster University. It was founded in 1989 and currently has over 60 scientists, 30 staff members, and engages families and youth. CanChild conducts research to develop tools for assessing child development and functioning. It also creates knowledge translation materials for families and healthcare providers. CanChild aims to facilitate collaboration between researchers and involve families in all aspects of research.
Milestones are variable benchmarks in a child's development. A child's development is driven by their environment which should provide healthy soil ingredients like curiosity, opportunities, modeling, responsiveness, unconditional acceptance, praising effort, respect, and love. The document then lists various milestones without descriptions to provide a high-level overview of typical developmental benchmarks. It concludes with an invitation for questions.
Ensuring active participation in complex disabilities using the ICFOlaf Kraus de Camargo
Marlene is an 18-year-old female student with complex needs including Rett syndrome, apraxia, and epilepsy who uses augmentative and alternative communication. She enjoys music, fashion, spending time with peers, and conversation. Her goals for the upcoming school year include attending a live concert. A transdisciplinary team used the ICF framework to develop a plan to achieve this goal by setting sub-goals, assigning roles and responsibilities, and incorporating the goal into Marlene's individualized education plan with a focus on increasing her independence, competence, and self-determination. The team's approach aimed to actively engage Marlene in the goal-setting process in line with theories emphasizing the importance of intrinsic motivation.
Functionomics -The International Classification of Functioning, Disability an...Olaf Kraus de Camargo
Presentation during the Workshop on Assistive Technologies for People with Disabilities: Patient Perspectives – 13/12/2021organized by the Multitouch Project: https://multitouch-itn.eu
What makes a service family-centred? Reflections and Perspectives using MPOC ...Olaf Kraus de Camargo
This document discusses family-centered care and how to measure it using the Measure of Processes of Care (MPOC). It notes that family-centered care recognizes each family as unique, with parents as experts on their child's needs. The MPOC tool measures family-centered care across five scales related to enabling partnerships, providing information, coordinated care, and respectful support. A study that used the MPOC to evaluate Ontario autism services found strengths in treating parents as individuals and caring atmospheres, but areas for improvement in providing child-specific and various forms of information. The document promotes the MPOC as a tool to understand if services are truly family-centered.
Grand Rounds McMaster University Department of Pediatrics, December 2nd, 2021
Olaf Kraus de Camargo, @DevPeds
Rachel Martens, @RaeofSunshine79
Keiko ShikakoThomas, @KeikoShikako
The document discusses early intervention for children, including who it should target, what it should involve, and when it should occur. It recommends that early intervention should begin prenatally by preparing parents and continue through well-child visits and programs like home visiting and childcare. Effective early intervention, called nurturing care, provides a stable and supportive environment that meets children's health, learning, and emotional needs. It is best delivered through interactions with parents and caregivers in the home starting from infancy.
Participação de Pacientes e Familiares em Pesquisa - Reflexões do Centro CanC...Olaf Kraus de Camargo
Palestra dada no Encontro de Reumatologia Pediátrica descrevendo a história de um centro de pesquisa canadense no engajamento de pacientes e familiares para eles se tornarem parceiros ativos nas pesquisas desenvolvidas.
Using the ICF framework for children, families and carers to formulate health...Olaf Kraus de Camargo
Presentation at the International Conference of Autism Acceptance and Neurodiversity at Ambedkar State Institute of Medical Sciences, India
April 1 & 2 2023
Invited talk at the Joint Symposium of WFNR and ICF Education | Functioning science – The future of the biopsychosocial model and its impact on rehabilitation
A description of the pathway towards a patient-driven ICF platform enabling users to share their lived experience.
Presentation at the 8th ICF Education International Symposium and 5th Neuro Socio Psycho Rehab Conference - 2022 in India
An overview of current best practice and guidelines in treatment approaches for developmental disabilities and tools to implement a patient centred approach.
How participatory research can inform practice and policy? The CanChild exper...Olaf Kraus de Camargo
Conférences scientifiques du Département de pédiatrie
CHU St. Justine, Montréal, Québec – 23 November 2022
Invited Rounds describing CanChild approach to participatory research.
