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Be a Champion for
Children’s Health
When advocates dedicated
to children’s health and
well-being raise their voices,
great things can happen.
1
Join children’s hospitals and advocates from across the country as we
work together to improve access to quality care for all children. With your
help, we can ensure our elected officials put forth policies that support
children’s unique health care needs.
Representing more than 200 hospitals, the Children’s Hospital
Association is the voice of children’s hospitals nationally. The association
works hard to promote policies that enable hospitals to better serve kids
and is the premier resource for pediatric data and analytics.
TOGETHER WE:
	 • Halted Medicaid cuts that would harm children’s access to health care
	 • Secured funding to train more than 6,000 pediatric specialists at
		 nearly 60 independent children’s teaching hospitals
	 • Worked with Congress to introduce the Advancing Care for
		 Exceptional Kids Act of 2015 (ACE Kids Act) to improve pediatric
		 care for children with complex medical conditions
But the fight for quality health care for all kids is far from over.
We need to ensure all children have access to the right
care, in the right place, at the right time. It’s a goal that
needs your help to become a reality.
2
It’s Easy to be a Champion for Children’s Health
Patients served by children’s hospitals depend on
champions like you to be their advocates and to
support policies that improve the well-being of all
children. Whether you’re a patient, parent or a staff
member just concerned about our kids’ health, you can
raise your voice to influence local, state, and federal
policies. We need to educate our elected officials on
how their decisions impact children’s health.
Speak Now for Kids is an online advocacy network
designed to raise awareness among legislators about
how public policies impact children’s health care.
Established by the Children’s Hospital Association,
Speak Now for Kids offers resources for people like you
to support your advocacy efforts.
Follow these simple recommendations to
increase your effectiveness as a champion
for children’s health:
	 • Find your legislators.
	 • Write to your legislators.
	 • Promote your positions through social media.
	 • Make timely and effective phone calls.
	 • Meet your legislators.
3
Contents
Learn About the Legislative Process....................... 4
	 Find your legislators.................................................. 5
Write to Your Legislators........................................... 6
	 When to write............................................................ 8
Advocate Through Social Media.............................10
	Twitter......................................................................11
	Facebook..................................................................12
Make Timely and Effective Phone Calls................14
Visit Your Legislators...............................................16
	 Prepare for your visit...............................................17
	 The powerful 90-second prepared speech..............18
	 During your visit......................................................18
	 After your visit.........................................................19
Resources...................................................................20
	 Common policy priorities for children’s health.....20
	 Additional resources................................................22
	 Glossary of terms....................................................24
The Legislative Process
As a champion for children’s health
you want to be in the know when it
comes to understanding the legislative
process. Creating and passing legislation
is complicated; this chart will help you
understand how a bill becomes a law.
At every step in this process, you have
the power to influence your legislators.
Some sit on committees that craft
legislation before it reaches the full
House or Senate. And all of them will
ultimately vote on any legislation
considered by Congress. There is no bad
time to reach out to your legislators, and
this guide will show you how.
This chart is meant as a general overview – most
legislation follows this process. Occasionally,
however, a piece of legislation will skip one or
even many steps to be passed more quickly.
HOUSE SENATE
Introduction
HR 1 Introduced in House
Introduction
S2 Introduced in Senate
TAKE ACTION
Committee Action
Referred to House Committee
TAKE ACTION
Committee Action
Referred to Senate Committee
Referred to
Subcommittee
Referred to
Subcommittee
Reported by
Full Committee
Reported by
Full Committee
Rules Committee Action
TAKE ACTION
Floor Action
House debates, vote on passage
TAKE ACTION
Floor Action
Senate debates, vote on passage
House SenateConference
Action
President
Signs or vetoes
4
Find Your
Legislators
There are multiple resources available
to find your elected officials at each
level of government. For starters,
visit www.speaknowforkids.org
and click ACT NOW. You’ll be given
contact information on all of your
lawmakers, from the president
of the United States to your state
legislators. You can also find
information about important bills
Congress is considering that may
have an impact on children’s health
care. And, as you’ll see next, we give
you the tools you need to contact
your legislators.
5
Write to Your Legislators
Now that you know who your
legislators are, let’s talk about
the best way to contact them. As
a constituent, you carry a lot of
power with your elected officials—
remember, they work on your
behalf. Simply visit our Legislative
Action Center at www.congressweb
.com/speaknowforkids. There you’ll
find pre-written letters to your
legislators that you can personalize
with your thoughts on why
quality health care for all kids is
so important. Many congressional
staffers say that a personalized
letter carries more weight than a
pre-written letter since it illustrates
that the constituent took the time
to tell their story.
While our pre-written letters will
cover most of the basics, here
are some more tips on writing
to legislators:
	 • Begin by introducing yourself
		 as a constituent. Many
		 legislators won’t accept letters
		 or emails from folks outside
		 their district.
	 • Make “the ask.” Within the
		 first paragraph, specify what
		 action you want taken and,
		 if possible, refer to bills by
		 name or number. Legislators
		 can’t know what you want
		 them to do unless you tell them.
	 • Briefly explain the issue you
		 are referencing—this is your
		 chance to educate legislators on
		 how the policy will affect you.
	 • Be clear, but be respectful in
		 your request.
