Electronic Health Records - Privacy Concerns, by Phil Booth (National Coordinator - NO2ID)
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This document discusses privacy concerns regarding electronic health records and centralized databases in the UK National Health Service. It provides background on the development of NHS databases and issues that have arisen. Specific examples are given of a woman who had incorrect data that took months to fix, and a poll showing over half of people oppose a centralized medical records database without an opt-out. Risks of such databases include inappropriate access of records and undermining of medical confidentiality.
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Abstract
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Privacy- What medical information should be confidential? Who, if anybody, should have access to medical records?
Thesis Statement
In healthcare centers and overall privacy is the right of every US citizen that should be protected in all its forms by the healthcare organization.
Rationale
1. The purpose of this paper is to identify why security measures are necessary to protect one’s privacy in the medical industry.
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Table of Contents
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Data Breaches in the Healthcare Industry 5
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Page 9 of 15Capstone ProjectYaima OrtizIDS-4934.docx
Page 9 of 15
Capstone Project
Yaima Ortiz
IDS-4934
March 1st, 2020
Abstract
Topic:
Privacy- What medical information should be confidential? Who, if anybody, should have access to medical records?
Thesis Statement
In healthcare centers and overall privacy is the right of every US citizen that should be protected in all its forms by the healthcare organization.
Rationale
1. The purpose of this paper is to identify why security measures are necessary to protect one’s privacy in the medical industry.
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3. Privacy of a person whether this is me or you, is important then everything. I want to talk on this topic because I think most of us do not know what is happening to us.
4. I have selected textual analysis of books and available internet sources. The reason of this limited research methodology is that I cannot perform field study because of shortage of time.
Rough Draft Ideas
Identity theft in healthcare industry become a common practice and leads to information leakage that may destroy someone’s life. We can eliminate this human right violation by enforcing effective and practical laws. Healthcare organizations should understand their responsibilities and tighten security to protect information of patients.
Table of Contents
Introduction 3
Overview of Privacy Protections with Respect to Medical Records 4
Data Breaches in the Healthcare Industry 5
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While operating in healthcare organizations need to gather patient’s information that is mostly personal information. It is the moral and legal responsibility of health care organizations to protect the information of their patients and do not share it with people outside of the organization without the patient’s consent. Protecting patient’s information is a crucial element of respect and essential for patients' autonomy and trust in the organization — the US healthcare industry currently facing patient mistrust that is caused because of a lack of trust. When patients experience a lack of confidence they do not share their information with a healthcare professional that causes ineffective treatment. In a 2018 study, Levy, Scherer, Zikmund-Fisher, Larkin, Barnes, & Fagerlin concluded that approximately 81.1% of people withheld medically relevant information from their health-care providers. Patients fail to disclose medically relevant information in front of their clinicians undermine their health and cause patient harm (Levy, 2018).
There are numerous components of patient privacy in healthcare that are personal space, religious and cultural affiliations, physical privacy.
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HIPAA is a federal law that protects patients' medical information and sets rules for who can access it. It requires health plans, providers, and clearinghouses to protect oral, written and electronic protected health information. It gives patients rights over their information, such as access and request for amendments. Violations can result in civil penalties up to $1.5 million and criminal penalties including prison time, depending on the severity and intent of the violation. Healthcare workers must carefully protect patient privacy and only share information with those directly involved in their care.
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Page 9 of 15
Capstone Project
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IDS-4934
March 1st, 2020
Abstract
Topic:
Privacy- What medical information should be confidential? Who, if anybody, should have access to medical records?
Thesis Statement
In healthcare centers and overall privacy is the right of every US citizen that should be protected in all its forms by the healthcare organization.
Rationale
1. The purpose of this paper is to identify why security measures are necessary to protect one’s privacy in the medical industry.
2. There are numerous laws, policies and healthcare organizational rules and regulations and statistics that would be helpful for conducting this research.
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4. I have selected textual analysis of books and available internet sources. The reason of this limited research methodology is that I cannot perform field study because of shortage of time.
Rough Draft Ideas
Identity theft in healthcare industry become a common practice and leads to information leakage that may destroy someone’s life. We can eliminate this human right violation by enforcing effective and practical laws. Healthcare organizations should understand their responsibilities and tighten security to protect information of patients.
Table of Contents
Introduction 3
Overview of Privacy Protections with Respect to Medical Records 4
Data Breaches in the Healthcare Industry 5
Healthcare is the biggest Target for Cyber Attack 7
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Devastating Consequences of Healthcare Data Breaches 10
Conclusion 10
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Introduction
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There are numerous components of patient privacy in healthcare that are personal space, religious and cultural affiliations, physical privacy ...
