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SNEHA	
  (Society	
  for	
  Nutrition,	
  Education	
  and	
  Health	
  Action)	
  	
  I	
  	
  www.snehamumbai.org	
  
	
  
	
  
	
  
	
  
	
   Page	
  1	
  
	
  
Frequently	
  Asked	
  Questions	
  about	
  Palliative	
  Care	
  
	
  
	
  
What	
  is	
  Palliative	
  Care?	
  
Palliative	
  care	
  is	
  specialized	
  medical	
  care	
  that	
  focuses	
  on	
  providing	
  relief	
  from	
  the	
  symptoms	
  and	
  
stress	
  of	
  a	
  serious	
  illness.	
  It	
  is	
  provided	
  by	
  a	
  specially-­‐trained	
  team	
  of	
  doctors,	
  nurses	
  and	
  other	
  
specialists	
  who	
  work	
  together	
  with	
  your	
  other	
  doctors	
  to	
  provide	
  an	
  extra	
  layer	
  of	
  support.	
  The	
  goal	
  
is	
  to	
  improve	
  your	
  quality	
  of	
  life.	
  
To	
  do	
  this,	
  the	
  palliative	
  care	
  team	
  will:	
  
•   Relieve	
  your	
  symptoms	
  and	
  distress	
  
•   Help	
  you	
  better	
  understand	
  your	
  disease	
  and	
  diagnosis	
  
•   Help	
  clarify	
  your	
  treatment	
  goals	
  and	
  options	
  
•   Understand	
  and	
  support	
  your	
  ability	
  to	
  cope	
  with	
  your	
  illness	
  
•   Assist	
  you	
  with	
  making	
  medical	
  decisions	
  
•   Coordinate	
  with	
  your	
  other	
  doctors	
  
	
  
Which	
  illnesses	
  need	
  palliative	
  care?	
  
All	
  serious	
  conditions	
  which	
  can	
  be	
  life-­‐limiting	
  or	
  life-­‐threatening,	
  will	
  benefit	
  from	
  palliative	
  care.	
  
This	
   includes	
   cancer,	
   kidney	
   failure,	
   chronic	
   lung	
   disease,	
   heart	
   disease	
   and	
   liver	
   failure.	
   It	
   also	
  
includes	
   illnesses	
   like	
   stroke,	
   Parkinson’s	
   disease,	
   Alzheimer’s	
   disease	
   and	
   other	
   dementias.	
  
Palliative	
  care	
  teams	
  also	
  take	
  care	
  of	
  bedridden	
  patients.	
  This	
  list	
  is	
  not	
  exclusive,	
  however,	
  and	
  if	
  
you	
  feel	
  you	
  have	
  an	
  illness	
  that	
  is	
  affecting	
  your	
  physical	
  and	
  mental	
  health	
  adversely,	
  please	
  reach	
  
out	
  to	
  your	
  healthcare	
  providers.	
  Alternatively,	
  you	
  can	
  also	
  contact	
  a	
  palliative	
  care	
  team	
  close	
  to	
  
you.	
  
	
  
How	
  Can	
  Palliative	
  Care	
  help	
  me	
  or	
  my	
  loved	
  one?	
  
Palliative	
  Care	
  will	
  help	
  improve	
  your	
  quality	
  of	
  life.	
  You	
  will	
  have	
  substantial	
  relief	
  from	
  symptoms	
  
such	
   as	
   pain,	
   shortness	
   of	
   breath,	
   fatigue,	
   constipation,	
   nausea,	
   loss	
   of	
   appetite	
   and	
   difficulty	
  
sleeping.	
   This	
   symptom	
   control	
   will	
   help	
   you	
   carry	
   on	
   with	
   daily	
   life.	
   It	
   can	
   help	
   you	
   get	
   more	
  
control	
  over	
  your	
  illness,	
  mainly	
  through	
  knowledge	
  about	
  your	
  illness.	
  It	
  can	
  help	
  you	
  match	
  your	
  
goals	
  to	
  your	
  treatment	
  choices.	
  