	 • Make it personal. Briefly
		 share your story about how
		 your legislator’s actions
		 will directly impact you, your
		 community, your job, and
		 your family.
6
• Ask for your legislator’s view
		 on the issue. If they agree
		 with your opinion, you can
		 hold them accountable if they
		 don’t vote your way.
	 • Include your name, home
		 address, email address and
		 phone number. It is important
		 to include your home address
		 so you can be identified as
		 a constituent.
	 • Include a link to your CarePage
		 or blog if you have one.
	 • Keep the length of your email
		 to three or four paragraphs
		 and less than 500 words.
Elected officials respond
to constituent outreach
in a number of different
ways. In-person visits
carry the most weight with
legislators, but of course
it’s not always convenient
to visit your legislator
in Washington, or even
while they’re at home
in their district offices.
Luckily, more than 90
percent of congressional
staffers say that written
communication from a
constituent can influence
their bosses.
7
“Political action is the
highest responsibility
of a citizen.” John F. Kennedy
8
9
When to Write
There is no wrong time to
communicate your concerns to your
legislators, but there are key times
in the legislative process where
legislators may be most receptive
to your point of view (these are
indicated by TAKE ACTION on the chart
on pages 4 and 5):
	 • After a bill is introduced and
		 assigned a number it is sent
		 to the appropriate committee.
		 This is a great opportunity
		 to educate your elected
		 official on the impact that
		 the new legislation may have
		 on children’s health.
		 Committees are always
		 seeking input from the public,
		 and sending an email can
		 provide just the right amount
		 of detail and personal touch.
	 • Just before a committee takes
		 action or votes is another
		 ideal time to reach out to
		 your legislators with a clear
		 request to vote for or against
		 proposed legislation.
	 • When a legislator acts
		 favorably on your request,
		 follow up with a thank you
		 note regardless of whether
		 or not the end result is
		 consistent with your position.
		 The thank you note
		 strengthens the constituent-
		 legislator relationship. It also
		 helps reinforce that
		 constituents pay attention
		 and are engaged in the entire
		 legislative process.
	 • Congress still accepts “snail
		 mail,” and many legislators
		 say they appreciate hand-
		 written letters. Keep in mind
		 that because of security
		 restrictions, it can take more
		 than three weeks for your
		 letter to arrive.
Interact with Legislators on
Facebook and Twitter
Social media has radically enhanced the way constituents communicate
with legislators. Legislators continue to use traditional means such as their
own websites and email, but many have shifted much of their energy and
attention to Twitter, Facebook, YouTube and blogs to be more accessible
to those they represent. Additionally, electronic communications are fast,
inexpensive and they allow legislators to respond much more quickly.
Finally, social media breaks down geographic barriers to communicating
with Congress. Normally, legislators only want to hear from
constituents—the people who live in their district, vote for them and keep
them in office. Social media, of course, is not tethered by geography—you
can communicate through Twitter and Facebook with a legislator in a
position of leadership, or who is a member of a key committee, even if they
aren’t your legislator. (You can learn more about congressional committees
and jurisdiction on page 22.)
10
Twitter
Twitter has become a favorite tool of legislators to release press
statements, photos, and short news items. Every senator and more than
95 percent of representatives use Twitter.
There is an easy way to find your legislator’s Twitter handle:
	 • Visit www.govsm.com, a Wiki page devoted to legislators’ social 	
		 media usage. You’ll need to know the names of your legislators
		 in advance, and you’ll see the full range of social media platforms
		 they are currently using.
To reach your legislator simply begin your tweet with their Twitter handle
(user handles begin with an @ sign). You’ll also want to include relevant
hashtags, (which begin with a # sign). Hashtags are a way of branding your
tweet and making it easier to track conversations. For example:
	 @SenateMajLdr Please support children’s health by funding #Medicaid
	 and #CHGME.
Other common hashtags used by the Children’s Hospital Association
include:
	#speaknowforkids
	#ChildHealth
#ACEKidsAct
#CHIPWorks
11
Facebook
More than 90 percent of legislators in Congress
have a Facebook page and use it for sharing
information with constituents. Legislators
frequently use Facebook to communicate
their opinion on pending issues or legislation.
However, they also use Facebook to talk about
what is going on in their states or districts,
including events they’re holding or attending.
This is a good way to find out where you can
meet your legislators in-person.
In addition, legislators read comments and
posts on their Facebook pages. In a 2010 study
by the Congressional Management Foundation,
nearly two-thirds of U.S. House and Senate
social media managers said Facebook is an
important tool for understanding constituent
views and opinions. Keep track of what they
post and add your thoughts; these are great
ways to make your voice heard.
12
A survey conducted
by the Congressional
Management Foundation
found that a majority of
congressional staff felt
that email and the Internet
have made senators and
representatives more
accountable to their
constituents.
13
The Congressional
Research Service found
that legislators sent more
than 30,000 tweets and
posted more than 16,000
times on Facebook in just
two months.
Make Timely and Effective Phone Calls
The window of opportunity to
influence legislation when Congress
or a state legislature is in-session
can be very small. A personal
phone call to your legislator’s office
is always an effective and timely
advocacy tool.
When calling your legislator’s
office:
	 • Provide your name and
		 address so you are recognized
		 as a constituent.
	 • Identify the bill or issue you
		 are calling about by its name
		 and/or number if you have it.
