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REMAKING THE
ELECTRONIC HEALTH
RECORD
Response to the Broken Promises of
the EHR
PETER N. MADRAS, MD
DISCLOSURE
WHERE DID MY OPINIONS COME FROM?
DISCLOSURE
WHERE DID MY OPINIONS COME FROM?
Asentral Inc Medical Record Bank
The Great Computerization
Failure
THE UNFULFILLED PROMISES OF THE EMR
MAY BE THE GREATEST FAILURE IN
COMPUTERIZATION HISTORY:
◦ Adoption
◦ Interoperability
Care Integration
Cost Reduction
Cost Recovery
◦ Patient Safety
◦ Practice Efficiency
◦ Patient Engagement
◦ Computerized Reports
Gingrich and Kennedy
New York Times May 3, 2004
$7.3 Trillion over next decade
Prevent half of 98,000 deaths from
errors
Kellerman and Jones:
Rand Corporation 2005
Saving $81 Billion Annually
The Great EMR Promises:
Cost Reduction
The Great EMR Failures:
Savings
1. No change in the slope of the
overall health cost curve
2. Office of National Coordinator
Beaurocracy of HITECH,
Meaningful Use
4. Enormous Burden on Hospitals
and caregivers
The Great EMR Promises: Improved
Quality and Safety
IOM 2001: Identified Communication
between providers as a critical area in
patient safety, and called for EMRs as
means of achieving this goal.
◦ General assumption that the EMR would
enhance communication and thereby
agreement between providers.
The Great EMR Failure: Improved
Quality and Safety
Reality: Decreased “Face to Face Time”
Pre-post study of EPIC showed decreased face-to-face
communication, worsened overall agreement. “.. (Online BMJ
Quality and Safety from Tampa General Hospital April 2014)
The Great EMR Failure: Improved
Quality and Safety
The Great EMR Promises:
Adoption
1.Provider Adoption:
Only 40% of MDs and 27% of hospitals are
using at least a basic EMR system, and
2. Patient Adoption:
1. 90% Respond that they should have full access
2. 42% Signed up when offered
3. 20% viewed their records more than once.
What It Will Take to Achieve the As-Yet-Unfulfilled
Promises of Health Information Technology Kellerman and
Jones of the RAND Corporation, HEALTH AFFAIRS 32, NO. 1 (2013): 63–
68:
The Great EMR Failures:
Adoption
The Great EMR Failures: Adoption
Physician Impression of
Electronic Medical Record
Failure to Adopt:
Physician Impressions of
Electronic Medical Record
2012 2013
Unfavorable
Very
Favorable
Unfavorable
Very
Favorable
12.4 5.4 16.1 3.3
PARTIAL LIST OF REASONS FOR
POOR ADOPTION
Interference with the Practice of Medicine.
Physician as a data-entry person
Protocols and Algorithms.
Software Straightjacket
Computerized Notes, Discharge Summaries, Consults
Patient Resentment
Rigid Algorithms, Standards of Care,
Unfriendly Software
Excessive Training time for additional burdens
THE GREAT EMR PROMISES:
INTEROPERABILITY
Many Definitions:
◦ HAVING ALL NEEDED MEDICAL INFORMATION
WHEREVER AND WHENEVER NEEDED
“Prime Directive” of computerizing
medical records. All other functions are
“nice to haves” but pale in importance.
ASCENDANCY OF PRIVACY
1890 - 1965
FROM
The right to
privacy
TO
RIGHT OF
PRIVACY
TO
CAUSE OF
PRIVACY
1965 - 2014 2003 -2014
From a Right
to a Cause
“The increasing sophistication of
information technology with its
capacity to collect, analyze, and
disseminate information on
individuals has introduced a sense of
urgency to the demand for
legislation”.
TECHNOLOGY AND LIBERTY
The ACLU’s Project on Speech, Privacy and Technology
“One of the project’s major
initiatives…is focused on
updating and expanding
privacy laws to include new
developments in
technology….”