	
  
Can	
  I	
  continue	
  my	
  primary	
  doctor’s	
  treatment	
  along	
  with	
  Palliative	
  Care?	
  
Yes	
  of	
  course!	
  In	
  fact,	
  recent	
  cancer	
  guidelines	
  say	
  that	
  cancer	
  patients	
  should	
  receive	
  palliative	
  
care	
   early,	
   and	
   together	
   with	
   other	
   treatments.	
   Apart	
   from	
   cancer,	
   other	
   serious	
   illnesses	
   also	
  
require	
  integrated	
  care,	
  and	
  palliative	
  care	
  plays	
  a	
  role	
  along	
  with	
  the	
  other	
  physicians	
  and	
  medical	
  
professionals	
  taking	
  care	
  of	
  the	
  patient.	
  
	
  
What	
  issues	
  are	
  addressed	
  in	
  Palliative	
  Care?	
  
The	
  physical	
  and	
  emotional	
  effects	
  of	
  an	
  illness	
  and	
  its	
  treatment	
  may	
  be	
  very	
  different	
  from	
  person	
  
to	
  person.	
  Palliative	
  care	
  can	
  address	
  a	
  broad	
  range	
  of	
  issues,	
  integrating	
  an	
  individual’s	
  specific	
  
SNEHA	
  (Society	
  for	
  Nutrition,	
  Education	
  and	
  Health	
  Action)	
  	
  I	
  	
  www.snehamumbai.org	
  
	
  
	
  
	
  
	
  
	
   Page	
  2	
  
needs	
   into	
   care.	
   A	
   palliative	
   care	
   specialist	
   will	
   take	
   the	
   following	
   issues	
   into	
   account	
   for	
   each	
  
patient:	
  
	
  
•   Physical-­‐	
  Common	
  physical	
  symptoms	
  include	
  pain,	
  fatigue,	
  loss	
  of	
  appetite,	
  nausea,	
  vomiting,	
  
constipation,	
  shortness	
  of	
  breath,	
  and	
  insomnia.	
  
	
  	
  
•   Emotional	
   and	
   coping-­‐	
  Palliative	
  care	
  specialists	
  can	
  provide	
  resources	
  to	
  help	
  patients	
  and	
  
families	
  deal	
  with	
  the	
  emotions	
  that	
  come	
  with	
  diagnosis	
  and	
  treatment	
  of	
  a	
  serious	
  illness.	
  
Depression,	
  anxiety,	
  and	
  fear	
  are	
  only	
  a	
  few	
  of	
  the	
  concerns	
  that	
  can	
  be	
  addressed	
  through	
  
palliative	
  care.	
  Denial,	
  burden	
  and	
  fear	
  (of	
  unknown,	
  pain	
  or	
  death)	
  also	
  gets	
  addressed	
  .	
  
	
  
•   Spiritual-­‐	
  With	
  a	
  diagnosis	
  of	
  serious	
  illness,	
  patients	
  and	
  families	
  often	
  look	
  more	
  deeply	
  for	
  
meaning	
   in	
   their	
   lives.	
   Some	
   find	
   the	
   disease	
   brings	
   them	
   closer	
   to	
   their	
   faith	
   or	
   spiritual	
  
beliefs,	
   whereas	
   others	
   struggle	
   to	
   understand	
   why	
   this	
   happened	
   to	
   them.	
   An	
   expert	
   in	
  
palliative	
  care	
  can	
  help	
  people	
  (or	
  refer	
  you	
  to	
  people	
  of	
  your	
  faith)	
  explore	
  their	
  beliefs	
  and	
  
values	
  so	
  that	
  they	
  can	
  find	
  a	
  sense	
  of	
  peace	
  or	
  reach	
  a	
  point	
  of	
  acceptance	
  that	
  is	
  appropriate	
  
for	
  their	
  situation.	
  
