Go GOLD in September for Kids!
•Download as PPTX, PDF•
1 like•247 views
Childhood cancer is the #1 disease killer of children but receives only 4% of the NCI's budget. Private foundations & volunteers are filling in the funding gaps. In the last 20 years, only 2 new drugs have been developed specifically for kids. They deserve better! 43 kids will be diagnosed today & 7 will die. Get your gold on to show that you're aware. Be brave, be bold, GO GOLD!
Recommended
More Related Content
Viewers also liked
Recently uploaded
Recently uploaded (20)
Go GOLD in September for Kids!
- 5. 1 in 285
- 6. Symptoms
- 15. Radiation Oncology Anesthesia Team
- 20. December 7, 2009 Got chemo on his 4th birthday
- 22. Current Affairs
- 23. 4x> 20x<
- 26. 2 in 20
- 27. What can I do?
- 28. September Childhood Cancer Awareness Month
- 31. #StepUp 1. Accoblorg.org 2. Print sign 3. Take #StepUpSelfie 4. Post
- 33. Awareness = =
- 36. Thank you!
Editor's Notes
- We learn by telling and listening to stories. Tonight, I am going to tell you mine. Think about someone you love- Mom, dad, sibling, grandparent. They get diagnosed with cancer. They have no symptoms, it comes from nowhere And it’s already spread It’s Friday at 5pm You have to start chemo on Monday And the chemo that they will give your loved one Is for a different diagnosis and was developed 20 years ago And now imagine that that person is a child Niece, nephew, cousin, someone you babysat 46 children were diagnosed with cancer today On December 12, 2008, my three year old son was one of them
- Dxed w/ Stage 4 Embryonal Rhabdomyosarcoma Cancer of soft muscle tissue
- This is one of my favorite photos from Tx Shows how young & innocent he was
- Worldwide, a child is diagnosed with cancer every three minutes
- 1 in 285 children will be diagnosed with cancer before the age of 20 -CHOP
- CC symptoms present as other things runny nose, fever, abdominal pain So kids often go undiagnosed
- 80% of children are metastatic at diagnosis Stage 3- local Stage 4- distant, multiple Greatly reduces long term prognosis
- CC is #1 disease killer of children Kills more than AIDS, CF, asthma, diabetes, & all genetic anomalies combined
- Kids are diagnosed earlier in life Lose more years to cancer than average adult Kids don’t get lung, breast, prostate cancer
- Why am I telling you this? Why should YOU care? Nurses were part of our experience from the beginning Nurse at initial pediatrician appt. Febrile seizure Nurse “Marshmallow,” MSN, RN, NP Our nurse at UM Cancer Center She was with us, from beginning to end! Also runs survivor clinic
- Double lumen broviak Notice band-aids on each leg From daily injections of Neupogen Hand-washing, maintaining sterile field, sterile gloving, biohazards, blood draws, injections
- NURSES taught us how to do all of this
- July 2009 104.8 fever Multiple bacteria in both lumens Nurses listen, draw labs
- 70 weeks of treatment 7 different chemotherapy agents Nurses hang all the chemo This is Doxorubicin
- CRNA team for radiation All this equipment was brought in each time
- Radiation machine and Luke’s bed 28 days of radiation w/full sedation
- Nurse Marion- Spartan Nurse from the AO program! September 2009- last inpatient chemo
- Oncologist, NP, resident See Luke’s lion, Mike Learn abt interdisciplinary communication It’s real and important
- Cancer impacts the whole family Nurses were critical to our education Psycho-social impact of Dx on our family unit
- From this….
- To this Cancer free since October 2009 5 yr survival rate is ~35% 46 Mommas Shave for the Brave Event, September 2011
- As parent to survivor, I am committed to raising awareness Before my own son was diagnosed, I didn’t know Now I know So I can’t go back
- CC is 4x more prevalent than pediatric AIDS But gets 20x LESS funding
- Piece of the pie
- ALL childhood cancers- 13 of them leukemia, sarcomas, kidney, eye, liver, spine & brain tumors combined
- TWO new peds-specific drugs have been developed in last 20 years Dr. Amy Hoffman lung cancer researcher here. Got talking abt Luke. Meds he got “we give those to adult lung cancer patients.”
- Be aware Let awareness inform your practice Listen to your patients Be an ally
- Get your Gold on! Wear ribbon Pin
- Use your voice! Be an advocate! Write/Tweet your congress person Visiting Capitol Hill After 46 Mommas 2011 Shave September 22, 2011
- Support a childhood cancer specific organization St B and CureSearch fund research Others do research & family support Lemonade stand, dance marathon, raffles, etc
- Shave your head? 46 Mommas Shave for the Brave July 29, 2012 Yes, that is Jason Winston George from Grey’s Anatomy
- Awareness=funding=research
- = survivors
- Every child and their sibling should get a “first day of school” Luke has been off treatment since March 2010 5 years off treatment= remission Follow-up until he is 18