International Classification of Functioning, Disability and Health - From Pat...Olaf Kraus de Camargo
Presentation at the First Conference of the National Developmental and Behavioral Disorders Program in Riyadh, Saudi Arabia, on November 15th 2022. It provides an overview of the ICF, its uses in clinical care, patient engagement and health systems design.
CanChild is a research center focused on childhood disability and development located at McMaster University. It was founded in 1989 and currently has over 60 scientists, 30 staff members, and engages families and youth. CanChild conducts research to develop tools for assessing child development and functioning. It also creates knowledge translation materials for families and healthcare providers. CanChild aims to facilitate collaboration between researchers and involve families in all aspects of research.
Milestones are variable benchmarks in a child's development. A child's development is driven by their environment which should provide healthy soil ingredients like curiosity, opportunities, modeling, responsiveness, unconditional acceptance, praising effort, respect, and love. The document then lists various milestones without descriptions to provide a high-level overview of typical developmental benchmarks. It concludes with an invitation for questions.
Ensuring active participation in complex disabilities using the ICFOlaf Kraus de Camargo
Marlene is an 18-year-old female student with complex needs including Rett syndrome, apraxia, and epilepsy who uses augmentative and alternative communication. She enjoys music, fashion, spending time with peers, and conversation. Her goals for the upcoming school year include attending a live concert. A transdisciplinary team used the ICF framework to develop a plan to achieve this goal by setting sub-goals, assigning roles and responsibilities, and incorporating the goal into Marlene's individualized education plan with a focus on increasing her independence, competence, and self-determination. The team's approach aimed to actively engage Marlene in the goal-setting process in line with theories emphasizing the importance of intrinsic motivation.
Functionomics -The International Classification of Functioning, Disability an...Olaf Kraus de Camargo
Presentation during the Workshop on Assistive Technologies for People with Disabilities: Patient Perspectives – 13/12/2021organized by the Multitouch Project: https://multitouch-itn.eu
What makes a service family-centred? Reflections and Perspectives using MPOC ...Olaf Kraus de Camargo
This document discusses family-centered care and how to measure it using the Measure of Processes of Care (MPOC). It notes that family-centered care recognizes each family as unique, with parents as experts on their child's needs. The MPOC tool measures family-centered care across five scales related to enabling partnerships, providing information, coordinated care, and respectful support. A study that used the MPOC to evaluate Ontario autism services found strengths in treating parents as individuals and caring atmospheres, but areas for improvement in providing child-specific and various forms of information. The document promotes the MPOC as a tool to understand if services are truly family-centered.
Grand Rounds McMaster University Department of Pediatrics, December 2nd, 2021
Olaf Kraus de Camargo, @DevPeds
Rachel Martens, @RaeofSunshine79
Keiko ShikakoThomas, @KeikoShikako
The document discusses early intervention for children, including who it should target, what it should involve, and when it should occur. It recommends that early intervention should begin prenatally by preparing parents and continue through well-child visits and programs like home visiting and childcare. Effective early intervention, called nurturing care, provides a stable and supportive environment that meets children's health, learning, and emotional needs. It is best delivered through interactions with parents and caregivers in the home starting from infancy.
Individuell oder standardisiert? – unterschiedliche Positionen zu den personbezogenen Faktoren
1. Individuell oder standardisiert? –
unterschiedliche Positionen zu den
personbezogenen Faktoren
Olaf Kraus de Camargo
@DevPeds
Definitionen Gebrauch
Funktionsfähigkeit – Behinderung – Gesundheit
ICF Anwenderkonferenz – Hamburg
12. April 2018
9. Recht auf Gesundheit
Respekt für die Person
Wohlergehen
Gerechtigkeit
Cato, K.D., Bockting, W., Larson, E., 2016.
https://doi.org/10.1177/1556264616661611
PrinzipienGebrauch
10. Individualisiert
“Die Erfassung und Dokumentation von personbezogenen Faktoren sollten
dem persönlichen Austausch zwischen den beteiligten Personen vorbehalten
bleiben.”