	
  
•   Caregiver	
  needs.	
  Family	
  members	
  are	
  an	
  important	
  part	
  of	
  patient	
  care.	
  Like	
  the	
  patient,	
  they	
  
have	
  changing	
  needs.	
  It’s	
  common	
  for	
  family	
  members	
  to	
  become	
  overwhelmed	
  by	
  the	
  extra	
  
responsibilities	
  placed	
  upon	
  them.	
  Many	
  find	
  it	
  hard	
  to	
  care	
  for	
  a	
  sick	
  relative	
  while	
  trying	
  to	
  
handle	
   other	
   obligations,	
   such	
   as	
   work,	
   household	
   duties,	
   and	
   caring	
   for	
   other	
   family	
  
members.	
  Uncertainty	
  about	
  how	
  to	
  help	
  their	
  loved	
  one	
  with	
  medical	
  situations,	
  inadequate	
  
social	
  support,	
  and	
  emotions	
  such	
  as	
  worry	
  and	
  fear	
  can	
  also	
  add	
  to	
  caregiver	
  stress.	
  	
  
	
  
These	
  challenges	
  can	
  compromise	
  caregivers’	
  own	
  health.	
  Palliative	
  care	
  specialists	
  can	
  help	
  
families	
  and	
  friends	
  cope	
  and	
  give	
  them	
  the	
  support	
  they	
  need.	
  Palliative	
  care	
  provide	
  support	
  
to	
   the	
   family	
   by	
   teaching	
   them	
   bedside	
   techniques,	
   providing	
   information	
   on	
   wound	
   care,	
  
feeding	
   through	
   ryles	
   tube,	
   care	
   of	
   catheter,	
   stoma	
   bag	
   etc.	
   Palliative	
   care	
   provides	
   also	
  
provide	
  psychological	
  help	
  by	
  addressing	
  issues	
  like	
  burnout,	
  guilt	
  and	
  helplessness.	
  	
  
	
  	
  
•   Practical	
   needs.	
   Palliative	
   care	
   specialists	
   can	
   also	
   refer	
   you	
   to	
   other	
   professionals,	
  
organizations	
  to	
  assist	
  with	
  financial	
  and	
  legal	
  worries,	
  insurance	
  questions,	
  and	
  employment	
  
concerns.	
  Discussing	
  the	
  goals	
  of	
  care	
  is	
  also	
  an	
  important	
  component	
  of	
  palliative	
  care.	
  This	
  
includes	
  discussion	
  about	
  further	
  ICU	
  or	
  ventilator	
  needs,	
  facilitating	
  communication	
  among	
  
family	
  member,	
  caregivers,	
  and	
  other	
  members	
  of	
  the	
  healthcare	
  team.	
  
	
  
How	
  do	
  I	
  contact	
  Palliative	
  Care	
  teams	
  near	
  me?	
  
At	
  Romila	
  Palliative	
  Care	
  Center,	
  we	
  cover	
  an	
  area	
  from	
  Dadar	
  to	
  Borivali	
  in	
  Mumbai.	
  There	
  are	
  
other	
  palliative	
  care	
  providers	
  in	
  Mumbai:	
  https://snehamumbai.org/wp-­‐content/uploads/2020/04/List-­‐of-­‐
Organisations-­‐Hospitals-­‐and-­‐Private-­‐Practitioners-­‐working-­‐on-­‐Palliative-­‐Care.pdf	
  
	
  
	
  
	
  
SNEHA	
  (Society	
  for	
  Nutrition,	
  Education	
  and	
  Health	
  Action)	
  	
  I	
  	
  www.snehamumbai.org	
  
	
  
	
  
	
  
	
  
	
   Page	
  3	
  
	
  
	
  
How	
  do	
  I	
  contact	
  Romila	
  Palliative	
  Care?	
  