Are New Technologies the Enemy of
Privacy?
◦ “Privacy always has been and needs to be
weighed against other goods (benefits)
without an apriori assumption that privacy
must trump all other considerations”
◦ Amital Etzioni Know Techn Pol (2007) 20:115-119
RESOLVING THE PRIVACY –
INTEROPERABILITY STANDOFF
REMAKING THE EMR:
A CLOUD BASED MEDICAL RECORD UNDER
PATIENT CONTROL
Criteria for Success:
◦ Present all relevant Medical Information wherever
and whenever needed.
◦ Present such information in simple and intuitive
form.
◦ Make no demands on physician practice patterns
Allow physician’s undivided attention to the
patient
◦ Devoid of extraneous features
REMAKING THE EMR:
PATIENT CONTROL
Basis
◦ HIPAA states that patients own their
medical information,
◦ A computer based system can guide the
patient, surrogate or counselor in:
Every aspect of Health Data Collection,
Assembly, Storage
Controlling access to maintain privacy
◦ Patient, Surrogate, Caregiver, Family
COMPONENTS OF A PATIENT
CONTROLLED MEDICAL RECORD
1. Software Driven, easily
understood and handled by the
patient or surrogate.
2. Provides the Method for
◦ Record Acquisition of Every Encounter
◦ Assembly, classification and storage of every
record.
◦ Accessing record as allowed by the client.
3. Allows Diary entries related to
status between visits.
Remaking the Record
REMAKING THE EMR:
USELESS EXTRANEOUS FEATURES
Digitized History and Physicals
Scheduling
Billing
Automated Notes
Conflating Hospital Records with
Individual’s Health Record
REMAKING THE EMR:
CONCLUSIONS.
The Patient Controlled
Medical Record can be:
Simpler
More Comprehensive
No Demands on the physician
Minimal, if any cost to the health
care system.

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Remaking The Electronic Health Record

  • 1. REMAKING THE ELECTRONIC HEALTH RECORD Response to the Broken Promises of the EHR PETER N. MADRAS, MD
  • 2. DISCLOSURE WHERE DID MY OPINIONS COME FROM?
  • 3. DISCLOSURE WHERE DID MY OPINIONS COME FROM? Asentral Inc Medical Record Bank
  • 4. The Great Computerization Failure THE UNFULFILLED PROMISES OF THE EMR MAY BE THE GREATEST FAILURE IN COMPUTERIZATION HISTORY: ◦ Adoption ◦ Interoperability Care Integration Cost Reduction Cost Recovery ◦ Patient Safety ◦ Practice Efficiency ◦ Patient Engagement ◦ Computerized Reports
  • 5. Gingrich and Kennedy New York Times May 3, 2004 $7.3 Trillion over next decade Prevent half of 98,000 deaths from errors Kellerman and Jones: Rand Corporation 2005 Saving $81 Billion Annually The Great EMR Promises: Cost Reduction
  • 6. The Great EMR Failures: Savings 1. No change in the slope of the overall health cost curve 2. Office of National Coordinator Beaurocracy of HITECH, Meaningful Use 4. Enormous Burden on Hospitals and caregivers
  • 7. The Great EMR Promises: Improved Quality and Safety IOM 2001: Identified Communication between providers as a critical area in patient safety, and called for EMRs as means of achieving this goal. ◦ General assumption that the EMR would enhance communication and thereby agreement between providers.
  • 8. The Great EMR Failure: Improved Quality and Safety Reality: Decreased “Face to Face Time” Pre-post study of EPIC showed decreased face-to-face communication, worsened overall agreement. “.. (Online BMJ Quality and Safety from Tampa General Hospital April 2014)
  • 9. The Great EMR Failure: Improved Quality and Safety
  • 10. The Great EMR Promises: Adoption
  • 11. 1.Provider Adoption: Only 40% of MDs and 27% of hospitals are using at least a basic EMR system, and 2. Patient Adoption: 1. 90% Respond that they should have full access 2. 42% Signed up when offered 3. 20% viewed their records more than once. What It Will Take to Achieve the As-Yet-Unfulfilled Promises of Health Information Technology Kellerman and Jones of the RAND Corporation, HEALTH AFFAIRS 32, NO. 1 (2013): 63– 68: The Great EMR Failures: Adoption
  • 12. The Great EMR Failures: Adoption
  • 13.
