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ROJoson PEP Talk: Cancer Journey Sharing - 2023

ROJoson PEP Talk: Cancer Journey Sharing - 2023

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Empowerment
objective - for
laypeople to have an
understanding of
the importance of
CANCER JOURNEY
SHARING in health
management.
November 11, 2023
1400H - 1500H
Via Zoom
Cancer
Journey
Sharing
Empowerment
objective - for
laypeople to have an
understanding of
the importance of
CANCER JOURNEY
SHARING in health
management.
November 11, 2023
1400H - 1500H
Via Zoom
Cancer
Journey
Sharing
Welcome all!
MUTE yourself but always
show your video picture.
Sign in your name, FB
account, or email address in
the Chat Box! Include names
of companions attending.
Use the Chat Box to ask
questions and make
comments while the PEP TALK
is on.
Group pictures at start and
end of PEP TALK – show your
face in video.
Reminder after the PEP
Talk:
Take the Online Learning
cum Evaluation Test
Exercise (OLETE) for
mastery of learning and
have a perfect score to get
a Certificate.
Link is in Chat Box.
Reminder:
50 OLETE Certificates = 1
Voucher for ROJoson
Telemedical Consultation
Empowerment
objective - for
laypeople to have an
understanding of
the importance of
CANCER JOURNEY
SHARING in health
management.
Cancer
Journey
Sharing
ROJOSON’S REQUEST:
FEEDBACK TO THIS
PEP TALK!
Pls. type in your
feedback in the chat
box during the open
forum and before we
part ways!
I NEED THE FEEDBACK
TO DECIDE WHETHER
TO CONTINUE OR
STOP PEP TALK!
Thank you!
Empowerment
objective - for
laypeople to have an
understanding of
the importance of
CANCER JOURNEY
SHARING in health
management.
Cancer
Journey
Sharing
Welcome all!
Mabuhay!
LET’S NOW HAVE A
GROUP PICTURE
TAKING BEFORE WE
START IN 2 MINUTES!
Pls. turn on your
video!
Show your face!
Ad

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ROJoson PEP Talk: Cancer Journey Sharing - 2023

  • 1. Empowerment objective - for laypeople to have an understanding of the importance of CANCER JOURNEY SHARING in health management. November 11, 2023 1400H - 1500H Via Zoom Cancer Journey Sharing
  • 2. Empowerment objective - for laypeople to have an understanding of the importance of CANCER JOURNEY SHARING in health management. November 11, 2023 1400H - 1500H Via Zoom Cancer Journey Sharing Welcome all! MUTE yourself but always show your video picture. Sign in your name, FB account, or email address in the Chat Box! Include names of companions attending. Use the Chat Box to ask questions and make comments while the PEP TALK is on. Group pictures at start and end of PEP TALK – show your face in video.
  • 3. Reminder after the PEP Talk: Take the Online Learning cum Evaluation Test Exercise (OLETE) for mastery of learning and have a perfect score to get a Certificate. Link is in Chat Box.
  • 4. Reminder: 50 OLETE Certificates = 1 Voucher for ROJoson Telemedical Consultation
  • 5. Empowerment objective - for laypeople to have an understanding of the importance of CANCER JOURNEY SHARING in health management. Cancer Journey Sharing ROJOSON’S REQUEST: FEEDBACK TO THIS PEP TALK! Pls. type in your feedback in the chat box during the open forum and before we part ways! I NEED THE FEEDBACK TO DECIDE WHETHER TO CONTINUE OR STOP PEP TALK! Thank you!
  • 6. Empowerment objective - for laypeople to have an understanding of the importance of CANCER JOURNEY SHARING in health management. Cancer Journey Sharing Welcome all! Mabuhay! LET’S NOW HAVE A GROUP PICTURE TAKING BEFORE WE START IN 2 MINUTES! Pls. turn on your video! Show your face!
  • 7. Empowerment objective - for laypeople to have an understanding of the importance of CANCER JOURNEY SHARING in health management. Cancer Journey Sharing ROJoson PEP Talk I have a Patient Empowerment Program in which I like to empower the lay people or patients to take control in the management of their health.