Our	
  phone	
  helplines	
  are	
  available	
  from	
  9	
  am	
  to	
  5	
  pm	
  from	
  Mondays	
  to	
  Fridays	
  and	
  up	
  to	
  1	
  pm	
  on	
  
Saturdays.	
  Please	
  contact	
  +919029006333,	
  +918657462970	
  or	
  +918657462970.	
  Alternatively	
  you	
  
can	
  email	
  with	
  queries	
  to	
  pouru.wadia@snehamumbai.org.	
  We	
  also	
  have	
  OPDs	
  in	
  Bhabha	
  Hospital,	
  
Holy	
  Family	
  Hospital	
  and	
  Kandivali	
  Hitwardhak	
  Mandal	
  Hospital.	
  
	
  
Which	
  healthcare	
  providers	
  provide	
  palliative	
  care?	
  
Palliative	
   care	
   is	
   a	
   specialized	
   type	
   of	
   care,	
   and	
   a	
   palliative	
   care	
   team	
   usually	
   includes	
   doctors,	
  
nurses	
  and	
  counsellors.	
  Other	
  healthcare	
  professionals	
  are	
  also	
  associated	
  with	
  the	
  palliative	
  care	
  
team.	
   At	
   Romila	
   Palliative	
   care,	
   we	
   have,	
   in	
   addition	
   to	
   these,	
   the	
   services	
   of	
   a	
   nutritionist,	
  
occupational	
  and	
  physiotherapist	
  and	
  trained	
  volunteers.	
  
	
  
Do	
  Palliative	
  Care	
  services	
  provide	
  home	
  based	
  care?	
  
Yes,	
  some	
  palliative	
  care	
  services	
  like	
  Romila	
  Palliative	
  Care	
  provide	
  home	
  based	
  care.	
  This	
  is	
  an	
  
additional	
  layer	
  of	
  support	
  for	
  patients	
  and	
  families	
  of	
  those	
  with	
  serious	
  illness,	
  especially	
  if	
  the	
  
patient	
  is	
  unable	
  to	
  visit	
  the	
  hospital.	
  The	
  home	
  palliative	
  care	
  teams	
  help	
  with	
  pain	
  and	
  symptom	
  
relief,	
  care	
  of	
  bedridden	
  patients,	
  catheter	
  and	
  wound	
  care,	
  and	
  end	
  of	
  life	
  care.	
  
	
  
Do	
  Palliative	
  Care	
  teams	
  offer	
  Support	
  groups?	
  
Romila	
  Palliative	
  Care	
  has	
  a	
  support	
  group	
  for	
  Breast	
  Cancer	
  patients,	
  who	
  meet	
  once	
  a	
  month.	
  	
  
	
  
Does	
  receiving	
  Palliative	
  Care	
  mean	
  I	
  am	
  giving	
  up	
  or	
  dying?	
  Will	
  Palliative	
  Care	
  make	
  me	
  die	
  
sooner?	
  
No!	
  Studies	
  have	
  shown	
  that	
  patients	
  with	
  appropriate	
  pain	
  and	
  symptom	
  management	
  often	
  live	
  
longer	
   and	
   enjoy	
   a	
   better	
   quality	
   of	
   life	
   than	
   those	
   without.	
   According	
   to	
   the	
   World	
   Health	
  
Organization,	
  palliative	
  care	
  is	
  applicable	
  anytime	
  during	
  the	
  course	
  of	
  an	
  illness,	
  early	
  or	
  late.	
  You	
  
can	
  have	
  palliative	
  care	
  while	
  you	
  are	
  undergoing	
  treatments	
  that	
  may	
  cure	
  or	
  reverse	
  the	
  effects	
  of	
  
your	
  illness.	
  In	
  fact,	
  palliative	
  care	
  can	
  help	
  you	
  cope	
  with	
  aggressive	
  treatments	
  by	
  getting	
  your	
  
pain	
  and	
  symptoms	
  under	
  control	
  to	
  help	
  you	
  fight	
  the	
  disease.	
  
	
  
What	
  is	
  a	
  hospice	
  and	
  when	
  do	
  patients	
  need	
  one?	
  