Page 9 of 15Capstone ProjectYaima OrtizIDS-4934.docx
Page 9 of 15
Capstone Project
Yaima Ortiz
IDS-4934
March 1st, 2020
Abstract
Topic:
Privacy- What medical information should be confidential? Who, if anybody, should have access to medical records?
Thesis Statement
In healthcare centers and overall privacy is the right of every US citizen that should be protected in all its forms by the healthcare organization.
Rationale
1. The purpose of this paper is to identify why security measures are necessary to protect one’s privacy in the medical industry.
2. There are numerous laws, policies and healthcare organizational rules and regulations and statistics that would be helpful for conducting this research.
3. Privacy of a person whether this is me or you, is important then everything. I want to talk on this topic because I think most of us do not know what is happening to us.
4. I have selected textual analysis of books and available internet sources. The reason of this limited research methodology is that I cannot perform field study because of shortage of time.
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Identity theft in healthcare industry become a common practice and leads to information leakage that may destroy someone’s life. We can eliminate this human right violation by enforcing effective and practical laws. Healthcare organizations should understand their responsibilities and tighten security to protect information of patients.
Table of Contents
Introduction 3
Overview of Privacy Protections with Respect to Medical Records 4
Data Breaches in the Healthcare Industry 5
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Penalties and Punishments for Hacking Personal Information 9
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Devastating Consequences of Healthcare Data Breaches 10
Conclusion 10
Recommendations 11
Bibliography 12
Introduction
While operating in healthcare organizations need to gather patient’s information that is mostly personal information. It is the moral and legal responsibility of health care organizations to protect the information of their patients and do not share it with people outside of the organization without the patient’s consent. Protecting patient’s information is a crucial element of respect and essential for patients' autonomy and trust in the organization — the US healthcare industry currently facing patient mistrust that is caused because of a lack of trust. When patients experience a lack of confidence they do not share their information with a healthcare professional that causes ineffective treatment. In a 2018 study, Levy, Scherer, Zikmund-Fisher, Larkin, Barnes, & Fagerlin concluded that approximately 81.1% of people withheld medically relevant information from their health-care providers. Patients fail to disclose medically relevant information in front of their clinicians undermine their health and cause patient harm (Levy, 2018).
There are numerous components of patient privacy in healthcare that are personal space, religious and cultural affiliations, physical privacy.
Ems.documentation.2010.final
The document discusses the importance of proper documentation in EMS, including documenting patient care, maintaining confidentiality of patient information as required by HIPAA, and the legal risks of improper or lack of documentation. It provides numerous examples of documentation requirements and issues as well as privacy and security standards for protected health information. Providers must follow documentation standards, obtain proper consents, and limit disclosures of patient information to authorized individuals for permitted purposes only.
Open Health Data: Potential for Disruption
This document discusses the potential for open health data to disrupt and improve healthcare systems. It provides examples of how open health data initiatives in the United States, United Kingdom, and Netherlands are fueling innovation and entrepreneurship in healthcare. Open health data encourages app and startup development that can enhance patient care, research, and transparency while reducing healthcare costs. Challenges to open health data include institutional resistance, privacy concerns, and ensuring data is accessible and usable across markets.
Privacy and Data: Master Class
Dr Elizabeth Coombes, the NSW Privacy Commissioner's presentation at the MDSI Welcome Induction on Tuesday 26 July.
To Prepare· Review the Congress website provided in the Resourc
To Prepare:
· Review the Congress website provided in the Resources and identify one recent (within the past 5 years) proposed health policy.
· Review the health policy you identified and reflect on the background and development of this health policy.
Post a description of the health policy you selected and a brief background for the problem or issue being addressed. Explain whether you believe there is an evidence base to support the proposed policy and explain why. Be specific and provide examples.
APA format and 3 references
Then respond to a peer with 2 references
Peer 1
The healthcare policy I chose is S. 3098, S.3098 -is the Preventive Care Awareness Act of 2021.
S. 3098 will provide national public health information and focus on people in a lower income bracket who have forgone services during the COVID-19 pandemic. This bill would also create a task force to promote preventative care and development programs in rural and underserved populations. Its primary focus is teaching low-income Americans the benefits of preventive healthcare. This bill is in committee and has bipartisan support (Bell et al., 2017).