Kraus de Camargo, O., 2016.
https://doi.org/10.1007/s00103-016-2402-z
https://medium.com/@DevPeds/personal-factors-and-
participation-7372ad74ac06#.n5j91e1eb
“Was uns zu Personen macht, ist die Art wie wir
denken, wie wir träumen, wie wir Andere sind .”
Couto, M., 2011. E Se Obama Fosse Africano? Companhia
das Letras, Sao Paulo, Brasil.
Gebrauch
11. Menschenwürde
Gebrauch
….die Würde kommt….“innerhalb der Natur …nur…dem Menschen zu, ihm
aber ohne jede individualisierende Selektion, d.h. jedem Exemplar der
Gattung, auch dem Neugeborenen u. Heranwachsenden, auch dem geistig
Schwerstbehinderten. Menschenwürde ist ein Superlativ, der sich weder
steigern noch abschwächen läßt, überdies jedem Menschen vor allen
individuellen Leistungen unverlierbar zukommt.“
„Lexikon der Ethik“Hg. Otfried Höffe, Verlag C.H. Beck, München 2002, S. 169
12. Literatur
• World Health Organization, 2013. How to use the ICF: A practical manual for using the International Classification of Functioning, Disability and
Health (ICF). WHO, Geneva. http://www.who.int/classifications/drafticfpracticalmanual.pdf
• Geyh, S., Peter, C., Muller, R., Bickenbach, J.E., Kostanjsek, N., Ustun, B.T., Stucki, G., Cieza, A., 2011. The Personal Factors of the
International Classification of Functioning, Disability and Health in the literature - a systematic review and content analysis. Disabil Rehabil 33,
1089–1102. https://doi.org/10.3109/09638288.2010.523104
• Grotkamp, S.L., Cibis, W.M., Nüchtern, E.A.M., von Mittelstaedt, G., Seger, W.K.F., 2012. Personal Factors in the International Classification of
Functioning, Disability and Health: Prospective Evidence. Aust. J. Rehabil. Couns. 18, 1–24. https://doi.org/10.1017/jrc.2012.4
• Heerkens, Y.F., De Brouwer, C.P.M., Engels, J.A., Van Der Gulden, J.W.J., Kant, I., 2017. Elaboration of the contextual factors of the ICF for
Occupational Health Care. Work 57, 187–204. https://doi.org/10.3233/WOR-172546
• Geyh, S., Schwegler, U., Peter, C., Müller, R., 2018. Representing and organizing information to describe the lived experience of health from a
personal factors perspective in the light of the International Classification of Functioning, Disability and Health (ICF): a discussion paper.
Disabil. Rehabil. 0, 1–12. https://doi.org/10.1080/09638288.2018.1445302
• Botsman, R., 2017. Big data meets Big Brother as China moves to rate its citizens. Wired. http://www.wired.co.uk/article/chinese-government-
social-credit-score-privacy-invasion
• Cato, K.D., Bockting, W., Larson, E., 2016. Did I Tell You That? Ethical Issues Related to Using Computational Methods to Discover Non-
Disclosed Patient Characteristics. J. Empir. Res. Hum. Res. Ethics 11, 214–219. https://doi.org/10.1177/1556264616661611
• Kraus de Camargo, O., 2016. [Personal Factors and Participation] Personbezogene Faktoren und Teilhabe. Bundesgesundheitsblatt -
Gesundheitsforsch. - Gesundheitsschutz 59, 1133–1138. https://doi.org/10.1007/s00103-016-2402-z,
https://medium.com/@DevPeds/personal-factors-and-participation-7372ad74ac06#.n5j91e1eb
• Couto, M., 2011. E Se Obama Fosse Africano? Companhia das Letras, Sao Paulo, Brasil.
• „Lexikon der Ethik“ Hrsg. Otfried Höffe, Verlag C.H. Beck, München 2002, S. 169