A	
  hospice	
  is	
  a	
  medical	
  institution	
  for	
  patients	
  with	
  cancer	
  and	
  other	
  serious	
  illnesses.	
  There	
  are	
  a	
  
few	
  reasons	
  why	
  a	
  patient	
  may	
  need	
  hospice	
  care.	
  Some	
  terminally	
  ill	
  patients	
  need	
  medical	
  care,	
  
but	
  not	
  in	
  the	
  environment	
  of	
  an	
  ICU	
  with	
  machines	
  and	
  monitors	
  around,	
  but	
  comfort	
  care	
  given	
  
by	
   nurses	
   and	
   doctors,	
   all	
   the	
   while	
   having	
   their	
   family	
   with	
   them.	
   Sometimes	
   patients	
   need	
  
support	
  that	
  is	
  not	
  available	
  at	
  home,	
  e.g.	
  daily	
  dressing	
  for	
  deep	
  fungating	
  wounds,	
  wounds	
  with	
  
maggots	
   etc.	
   Sometimes,	
   families	
   of	
   patients	
   with	
   chronic	
   serious	
   conditions	
   like	
   paraplegia,	
  
bedridden	
  patients	
  etc.	
  may	
  need	
  a	
  break	
  from	
  constantly	
  caring	
  for	
  these	
  patients.	
  In	
  such,	
  some	
  
hospices	
  offer	
  the	
  facilities	
  of	
  ‘respite	
  care’	
  where	
  the	
  patients	
  are	
  admitted	
  and	
  taken	
  care	
  of	
  by	
  
the	
  hospice	
  staff	
  for	
  a	
  few	
  days,	
  so	
  that	
  the	
  family	
  can	
  rest	
  for	
  that	
  while.	
  
	
  
	
  
SNEHA	
  (Society	
  for	
  Nutrition,	
  Education	
  and	
  Health	
  Action)	
  	
  I	
  	
  www.snehamumbai.org	
  
	
  
	
  
	
  
	
  
	
   Page	
  4	
  
	
  
	
  
Are	
  there	
  hospices	
  in	
  the	
  city?	
  
Yes,	
  but	
  mainly	
  for	
  cancer	
  patients	
  only.	
  Below	
  are	
  their	
  addresses	
  	
  
	
  
1.	
  Shanti	
  Avedna	
  Sadan	
  	
  
216,	
  Mount	
  Mary	
  Road,	
  
Bandra	
  West,	
  Mumbai	
  400050	
  
Tel:	
  (91)	
  22	
  26427464	
  /	
  26451702	
  
Website	
  -­‐	
  http://www.shantiavednasadan.in	
  
	
  
2.	
  	
  Stella	
  Hospice	
  Centre	
  
401201,	
  Maley	
  Wadi	
  Varcha	
  Mala,	
  Vasai	
  West,	
  Vasai,	
  	
  
District	
  Thane,	
  Maharashtra	
  401201	
  
Tel:	
  	
  0250-­‐2328605/6	
  
	
  
3.	
  Cipla	
  Palliative	
  Care	
  &	
  Training	
  Centre	
  
Contact	
  Person-­‐	
  Dr.	
  Manjiri	
  Dighe	
  
Survey	
  No	
  118/1,Off	
  Mumbai-­‐Bangalore	
  Highway	
  
Warje,	
  Pune	
  :-­‐411058	
  
Tel:	
  020-­‐25231130/31	
  
	
  
What	
  happens	
  when	
  my	
  loved	
  one	
  dies?	
  
Palliative	
  care	
  includes	
  support	
  of	
  the	
  family	
  after	
  the	
  death	
  of	
  a	
  loved	
  one.	
  It	
  may	
  be	
  important	
  to	
  
patients	
  that	
  their	
  loved	
  ones	
  will	
  be	
  supported	
  during	
  the	
  emotional	
  time	
  around	
  their	
  deaths.	
  We	
  
offer	
  bereavement	
  support	
  to	
  families	
  of	
  patients	
  we	
  have	
  looked	
  after	
  and	
  have	
  passed	
  away.	
  This	
  
includes	
  support	
  to	
  help	
  people	
  cope	
  with	
  the	
  loss	
  of	
  a	
  loved	
  one,	
  information	
  about	
  the	
  normal	
  
grief	
  process,	
  help	
  with	
  specific	
  problems	
  or	
  referral	
  to	
  other	
  resources	
  if	
  needed.	
  