	 • Ask to speak to the staff
		 member who handles health
		 issues; the health staffer will
		 relay your comments and
		 concerns to the legislator.
	 • Briefly state your position and
		 how you would like your
		 legislator to vote.
	 • Ask for your legislator’s
		 stance on the bill or issue and
		 for a commitment to vote for
		 your position. Remember to
		 make “the ask.”
	 • Don’t guess at answers to
		 questions. If the elected
		 official’s staff requests
		 information you don’t have,
		 tell them you will gladly
		 follow up with requested
		information.
	 • Follow-up with a note
		 restating your position and
		 thanking the legislator or staff
		 member for his or her time.
It is important to keep your
phone calls quick and simple since
most staff multitask during calls
to keep up with the volume of
communication from constituents.
For the most effective phone
conversation, follow this example:
14
Communication from
constituents is crucial.
A well-timed phone call
can have a big impact on
influencing legislation.
15
“Hello, this is Tiffany
Smith at 123 Main Street
in Hartford, Connecticut.
As your constituent, I am
calling to let you know
that I fully support H.R.
1234, which would expand
health care coverage for
children. I urge you to
vote yes. What is your
current position on the
bill? [Listen to response
and make the ask for a
commitment to vote for
your position.] Thank you.”
16
Visit Your Legislators
Visiting your legislator is by far the
most effective means of conveying
your message. A face-to-face visit
connects the issues you care about
to the people your legislator was
elected to serve.
In a recent survey, 77 percent of
congressional staffers said that an
in-person visit carried the most
weight in terms of delivering a
constituent message. Visiting your
legislators may sound intimidating,
but remember: their offices are
open to the public; they are elected
to work for you; and they need
to hear your story and opinions
in order to vote on issues that
will benefit the communities that
they serve. Your visit helps your
legislators to do their job well.
Visits can be conducted in your
home state or congressional
district, as well as in Washington,
D.C. Building a positive face-to-
face relationship requires you
to plan ahead. If you would like
to visit your legislator, you may
want to consider contacting your
children’s hospital government
relations department to ensure
that your efforts and messages
are coordinated.
Please note that legislators often
can’t control their calendars and
frequently ask their staff to handle
meetings with constituents. A
meeting with the appropriate staff
member is often just as effective as
a meeting with the legislator.
17
In advance of your visit:
	 • Make an appointment in
		 advance. Expect to get about
		 15 minutes with your
		 legislator or their staff—		
		 sometimes less. Be prepared
		 to deliver your message in as
		 little as 90 seconds.
	 • Be on time (or early).
	 • Be prepared by knowing
		 where your legislator stands
		 on the issue by doing some
		 research on his or her
		 website. You can also contact
		 the Children’s Hospital
		 Association to get your
		 legislators’ voting history.
	 • The Children’s Hospital
		 Association frequently posts
		 fact sheets on its website;
		 download the relevant fact
		 sheets to share with your
		 legislators and their staff.
	 • Dress in business attire.
During your visit:
	 • Summarize who you are
		 and why you are meeting with
		 the legislator within the first
		 90 seconds of the meeting by
		 doing the following:
		 • Identify who you are and
			 your relationship to your
			 children’s hospital (if any).
		 • Identify yourself as
			a constituent.
		 • Highlight the issue you
			 came to discuss.
		 • Be specific about the action
			 you want taken.
	 • Use this meeting to explain
		 how the bill or issue will
		 affect you personally, as well
		 as other voters in your
		 district or state.
	 • Make “the ask.” You can’t
		 know if the legislator will
		 support (or oppose) a given
		 piece of legislation if you
		 don’t ask.
	 • Stick to the issue and avoid
		 political attacks on your
		 legislator or staff (or even
		 his opposition—keep the
		 visit positive).
	 • Share a personal story to
		 provide context for why you
		 care about the issue.
	 • Before leaving, ask how
		 you can be of help on this
18
issue. Position yourself as
		 a resource.
	 • Give your legislator or staff
		 the fact sheet on your issue
		 and briefly highlight
		 your points.
	 • Thank the legislator or staffer
		 for their time.
An example of a good
introduction/90-second speech:
“Hi, I’m John Smith.
I am a constituent of
yours and I am here
to talk with you about
health care coverage for
children. I am asking
you to vote yes on H.R.
1234, which reauthorizes
the Children’s Health
Insurance Program. CHIP
provides health insurance
to children who do not
qualify for Medicaid and
can’t afford to purchase
private insurance. Here’s
a sheet with some more
information. My phone
number and email
address are included if
you have any questions.
Thank you for your time
today.”
After your visit:
Follow up with a thank you
letter or email and include any
information that was requested
by the legislator or staff. This will
strengthen your relationship and
leave a positive impression with
the legislator’s office.
19
Common Policy Priorities for Children’s Health
Medicaid
Medicaid is a federal-state program
that covers more than 40 percent
of all children in the U.S. While a
quarter of the population, children
are roughly half of all Medicaid
recipients. Children’s hospitals
provide about 45 percent of the
hospital care required by children
covered by Medicaid and almost
all the hospital care for Medicaid-
covered children with complex
medical conditions.
