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La prevenzione nei media
 responsabilità o business?
Eugenio Santoro
eugenio.santoro@marionegri.it

Partecipasalute
Laboratorio di Informatica Medica
Istituto di Ricerche Farmacologiche “Mario Negri”, Milano

                   Festival internazionale del giornalismo
                   Perugia, 2 aprile 2009
Sources used to find or access health information


                     Internet

                      Doctor

            Relatives/Friends

        Newspaper/Magazines

                   Television

                  Pharmacist

                       Nurse

 Someone with same condition

           Pharma Companies

Disease Assoc./Support groups


                                0%   10         20         30            40           50           60




       Fonte: iCrossing. How America searches: health and wellness. Gennaio 2008
                                                                Eugenio Santoro, Istituto Mario Negri
Quali strumenti per trovare info mediche in Internet


    Motori di ricerca generalisti
                  Portali sanitari
                    Social media
       Siti di società scientifiche
Portali di assicurazioni sanitarie
   Portali giornalistici e di news
   Motori di ricerca specialistici
              Portali istituzionali
   Siti di aziende farmaceutiche
                  Siti di ospedali
Siti per la promozione di farmaci

                           %          0   10      20      30         40        50       60        70




      Fonte: iCrossing. How America searches: health and wellness. Gennaio 2008
                                                               Eugenio Santoro, Istituto Mario Negri
Online tools and resources used to
                  locate health information

           General search engines
                     Health portals
                       Social media
Disease/condition association sites
                       Health plans
                         News sites
    Health specific search engines
                Governement sites
            Pharma company sites
                      Hospital sites
               Drug advertisement

                         %             0    10      20     30       40       50       60       70




     Fonte: iCrossing. How America searches: health and wellness. Gennaio 2008
                                                            Eugenio Santoro, Istituto Mario Negri
Prevention
Medical associations




       Eugenio Santoro, Istituto Mario Negri
Web TV – Prevention




                      Eugenio Santoro, Istituto Mario Negri
Prevention
Pharma companies




Eugenio Santoro, Istituto Mario Negri
Affidabilità delle informazioni
           su YouTube

• Rischi e benefici dei vaccini e delle vaccinazioni*
• Analisi di 153 video
• 52% messaggi ambigui o negativi (metà di questi
  contro linee guida internazionali)
• Tutti i video “positivi” aderiscono alle linee guida
• I messaggi negativi più visti e più votati (e con valori
  più elevati) di quelli positivi

• I contenuti meno affidabili hanno maggiori possibilità
  di diffusione
*Jama 2007; 298: 2482-4


                                          Eugenio Santoro, Istituto Mario Negri
Prevention – Users collaboration




      Mar 2009                     Nov 2008
                       Eugenio Santoro, Istituto Mario Negri
Confronto dati Goolgle Flu
      Trends – CDC
   periodo 2004-2008




                   Eugenio Santoro, Istituto Mario Negri
Blogs for patients




               Eugenio Santoro, Istituto Mario Negri
Social network – Patients and consumers



                       “Around 3,000 to 5,000 new cases of ALS
                         are diagnosed every year in the United
                          States alone. Imagine knowing every
                      medication, supplement, or device used to
                       treat your disease. Imagine knowing what
                      treatments work for people just like you —
                         and having the ability to easily connect
                          with those people. That’s what makes
                        PatientsLikeMe different. Patients share
                       their treatments and outcomes not just to
                           help themselves, but to help others.
                         Become part of making a difference for
                                everyone with ALS today. “




                                  Eugenio Santoro, Istituto Mario Negri
Wikipedia as source of information for disease prevention?