	
  
	
  

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FAQs-on-Palliative-Care.pdf

  • 1. SNEHA  (Society  for  Nutrition,  Education  and  Health  Action)    I    www.snehamumbai.org             Page  1     Frequently  Asked  Questions  about  Palliative  Care       What  is  Palliative  Care?   Palliative  care  is  specialized  medical  care  that  focuses  on  providing  relief  from  the  symptoms  and   stress  of  a  serious  illness.  It  is  provided  by  a  specially-­‐trained  team  of  doctors,  nurses  and  other   specialists  who  work  together  with  your  other  doctors  to  provide  an  extra  layer  of  support.  The  goal   is  to  improve  your  quality  of  life.   To  do  this,  the  palliative  care  team  will:   •   Relieve  your  symptoms  and  distress   •   Help  you  better  understand  your  disease  and  diagnosis   •   Help  clarify  your  treatment  goals  and  options   •   Understand  and  support  your  ability  to  cope  with  your  illness   •   Assist  you  with  making  medical  decisions   •   Coordinate  with  your  other  doctors     Which  illnesses  need  palliative  care?   All  serious  conditions  which  can  be  life-­‐limiting  or  life-­‐threatening,  will  benefit  from  palliative  care.   This   includes   cancer,   kidney   failure,   chronic   lung   disease,   heart   disease   and   liver   failure.   It   also   includes   illnesses   like   stroke,   Parkinson’s   disease,   Alzheimer’s   disease   and   other   dementias.   Palliative  care  teams  also  take  care  of  bedridden  patients.  This  list  is  not  exclusive,  however,  and  if   you  feel  you  have  an  illness  that  is  affecting  your  physical  and  mental  health  adversely,  please  reach   out  to  your  healthcare  providers.  Alternatively,  you  can  also  contact  a  palliative  care  team  close  to   you.     How  Can  Palliative  Care  help  me  or  my  loved  one?   Palliative  Care  will  help  improve  your  quality  of  life.  You  will  have  substantial  relief  from  symptoms   such   as   pain,   shortness   of   breath,   fatigue,   constipation,   nausea,   loss   of   appetite   and   difficulty   sleeping.   This   symptom   control   will   help   you   carry   on   with   daily   life.   It   can   help   you   get   more   control  over  your  illness,  mainly  through  knowledge  about  your  illness.  It  can  help  you  match  your   goals  to  your  treatment  choices.     Can  I  continue  my  primary  doctor’s  treatment  along  with  Palliative  Care?   Yes  of  course!  In  fact,  recent  cancer  guidelines  say  that  cancer  patients  should  receive  palliative   care   early,   and   together   with   other   treatments.   Apart   from   cancer,   other   serious   illnesses   also   require  integrated  care,  and  palliative  care  plays  a  role  along  with  the  other  physicians  and  medical   professionals  taking  care  of  the  patient.     What  issues  are  addressed  in  Palliative  Care?   The  physical  and  emotional  effects  of  an  illness  and  its  treatment  may  be  very  different  from  person   to  person.  Palliative  care  can  address  a  broad  range  of  issues,  integrating  an  individual’s  specific  
  • 2. SNEHA  (Society  for  Nutrition,  Education  and  Health  Action)    I    www.snehamumbai.org             Page  2   needs   into   care.   A   palliative   care   specialist   will   take   the   following   issues   into   account   for   each   patient:     •   Physical-­‐  Common  physical  symptoms  include  pain,  fatigue,  loss  of  appetite,  nausea,  vomiting,   constipation,  shortness  of  breath,  and  insomnia.       •   Emotional   and   coping-­‐  Palliative  care  specialists  can  provide  resources  to  help  patients  and   families  deal  with  the  emotions  that  come  with  diagnosis  and  treatment  of  a  serious  illness.   