Medicaid, on average, pays for
56 percent of all inpatient days
of care provided by independent
children’s hospitals. However,
Medicaid payments for services are
inadequate, resulting in barriers
to care for children covered by
Medicaid. On average, Medicaid
pays only 78 percent of the cost of
care, even after hospitals account
for supplemental payments, such
as disproportionate share hospital
payments, that provide financial
help to hospitals that treat a
large number of Medicaid and
uninsured patients.
Get the facts on Medicaid in your
state by visiting http://bit.ly/
MedicaidFactSheets.
ACE Kids Act
The Advancing Care for Exceptional
Kids Act of 2015 (ACE Kids Act)
is a proposal to improve how
care is delivered to America’s
children with complex medical
conditions on Medicaid. Once
enacted into law the ACE Kids Act
will improve coordination of care
for children, address problems
with fragmented care across state
lines, and gather national data
on complex conditions to help
researchers improve treatments for
rare diseases. The ACE Kids Act is
estimated to save $13 billion over
its first 10 years.
20
CHIP
The Children’s Health Insurance
Program (CHIP) provides health
insurance to children who do
not qualify for Medicaid and do
not have access to private health
insurance. It provides federal
matching funds for states that put
up funds of their own to expand
Medicaid to uninsured children
of low-income families, create
alternative insurance programs for
them or both.
Started in 1997, CHIP has
maintained a proven track record
providing child-specific care,
including developmentally-
appropriate benefits, a full range
of providers in network, and
affordable cost-sharing protections.
In April 2015, Congress passed
the Medicare Access and CHIP
Reauthorization Act (H.R. 2), which
extended CHIP funding through
September 2017. Before that date,
Congress will revisit CHIP funding,
providing another opportunity for
children’s hospitals and Congress
to work together to ensure public
policies strengthen children’s
health care coverage.
Children’s Hospitals Graduate
Medical Education or CHGME
Children’s Hospitals Graduate
Medical Education (CHGME)
program was created in 1999 to
provide children’s hospitals with
federal graduate medical education
(GME) support comparable to the
GME support the federal government
provides to adult teaching hospitals
through Medicare. CHGME supports
the training of 6,000 residents at
nearly 60 independent children’s
teaching hospitals. Hospitals
receiving CHGME funds train more
than a third of all pediatricians and
nearly half of all pediatric specialists.
TRICARE
TRICARE is the Department of
Defense military health system
for active duty military, guard
and reservists, and their families,
serving more than 9.6 million
beneficiaries, including almost 2
million children. TRICARE is the
only health insurance plan for
children that is consistent in policy
and payment across all 50 states.
The Children’s Hospital Association
TRICARE Project seeks to optimize
the military health system’s
understanding of children’s health
care needs, and the ability of
children’s hospitals to best serve
military children.
21
Additional Resources for Children’s Hospital Advocates
to Stay Informed
The Children’s Hospital Association
website provides information on
policies affecting children’s health
and how you can get involved as a
champion for children’s health
www.childrenshospitals.org.
Check out Speak Now for Kids’
storybank and learn how you
can get your friends and family
involved in advocacy efforts at
www.speaknowforkids.org.
Take action at our Legislative Action
Center at www.congressweb.com/
speaknowforkids.
Relevant Congressional
Committees
House Energy and Commerce
Committee
www.energycommerce.house.gov
Maintains principal responsibility
for legislative oversight of drug
safety, Medicaid, and the Children’s
Health Insurance Program (CHIP).
Senate Finance Committee
www.finance.senate.gov
Has jurisdiction over Medicaid.
Senate Health, Education, Labor
and Pensions (HELP) Committee
www.help.senate.gov
Handles most issues relating to
public health, medical research, and
individuals with disabilities.
Other resources:
U.S. House of Representatives:
www.house.gov
U.S. Senate:
www.senate.gov
22
23
Glossary of Terms
Glossary adapted from “Congress
at Your Fingertips,” copyright
2013, CQ-Roll Call, Inc. Publishing:
Newington, VA.
Act — Legislation that has passed
both Houses of Congress and
becomes law
Amendment — A change in
a bill or document by adding,
substituting or omitting portions
of it
Appropriations Bill — Legislation
that provides funds for
authorized programs
Authorization Bill — Legislation
establishing a program and setting
funding limits
Bill — Legislation introduced in
either the House or Senate
Budget Resolution — Concurrent
resolution that establishes
spending and revenue targets for
the upcoming fiscal year
Chamber — Place where the entire
House or Senate meets to conduct
business; also, the House of
Representatives or the Senate itself
Cloture — Method of limiting debate
or ending a filibuster in the Senate.
At least 60 senators must vote in
favor before cloture can be invoked
Committee — A group of
legislators assigned to give special
consideration to certain bills
Conference Committee —
Meeting between representatives
and senators to resolve differences
when two versions of a similar bill
pass the House and Senate
Continuing Resolution — A joint
resolution to appropriate funds,
24
usually for a short period of time
and often in the absence of a
regular appropriations bill
Cosponsor — Legislator who joins
in sponsoring legislation but who
is not the principal sponsor or the
one who introduced the legislation
Filibuster — Tactic used in
the Senate whereby a minority
intentionally delays a vote
Lame Duck — Senator or
representative (or the president)
who has not been reelected but
whose term has not yet expired
Lobbying — The process of
attempting to influence the
passage, defeat or content of
legislation by individuals or a group
other than legislators
Majority Leader — Chief
spokesman and strategist for the
majority party, elected by members
of the majority party. In the House,
the majority leader is often the
second-ranking lawmaker, behind
the Speaker of the House.