  • 8. There are 3 courses in the PEP Talk. I completed the Core Course on October 9, 2021.
  • 9. From October 23, 2021 onwards, I have been tackling Health Disorder and Health Issue Courses. This may take 3 years or longer depending on our enthusiasm, discipline and perseverance.
  • 10. Empowerment objective - for laypeople to have an understanding of the importance of CANCER JOURNEY SHARING in health management. Cancer Journey Sharing My PEP TALK today is entitled: CANCER JOURNEY SHARING.
  • 11. Contents of PEP Talk: • What is a Cancer Journey Sharing? • What are the benefits that can be derived from Cancer Journey Sharing? • When to do a Cancer Journey Sharing? • To whom to share the cancer journey? • What are the media that can be used to share the cancer journey? • What should be the contents of Cancer Journey Sharing? (Sharing Process – ROJoson’s Template) • What are some tips on Cancer Journey Sharing? Cancer Journey Sharing Why do CANCER JOURNEY SHARING?
  • 12. • What is a Cancer Journey Sharing? Cancer Journey Sharing
  • 13. • What is a Cancer Journey Sharing? Cancer Journey Sharing Sharing will be operationally defined as voluntarily disclosing or revealing information by a person to a third party. The opposite term is holding back.
  • 14. • What is a Cancer Journey Sharing? Cancer Journey Sharing Cancer Journey will be operationally defined as the life lived by a person with a cancer from diagnosis to treatment to until the current phase, in remission, with recurrence, or has died.
  • 15. • What is a Cancer Journey Sharing? Cancer Journey Sharing Cancer Journey Sharing, therefore, is voluntarily disclosing or revealing information by a person on his life with cancer to a third party.
  • 16. • What are the benefits that can be derived from Cancer Journey Sharing? Cancer Journey Sharing
  • 17. • What are the benefits that can be derived from Cancer Journey Sharing? Cancer Journey Sharing For the cancer patients doing a Cancer Journey Sharing, the deed  Shows or promotes acceptance of the cancer diagnosis. Acceptance is the most effective coping tactic for the psychological distresses of cancer patients. Thus, it is therapeutic.
  • 18. • What are the benefits that can be derived from Cancer Journey Sharing? Cancer Journey Sharing For the cancer patients doing a Cancer Journey Sharing, the deed  Raises awareness about cancer, its treatment, prognosis, psychological distresses, etc. not only to the sharer herself or himself but also to other people, particularly those living a life with cancer. Thus, it is therapeutic for the sharer herself or himself as it raises awareness from within (empowerment) and it makes the sharer feels good to be able to reach out to be of help to other cancer patients (also therapeutic at the same time doing a social responsibility).
  • 19. • When to do a Cancer Journey Sharing? Cancer Journey Sharing
  • 20. • When to do a Cancer Journey Sharing? Cancer Journey Sharing When a cancer patient has achieved a level of psychological comfort to share. Cancer Journey Sharing is voluntary. Nobody will be forced. Do it only when you are ready but have the benefits in mind, particularly on its therapeutic effect.
  • 21. • To whom to share the cancer journey? Cancer Journey Sharing
  • 22. • To whom to share the cancer journey? Cancer Journey Sharing Depending on the level of psychological comfort, to individual/s or group/s third party. • To your relatives. • To your friends. • To a public group (including cancer support groups). Either face-to-face sharing or online sharing or both.
  • 23. • What are the media that can be used to share the cancer journey? Cancer Journey Sharing
  • 24. • What are the media that can be used to share the cancer journey? Cancer Journey Sharing • Through oral (spoken words or conversations) or written. • Through video messages (mainly oral or at times, written messages). • Through audio messages (oral messages). • Through printed messages (books, pamphlets, blogs in the Internet, social media). Again, depending on the level of psychological comfort of sharer.