Reading this proposed bill, I asked myself whether it is lower-income Americans who have forgone preventative treatment during COVID or Americans in general. Preventive screenings have long been advocated as one of the most valuable ways to facilitate early diagnosis and treatment of disease. Cancer screenings have helped lower the US cervical cancer death rate by 50% in the last three decades (2022).
According to the American Medical Association, more than 40% of Americans surveyed stopped preventative medical care as covid-19 began (Timothy M. Smith, Senior News Writer, 2020). This number included Americans of all economic levels. I believe no proof was found that only lower-income Americans skipped screenings during the height of the COVID-19 pandemic.
According to the Joint Commission, patients with lower health literacy did not see the importance of preventative care during COVID-19 (The Joint Commission, 2022). I believe there is evidence-based support for increasing education for all Americans regarding the importance of preventive health screenings, And indeed more teaching to Americans with a lower understanding of their health. This bill was given only a 3% chance of passing into law. I believe that is partly because it only attempts to reach lower-income populations and not all Americans.
50 words minimum each response
R1
I had a hard time with this question. I'd like to believe that all, if not most, health care providers have very high empathy, which would cause them to be sensitive toward patients. However, many different people with different personalities become health providers, and laws and regulations provide boundaries for most people. I believe if left alone, healthcare professionals and other professionals would choose what is most convenient for them and not what is best for the patie ...
Datos abiertos en salud - Resumen
This document provides an overview of open health data initiatives in the United States, United Kingdom, Austria, Belgium, and France. It highlights several projects in each country that utilize open government health data to create applications, tools, and services. These initiatives aim to improve transparency, spur innovation, and empower citizens and patients. The document also discusses some of the economic and social impacts and challenges of open health data.
Open Health Data Qualitative Overview
This qualitative overview of the Open Health Data initiatives is meant to showcase the importance of open health data, social as well as economic impacts across US, UK and a select set of Western European countries. This overview is not meant to be a comprehensive report on all the global initiatives, funding models and tracking of open health data. There are tremendous efforts across the globe to change our global healthcare system and we believe that open health data is one of the keys to bridge the gap between digital citizens & governments. Also, please note that if your country, initiative or product was not mentioned, it is in no way meant to diminish the impact of the efforts. Please feel free to share, discuss and contribute to the list of ongoing efforts and initiatives on one of our global communities or on openhealthdata.org.
Big Data and US healthcare
Big data in healthcare has grown exponentially as more medical data is collected through new technologies and electronic health records. By analyzing huge datasets, big data can help reduce trial-and-error medicine and lower costs. It enables more personalized healthcare by combining different sources of medical data. While big data may revolutionize healthcare through customized care and reduced costs, issues around privacy, security, and data management need to be addressed for its full potential to be realized.
BETTER CARE WITHOUT COMPROMISING PERSONAL PRIVACY - THE CONSUMERS' VIEWPOINT
BETTER CARE WITHOUT COMPROMISING PERSONAL PRIVACY - THE CONSUMERS' VIEWPOINT Health Informatics New Zealand
This document summarizes the key findings from several studies on patients' attitudes towards privacy and sharing of their medical information electronically. The studies found that patients have significant concerns about privacy and security of their medical records. They worry about sensitive information being shared without consent and lack confidence in security measures. Preliminary results from an ongoing New Zealand study show wide variation in patients' comfort levels depending on the level of identification, content, reason for access, and whether sensitive issues are involved. The document stresses the importance of considering privacy and involving patients to build trust in electronic health information systems.[DigiHealth 22] Data Altruism, Web3, and Solving Bias in Medical Data - Dinid...
[DigiHealth 22] Data Altruism, Web3, and Solving Bias in Medical Data - Dinid...DataScienceConferenc1
Bias and a lack of demographic representation in medical data are fundamental issues holding up progress in medical research. As more and more Artificial Intelligence and Machine Learning programs come online, the quality, provenance, and representation of the data used to train them is coming increasingly into focus. This talk presents a solution to this €100BN/year medical data problem, a solution based on the principles of data altruism, privacy and consent, stakeholder incentivisation, and using the best of Web3 technologies to enable legal compliance and global scalability.Why merging medical records, hospital reports, and clinical trial data is a v...
Medical privacy and breaches of personal health information (PHI) has been a hot topic for several years. For the clinical trial industry, the main concerns are decline in recruitment resulting from lack of confidence in data handling and instances of breaches that affect data integrity that adversely affect NDA and MA applications in major markets, which precipitates administrative action taken by national regulators in response to local incidents.