Minority Leader — Chief
spokesman and strategist for the
minority party, elected by members
of the minority party
Omnibus Bill — Bill regarding a
single subject that combines many
different aspects of that subject
Quorum — The number of
senators or representatives who
must be present before a legislative
body can conduct official business
Ranking Members — The
members of the majority and
minority party on a committee next
in seniority after the chairman
Sequestration — The permanent
cancellation of budgetary resources
by a uniform percentage, applied
to all programs, projects, and
activities within a budget account
Speaker — The presiding officer of
the House, elected by members of
the House
Sponsor — The representative or
senator who introduces a measure
25
Be a Champion for
Children’s Health
600 13th Street, NW, Suite 500
Washington, DC 20005
p| 202-753-5500
f | 202-347-5147
6803 West 64th Street
Overland Park, KS 66202
p| 913-262-1436
f | 913-262-1575
WWW.CHILDRENSHOSPITALS.ORG
www.facebook.com/speaknowforkids
@speaknowforkids
WWW.SPEAKNOWFORKIDS.ORG

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Grassroots_Tool_Kit_How_to_be_a_champion_for_childrens_health

  • 1. Be a Champion for Children’s Health
  • 2. When advocates dedicated to children’s health and well-being raise their voices, great things can happen.
  • 3. 1 Join children’s hospitals and advocates from across the country as we work together to improve access to quality care for all children. With your help, we can ensure our elected officials put forth policies that support children’s unique health care needs. Representing more than 200 hospitals, the Children’s Hospital Association is the voice of children’s hospitals nationally. The association works hard to promote policies that enable hospitals to better serve kids and is the premier resource for pediatric data and analytics. TOGETHER WE: • Halted Medicaid cuts that would harm children’s access to health care • Secured funding to train more than 6,000 pediatric specialists at nearly 60 independent children’s teaching hospitals • Worked with Congress to introduce the Advancing Care for Exceptional Kids Act of 2015 (ACE Kids Act) to improve pediatric care for children with complex medical conditions But the fight for quality health care for all kids is far from over. We need to ensure all children have access to the right care, in the right place, at the right time. It’s a goal that needs your help to become a reality.
  • 4. 2 It’s Easy to be a Champion for Children’s Health Patients served by children’s hospitals depend on champions like you to be their advocates and to support policies that improve the well-being of all children. Whether you’re a patient, parent or a staff member just concerned about our kids’ health, you can raise your voice to influence local, state, and federal policies. We need to educate our elected officials on how their decisions impact children’s health. Speak Now for Kids is an online advocacy network designed to raise awareness among legislators about how public policies impact children’s health care. Established by the Children’s Hospital Association, Speak Now for Kids offers resources for people like you to support your advocacy efforts. Follow these simple recommendations to increase your effectiveness as a champion for children’s health: • Find your legislators. • Write to your legislators. • Promote your positions through social media. • Make timely and effective phone calls. • Meet your legislators.
  • 5. 3 Contents Learn About the Legislative Process....................... 4 Find your legislators.................................................. 5 Write to Your Legislators........................................... 6 When to write............................................................ 8 Advocate Through Social Media.............................10 Twitter......................................................................11 Facebook..................................................................12 Make Timely and Effective Phone Calls................14 Visit Your Legislators...............................................16 Prepare for your visit...............................................17 The powerful 90-second prepared speech..............18 During your visit......................................................18 After your visit.........................................................19 Resources...................................................................20 Common policy priorities for children’s health.....20 Additional resources................................................22 Glossary of terms....................................................24
  • 6. The Legislative Process As a champion for children’s health you want to be in the know when it comes to understanding the legislative process. Creating and passing legislation is complicated; this chart will help you understand how a bill becomes a law. At every step in this process, you have the power to influence your legislators. Some sit on committees that craft legislation before it reaches the full House or Senate. And all of them will ultimately vote on any legislation considered by Congress. There is no bad time to reach out to your legislators, and this guide will show you how. This chart is meant as a general overview – most legislation follows this process. Occasionally, however, a piece of legislation will skip one or even many steps to be passed more quickly. HOUSE SENATE Introduction HR 1 Introduced in House Introduction S2 Introduced in Senate TAKE ACTION Committee Action Referred to House Committee TAKE ACTION Committee Action Referred to Senate Committee Referred to Subcommittee Referred to Subcommittee Reported by Full Committee Reported by Full Committee Rules Committee Action TAKE ACTION Floor Action House debates, vote on passage TAKE ACTION Floor Action Senate debates, vote on passage House SenateConference Action President Signs or vetoes 4
  • 7. Find Your Legislators There are multiple resources available to find your elected officials at each level of government. For starters, visit www.speaknowforkids.org and click ACT NOW. You’ll be given contact information on all of your lawmakers, from the president of the United States to your state legislators. You can also find information about important bills Congress is considering that may have an impact on children’s health care. And, as you’ll see next, we give you the tools you need to contact your legislators. 5
