Marjorie Madfis founded Yes She Can Inc., a nonprofit organization, to help her daughter Isabelle and other women with autism gain job skills and employment. The presentation discusses autism employment challenges, transition programs for youth with autism, existing autism employment models, and characteristics of workplace success for individuals with autism. Marjorie operates Girl AGain, a boutique staffed by trainees with autism that sells American Girl merchandise. She proposes developing a digital tool to provide structured support for employees with autism and their managers to help more individuals with autism find and maintain competitive employment.
3. Meet Marjorie
Grew up in suburban Boston
Undergraduate: Community Development
MBA
Began marketing career - leadership and management roles
Joined IBM in 1995 to start up interactive direct marketing
Daughter diagnosed in 1998 with PDDNOS (now called Autism Spectrum Disorder)
Worked full time at IBM while also full time as Autism Mom
Chose not to go on management track
Career in digital marketing and social media marketing
Created network of IBMers with autism interest
Pursued ways IBM could address needs of people with autism
June 2013 IBM “package” and retirement
November 2013 incorporated Yes She Can
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4. Meet Marjorie’s inspiration
Isabelle started Early Intervention at age 2.4
Special education “career”
TEACCH and then Inclusion
Working towards High School diploma
But did not pass Regents exit exams
Now in “transition” to adulthood
New high school credential for work readiness> internships
Izzie’s career goal is to work at American Girl Place
How was she going to achieve that goal?
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5. What is Autism
Life-long neurological disorder, effecting communications,
social interactions, cognition and emotions
Spectrum disorder – degree of severity, varies on each
dimension
25% of autistics are non-verbal
40% of autistics also have intellectual disability
25% of those diagnosed are women (underdiagnosed)
Disability vs Neurological Difference
Rate of diagnosis has been increasing dramatically
beginning in the 1990s
About 1% of US population (2-3 million), majority are adults
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7. Out of the workforce
8 years following high school
◦only 53% of adults have worked for pay (Shattuck, 2012)
◦ Unemployment rates for autism higher than other disabilities
◦ difficult time navigating work due to cognitive,
communication and behavioral challenges (Zager, 2014)
Implications:
◦Cost of caring for adult with autism who is not
working > $2 Million over their adult life (Autism Society,
2011)
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8. Why?
High schools are not preparing students with
autism to develop vocational skills
Assumption: college or day hab
Government funding policies have not supported
employment opportunities – starting to change
Social service agencies are not incented to help
“consumers” enter employment
Businesses are not prepared to employ people
with autism
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9. Transition to Adulthood
Last year of high school vocational prep (school district responsible)
◦ Project SEARCH
◦ Customized high school internships
College campus programs (private pay)
◦ Accredited college with various supports (Adelphi)
◦ College programs designed for special ed students (NYIT VIP)
◦ Parallel programs on college campuses (Lesley College Threshold, College Steps)
Vocational residential programs (mostly private pay)
◦ Most end at 21 under IDEA
◦ some continue with adult programs in community (Chapel Haven, Vista)
“Day Hab” programs (Medicaid waiver funded)
◦ with or without walls
◦ “full day” = 9-2:30
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10. Autism Employment Models
Sheltered workshops
Agency run businesses
Revenue funds the organization
Arc of Westchester: eDocs NY
Roses for Autism
Family run businesses
For profit or non-profit
Long-term employment
Extraordinary Ventures
Rising Tide Car Wash
Spectrum Designs
Aspiritech
Autonomy Works
Training for competitive
placement
Specialisterne
Competitive differentiation
Ultra Testing
Conventional businesses with
VR supported employment
Food service, supermarkets, mail
room
Conventional business with
intention
Walgreens
SAP
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11. Characteristics of workplace success
Motivation and perseverance
Good social communication skills
Good emotional regulation
Adaptability and flexibility (cognitive and emotional)
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challenge
challenge
challenge
challenge
• Autistic brain – unique learning style
• Needed: Customized Job skills training program for people
• Staffed with experienced professionals skilled with these issues
• If trainees are able to achieve in these areas, they have a good shot at
job success
12. Needed: immersive learning
Learning on the job
One-on-one teaching
How to and why
Explore and try, with no
consequence for errors
Stretching
Accomplishments
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13. My approach:
Create an ecosystem for immersive learning
Structure
inputs outputsWork
Job
expertise
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Skill
15. 15
American Girl brand
Founded 1986 – mail order catalog
Girls in American historical periods
Attention to authentic detail
Girls who can read – ages 8-11
Collect in depth
Girl empowerment message
1998 opened first retail store
Café, Hair Salon, events
Mattel (Barbie) purchased in 1998
Aspirational, attainable luxury
Shifting to younger aged girls
Doll that looks like self
16. Market Demand
New carries a high price tag
Dolls: $115
Outfits: $22-$40 each
Furniture: $30 - $300
Huge secondary market
Girls who want to add to collection
Girls who want a first doll
Collectors who want discontinued
merchandise
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17. Product Supply
American Girl (Pleasant
Company) was founded 30 years
ago
Oldest cohort now late 30s
Sources of merchandise
Donations
National via website SEO
Local through collection drives
Purchases - new
AG Publishing
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22. Girl AGain – a laboratory
We provide a work environment in which:
Social communication skills are practiced in a safe place
with a range of people
The Hidden Curriculum is directly taught.
