How to use Internet resources in Pediatric Practice

How to use internet resources in
PEDIATRIC PRACTICE

By
Dr. Yasser Sami Amer
MSc Pediatrics, MSc Healthcare Informatics
Clinical Practice Guidelines Advisor

C ONTENTS
I. Best CPGs websites
II. Best Children’s Hospitals
website
III. Quality of medical info
IV. Medical Internet Ethics

Clinical Guidelines on the Web

 Specialized societies

 National agencies
NICE
SIGN

Country Produc Finde
Organization Name URL FREE PAID
er r

Guidelines International Network
Int’l http://www.g-i-n.net F √ √
(G-I-N)
World Health Organization (WHO) Int’l http://www.who.int/topics P √
National Institute for Health http://www.nice.org.uk/page.aspx?o=ourg
UK
uidance
P √ √
& Clinical Excellence (NICE)

National Library for Health (NLH) UK http://www.library.nhs.uk F √
Scottish Intercollegiate Guidelines http://www.sign.ac.uk/guidelines/index.ht
Scotland
ml
P √
Network (SIGN)
New Zealand Guideline Group (NZGG) NZ http://www.nzgg.org.nz P √
Registered Nurses Association of
Canada http://www.rnao.org P √
Ontario (RNAO)
National Guidelines Clearinghouse
USA http://www.guidelines.gov F √
(NGC)
√
US National Library of Medicine, √(Fu
http://www.ncbi.nlm.nih.gov/pubmed
National Institutes of Health USA
OR http://www.pubmed.gov
F (Abst ll
(PubMed) racts) Tex
t)
Institute for Clinical Systems
USA http://www.icsi.org/knowledge/ P √
Improvement (ICSI)

CPG P RODUCERS :
S PECIALIZED S OCIETIES : AAP

CPG Producers:
National Agencies

SIGN
Scottish
Intercollegiate
Guidelines Network
www.sign.ac.uk

CPG P RODUCERS :
N ATIONAL A GENCIES

NICE
National Institute for
Health & Clinical
Excellence
www.nice.org.uk

AHRQ
National Guideline
Clearinghouse
www.guidelines.gov

National Library
for Health (UK)
www.library.nhs.uk

Guidelines International
Network
(G-I-N)
www.g-i-n.net

CEBCPGs, HCQD-AUHs
Org. Member since 2009

PubMed
US National Library of
Medicine
National Institutes of
Health (NIH)

W ORLDWIDE B EST C HILDREN ’ S
H OSPITALS
2012-13

T HESE HOSPITALS EXCEL IN CARING FOR SICK KIDS

Arab World – Arab Gulf
USA UK – Middle East - EMRO

B OSTON C HILDREN ' S H OSPITAL
HTTP :/ / W W W. CHIL DR ENS HO SP I TAL . O R G /

1st US Nationally Ranked
 #2 in Pediatrics: Cancer

 #1 in Pediatrics: Cardiology & Heart Surgery

 #2 in Pediatrics: Diabetes & Endocrinology

 #2 in Pediatrics: Gastroenterology

 #3 in Pediatrics: Neonatology

 #1 in Pediatrics: Nephrology

 #1 in Pediatrics: Neurology & Neurosurgery

 #3 in Pediatrics: Orthopedics

 #4 in Pediatrics: Pulmonology

 #2 in Pediatrics: Urology

HTTP :// W W W. CHO P. ED U /

2nd US Nationally Ranked










H T T P : / / W W W . C I N C I N N AT I C H I L D R E N S . O R G / D E FA U LT /
J A M E S M . A N D E R S O N C E N T E R F O R H E A LT H S Y S T E M S E X C E L L E N C E
E VIDENCE- B ASED G UIDELINES
3rd US Nationally Ranked










H T T P : / / W W W . H O P K I N S C H I L D R E N S . O R G / T P L _ N AV 1 U P _ N AV 2 U P. A S P X ? I D = 1 0 9 0

9th US Nationally Ranked











THE CHILD FIRST AND ALWAYS
HT TP : / / WWW. GOSH . NHS . U K / HEA LTH - P RO FES SI O N AL S / CLI NI C AL - GUI D ELI NES /

 Health Professionals > Clinical Guidelines
SEARCH by:
 Search bar
 Alphabetical A-Z

How To Judge the Quality
of Medical Web Sites ?