Depression,  anxiety,  and  fear  are  only  a  few  of  the  concerns  that  can  be  addressed  through   palliative  care.  Denial,  burden  and  fear  (of  unknown,  pain  or  death)  also  gets  addressed  .     •   Spiritual-­‐  With  a  diagnosis  of  serious  illness,  patients  and  families  often  look  more  deeply  for   meaning   in   their   lives.   Some   find   the   disease   brings   them   closer   to   their   faith   or   spiritual   beliefs,   whereas   others   struggle   to   understand   why   this   happened   to   them.   An   expert   in   palliative  care  can  help  people  (or  refer  you  to  people  of  your  faith)  explore  their  beliefs  and   values  so  that  they  can  find  a  sense  of  peace  or  reach  a  point  of  acceptance  that  is  appropriate   for  their  situation.     •   Caregiver  needs.  Family  members  are  an  important  part  of  patient  care.  Like  the  patient,  they   have  changing  needs.  It’s  common  for  family  members  to  become  overwhelmed  by  the  extra   responsibilities  placed  upon  them.  Many  find  it  hard  to  care  for  a  sick  relative  while  trying  to   handle   other   obligations,   such   as   work,   household   duties,   and   caring   for   other   family   members.  Uncertainty  about  how  to  help  their  loved  one  with  medical  situations,  inadequate   social  support,  and  emotions  such  as  worry  and  fear  can  also  add  to  caregiver  stress.       These  challenges  can  compromise  caregivers’  own  health.  Palliative  care  specialists  can  help   families  and  friends  cope  and  give  them  the  support  they  need.  Palliative  care  provide  support   to   the   family   by   teaching   them   bedside   techniques,   providing   information   on   wound   care,   feeding   through   ryles   tube,   care   of   catheter,   stoma   bag   etc.   Palliative   care   provides   also   provide  psychological  help  by  addressing  issues  like  burnout,  guilt  and  helplessness.         •   Practical   needs.   Palliative   care   specialists   can   also   refer   you   to   other   professionals,   organizations  to  assist  with  financial  and  legal  worries,  insurance  questions,  and  employment   concerns.  Discussing  the  goals  of  care  is  also  an  important  component  of  palliative  care.  This   includes  discussion  about  further  ICU  or  ventilator  needs,  facilitating  communication  among   family  member,  caregivers,  and  other  members  of  the  healthcare  team.     How  do  I  contact  Palliative  Care  teams  near  me?   At  Romila  Palliative  Care  Center,  we  cover  an  area  from  Dadar  to  Borivali  in  Mumbai.  There  are   other  palliative  care  providers  in  Mumbai:  https://snehamumbai.org/wp-­‐content/uploads/2020/04/List-­‐of-­‐ Organisations-­‐Hospitals-­‐and-­‐Private-­‐Practitioners-­‐working-­‐on-­‐Palliative-­‐Care.pdf        
  • 3. SNEHA  (Society  for  Nutrition,  Education  and  Health  Action)    I    www.snehamumbai.org             Page  3       How  do  I  contact  Romila  Palliative  Care?   Our  phone  helplines  are  available  from  9  am  to  5  pm  from  Mondays  to  Fridays  and  up  to  1  pm  on   Saturdays.  Please  contact  +919029006333,  +918657462970  or  +918657462970.  Alternatively  you   can  email  with  queries  to  pouru.wadia@snehamumbai.org.  We  also  have  OPDs  in  Bhabha  Hospital,   Holy  Family  Hospital  and  Kandivali  Hitwardhak  Mandal  Hospital.     Which  healthcare  providers  provide  palliative  care?   Palliative   care   is   a   specialized   type   of   care,   and   a   palliative   care   team   usually   includes   doctors,   nurses  and  counsellors.  Other  healthcare  professionals  are  also  associated  with  the  palliative  care   team.   At   Romila   Palliative   care,   we   have,   in   addition   to   these,   the   services   of   a   nutritionist,   occupational  and  physiotherapist  and  trained  volunteers.     