This document discusses tips for clinicians working with patients online, including definitions of key terms like personal health records and patient portals. It recommends that clinicians only work with patients they know, assume all communications could be publicly read, respond promptly to patient access requests, apologize and express gratitude to patients, learn from patient experiences, protect patient privacy but involve family/caregivers when appropriate, develop basic computer skills, consider asking patients to help cover costs, and use available software tools to facilitate online care. The document concludes by thanking the audience and inviting questions.

1. Working with patients onlinetips for the real worldDr. Mohammad Al-Ubaydli Royal Society of Medicine 2009 / 05 / 19

2. The banality of good

3. A bit about me…

5. Roadmap

6. Roadmap

7. Some definitions Clinicians Patient Personal health records Patient portals Personal records Electronic patient records

8. Some definitions Clinicians Patient Personal health records Patient portals Personal records Electronic patient records Data by clinicians for clinicians

9. Some definitions Clinicians Patient Personal health records Patient portals Personal records Electronic patient records

10. Some definitions Clinicians Patient Personal health records Patient portals Personal records Electronic patient records Data by patient for patientPowerful but unstructured NHSmail users have mailbox shrunk 06 Feb 2008 NHS staff who use the health service’s email service NHSmail have been informed that after a recent move to Microsoft Exchange their mailbox size has been capped. Some 80% of NHS accounts have been capped at just 200Mb, which appears miserly compared with the hefty 6Gb offered by Gmail for free, or the 5Gb offered for free on Windows Live Hotmail.

11. Some definitions Clinicians Patient Personal health records Patient portals Personal records Electronic patient records

12. Some definitions Clinicians Patient Personal health records Patient portals Personal records Electronic patient records Our PHR helps clinicians help patients

13. Why do this at all?

14. Roadmap

15. Stick to patients you know

16. Assume your writing is read Data Protection Act 1998: Responding to access requests 5. A request for access must be made in writing, and no reason need be given. Subject to any applicable exemption, the applicant must be given a copy of the information and, where the data is not readily intelligible, an explanation (eg of abbreviations or medical terminology).

17. Say sorry and thank you (early and often)

18. Learn from patients

19. Roadmap

20. Protect patients from relatives…

21. …but make full use of relatives

22. Learn how to type Learn to fish for free at http://tuxtype.sourceforge.net/download

23. Roadmap

24. Start asking for payment

25. We built our software for this

26. We will help you get funding

27. Thank you for listeningQuestions please! Dr. Mohammad Al-Ubaydli Patients Know Best me@mo.md