        Ann Pharmacother 2008; 42: 1814-21


        “Wikipedia was able to answer
     significantly fewer drug information
  questions (40%) compared with Medscape
           Drug Reference (82.5%)”

                       “Wikipedia may be a useful point of engagement
                          for consumers, but is not authoritative and
                   should only be a supplemental source of drug information”


                                                   Eugenio Santoro, Istituto Mario Negri
Web 2.0 e medicina
http://www.pensiero.it/ecomm/pc/viewPrd.asp?idproduct=349




Santoro E. “web 2.0 e medicina”. Roma 2009,
       Il Pensiero Scientifico editore


                                           Eugenio Santoro, Istituto Mario Negri
Grazie




         Eugenio Santoro, Istituto Mario Negri

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Social media e prevenzione in sanità

  • 1. La prevenzione nei media responsabilità o business? Eugenio Santoro eugenio.santoro@marionegri.it Partecipasalute Laboratorio di Informatica Medica Istituto di Ricerche Farmacologiche “Mario Negri”, Milano Festival internazionale del giornalismo Perugia, 2 aprile 2009
  • 2. Sources used to find or access health information Internet Doctor Relatives/Friends Newspaper/Magazines Television Pharmacist Nurse Someone with same condition Pharma Companies Disease Assoc./Support groups 0% 10 20 30 40 50 60 Fonte: iCrossing. How America searches: health and wellness. Gennaio 2008 Eugenio Santoro, Istituto Mario Negri
  • 3. Quali strumenti per trovare info mediche in Internet Motori di ricerca generalisti Portali sanitari Social media Siti di società scientifiche Portali di assicurazioni sanitarie Portali giornalistici e di news Motori di ricerca specialistici Portali istituzionali Siti di aziende farmaceutiche Siti di ospedali Siti per la promozione di farmaci % 0 10 20 30 40 50 60 70 Fonte: iCrossing. How America searches: health and wellness. Gennaio 2008 Eugenio Santoro, Istituto Mario Negri
  • 4. Online tools and resources used to locate health information General search engines Health portals Social media Disease/condition association sites Health plans News sites Health specific search engines Governement sites Pharma company sites Hospital sites Drug advertisement % 0 10 20 30 40 50 60 70 Fonte: iCrossing. How America searches: health and wellness. Gennaio 2008 Eugenio Santoro, Istituto Mario Negri
  • 5. Prevention Medical associations Eugenio Santoro, Istituto Mario Negri
  • 6. Web TV – Prevention Eugenio Santoro, Istituto Mario Negri
  • 8. Affidabilità delle informazioni su YouTube • Rischi e benefici dei vaccini e delle vaccinazioni* • Analisi di 153 video • 52% messaggi ambigui o negativi (metà di questi contro linee guida internazionali) • Tutti i video “positivi” aderiscono alle linee guida • I messaggi negativi più visti e più votati (e con valori più elevati) di quelli positivi • I contenuti meno affidabili hanno maggiori possibilità di diffusione *Jama 2007; 298: 2482-4 Eugenio Santoro, Istituto Mario Negri
  • 9. Prevention – Users collaboration Mar 2009 Nov 2008 Eugenio Santoro, Istituto Mario Negri
  • 10. Confronto dati Goolgle Flu Trends – CDC periodo 2004-2008 Eugenio Santoro, Istituto Mario Negri
  • 11. Blogs for patients Eugenio Santoro, Istituto Mario Negri
  • 12. Social network – Patients and consumers “Around 3,000 to 5,000 new cases of ALS are diagnosed every year in the United States alone. Imagine knowing every medication, supplement, or device used to treat your disease. Imagine knowing what treatments work for people just like you — and having the ability to easily connect with those people. That’s what makes PatientsLikeMe different. Patients share their treatments and outcomes not just to help themselves, but to help others. Become part of making a difference for everyone with ALS today. “ Eugenio Santoro, Istituto Mario Negri
  • 13. Wikipedia as source of information for disease prevention? Ann Pharmacother 2008; 42: 1814-21 “Wikipedia was able to answer significantly fewer drug information questions (40%) compared with Medscape Drug Reference (82.5%)” “Wikipedia may be a useful point of engagement for consumers, but is not authoritative and should only be a supplemental source of drug information” Eugenio Santoro, Istituto Mario Negri
  • 14. Web 2.0 e medicina http://www.pensiero.it/ecomm/pc/viewPrd.asp?idproduct=349 Santoro E. “web 2.0 e medicina”. Roma 2009, Il Pensiero Scientifico editore Eugenio Santoro, Istituto Mario Negri
  • 15. Grazie Eugenio Santoro, Istituto Mario Negri