DonateData.net is a platform that allows patients to securely donate their medical data for research. It gives patients control over their data by letting them choose which parts of their records to donate on a study-by-study basis. Researchers gain a tool to directly engage with patients through the platform's messaging and updates features. The goal is to make more clinical data available for research while empowering patients in the process.

1. A ground-breaking platform for patients to
securely donate their medical data for research
PCORI challenge submission
https://DonateData.net!
Chintan Patel PhD, Sharib Khan MA, MPH
Applied Informatics Inc.
447 Broadway, New York, NY
info@trialx.com

2. https://DonateData.net
Problem
• Clinical data are largely
locked in database silos and
unavailable for research
• Patients are limited to being
passive subjects in research
studies
• Researchers and experts
have limited tools to directly
engage with patients/health
consumers
• Patient health data
increasingly being made
available through patient
controlled portals
• Patients empowered to
search and self-manage
health on the Internet
• Right time for empowering
patients with their health
record data so that they can
share it for research
Opportunity

3. Applied Informatics Inc. (TrialX)
Solution: DonateData.net
Or browse research
studies
Users can search research
studies
Simple 1-2-3 step overview
of the service

4. Applied Informatics Inc. (TrialX)
Research Study Page
Consumer-friendly study
description page containing
the purpose of the study, its
intended benefits.
Consumers can increase
awareness about the study
using social media buttons
Statistics to show how the
data donation campaign is
progressing
Interested users can
volunteer their data by
clicking the donate button

5. Applied Informatics Inc. (TrialX)
Data Upload Process: Access
Consumers can choose what part of their medical record
summary would they like to donate for the study. This
allows them to have full control of the information they are
willing to share.
In this case the user is willing to provide access to their
immunization and lab/tests sections
By default patient identifiable information
section is marked red and not shareable
unless the patient explicitly decides to
check it off and is willing to provide their
identity information to the research team

6. Applied Informatics Inc. (TrialX)
Engagement Tools
Researchers get a
dashboard to broadcast
messages to patients
who donate data
Data donors can login
and get a feed of all
information updates from
the researchers