  • 8. Write to Your Legislators Now that you know who your legislators are, let’s talk about the best way to contact them. As a constituent, you carry a lot of power with your elected officials— remember, they work on your behalf. Simply visit our Legislative Action Center at www.congressweb .com/speaknowforkids. There you’ll find pre-written letters to your legislators that you can personalize with your thoughts on why quality health care for all kids is so important. Many congressional staffers say that a personalized letter carries more weight than a pre-written letter since it illustrates that the constituent took the time to tell their story. While our pre-written letters will cover most of the basics, here are some more tips on writing to legislators: • Begin by introducing yourself as a constituent. Many legislators won’t accept letters or emails from folks outside their district. • Make “the ask.” Within the first paragraph, specify what action you want taken and, if possible, refer to bills by name or number. Legislators can’t know what you want them to do unless you tell them. • Briefly explain the issue you are referencing—this is your chance to educate legislators on how the policy will affect you. • Be clear, but be respectful in your request. • Make it personal. Briefly share your story about how your legislator’s actions will directly impact you, your community, your job, and your family. 6
  • 9. • Ask for your legislator’s view on the issue. If they agree with your opinion, you can hold them accountable if they don’t vote your way. • Include your name, home address, email address and phone number. It is important to include your home address so you can be identified as a constituent. • Include a link to your CarePage or blog if you have one. • Keep the length of your email to three or four paragraphs and less than 500 words. Elected officials respond to constituent outreach in a number of different ways. In-person visits carry the most weight with legislators, but of course it’s not always convenient to visit your legislator in Washington, or even while they’re at home in their district offices. Luckily, more than 90 percent of congressional staffers say that written communication from a constituent can influence their bosses. 7
  • 10. “Political action is the highest responsibility of a citizen.” John F. Kennedy 8
  • 11. 9 When to Write There is no wrong time to communicate your concerns to your legislators, but there are key times in the legislative process where legislators may be most receptive to your point of view (these are indicated by TAKE ACTION on the chart on pages 4 and 5): • After a bill is introduced and assigned a number it is sent to the appropriate committee. This is a great opportunity to educate your elected official on the impact that the new legislation may have on children’s health. Committees are always seeking input from the public, and sending an email can provide just the right amount of detail and personal touch. • Just before a committee takes action or votes is another ideal time to reach out to your legislators with a clear request to vote for or against proposed legislation. • When a legislator acts favorably on your request, follow up with a thank you note regardless of whether or not the end result is consistent with your position. The thank you note strengthens the constituent- legislator relationship. It also helps reinforce that constituents pay attention and are engaged in the entire legislative process. • Congress still accepts “snail mail,” and many legislators say they appreciate hand- written letters. Keep in mind that because of security restrictions, it can take more than three weeks for your letter to arrive.
  • 12. Interact with Legislators on Facebook and Twitter Social media has radically enhanced the way constituents communicate with legislators. Legislators continue to use traditional means such as their own websites and email, but many have shifted much of their energy and attention to Twitter, Facebook, YouTube and blogs to be more accessible to those they represent. Additionally, electronic communications are fast, inexpensive and they allow legislators to respond much more quickly. Finally, social media breaks down geographic barriers to communicating with Congress. Normally, legislators only want to hear from constituents—the people who live in their district, vote for them and keep them in office. Social media, of course, is not tethered by geography—you can communicate through Twitter and Facebook with a legislator in a position of leadership, or who is a member of a key committee, even if they aren’t your legislator. (You can learn more about congressional committees and jurisdiction on page 22.) 10
  • 13. Twitter Twitter has become a favorite tool of legislators to release press statements, photos, and short news items. Every senator and more than 95 percent of representatives use Twitter. There is an easy way to find your legislator’s Twitter handle: • Visit www.govsm.com, a Wiki page devoted to legislators’ social media usage. You’ll need to know the names of your legislators in advance, and you’ll see the full range of social media platforms they are currently using. To reach your legislator simply begin your tweet with their Twitter handle (user handles begin with an @ sign). You’ll also want to include relevant hashtags, (which begin with a # sign). Hashtags are a way of branding your tweet and making it easier to track conversations. For example: @SenateMajLdr Please support children’s health by funding #Medicaid and #CHGME. Other common hashtags used by the Children’s Hospital Association include: #speaknowforkids #ChildHealth #ACEKidsAct #CHIPWorks 11
  • 14. Facebook More than 90 percent of legislators in Congress have a Facebook page and use it for sharing information with constituents. Legislators frequently use Facebook to communicate their opinion on pending issues or legislation. However, they also use Facebook to talk about what is going on in their states or districts, including events they’re holding or attending. This is a good way to find out where you can meet your legislators in-person. In addition, legislators read comments and posts on their Facebook pages. In a 2010 study by the Congressional Management Foundation, nearly two-thirds of U.S. House and Senate social media managers said Facebook is an important tool for understanding constituent views and opinions. Keep track of what they post and add your thoughts; these are great ways to make your voice heard. 12 A survey conducted by the Congressional Management Foundation found that a majority of congressional staff felt that email and the Internet have made senators and representatives more accountable to their constituents.
  • 15. 13 The Congressional Research Service found that legislators sent more than 30,000 tweets and posted more than 16,000 times on Facebook in just two months.