European legislators rely extensively on administrative measures implemented by national competent authorities. Although specific and detailed EU-level legislation exists, specific information about data breaches, cases and incidents, volume and type of affected data, root causes and analysis of consequences is largely missing. According to Howard and Gulyas (2014), this lack of organized event records is currently an empirical obstacle but provides opportunity to generate new knowledge about data and privacy protection that could bolster future trial recruitment.
In the U.S., summary details of breaches that involved more than 500 individuals are available at the OCR portal called Wall of Shame for everyone to analyze. Disclosure obligations in HIPAA made the problem of data breaches in healthcare obvious and protection of the privacy of patients has been an important part of physicians’ code of conduct. This offers lessons learned to mitigate systemic vulnerabilities that undermine trial participation.
It's time for open source design in healthcare
From strategy to user interface to operational code, the best solutions are often found in the open-source design model which is consistent with the
philosophy of sharing best practices and innovations in care delivery to improve health, with benefits for individual patients as well as the entire population.
Case Study “HIE Consumer & Stakeholder Engagement: Privacy and Security of Pa...
Case Study “HIE Consumer & Stakeholder Engagement: Privacy and Security of Pa...Health IT Conference – iHT2
The document summarizes the key accomplishments and privacy challenges of the New Mexico Health Information Collaborative (NMHIC). It discusses how NMHIC was established in 2004 with funding from government agencies and community matching funds to create a statewide health information exchange. It describes the major privacy issues encountered, including balancing data sharing for treatment while respecting patient privacy and developing a hybrid consent model. It also outlines lessons learned around the importance of stakeholder engagement, education, and public trust for a sustainable health information exchange.Foia DP Presentation
The document outlines legislation around access to information and privacy protection in Trinidad and Tobago, specifically the Freedom of Information Act and the proposed Data Protection Bill. It discusses the objectives and key principles of the FOI Act, including giving individuals the right to request information from public authorities. It also explains what is considered personal information and sensitive personal information according to the Data Protection Bill, and the general privacy principles around collection, use, disclosure and protection of personal information. Public bodies will need to complete privacy impact assessments for any enactments, systems or programs involving personal information.
Patient Privacy Protections
This document discusses the risks to patient privacy posed by electronic health records and health information exchanges given existing legislation and regulations. While laws like HIPAA provide some protections, they were created before widespread use of EHRs and do little to protect electronically stored data. Additionally, patients have little control over their health information under current policies. Attempts to balance privacy with the goals of improving population health through data sharing and EHR use have been challenging, with no clear resolution. Compromise is needed to define what information can be shared while maintaining patient anonymity.
HISI conference 2016 - Dame Fiona Caldicott - Nov 16th 2016
The document summarizes a speech given by Dame Fiona Caldicott, the National Data Guardian for Health and Care in England. The speech discusses building public trust in the use of health data through establishing data security standards, implementing an opt-out system for data used beyond direct care, and having an ongoing conversation with the public. The recommendations aim to ensure data is held securely and used properly to provide and improve care while giving individuals choice over how their data is shared.
Similar to Electronic Health Records - Privacy Concerns, by Phil Booth (National Coordinator - NO2ID) (20)
Page 9 of 15Capstone ProjectYaima OrtizIDS-4934.docx
Page 9 of 15Capstone ProjectYaima OrtizIDS-4934.docx
Page 9 of 15Capstone ProjectYaima OrtizIDS-4934.docx
Page 9 of 15Capstone ProjectYaima OrtizIDS-4934.docx
To Prepare· Review the Congress website provided in the Resourc
To Prepare· Review the Congress website provided in the Resourc
BETTER CARE WITHOUT COMPROMISING PERSONAL PRIVACY - THE CONSUMERS' VIEWPOINT
BETTER CARE WITHOUT COMPROMISING PERSONAL PRIVACY - THE CONSUMERS' VIEWPOINT
[DigiHealth 22] Data Altruism, Web3, and Solving Bias in Medical Data - Dinid...
[DigiHealth 22] Data Altruism, Web3, and Solving Bias in Medical Data - Dinid...
Why merging medical records, hospital reports, and clinical trial data is a v...
Why merging medical records, hospital reports, and clinical trial data is a v...
Case Study “HIE Consumer & Stakeholder Engagement: Privacy and Security of Pa...
Case Study “HIE Consumer & Stakeholder Engagement: Privacy and Security of Pa...
HISI conference 2016 - Dame Fiona Caldicott - Nov 16th 2016
HISI conference 2016 - Dame Fiona Caldicott - Nov 16th 2016
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Editor's Notes
- Thanks to Colin Mitchell and Dr Philip Lewis for inviting me