2009 - About.com Health's Disease and Condition content

is reviewed by the Medical Review Board

T HERE IS A LOT OF MEDICAL INFORMATION ON THE
INTERNET : S OME VERY GOOD , AND SOME VERY BAD .
T HE
FOLLOW STEPS WILL HELP YOU JUDGE THE
QUALITY OF MEDICAL WEB SITES . H ERE IS H OW :-

1. Figure out what type of group owns the site.
By looking at the middle or end of the Uniform Resource
Locator (URL), you can get clues to the site's ownership.
(Sometimes the URL also gives clues to the country in which
the site is registered.)
 Educational institutions: .edu, .ac
 Commercial (for profit) sites: .com, .co (but remember that
lots of hospitals have .com domain names)
 Government sites: .gov, .gouv
 Organizations (usually nonprofit): .org
 Networks: .net

2. A SK YOURSELF : A M I BEING
GIVEN FACTS , OR OPINIONS ?

Reliable medical web sites clearly distinguish between factual
information and opinion or advice; you shouldn't be left
wondering. All medical facts and statistics should be
referenced, and you should be given all the information
you'd need if you wished to verify the facts yourself in a
medical library (including the names of the researchers
who did the research and the name of the journal in which
it was published, the issue number and date, and the page
numbers). Also, the site should make it easy to tell the
difference between ads and editorial content.

3. M AKE SURE YOU KNOW WHO ’ S
RESPONSIBLE FOR THE SITE ' S
CONTENT.
Who owns this website, and who creates the
content? The answers should be obvious.
The site’s sponsors should take credit for all
the information on the site, or if they did
not create the content, they should clearly
state who did. Be wary of medical sites that
post information collected from around the
web. Also, you should be provided with a
way to contact the site owners by
email and by postal mail.

4. A SK YOURSELF : W HO ' S
PAYING FOR THIS SITE ?

What is the source of the site's
financial support? Advertisements?
User fees? Organization funds? Your
tax dollars? A corporate sponsor
trying to sell a product? The answer
to this question can be a clue to
whether the content is objective or
biased.

5. V ERIFY THE SITE ' S
CREDIBILITY.

Unless the site is sponsored by a
hospital or medical school, make
sure all medical content is reviewed
by an editorial board of physicians
with solid qualifications. No
completely reliable medical site can
be written and reviewed by a single
person.

6. B E SURE THE
INFORMATION IS CURRENT.

Reliable medical web sites are
regularly reviewed and
updated, and the date of the
most recent update or review
should be clearly posted.

7. Make sure you know what information
is being collected about you, and how it
will be used.

Does the site collect your personal
information? Do they guarantee to
respect your privacy and
confidentiality? Be sure you read
their privacy policy, and don't agree
to anything you don’t understand.

8. L EARN MORE ABOUT HOW TO
RECOGNIZE GOOD MEDICAL WEBSITES .

 Learn more about how to recognize
reliable medical information on the
internet by reviewing the guidelines on
the following sites:-
 Health on the Net Foundation

http://www.hon.ch/pat.html

 Medical Library Association

 National Library of Medicine

 Human Genome Project

HON: H EALTH O N THE N ET F OUNDATION
HTTP :// WWW. HON . CH / PAT. HTML

N ATIONAL L IBRARY OF M EDICINE
HTTP :/ / WWW. NL M . N IH . GO V / M E D L I N EP L U S / W EB E VA L / W E B E VA L . H T M L

M EDICAL L IBRARY A SSOCIATION
HTTP :/ / WWW. ML A N E T. O R G / R E SO U R C E S / U S E R G U I D E . HT M L

Medical Internet Ethics:
A Field in Evolution

M EDICAL I NTERNET E THICS :
M ERGING D IVERSE F IELDS OF S TUDY

Healthcare Delivery
Applied Computing
Science & Research
Government Agencies
Medical Internet
Healthcare services, e-commerce
Ethics End Users
Healthcare Organizations
Administration & Management
Medical Ethics
Law

M AJOR A REAS NEEDING G UIDELINES
IN M EDICAL I NTERNET E THICS

Doctor-patient, provider-patient,
therapist-client relationships
Online medicine, online therapy
Online research
Quality of information on medical and
healthcare Web sites
Ethical conduct of medical and healthcare
Web sites
Privacy and security

M EDICINE & H EALTHCARE ON
THE I NTERNET

Medical websites, more than any other type
of site on the Internet, should ensure
visitors’ personal privacy and prevent
personal medical information, including
patterns of use and interests, from being
sold, purchased, or inadvertently
entering the hands of marketers,
employers, and insurers.
Principles Governing AMA Web Sites
Winker MA JAMA 2000;283:1600-1606

G UIDELINES FOR Q UALITY
M EDICAL AND H EALTH W EBSITES
1996 - Health on the Net Foundation Code of Conduct
1999 - Medscape “The Ethics of the Medical Internet”
2000 - AMA’s “Guidelines for Medical and Health
Information Sites on the Internet”
- Internet Healthcare Coalition’s “International Code
of Ethics”
- MedCERTAIN development of an international
trustmark
2001 - URAC & Hiethics Fee-based Health Website
Accreditation program

How to use Internet resources in Pediatric Practice

How to use Internet resources in Pediatric Practice

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