  • 15. Failure to Adopt: Physician Impressions of Electronic Medical Record 2012 2013 Unfavorable Very Favorable Unfavorable Very Favorable 12.4 5.4 16.1 3.3
  • 16. PARTIAL LIST OF REASONS FOR POOR ADOPTION Interference with the Practice of Medicine. Physician as a data-entry person Protocols and Algorithms. Software Straightjacket Computerized Notes, Discharge Summaries, Consults Patient Resentment Rigid Algorithms, Standards of Care, Unfriendly Software Excessive Training time for additional burdens
  • 17. THE GREAT EMR PROMISES: INTEROPERABILITY Many Definitions: ◦ HAVING ALL NEEDED MEDICAL INFORMATION WHEREVER AND WHENEVER NEEDED “Prime Directive” of computerizing medical records. All other functions are “nice to haves” but pale in importance.
  • 18.
  • 19. ASCENDANCY OF PRIVACY 1890 - 1965 FROM The right to privacy TO RIGHT OF PRIVACY TO CAUSE OF PRIVACY 1965 - 2014 2003 -2014
  • 20. From a Right to a Cause “The increasing sophistication of information technology with its capacity to collect, analyze, and disseminate information on individuals has introduced a sense of urgency to the demand for legislation”.
  • 21. TECHNOLOGY AND LIBERTY The ACLU’s Project on Speech, Privacy and Technology “One of the project’s major initiatives…is focused on updating and expanding privacy laws to include new developments in technology….”
  • 22. Are New Technologies the Enemy of Privacy? ◦ “Privacy always has been and needs to be weighed against other goods (benefits) without an apriori assumption that privacy must trump all other considerations” ◦ Amital Etzioni Know Techn Pol (2007) 20:115-119 RESOLVING THE PRIVACY – INTEROPERABILITY STANDOFF
  • 23. REMAKING THE EMR: A CLOUD BASED MEDICAL RECORD UNDER PATIENT CONTROL Criteria for Success: ◦ Present all relevant Medical Information wherever and whenever needed. ◦ Present such information in simple and intuitive form. ◦ Make no demands on physician practice patterns Allow physician’s undivided attention to the patient ◦ Devoid of extraneous features
  • 24. REMAKING THE EMR: PATIENT CONTROL Basis ◦ HIPAA states that patients own their medical information, ◦ A computer based system can guide the patient, surrogate or counselor in: Every aspect of Health Data Collection, Assembly, Storage Controlling access to maintain privacy ◦ Patient, Surrogate, Caregiver, Family
  • 25. COMPONENTS OF A PATIENT CONTROLLED MEDICAL RECORD 1. Software Driven, easily understood and handled by the patient or surrogate. 2. Provides the Method for ◦ Record Acquisition of Every Encounter ◦ Assembly, classification and storage of every record. ◦ Accessing record as allowed by the client. 3. Allows Diary entries related to status between visits.
  • 27. REMAKING THE EMR: USELESS EXTRANEOUS FEATURES Digitized History and Physicals Scheduling Billing Automated Notes Conflating Hospital Records with Individual’s Health Record
  • 28. REMAKING THE EMR: CONCLUSIONS. The Patient Controlled Medical Record can be: Simpler More Comprehensive No Demands on the physician Minimal, if any cost to the health care system.

Editor's Notes

  1. Doubled Since 1912
  2. In other words, the computer is not a tool which helps the physician do his or her job. It is actually a hindrance to the job, an interference in the examining room and a means for administrators, legislators, software engineers, and others who are not practicing medicine to force the practitioners to adopt methods which these non-practitioners feel to be important.