  • 16. Make Timely and Effective Phone Calls The window of opportunity to influence legislation when Congress or a state legislature is in-session can be very small. A personal phone call to your legislator’s office is always an effective and timely advocacy tool. When calling your legislator’s office: • Provide your name and address so you are recognized as a constituent. • Identify the bill or issue you are calling about by its name and/or number if you have it. • Ask to speak to the staff member who handles health issues; the health staffer will relay your comments and concerns to the legislator. • Briefly state your position and how you would like your legislator to vote. • Ask for your legislator’s stance on the bill or issue and for a commitment to vote for your position. Remember to make “the ask.” • Don’t guess at answers to questions. If the elected official’s staff requests information you don’t have, tell them you will gladly follow up with requested information. • Follow-up with a note restating your position and thanking the legislator or staff member for his or her time. It is important to keep your phone calls quick and simple since most staff multitask during calls to keep up with the volume of communication from constituents. For the most effective phone conversation, follow this example: 14
  • 17. Communication from constituents is crucial. A well-timed phone call can have a big impact on influencing legislation. 15 “Hello, this is Tiffany Smith at 123 Main Street in Hartford, Connecticut. As your constituent, I am calling to let you know that I fully support H.R. 1234, which would expand health care coverage for children. I urge you to vote yes. What is your current position on the bill? [Listen to response and make the ask for a commitment to vote for your position.] Thank you.”
  • 18. 16
  • 19. Visit Your Legislators Visiting your legislator is by far the most effective means of conveying your message. A face-to-face visit connects the issues you care about to the people your legislator was elected to serve. In a recent survey, 77 percent of congressional staffers said that an in-person visit carried the most weight in terms of delivering a constituent message. Visiting your legislators may sound intimidating, but remember: their offices are open to the public; they are elected to work for you; and they need to hear your story and opinions in order to vote on issues that will benefit the communities that they serve. Your visit helps your legislators to do their job well. Visits can be conducted in your home state or congressional district, as well as in Washington, D.C. Building a positive face-to- face relationship requires you to plan ahead. If you would like to visit your legislator, you may want to consider contacting your children’s hospital government relations department to ensure that your efforts and messages are coordinated. Please note that legislators often can’t control their calendars and frequently ask their staff to handle meetings with constituents. A meeting with the appropriate staff member is often just as effective as a meeting with the legislator. 17
  • 20. In advance of your visit: • Make an appointment in advance. Expect to get about 15 minutes with your legislator or their staff— sometimes less. Be prepared to deliver your message in as little as 90 seconds. • Be on time (or early). • Be prepared by knowing where your legislator stands on the issue by doing some research on his or her website. You can also contact the Children’s Hospital Association to get your legislators’ voting history. • The Children’s Hospital Association frequently posts fact sheets on its website; download the relevant fact sheets to share with your legislators and their staff. • Dress in business attire. During your visit: • Summarize who you are and why you are meeting with the legislator within the first 90 seconds of the meeting by doing the following: • Identify who you are and your relationship to your children’s hospital (if any). • Identify yourself as a constituent. • Highlight the issue you came to discuss. • Be specific about the action you want taken. • Use this meeting to explain how the bill or issue will affect you personally, as well as other voters in your district or state. • Make “the ask.” You can’t know if the legislator will support (or oppose) a given piece of legislation if you don’t ask. • Stick to the issue and avoid political attacks on your legislator or staff (or even his opposition—keep the visit positive). • Share a personal story to provide context for why you care about the issue. • Before leaving, ask how you can be of help on this 18
  • 21. issue. Position yourself as a resource. • Give your legislator or staff the fact sheet on your issue and briefly highlight your points. • Thank the legislator or staffer for their time. An example of a good introduction/90-second speech: “Hi, I’m John Smith. I am a constituent of yours and I am here to talk with you about health care coverage for children. I am asking you to vote yes on H.R. 1234, which reauthorizes the Children’s Health Insurance Program. CHIP provides health insurance to children who do not qualify for Medicaid and can’t afford to purchase private insurance. Here’s a sheet with some more information. My phone number and email address are included if you have any questions. Thank you for your time today.” After your visit: Follow up with a thank you letter or email and include any information that was requested by the legislator or staff. This will strengthen your relationship and leave a positive impression with the legislator’s office. 19
  • 22. Common Policy Priorities for Children’s Health Medicaid Medicaid is a federal-state program that covers more than 40 percent of all children in the U.S. While a quarter of the population, children are roughly half of all Medicaid recipients. Children’s hospitals provide about 45 percent of the hospital care required by children covered by Medicaid and almost all the hospital care for Medicaid- covered children with complex medical conditions. Medicaid, on average, pays for 56 percent of all inpatient days of care provided by independent children’s hospitals. However, Medicaid payments for services are inadequate, resulting in barriers to care for children covered by Medicaid. On average, Medicaid pays only 78 percent of the cost of care, even after hospitals account for supplemental payments, such as disproportionate share hospital payments, that provide financial help to hospitals that treat a large number of Medicaid and uninsured patients. Get the facts on Medicaid in your state by visiting http://bit.ly/ MedicaidFactSheets. ACE Kids Act The Advancing Care for Exceptional Kids Act of 2015 (ACE Kids Act) is a proposal to improve how care is delivered to America’s children with complex medical conditions on Medicaid. Once enacted into law the ACE Kids Act will improve coordination of care for children, address problems with fragmented care across state lines, and gather national data on complex conditions to help researchers improve treatments for rare diseases. The ACE Kids Act is estimated to save $13 billion over its first 10 years. 20