Where genuine honest
feedback is provided
We realistically address their
strengths and weaknesses
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23. Societal impact
Introducing our customers to women with
autism in responsible positions
“grease the skids” for conventional employers to
hire women with autism.
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24. Scalability
Girl AGain cannot employ all women who want
to work
By creating an incubator with constant thru put
(“graduation”) more women can participate
Conventional employers need to absorb Yes She Can trainees
Future vision: Yes She Can will have a portfolio of
businesses that meet the criteria of viability
Not all women have a passion for American Girl.
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25. Getting and Keeping a job
It takes both a qualified employee
and a willing employer
Where can our clients get jobs based on
their profiles?
How do employers hire and support
employees with autism?
How can employees be successful in a job
and retain it?
How can we help businesses be more
successful employers?
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26. What works for Autism at work
Individuals with ASD perform best in
structured environments, clear and detailed processes
clear expectations of performance requirements
processes for addressing situations that deviate from routine
Businesses
have established processes to perform work
may not be presented in a structured or easily accessible way for ASD
Expectation to use intuition for variations and anomalies, apply discretion.
Employers may want to hire people with autism but are concerned about
how to best manage them so they are effective, and so they are not a burden
to the manager.
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27. Problem Statement
Our trainees have potential to work in the competitive workforce if
they had the supports we provide in our program.
Vocational Rehabilitation agencies do not provide full time
continuous supported employment (job coaches) for employees with
autism.
To scale ASD employment opportunities, employers need to have
efficient ways to provide appropriate guidance, training and support
so that ASD employees have means to be successful and confident in
their roles.
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28. Opportunity
Create a more automated approach to providing support for employees
with autism on the job.
Develop a digital tool that will enable business managers and autistic
employees to be effective at work.
Structured supports for the business manager and for the employee can
lead to a better more productive employee and sustained employment.
Workplace accommodation will enable greater scale of employment of
individuals with ASD and contribution to diverse organizations.
Ultimately, tools to enable people with ASD to be effective in the
workplace will benefit all employees in similar positions.
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29. Digital Tool Concept
Create a digital tool accessable by both manager and employee that
provides
structure to work tasks
real-time feedback to both employee and manager
employee access to a library of content relevant to job performance
personal social and behavioral management support
control to manager to assign work, to modify work schedules, and to provide feedback
to employee.
Easy to use administrator interface.
Ability to be updated, with enhancements.
Tool to be licensed for use at business sites.
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30. Approach
Identify key needs of prospective employers and employees
will clarify and make visible the support strategies needed for adults
employed with ASD to be successful at work
Identify opportunities to partner in definition, design and delivery of
such a program
Create an initial definition and prototype to be tested in early 2017 with
greater insight and confidence based on observation, interviews and
iterative protoyping in Fall 2016
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31. Digital Tools: Initial High Level Stories
Employee Needs:
1) To know exactly what is
expected of them to perform
work responsibilities
2) To have access to processes to
perform work
3) To have neutral reminders &
cues so confusion is minimized
4) To know social rules
5) To access personal emotional
support strategies
6) To know how and when to
request manager help
Employer/Manager Needs:
1) To assign work tasks and provide
detailed guidance* on how to do
2) To know if tasks are completed to
quality and time standards
3) To know that my employee has
ways to manage emotions
4) To know and be reached when
really needed
5) To provide work assessments
6) To provide appropriate feedback
on social/behavioral expectations
7) To ensure the employee is part of
the team
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Sample Only - For Initial Discussion
* Task Analysis
32. Where are we
Defining initial requirements
◦ Employees – our trainees
◦ Employers – to do
Create mock up / something to show employers for reaction– to do
Explore Partners
Jolt https://joltup.com/
seems to have processes, format
Seeking volunteer support and assistance to move forward
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34. About Yes She Can
Yes She Can is a 501c3 non-profit organization
http://YesSheCanInc.org
35 Hubbard Drive, White Plains, NY 10605
914-428-1258
Operates Girl AGain boutique: http://GirlAGain.com
Board and Management team:
Marjorie Madfis, President
Allan Friedman, Treasurer
Patricia Salner, Secretary
Sheri Baron, Director, Program Development and Job Coach
Randi Rios-Castro, Director
Pat Rowan, Program Management and Job Coach
Maria D’Albert, Digital Consultant
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