  • 25. • What should be the contents of Cancer Journey Sharing? (Sharing Process – ROJoson’s Template) Cancer Journey Sharing
  • 26. • What should be the contents of Cancer Journey Sharing? (Sharing Process – ROJoson’s Template) Cancer Journey Sharing General Instructions to Sharer: Cancer Journey Sharing is essentially a storytelling of experiences encountered from the time of recognition of possible cancer to diagnosis, treatment, and after treatment. There is something cathartic about telling the story and being heard. Going through the details of when something happened, who was there, how we felt at that time and how we feel now reminds us of how far we’ve come — and how far we can still go!
  • 27. • What should be the contents of Cancer Journey Sharing? (Sharing Process – ROJoson’s Template) Cancer Journey Sharing General Instructions to Sharer: Your Cancer Journey Sharing will also be useful in inspiring other cancer patients to emulate your response management to a cancer diagnosis and treatment.
  • 28. • What should be the contents of Cancer Journey Sharing? (Sharing Process – ROJoson’s Template) Cancer Journey Sharing Content Guides: • Name • Age • What is your cancer diagnosis? • What major treatment did you undergo?
  • 29. • What should be the contents of Cancer Journey Sharing? (Sharing Process – ROJoson’s Template) Cancer Journey Sharing Reflection and Narration (Pls. include the following in your Sharing): • What psychological distress experienced • What coping mechanism used and what happened • Lessons learned • Advice to other patients in a similar category of journey
  • 30. • What should be the contents of Cancer Journey Sharing? (Sharing Process – ROJoson’s Template) Cancer Journey Sharing More detailed guides in reflection and narration: 1. During your entire cancer journey, from the time you felt a symptom that made you suspect possible cancer which eventually turned out to be really cancer up to now (after treatment and in remission), did you go into depression? Or just anxiety? If depression, how severe was it (worst ever, severe, moderate, mild)? If anxiety, how severe was it (worst ever, severe, moderate, mild)? Pls. describe what you felt. Make sure to differentiate depression from anxiety.
  • 31. • What should be the contents of Cancer Journey Sharing? (Sharing Process – ROJoson’s Template) Cancer Journey Sharing More detailed guides in reflection and narration: 2: How did you cope with the depression? Or the anxiety, if you did not have depression? 3: Up to now, do you still have recurring depression or anxiety? If yes, how often? How are you coping with it? 4: What are your advice to other cancer patients on controlling depression or anxiety, secondary to cancer or any other cause?
  • 32. • What should be the contents of Cancer Journey Sharing? (Sharing Process – ROJoson’s Template) Cancer Journey Sharing Limit your Cancer Journey Sharing to not more than 10 minutes or 1000 words. You can share in English, Tagalog or Taglish.
  • 33. • What are some tips on Cancer Journey Sharing? Cancer Journey Sharing
  • 34. • What are some tips on Cancer Journey Sharing? Cancer Journey Sharing BE OPEN Where to start? Focus on your diagnosis, how it changed your life and what you think others facing cancer should know. Recall any activities in course of your treatment and thereafter that have impacted your journey.
  • 35. • What are some tips on Cancer Journey Sharing? Cancer Journey Sharing BE REAL This is an opportunity for you to share your story with a community (people with and without cancer) that understands your triumphs and your struggles. While it can be difficult to get personal, these details are what make your story unique.
  • 36. • What are some tips on Cancer Journey Sharing? Cancer Journey Sharing BE CONCISE While every detail of your story is important, we suggest keeping it brief yet concise. Less than 1000 words or less than 10 minutes as much as possible.
  • 37. • Why do Cancer Journey Sharing? Cancer Journey Sharing
  • 38. • Why do Cancer Journey Sharing? Cancer Journey Sharing Patients with cancer will experience various degrees of depression and anxiety in their cancer journey. One of the coping mechanisms in controlling depression and anxiety is to know and accept that this negative effect happens to practically all cancer patients. It is normal to have depression and anxiety. What is left is how to control them.
  • 39. • Why do Cancer Journey Sharing? Cancer Journey Sharing A good control strategy is to listen to the experiences of cancer patients and to learn from them. Another good control strategy is to do cancer journey sharing.
  • 40. • Why do Cancer Journey Sharing? Cancer Journey Sharing Having the courage to speak up and share your story with others who are going through a similar experience can help you to improve your own well-being.
