Conservative treatments of Charcot Marie Tooth disease are ineffective because they do not stabilize the foot and aligned it properly. With Surgery treatment can repair all these problems, making plantigrade feet and well aligned. When transferring tendons of muscles that work, we prevent the re-deformation. In cases of complete paralysis we can also transfer tendons back of the foot to act as a spacer preventing the fall in the equine foot.
3. Conservative treatments of Charcot Marie Tooth disease are
ineffective because they do not stabilize the foot and aligned it
properly. With Surgery treatment can repair all these problems,
making plantigrade feet and well aligned. When transferring tendons
of muscles that work, we prevent the re-deformation. In cases of
complete paralysis we can also transfer tendons back of the foot to
act as a spacer preventing the fall in the equine foot.
After undergoing surgery to correct deformities caused by the
disease, it is necessary a process of rehabilitation to regain mobility
and strength in the joints, so that allows to walk again normally.
Recovery treatment may be prolonged for a period of about 6 months.
Patients should operate an intensive physiotherapy program to
increase the strength of leg muscles and restore flexibility.
4. Physiotherapists are specialists in how the human body functions and
moves. They are specially trained to understand how the joints,
muscles, tendons and ligaments of the body work together and to spot
any problems.
Although physiotherapists (often called physios) cannot stop the
progression of CMT, they can often spot a potential problem – like any
stress you may be putting on other joints like your knees or hips –
early enough so that it can be treated and, possibly, prevented. This
can help prevent secondary weakness causing other problems.
American College of Sports Medicine, through its “Exercise is
Medicine” (EIM) incorporate as objective the assessment of physical
activity and exercise prescription as a standard clinical method for the
prevention and treatment of disease. No doubt, the objectives
described include patients with Charcot-Marie-Tooth (CMT).
5. Exercise and physical activity are safe and effective for children and
adults with chronic diseases such as CMT. In fact, organizations like
the American Medical Association, the Institute of Sports Medicine,
the United States Department of Health and Human Services and the
Office of the Surgeon General of the United States recognizes that
children and adults with diseases and chronic disabilities should
practice regularly exercise and physical activity.
Below are some frequently asked questions about exercise and
physical activity for patients with CMT:
1. Who should do exercise?
Both children and adults can do, should practice regular physical
activity and exercise.
6. They could be considered another kind of exercises and activities,
including:
●
Riding a bicycle;
●
Swimming;
●
Resistance exercises (where children use their own body weight,
elastic bands, machine and hand weights);
●
Certain martial arts (such as tai chi).
Furthermore, it should encourage children with CMT to participate in
appropriate forms of play. Adults with CMT should also be involved in
some aerobic exercises and muscle and bone strength.
It is recommended to practice 150 minutes of physical activity and
aerobic exercise per week. This activity should be done in periods of
moderate physical activity. The exercises and activities of bone and
muscle strengthening should be practiced at least two days a week.
7. Some examples of activities and exercises with less impact are:
●
Stationary bikes, tandem and semihorizontales, elliptical
machines, rowing machines;
●
Swimming;
●
Aerobics;
●
Vigorous gardening (with components such as digging and lifting);
●
Housework (eg sweeping, washing and putting away groceries);
●
Resistance exercises (with bands, machines, dumbbells and / or
resistance exercises body weight);
●
Yoga;
●
Tai Chi.
Adult patients with CMT should avoid inactivity. Therefore, practice a
little physical activity is better than doing nothing.
8. ¿Do you suffer from Charcot Marie Tooth disease? Learn
everything you need to know about to find the best
treatment for your case.
Charcot Marie Tooth is a hereditary peripheral neuropathy with
different variants which requires a very specific type of treatment to
be carried out by a specialist. If you suffer this disease in the Guide
you will find everything you need to know about how to find the best
treatment for you.