Do  Palliative  Care  services  provide  home  based  care?   Yes,  some  palliative  care  services  like  Romila  Palliative  Care  provide  home  based  care.  This  is  an   additional  layer  of  support  for  patients  and  families  of  those  with  serious  illness,  especially  if  the   patient  is  unable  to  visit  the  hospital.  The  home  palliative  care  teams  help  with  pain  and  symptom   relief,  care  of  bedridden  patients,  catheter  and  wound  care,  and  end  of  life  care.     Do  Palliative  Care  teams  offer  Support  groups?   Romila  Palliative  Care  has  a  support  group  for  Breast  Cancer  patients,  who  meet  once  a  month.       Does  receiving  Palliative  Care  mean  I  am  giving  up  or  dying?  Will  Palliative  Care  make  me  die   sooner?   No!  Studies  have  shown  that  patients  with  appropriate  pain  and  symptom  management  often  live   longer   and   enjoy   a   better   quality   of   life   than   those   without.   According   to   the   World   Health   Organization,  palliative  care  is  applicable  anytime  during  the  course  of  an  illness,  early  or  late.  You   can  have  palliative  care  while  you  are  undergoing  treatments  that  may  cure  or  reverse  the  effects  of   your  illness.  In  fact,  palliative  care  can  help  you  cope  with  aggressive  treatments  by  getting  your   pain  and  symptoms  under  control  to  help  you  fight  the  disease.     What  is  a  hospice  and  when  do  patients  need  one?   A  hospice  is  a  medical  institution  for  patients  with  cancer  and  other  serious  illnesses.  There  are  a   few  reasons  why  a  patient  may  need  hospice  care.  Some  terminally  ill  patients  need  medical  care,   but  not  in  the  environment  of  an  ICU  with  machines  and  monitors  around,  but  comfort  care  given   by   nurses   and   doctors,   all   the   while   having   their   family   with   them.   Sometimes   patients   need   support  that  is  not  available  at  home,  e.g.  daily  dressing  for  deep  fungating  wounds,  wounds  with   maggots   etc.   Sometimes,   families   of   patients   with   chronic   serious   conditions   like   paraplegia,   bedridden  patients  etc.  may  need  a  break  from  constantly  caring  for  these  patients.  In  such,  some   hospices  offer  the  facilities  of  ‘respite  care’  where  the  patients  are  admitted  and  taken  care  of  by   the  hospice  staff  for  a  few  days,  so  that  the  family  can  rest  for  that  while.      
  • 4. SNEHA  (Society  for  Nutrition,  Education  and  Health  Action)    I    www.snehamumbai.org             Page  4       Are  there  hospices  in  the  city?   Yes,  but  mainly  for  cancer  patients  only.  Below  are  their  addresses       1.  Shanti  Avedna  Sadan     216,  Mount  Mary  Road,   Bandra  West,  Mumbai  400050   Tel:  (91)  22  26427464  /  26451702   Website  -­‐  http://www.shantiavednasadan.in     2.    Stella  Hospice  Centre   401201,  Maley  Wadi  Varcha  Mala,  Vasai  West,  Vasai,     District  Thane,  Maharashtra  401201   Tel:    0250-­‐2328605/6     3.  Cipla  Palliative  Care  &  Training  Centre   Contact  Person-­‐  Dr.  Manjiri  Dighe   Survey  No  118/1,Off  Mumbai-­‐Bangalore  Highway   Warje,  Pune  :-­‐411058   Tel:  020-­‐25231130/31     What  happens  when  my  loved  one  dies?   Palliative  care  includes  support  of  the  family  after  the  death  of  a  loved  one.  It  may  be  important  to   patients  that  their  loved  ones  will  be  supported  during  the  emotional  time  around  their  deaths.  We   offer  bereavement  support  to  families  of  patients  we  have  looked  after  and  have  passed  away.  This   includes  support  to  help  people  cope  with  the  loss  of  a  loved  one,  information  about  the  normal   grief  process,  help  with  specific  problems  or  referral  to  other  resources  if  needed.