  • 41. • Why do Cancer Journey Sharing? Cancer Journey Sharing Opening up to others can be hard, but many patients with cancer find solace and unexpected benefits by sharing their stories. Although some people may hesitate to reveal such a personal and vulnerable part of their life at first, those who have summoned the courage to speak up and reach out to others who have a similar condition gave themselves the opportunity to achieve a transformation in their overall well- being.
  • 42. • Why do Cancer Journey Sharing? Cancer Journey Sharing In Cancer Journey Sharing, your story can have an enormous impact. It can provide hope and inspiration to someone who’s recently been diagnosed with cancer or a patient undergoing therapy. By sharing your story, others will find comfort and encouragement.
  • 43. • Why do Cancer Journey Sharing? Cancer Journey Sharing When patients with cancer share their story, it often reminds them that there are others who are going through a similar experience. It promotes connection with other people who have cancer, and uplifts the sharer and the listener.
  • 44. • Why do Cancer Journey Sharing? Cancer Journey Sharing There’s a saying that goes, “Gaining knowledge is the first step to wisdom, sharing it is the first step to humanity.”
  • 45. • Why do Cancer Journey Sharing? Cancer Journey Sharing When patients with cancer speak up about their experiences, they are affecting themselves, as well as other patients, their family and friends, and every person who comes across their stories. They provide a better understanding of how cancer affects one’s life, promoting empathy, as well as inspiration and motivation for overcoming any ordeal.
  • 46. • Why do Cancer Journey Sharing? Cancer Journey Sharing The sense of belongingness and camaraderie gives us hope and strength to outlast the toughest challenge, no matter what that may be. https://conquer-magazine.com/web- exclusives/735-how-sharing-your-cancer-story- can-have-a-positive-impact
  • 47. Example of Cancer Journey Sharing Cancer Journey Sharing Link: Cancer Journey Sharing – ROJoson Cancer Crusaders Club https://sites.google.com/view/cancerjourneysha ringrojosonccc
  • 48. Example of Cancer Journey Sharing Cancer Journey Sharing
  • 49. Contents of PEP Talk: • What is a Cancer Journey Sharing? • What are the benefits that can be derived from Cancer Journey Sharing? • When to do a Cancer Journey Sharing? • To whom to share the cancer journey? • What are the media that can be used to share the cancer journey? • What should be the contents of Cancer Journey Sharing? (Sharing Process – ROJoson’s Template) • What are some tips on Cancer Journey Sharing? Cancer Journey Sharing Why do CANCER JOURNEY SHARING? Summary Take Away
  • 50. Cancer Journey Sharing Take Away in relation to Patient Empowerment Be always in touch with reliable medical information on CANCER JOURNEY SHARING. Knowledge is power; it gives power. Use the 4Ks of Patient Empowerment: Kaalaman, Kakayanan, Karapatan and Kapangyarihan to gain greater control over decisions in determining when to do CANCER JOURNEY SHARING.
  • 51. Empowerment objective - for laypeople to have an understanding of the importance of CANCER JOURNEY SHARING in health management. Cancer Journey Sharing
  • 52. Reminder after the PEP Talk: Take the Online Learning cum Evaluation Test Exercise (OLETE) for mastery of learning and have a perfect score to get a Certificate. Link is in Chat Box.
  • 53. Reminder: 50 OLETE Certificates = 1 Voucher for ROJoson Telemedical Consultation
  • 54. Empowerment objective - for laypeople to have an understanding of the importance of CANCER JOURNEY SHARING in health management. Cancer Journey Sharing ROJOSON’S REQUEST: FEEDBACK TO THIS PEP TALK! Pls. type in your feedback in the chat box during the open forum and before we part ways! I NEED THE FEEDBACK TO DECIDE WHETHER TO CONTINUE OR STOP PEP TALK! Thank you!
  • 55. Empowerment objective - for laypeople to have an understanding of the importance of CANCER JOURNEY SHARING in health management. Cancer Journey Sharing Welcome all! Mabuhay! LET’S NOW HAVE A GROUP PICTURE TAKING BEFORE WE START Q&A AND INTERACTIONS! Pls. turn on your video! Show your face!