  • 23. CHIP The Children’s Health Insurance Program (CHIP) provides health insurance to children who do not qualify for Medicaid and do not have access to private health insurance. It provides federal matching funds for states that put up funds of their own to expand Medicaid to uninsured children of low-income families, create alternative insurance programs for them or both. Started in 1997, CHIP has maintained a proven track record providing child-specific care, including developmentally- appropriate benefits, a full range of providers in network, and affordable cost-sharing protections. In April 2015, Congress passed the Medicare Access and CHIP Reauthorization Act (H.R. 2), which extended CHIP funding through September 2017. Before that date, Congress will revisit CHIP funding, providing another opportunity for children’s hospitals and Congress to work together to ensure public policies strengthen children’s health care coverage. Children’s Hospitals Graduate Medical Education or CHGME Children’s Hospitals Graduate Medical Education (CHGME) program was created in 1999 to provide children’s hospitals with federal graduate medical education (GME) support comparable to the GME support the federal government provides to adult teaching hospitals through Medicare. CHGME supports the training of 6,000 residents at nearly 60 independent children’s teaching hospitals. Hospitals receiving CHGME funds train more than a third of all pediatricians and nearly half of all pediatric specialists. TRICARE TRICARE is the Department of Defense military health system for active duty military, guard and reservists, and their families, serving more than 9.6 million beneficiaries, including almost 2 million children. TRICARE is the only health insurance plan for children that is consistent in policy and payment across all 50 states. The Children’s Hospital Association TRICARE Project seeks to optimize the military health system’s understanding of children’s health care needs, and the ability of children’s hospitals to best serve military children. 21
  • 24. Additional Resources for Children’s Hospital Advocates to Stay Informed The Children’s Hospital Association website provides information on policies affecting children’s health and how you can get involved as a champion for children’s health www.childrenshospitals.org. Check out Speak Now for Kids’ storybank and learn how you can get your friends and family involved in advocacy efforts at www.speaknowforkids.org. Take action at our Legislative Action Center at www.congressweb.com/ speaknowforkids. Relevant Congressional Committees House Energy and Commerce Committee www.energycommerce.house.gov Maintains principal responsibility for legislative oversight of drug safety, Medicaid, and the Children’s Health Insurance Program (CHIP). Senate Finance Committee www.finance.senate.gov Has jurisdiction over Medicaid. Senate Health, Education, Labor and Pensions (HELP) Committee www.help.senate.gov Handles most issues relating to public health, medical research, and individuals with disabilities. Other resources: U.S. House of Representatives: www.house.gov U.S. Senate: www.senate.gov 22
  • 25. 23
  • 26. Glossary of Terms Glossary adapted from “Congress at Your Fingertips,” copyright 2013, CQ-Roll Call, Inc. Publishing: Newington, VA. Act — Legislation that has passed both Houses of Congress and becomes law Amendment — A change in a bill or document by adding, substituting or omitting portions of it Appropriations Bill — Legislation that provides funds for authorized programs Authorization Bill — Legislation establishing a program and setting funding limits Bill — Legislation introduced in either the House or Senate Budget Resolution — Concurrent resolution that establishes spending and revenue targets for the upcoming fiscal year Chamber — Place where the entire House or Senate meets to conduct business; also, the House of Representatives or the Senate itself Cloture — Method of limiting debate or ending a filibuster in the Senate. At least 60 senators must vote in favor before cloture can be invoked Committee — A group of legislators assigned to give special consideration to certain bills Conference Committee — Meeting between representatives and senators to resolve differences when two versions of a similar bill pass the House and Senate Continuing Resolution — A joint resolution to appropriate funds, 24
  • 27. usually for a short period of time and often in the absence of a regular appropriations bill Cosponsor — Legislator who joins in sponsoring legislation but who is not the principal sponsor or the one who introduced the legislation Filibuster — Tactic used in the Senate whereby a minority intentionally delays a vote Lame Duck — Senator or representative (or the president) who has not been reelected but whose term has not yet expired Lobbying — The process of attempting to influence the passage, defeat or content of legislation by individuals or a group other than legislators Majority Leader — Chief spokesman and strategist for the majority party, elected by members of the majority party. In the House, the majority leader is often the second-ranking lawmaker, behind the Speaker of the House. Minority Leader — Chief spokesman and strategist for the minority party, elected by members of the minority party Omnibus Bill — Bill regarding a single subject that combines many different aspects of that subject Quorum — The number of senators or representatives who must be present before a legislative body can conduct official business Ranking Members — The members of the majority and minority party on a committee next in seniority after the chairman Sequestration — The permanent cancellation of budgetary resources by a uniform percentage, applied to all programs, projects, and activities within a budget account Speaker — The presiding officer of the House, elected by members of the House Sponsor — The representative or senator who introduces a measure 25
  • 28. Be a Champion for Children’s Health 600 13th Street, NW, Suite 500 Washington, DC 20005 p| 202-753-5500 f | 202-347-5147 6803 West 64th Street Overland Park, KS 66202 p| 913-262-1436 f | 913-262-1575 WWW.CHILDRENSHOSPITALS.ORG www.facebook.com/speaknowforkids @speaknowforkids WWW.SPEAKNOWFORKIDS.ORG